"not pretty bad - i'm used to it(pain)" no child should have to be used to THAT! people donate! help change the lives of these children for the better!
I would like so help the research or EB... I was born 24 years ago and diagnosed with EBS type. I am absolutely normal today but I think something in my system might be nurishing for the research...
Please join us in October for "Walk a Mile in My Shoes" Relay-Rally for National EB Awareness Week, our first national awareness event, crossing the U.S. from New York to California.
Join the Relay at any point, for any distance; attend one of EIGHT Rallies; or participate in other activities and fundraising efforts. This campaign is supported by DebRA of America and EB Medical Research Foundation! Just google the words "epidermolysis" and "relay" and you will find us!
This has been flagged as spam show
Hello to all Butterfly people,
I am a multidisciplinary natural therapist.
Has anybody tried Homeopathy, Homeobotanical Therapy, Flower, Gem Minaral or Shell Essences?
In combination with Traditional Chinese Medicine, Laser Acupuncture, concentrated nutrients and or Photon therapy?
Has anybody employed Iridology/Sclerology to 'see' what the eye might reveal that the medical system may have missed or not identified?
Regards
Steve Benedyka
stevebenedyka@hotmail.com
Ph NZ 0272582336
Multidisciplinary 5 months ago
When the lady said that some kids won't live to see there 20 there wrong.I just turned 21 in April I have Epidermolysis Bullosa dystrophic
SPANISHROCK88 2 years ago
@SPANISHROCK88 I think the key word is 'some'. Given that a lot of babies with EB die within the first year, that statement rings pretty true.
bloodiedXangel 10 months ago
@bloodiedXangel
yea your right
SPANISHROCK88 10 months ago
i would like 2 help to i was born with EB simplex
vlaprincessa91 2 years ago
"not pretty bad - i'm used to it(pain)" no child should have to be used to THAT! people donate! help change the lives of these children for the better!
budgiebreder 3 years ago
I would like so help the research or EB... I was born 24 years ago and diagnosed with EBS type. I am absolutely normal today but I think something in my system might be nurishing for the research...
I would love to help
ionit84 3 years ago
Please join us in October for "Walk a Mile in My Shoes" Relay-Rally for National EB Awareness Week, our first national awareness event, crossing the U.S. from New York to California.
Join the Relay at any point, for any distance; attend one of EIGHT Rallies; or participate in other activities and fundraising efforts. This campaign is supported by DebRA of America and EB Medical Research Foundation! Just google the words "epidermolysis" and "relay" and you will find us!
liberty1960 4 years ago
THANK YOU FOR POSTING THIS. Everyone should know about EB!
magicpez 4 years ago