I can tell you right now, Whitney is one of the most amazing people I have ever met in my life. Her story is inspirational. Her continued progression and growth as a person is amazing and something I cannot put into words. I am so proud to call her my friend and I am holding my breath until the day Whitney and everyone else affected by FOP can be helped. She deserves to be happy more than anyone, and what's truly incredible is that she is. She has an amazing spirit, and nothing will get her way.
In view of the risk of misdiagnosis is it standard procedure now all over the world that patients be tested for FOP first before cancer?
1000wrongdecisions 6 days ago
My nephew has just been diagnose of this disease, we hope that there is a cure for this disease oneday.
AsianGirl171 1 month ago
I can tell you right now, Whitney is one of the most amazing people I have ever met in my life. Her story is inspirational. Her continued progression and growth as a person is amazing and something I cannot put into words. I am so proud to call her my friend and I am holding my breath until the day Whitney and everyone else affected by FOP can be helped. She deserves to be happy more than anyone, and what's truly incredible is that she is. She has an amazing spirit, and nothing will get her way.
TheSquirtSquad 3 months ago 4
I really hope a cure has been found by now... Or atleast treatment.
But, I know things will turn around for all of them and they will be ok again.
Vessoland 7 months ago
What a shitty disease. I hope my future children don't have this.
spicyzesty 7 months ago
Please help our family and other families to raise awareness for this devasting condition called Fibrodysplasia Ossificans Progressiva
319Hilly 2 years ago 3