@bulldogwon Thank you :) Brooklyn's doing great! We were told she'd never suck on a pacifier, never drink from a bottle, or be able to be nursed. SHE'S DONE ALL THREE!!!!! We are so happy that she is developing so well. She had a treach and G-Tube put in. Both procedures went well and she is growing normally.
It's kids like you that give me hope for future generations. Thank you for helping to of your part spreading awareness about this rare disease. You're a very intelligent young man; please don't change. Small things like this may not seem like much but if you can affect one person or make one person less ignorant, than you've done a job well done. I know I'm a little late on the uptake here but I felt the need to give you the praise you deserve.
@LadyGrinningSoul thank you very much i really do apperciate this comment and everything this entails which is that people in this world do care and hear other peoples opions so dont go unheard...thank you
Also, your response to Sn1's comment? Proves you are a very wise young man with a good head on your shoulders. Most would step down to that level and reply looking for a battle. You won without having to do that. Good on you! All the best in everything you do.
Hi, my son who is now almost 11 weeks has been diagnosed with Treacher Collins Syndrome. I'd never heard of this syndrome until the paediatricians had told me about my sons condition. For you to acknowledge this illness at such a young age and be aware about it through someone elses testimony shows your maturity and heart. We need more people like you in this world. Im sad to say that most of the time people are not aware of things until it happens to them or to someone close to them.
@gmai010 i am very sorry to hear about your son and wish you and him the best of luck in life. and again it means a lot to have people who are nice and dont make fun of me. so thnk you very much
@Mustyrat I agree whole heartedly! If anything, the fact that he even bothered to post this vid should be applauded. It's people like Sn1... yadda, yadda, yadda that make our youth feel as if they should be seen and not heard... and as far as I am concerned... he DID spell it right!
@cvoc37 thnk you very much for your kind comment . and i wont go unseen or unheard if it means anything partially because of commenters like you and the other nice people on this website
listen kid.. i know your young, and your trying to help but just post her videos. Your video says nothing... and its even mis spelled the syndrome she has. The syndrome is tReacher collins syndrome. Not TEACHER :S. id urge you to take this video down its very insensitive. All you basically say is look at this poor girl.. she has *wrong name* syndrome. the fact is alot of these ppl are better adjusted then most. pls take this video down
i am sorry about spelling it wrong i am bad at spelling I did not mean to be insenstive i was trying to spread the word about this disorder sorry if I offended you or anyone else
Just the fact that you did this shows that you are very intelligent for your age. Awesome, well done bro :-)
tentimetex 1 month ago
Thank you for making this video, my cousin Brooklyn was just born and she was diagnosed with this syndrome.
aaChikOnCrak 8 months ago
@aaChikOnCrak your very welcome and i wish nothing less then the best for her...she will be in my prayers
bulldogwon 7 months ago
@bulldogwon Thank you :) Brooklyn's doing great! We were told she'd never suck on a pacifier, never drink from a bottle, or be able to be nursed. SHE'S DONE ALL THREE!!!!! We are so happy that she is developing so well. She had a treach and G-Tube put in. Both procedures went well and she is growing normally.
Thanks again!!!!
Love you Brooklyn, keep fighting!!!!
aaChikOnCrak 7 months ago
@aaChikOnCrak i am soooo happy to hear that!! i really do wish her along with yourself and your family the best in life. God bless you
bulldogwon 7 months ago
It's kids like you that give me hope for future generations. Thank you for helping to of your part spreading awareness about this rare disease. You're a very intelligent young man; please don't change. Small things like this may not seem like much but if you can affect one person or make one person less ignorant, than you've done a job well done. I know I'm a little late on the uptake here but I felt the need to give you the praise you deserve.
LadyGrinningSoul 1 year ago 3
@LadyGrinningSoul thank you very much i really do apperciate this comment and everything this entails which is that people in this world do care and hear other peoples opions so dont go unheard...thank you
bulldogwon 1 year ago
Also, your response to Sn1's comment? Proves you are a very wise young man with a good head on your shoulders. Most would step down to that level and reply looking for a battle. You won without having to do that. Good on you! All the best in everything you do.
gmai010 1 year ago
@gmai010 thank you very much for your comment it really means more than you know to me that through all the bullies there are people who care.
bulldogwon 1 year ago
Hi, my son who is now almost 11 weeks has been diagnosed with Treacher Collins Syndrome. I'd never heard of this syndrome until the paediatricians had told me about my sons condition. For you to acknowledge this illness at such a young age and be aware about it through someone elses testimony shows your maturity and heart. We need more people like you in this world. Im sad to say that most of the time people are not aware of things until it happens to them or to someone close to them.
gmai010 1 year ago
@gmai010 i am very sorry to hear about your son and wish you and him the best of luck in life. and again it means a lot to have people who are nice and dont make fun of me. so thnk you very much
bulldogwon 1 year ago
Hey man. Atleast this kid cares. 99% of kids dont give a poo.
Mustyrat 2 years ago 14
@Mustyrat I agree whole heartedly! If anything, the fact that he even bothered to post this vid should be applauded. It's people like Sn1... yadda, yadda, yadda that make our youth feel as if they should be seen and not heard... and as far as I am concerned... he DID spell it right!
cvoc37 1 year ago 2
@cvoc37 thnk you very much for your kind comment . and i wont go unseen or unheard if it means anything partially because of commenters like you and the other nice people on this website
bulldogwon 1 year ago
@Mustyrat ik its kinda late but thnk you for the comment
bulldogwon 1 year ago
@Mustyrat i know its supper late but thank you very much
bulldogwon 3 months ago
listen kid.. i know your young, and your trying to help but just post her videos. Your video says nothing... and its even mis spelled the syndrome she has. The syndrome is tReacher collins syndrome. Not TEACHER :S. id urge you to take this video down its very insensitive. All you basically say is look at this poor girl.. she has *wrong name* syndrome. the fact is alot of these ppl are better adjusted then most. pls take this video down
Sn1p3ro3o5 2 years ago
i am sorry about spelling it wrong i am bad at spelling I did not mean to be insenstive i was trying to spread the word about this disorder sorry if I offended you or anyone else
bulldogwon 2 years ago