@flamed65. ; suht your mouth & have respect for someone. seriously now. how old are we? 2. whether she's like this or not. you should still have respect.
Hi I have CP as well I have spastic dipligia. thank you for sharing these videos because it will help others understand wht we go through. I was teased when i was younger because others did not understand I hope I can continue to follow you on youtube
your sweet i wish i could be your boy freind or freind i have no one im single i could help im willing to help i dont look on the outside but i allso look on the inside cuse the in side is what matter
@JoeyHD2 i made these videos 2 educate the ignorant. i typed out wut i said in the description. if u cant understand me, rather than feeling sorry 4 me, read the description. same goes 4 the other video u commented on.
Hi, Nicole. Thank you for sharing your videos with us. You are a remarkable young girl, very brave and strong. I have a friend with CP. Just like you, he is very smart ( he was admitted to university). Enjoy your summer. God bless
You are an amazing young woman! I have watched several of your videos and I feel like I now have some knowledge on CP (I am a registered nurse and midwife) I would like to ask you how you go with swallowing food? Is your swallow impaired? Thanks for your great videos Gwenneth
I find your will power and everything incredibly amazing! Your story interests me deeply. Just out of curiosty though, when you go to bed do you have any issues pertaining to your uncontrolable movement?
Great wishes and hope you're having an amazing summer!
@davis3378 thanks. i sleep w/ my hands between my legs so they dont move. plus, i dont move as much when im tired. i never sleep straight through the night & doctors dont know y.
@glnohax excuse me but you seriously need to get out of the prairie days & come back to 2010. disabled people are no different than able-bodied people. apologize or else i will get you banned.
Okay. I hope college was not to difficult and hope that you have a busy summer. I can not wait to hear your plans. Mine is getting out and about to soak up all the sun rays for tan this winter. I feel bad not sending you video so you know what I look like, it does not seem fair that I am asking personal questions along with no face and just words. Oh yeah what are you majoring in? I am glad for your response and chat again soon. BYE
Hey just wondering how you are doing so far with your Baclofen Pump since the date on this video is March 21, 2010. I think since receiving last year you were doing so good are your movements, but on this video looks like the one you did back before you got it. I am also glad to hear your accomplishments in college and can not wait to see video of your graduation. My niece has same disability has you and hope to meet you at one of the conferences throughout US.
okay. I hope college went well for you this year. Do you have a busy summer planned? I wish I had video so you can see who your talking too. I feel weird asking personal questions without knowing what I look like. I hope to chat with you more this summer and get a good tan for winter, I know I will soak up as much sun as I can get.
Fair enough, Nicole! Thanks for answering my question about what you're majoring in...I work in higher education, so I'm always interested in what people are studying. Have a good weekend!
Great video, as always, Nicole! I'd love to know more about what you're studying in college~do you have a "dream job"? Also, you mention your Mom...in your next video I think we'd enjoy knowing more about your family...do you have brothers or sisters?
@sallydan1 thanks! my major is I.T. id love 2 do something involving disabled ppl & adapted computer equipment. however, ill most likely do some sort of tech support.
i think id rather keep the videos solely about me. plus, i dont wanna divulge 2 much info.
some here Nicole nice job on vids i want to say im srry for the facebook stuff i just think its easyer to talk on there :) ::: so 2 things i have been trying to think of ways to help you walk bc/ your chire dose not lot you do a lot :) and i know that a guy out there for you that can help you do what ever you want ( i wood be on of them) but i have one now and i did not find it easy to say everthing i need help but she was open to every thing so keep up the good work ok :)
@powerchairchick well ty so much for geting back to me ya i guess that cool i guess that looking at made my think that well i guess a walker wood not work there so much out there that there has to be some thing for you to try to walk with that will work i think about it every day so im not sure if i need more info but i wil try to come up with some thing see ya
I just also wanted to say that I can understand you relatively well in this video... my compliments for just doing it while it costs you a lot of energy!
oh ok. thanks for answering the question. Thats a good ways to walk. So yeah i would consider that a little bit of a ways to have to walk. Do you use a walker when you have to do that or does someone help you?
np. some1 helps me. i dont own a walker because i dont usually walk far. plus, i feel safer w/ some1 holding me. i cant use a standard walker. i need 1 w/ arm straps because i cant hold on 2 the handles. because my arms r strapped 2 it, if i fell, id fall face 1st. it happened once when i was 11. i had orthodontic braces on & the ended up in my gums & 1 of my teeth turned black. yea, it wasnt fun. lol.
thats a good question. it depends on wut u consider long distances. i used 2 be able 2 walk through a few hallways in 9th grade using a walker in my high school but i i had 2 stop because of bad hip pain. as of now at age 20, the furthest ive walked in a while was when my vans lift broke. i walked from my house 2 my van, from my van 2 a salon & vise versa.
Great video, Nicole!!!!!!!! Thank you very much tor sharing your Day-To-Day Life with us!!!!!!!!!! I very much admire you!!!!!!! Earlier this Afternoon, I was discharged - from Hospital... My Baclofen Pump's in, and on. I'm - currently - on 230 micrograms; however, my Doctor's planning to turn it up to 600, or 700, micrograms a day. I was just wondering... Are you on 110 milligrams, or micrograms, per day? So fr, I'm like you... The Pump doesn't really help when I'm anxious, etc..
thanks! i hope ur not in 2 much pain & u dont have an awful spinal headache! i couldnt sit up 4 5 days b/c of the spinal headache. it was only REALLY bad 4 3 days.
Thanks!! Yeah... I had the awful Spinal Headaches - for a few days, after the Operation - too!! This is just a though; however, perhaps you might like to discuss - with your Doctor - about the possibility of increasing your Dosage. As you know, my Doctor's planning to increase my Dose to 600, 700, micrograms per day!! Apparently, my Doctor is the top Neurologist, who deals with Baclofen (in Adults), in the State of Victoria (Melbourne, Australia - where I live).
yea. i absolutely hate having 2 use the bathroom in the middle of the night. luckily, it doesnt happen often, but when it does, i have 2 wake my mom up. its a pain.
@1234548840 i have a disability called Cerebral Palsy
powerchairchick 6 months ago
@flamed65. ; suht your mouth & have respect for someone. seriously now. how old are we? 2. whether she's like this or not. you should still have respect.
xAmbberxLynnx 1 year ago
hey your purddy cute =)
AdrielC877 1 year ago
lol
flamed65 1 year ago
@flamed65 What'e funny?
powerchairchick 1 year ago 6
@powerchairchick Nothing, you just have a lot of makeup and cosmetics
flamed65 1 year ago
@ssstutt lol. thanks!
np :-)
powerchairchick 1 year ago
Hi I have CP as well I have spastic dipligia. thank you for sharing these videos because it will help others understand wht we go through. I was teased when i was younger because others did not understand I hope I can continue to follow you on youtube
jenniferberry120785 1 year ago
Thank you so much for sharing!!! You are amazing! You are going to touch many people's lives.
anticliche321 1 year ago 6
@JoeyHD2 do you mean translator ? i don't understand your writing
MrRealtalk1111 1 year ago
@JoeyHD2 Description in the box, chill out. You obviously searched for these videos for a reason. Have some compassion.
msdontprocrastinate 1 year ago
You're fortunate enough to have parents who are able to afford all of this assistive equipment, and the aide etc. You're really lucky!
msdontprocrastinate 1 year ago
hi how are yo im good
MrJames1281 1 year ago
your sweet i wish i could be your boy freind or freind i have no one im single i could help im willing to help i dont look on the outside but i allso look on the inside cuse the in side is what matter
MrJames1281 1 year ago
@JoeyHD2 i made these videos 2 educate the ignorant. i typed out wut i said in the description. if u cant understand me, rather than feeling sorry 4 me, read the description. same goes 4 the other video u commented on.
powerchairchick 1 year ago
i'm having a really difficult time understanding your video. i wish i could communicate with you better.
jojococoa 1 year ago
@jojococoa i typed everything that i said in the video in the description. its right under the video
powerchairchick 1 year ago
Hi, Nicole. Thank you for sharing your videos with us. You are a remarkable young girl, very brave and strong. I have a friend with CP. Just like you, he is very smart ( he was admitted to university). Enjoy your summer. God bless
31bluebat 1 year ago
@gLeekFreek66 np. thanks. couldnt have said it better myself. :-) educating them might be better than yelling, lol. thanks!
powerchairchick 1 year ago
Comment removed
gwenneth65 1 year ago
You are an amazing young woman! I have watched several of your videos and I feel like I now have some knowledge on CP (I am a registered nurse and midwife) I would like to ask you how you go with swallowing food? Is your swallow impaired? Thanks for your great videos Gwenneth
gwenneth65 1 year ago
@gwenneth65 thanks! no, my swallowing is fine. i eat normally without difficulty.
powerchairchick 1 year ago
@gLeekFreek66 thanks! i like chicken, pasta, & some steak. i like ur username. i love glee also! i plan on doing another video soon. :-)
powerchairchick 1 year ago
I find your will power and everything incredibly amazing! Your story interests me deeply. Just out of curiosty though, when you go to bed do you have any issues pertaining to your uncontrolable movement?
Great wishes and hope you're having an amazing summer!
davis3378 1 year ago
@davis3378 thanks. i sleep w/ my hands between my legs so they dont move. plus, i dont move as much when im tired. i never sleep straight through the night & doctors dont know y.
powerchairchick 1 year ago
If you don't have good balance maybe you could try the rifton gait trainer
rockurworldforever 1 year ago
@rockurworldforever getting a walker isnt worth it because the only place id use it would be in my house & i dont have far 2 walk.
powerchairchick 1 year ago
Wow, there are too many clueless idiots out there. Keep your chin up, Nicole! :-)
UMjarryn 1 year ago
@glnohax excuse me but you seriously need to get out of the prairie days & come back to 2010. disabled people are no different than able-bodied people. apologize or else i will get you banned.
powerchairchick 1 year ago
Okay. I hope college was not to difficult and hope that you have a busy summer. I can not wait to hear your plans. Mine is getting out and about to soak up all the sun rays for tan this winter. I feel bad not sending you video so you know what I look like, it does not seem fair that I am asking personal questions along with no face and just words. Oh yeah what are you majoring in? I am glad for your response and chat again soon. BYE
greentulips94 1 year ago
Hey just wondering how you are doing so far with your Baclofen Pump since the date on this video is March 21, 2010. I think since receiving last year you were doing so good are your movements, but on this video looks like the one you did back before you got it. I am also glad to hear your accomplishments in college and can not wait to see video of your graduation. My niece has same disability has you and hope to meet you at one of the conferences throughout US.
greentulips94 1 year ago
@greentulips94 im doing well. i was moving a lot cuz i was talking a lot. thanks!
powerchairchick 1 year ago
@powerchairchick
okay. I hope college went well for you this year. Do you have a busy summer planned? I wish I had video so you can see who your talking too. I feel weird asking personal questions without knowing what I look like. I hope to chat with you more this summer and get a good tan for winter, I know I will soak up as much sun as I can get.
greentulips94 1 year ago
i have cp too
415295 1 year ago
Hi Nicole, does that frustrate you that you have to depend on someone to help you with a lot of daily things in life?
sodalady 1 year ago
@sodalady no, its normal 2 me. i mean, sometimes its annoying but i know no other way of life.
powerchairchick 1 year ago
Hi Nicole, does it hurt when you move around a lot? I know how carpal tunnel feels like and it's not fun.
sodalady 1 year ago
just asking cuz i have cp too do you have muscle pain in your hands
no1soul87 1 year ago
@no1soul87 sometimes my hands get stuck open or closed & its pain. i sometimes also have wrist pain from carpel tunnel.
powerchairchick 1 year ago
Fair enough, Nicole! Thanks for answering my question about what you're majoring in...I work in higher education, so I'm always interested in what people are studying. Have a good weekend!
sallydan1 1 year ago
Great video, as always, Nicole! I'd love to know more about what you're studying in college~do you have a "dream job"? Also, you mention your Mom...in your next video I think we'd enjoy knowing more about your family...do you have brothers or sisters?
sallydan1 1 year ago
@sallydan1 thanks! my major is I.T. id love 2 do something involving disabled ppl & adapted computer equipment. however, ill most likely do some sort of tech support.
i think id rather keep the videos solely about me. plus, i dont wanna divulge 2 much info.
powerchairchick 1 year ago
some here Nicole nice job on vids i want to say im srry for the facebook stuff i just think its easyer to talk on there :) ::: so 2 things i have been trying to think of ways to help you walk bc/ your chire dose not lot you do a lot :) and i know that a guy out there for you that can help you do what ever you want ( i wood be on of them) but i have one now and i did not find it easy to say everthing i need help but she was open to every thing so keep up the good work ok :)
Jaygolds123 1 year ago
@Jaygolds123 thanks. i have absolutely no balance, so i could never walk on my own. my power chair is a godsend. it allows me 2 be independent.
powerchairchick 1 year ago
@powerchairchick well ty so much for geting back to me ya i guess that cool i guess that looking at made my think that well i guess a walker wood not work there so much out there that there has to be some thing for you to try to walk with that will work i think about it every day so im not sure if i need more info but i wil try to come up with some thing see ya
Jaygolds123 1 year ago
I just also wanted to say that I can understand you relatively well in this video... my compliments for just doing it while it costs you a lot of energy!
Richard.
dutchman983 1 year ago
sweet! eh, im used 2 it. lol.
powerchairchick 1 year ago
oh ok. thanks for answering the question. Thats a good ways to walk. So yeah i would consider that a little bit of a ways to have to walk. Do you use a walker when you have to do that or does someone help you?
lindseyh21 1 year ago
np. some1 helps me. i dont own a walker because i dont usually walk far. plus, i feel safer w/ some1 holding me. i cant use a standard walker. i need 1 w/ arm straps because i cant hold on 2 the handles. because my arms r strapped 2 it, if i fell, id fall face 1st. it happened once when i was 11. i had orthodontic braces on & the ended up in my gums & 1 of my teeth turned black. yea, it wasnt fun. lol.
powerchairchick 1 year ago
are you able to walk for long distances with someone helping you or not really?
lindseyh21 1 year ago
thats a good question. it depends on wut u consider long distances. i used 2 be able 2 walk through a few hallways in 9th grade using a walker in my high school but i i had 2 stop because of bad hip pain. as of now at age 20, the furthest ive walked in a while was when my vans lift broke. i walked from my house 2 my van, from my van 2 a salon & vise versa.
powerchairchick 1 year ago
Great video, Nicole!!!!!!!! Thank you very much tor sharing your Day-To-Day Life with us!!!!!!!!!! I very much admire you!!!!!!! Earlier this Afternoon, I was discharged - from Hospital... My Baclofen Pump's in, and on. I'm - currently - on 230 micrograms; however, my Doctor's planning to turn it up to 600, or 700, micrograms a day. I was just wondering... Are you on 110 milligrams, or micrograms, per day? So fr, I'm like you... The Pump doesn't really help when I'm anxious, etc..
sarejarm 1 year ago
thanks! i hope ur not in 2 much pain & u dont have an awful spinal headache! i couldnt sit up 4 5 days b/c of the spinal headache. it was only REALLY bad 4 3 days.
im pretty sure its micrograms.
powerchairchick 1 year ago
Thanks!! Yeah... I had the awful Spinal Headaches - for a few days, after the Operation - too!! This is just a though; however, perhaps you might like to discuss - with your Doctor - about the possibility of increasing your Dosage. As you know, my Doctor's planning to increase my Dose to 600, 700, micrograms per day!! Apparently, my Doctor is the top Neurologist, who deals with Baclofen (in Adults), in the State of Victoria (Melbourne, Australia - where I live).
sarejarm 1 year ago
Just in case... My Neurologist's Name is Dr. Barry Rawicki...
sarejarm 1 year ago
Nice to let us peak into your life :).
Is there anything you hate to ask or would mostly prefer to be able to do yourself?
Greetings, Richard.
dutchman983 2 years ago
some here im kanda the some i want to get to know here a lot better
Jaygolds123 2 years ago
np.
yea. i absolutely hate having 2 use the bathroom in the middle of the night. luckily, it doesnt happen often, but when it does, i have 2 wake my mom up. its a pain.
i would like 2 be able 2 dress & feed myself.
powerchairchick 1 year ago
@powerchairchick Well if you find a nice bf he wont mind... but I can imagine you would like that indeed.
dutchman983 1 year ago