Fibromyalgia- my fun blog- Rejoining Life after Fibromyalgia

[ValerieLumley]

I am a recovered fibromyalgic who left the care of the medical profession to discover the cause and cure of this horrific condition without drugs, and am living proof you can cure this and take back your life. Symptoms are mistaken for the cause and treatments that help do not cure. Please, do not be discouraged by failed hope and keep going!!!

Valerie Lumley, Recovered Fibromyalgic and author of

"Curing Chronic Fibromyalgia - Choosing What Works"

[Durrwa]

Good Video I quit the anti depressments and its helped out in the intimate areas, but all the pain killers,muscle relaxers and sleeping medicine does not at well . I,M IN TERRIBLE PAIN i PRAY FOR THE PAIN TODSSDAAAAAAAAAAAAAAAAAAAAAAAA­AAAAAAAAAAAAAAAAAAAAAAAAAAAAAA­AAAAAAAAAAAAAAA

[getbennt]

There is no cure and some suffer such damage as to disfigure them beyond the normal human look and if that's not enough they just might be caregivers. We hope you are talking about 9 / 10 on the pain scale, without miraculous change for life. Oh, its not addicted to, but dependant upon, please spread that wording. If my fibro, AS, fusions and disfigurement went away, I would sing to. You will start feeling better is a blanket statement and its cast across my eyes, please.

[meow1964]

how many tender points were you diagnosed with? were your tender points re-checked? how many now?

my migraines last 3 whole days straight, I've tried ALL the preventers - none work

[misstree75]

My Dr would not even perscribe pain medication because she said it actually does make it worse.

[dianacwolf]

Sneaky is a perfect description! Still so much misunderstanding out there about FMS, and contradictory advice, from the medical community at large. One FMSer put up a page listing all the current medical theories about the causes of FMS. It's comical. It goes on for pages. The pharma. industry is happy to throw drugs at us because it makes them money, whether we get better or not. (Its better for them if we don't. They can sell more / different pills.) Cured patients are very bad for business.

[chermann57]

dianacwolf thanks i never give up on myself or anyone else . I come from a family that can handle hard knocks but this disease is so sneaky that i dont think there is a cure at all. I agree that dr's write pills in for cure all but i cant take a pill a think its an aswer, it so much more than that, thanks for support and my prayers are with you ,thanks

[dianacwolf]

Hi chermann! Great to hear from you! I am glad you finally have both a diagnosis, and family support. I found the most frustrating part of FMS was before the diagnosis-- all the pain, and not knowing why. I thought I was crazy, too. I went to a psychiatrist and after a couple of sessions, he concluded I was more mentally balanced than he was. He told me to keep looking for a physical cause for my pain. I'm glad I did, or I never would have gotten better.

[chermann57]

Thanks for your honesty.Newly diagnosed,trying to find those up personality, we all are different and it helps to listen and learn. Right now having an answer to what was wrong is a blessing. My family is supportive and so is my dr. and therapist. I thought i was crazy,now it feels good just to have an answer. No pain killers are a problem for all and my dr doesnt perscribe them. Good luck on feeling better i try never to loose touch with outside world and try to be social.

[dianacwolf]

Yes, no pain killers is a problem for all, but, it is also a blessing. I belong to an online migraine support group, and I've learned so much about medication overuse. TV ads try to convince us to take a pill for every ill. Bad advice. Our bodies have all manner of natural defenses, and we muck them up by taking pills. Painkillers mess with our brain's natural ability to suppress and deal with pain. I gave up painkillers and am feeling much better because of it.

[MargoPerkins1957]

love your optimism. Guai made me so sick. I never quit working, but had several one-month medical leaves. See my video under

MargoPerkins1957. Thanks for sharing,

Margo

[milanpepsi]

Diana, I cant wait for that time when I can start feeling better. 4 months on guai. , 1800 mg. dose and its  hard. Thanks for your videos and support. Best wishes from Milan in far away Serbia.

[amybrand]

This very was great & very helpful! I try to stay pretty active....I still ride horses & maintain a small farm & run my own business. Ugh! I push through the pain & do it....but once I get moving my body slowly feel better. I try to convince others with Fibro of this....but no one believes me. Today was a day though I could barely move though....but I had to!

[dianacwolf]

Hi Amy! Yes, I posted a video about exercise and fibromyalgia, and I got a lot of lashback from people. As you said, many fibro folks just don't want to move. Yeah, it hurts to move, but you gotta' do it. It hurts more NOT to move. Your muscles will stiffen up. Your body will produce less ATP and your chronic fatigue will worsen. You will become more dependent on pain pills. Not exercising is not an option. But, it is important to start off slow, and very gently, and build up from there.

[dianacwolf]

Sounds like you have totally the right attitude about being active. I still get flare-ups, a lot of them seem to be weather-related. I am always in the most pain when the weather is about to change. Some days my hips and legs just BURN, I mean, searing pain, when I ride bikes with my son to school in the morning. But, I know this is all temporary. I'm almost through cycling on the Guai Protocol, and when I'm done, the pain will be gone too. Just takes time and patience.

[amybrand]

I just got back from my Fibro Specialist today & had a great & positive visit. He actually LISTENS to me! He said that I am a model patient. I shared my blog with him & told him to pass it on to his other patients. Sometimes all I can do is walk....but I still do it! It might hurt like crazy at first, but after a few minutes it feels good. I subscribe to the theory of if you don't use it you lose it! I will keep checking back for your videos. I enjoy them quite a bit!

[MCGEE1115]

Diana

Ive be threw this cycle of "Rejoining Life"

several times now after 12 years of fibro.

Ive had back and neck surgeries in the past

and back in Nov.had surgery for a severely

frozen shoulder. The surgery was a partial

success but after a year of very little activity I'm too weak to Rejoin Life.

My muscles are gone and I'm going to have to get them back. I guess my point is Use it or lose it.The couch can kill you. I love seeing you out on your bike looks fun and you deserve it.

[dianacwolf]

Hi McGee! The bike has been so much fun! We've had crazy weather this Spring, bouncing back and forth from near freezing in the mornings, to the 70s in the afternoons. But, my son loves the tandem bike, and wants to do longer and longer bike rides. It's a great way to start the day, since we end up exercising right at 8 AM. It wakes him up before school, and ensures I get exercise first thing in the day. It helps that the school is on top of that steep hill. Good workout.

[dianacwolf]

Wow! Snow! I miss snow. My son, Alex, positively adores snow. We had the good fortune to have a blizzard snow us in for an extra four days on one of our trips back East to visit Grandma and Grandpa. Alex was thrilled! He declared enthusiastically: "You know the best thing about New York? The weather!!!" (My folks and I still laugh about that one.) He's got a point, though. As nice as it is to wear shorts most of the year, I honestly miss the snow.

[missejane]

Thanks for your words of wisdom!

I hear you sometimes say things I think, and then I hear you say something I need to think.

Hope all with fms subscribe to you!

By the way Wi had snow again, yes again today.