Added: 3 years ago
From: kezzcass
Views: 3,823
Sort by time | Sort by thread (beta)

Link to this comment:

Share to:

All Comments (11)

Sign In or Sign Up now to post a comment!
  • Just wanted to say to anyone viewing this film to see how kerry is doing now after treatment of her CCSVI.

    Also just to let you know kerry this film is being used by the MS society's youth arm SHIFT MS who like the MSS seem to be against all CCSVI information.

    Keep pushing mate, we will get there for the sake of everyone effected by MS/CCSVI. x

  • PLEASE TEL ME WHAT U TAKE I TAKE COPAXONE I DID TAKE AVONE ANT TIPS ALSO LDN JUST STARTED

  • @22bellas Hi, This video is a few years old now and I have taken Betaferon and Tysabri. I am now not taking any MS drugs and have managed without them the last 14 months. I didn't find they worked for me, and I was the sickest I have ever been whilst I was taking them. That's my experience and not everyone is the same. Good luck with LDN - I hope it really helps.

  • Hi, I was diagnosed with ms in feb. 2010. I know that everyones experience is different, but hearing you describe your first symptoms is like you are describing mine. Although it took me about two months to go in to see my dr. I just kept hoping it would go away. But anyway, I just wanted to say that I have watched many of your videos and you are very inspirational to me and always so cheerful! Thank you for sharing you journey with us.

  • Hi Kerri,

    . Our stories are very similar. I had numbness and burning tingling sensations. I woke up one day and both my legs from the knees down were like that.

    It spread very rapidly to where the only part of my body that wasn't numb was the left side of my head and face and part of my left arm.

    This did help some what with my spinal tap, they had to stick me twice and hit a nerve, he did tell me that it was a good thing I was so numb or it would have hurt more!

    I am favorite this video

  • Wow, interesting clip. The health care system moves much more quickly in your country (Australia?) than here in the U.S. Please join my support group on Facebook, the MS Wellness Group. I've been in recovery without medication through nutrition and supplementation and practicing awareness of MS triggers. I had a lot of the symptoms as you initially had, Kerri. My symptoms have resolved almost entirely. All the best, but there is hope for us without medication!

  • Thanks for this Kerri it is interesting to here another persons experience of the trip to hospital I have subscribed and will watch all of your vids, I fell ill in march this year but had other experiences (I will put on the vid) and was told I had MS in may

    this year, 4 months later I am pretty good now and have a lot to tell as well I hope things are well with you! Trev

  • Kerri, Thanks for these videos, and for your reply to my email. I'll write you a proper one when I'm able. Our ages, onset of symptoms, & time of diagnosis are all very close, so I'll be watching your progress, NOT decline. You're tough, Lady! Yeah, the Lumbar Puncture? Uh, no- Cancelled it! (BEFORE I got your E, or watched this, so no worries). We don't need a Dr. with a needle in his eye, now do we? ;) I hope you're doing well, in spite of your relapse. Take care. Brenna

  • Hi Kerri, I just uploaded a video of my own on my MS diagnosis. Thanks so much for posting your videos, I hope you're doing well!

  • Thank you for sharing your story with all of us. I understand how you felt when you were diagnosed with MS because I had a very similar experience. I know it sounds strange, but we are the "lucky" ones because we found out to have MS right away while there are lots of people that wait years before getting the right diagnosis.

    We will find a cure for this disease, dear Kerri. It might take some more time, but we will!

    I will be thinking of you and I wish you the very best.

  • Yes I have heard that Canada has a high incidence of MS. I guess I had a lot of poking and prodding as I was in a teaching hospital and in some ways it was good to hear the verbal banter as it helped to understand what they were looking at/for.

    Is that what that headache is called (spinal migraine)? That was awful and I thought I was going to end up back in hospital also.

  • I hate when they scratch the feet! My neuro does that every visit. You're very lucky that things progressed so quickly for you with your doctors.

    The steroids are horrible too! LOL. You can't sleep!

    That's so odd you had so many different people in to look at you. MS is so common here (Canada) that I think they've seen it so much, that it's business as usual.

    LP is bad. My neurologist handled my LP, and he was fantastic. I was lucky. I got the spinal migraine however and was back in the ER.

Loading...
Alert icon
0 / 00Unsaved Playlist Return to active list
    1. Your queue is empty. Add videos to your queue using this button:
      or sign in to load a different list.
    Loading...Loading...Saving...
    • Clear all videos from this list
    • Learn more