I started getting these about 5 yrs ago, just found out what they where about a yr ago. I have no medical insurance so i dont get much medical help at all. A friend gave me some oxygen bottles and another gave me a non rebreather mask just the other day. I only get about 6 a week. They went in remission for a few months but they are back and seem to be getting more frequent. Thanks for the post this is the only way I get solutions for the CH's.
I seem to get cluster headaches while sleeping and waking up with them full force. I quit smoking cigs 4 years ago and have changed my lifestyle to make them happen less often. They seem to come 2 times a year now julyish and decemberish and the beast stays with me for 2 weeks to a month. When I smoked cigs my Chs were cronic. Quit smoking cigs If you get CHs duhhhhhhhhhh. I am 2 weeks into a cycle and I must rant hehe thanks all = )
Such a horrible, horrible condition... I feel sympathy for all of those who suffer from this. I'm currently studying biotechnology and I seriously want to do research on cluster headaches. I believe (and hope) brain stimulating electrodes will defeat this terrifying beast in a decade.
I too suffer from cluster headaches and am in cycle now. When I first began getting them I was twelve (didn't smoke, didn't drink, was under a lot of stress and trauma in my living environment). For those of us that have to deal with useless doctors who do not take this affliction seriously I have a method that I would like to add to the list of things we can try. After over three hours of pain and nothing else working, I tried downing as many cups of water as I could stand and it worked.
This video made me cry. I've had clusters for about eleven years now but I was just in remission for almost three years, due in part to oxygen therapy. Well, they're back and the oxygen doesn't seem to be working that well any longer. I really feel for this man, as I'm now having six to eight of these a day.
Since about a week I've been shadowing stronger again, and with stronger I mean not the ones we feel most of the time, but really strong - almost borderline CH.
I expect to get hit soon, though I haven't till now.
Keeping my fingers crossed I'm not going into cycle again.
my mom has a lot of them i do not what it fells like but i help her a lot i fell bad for her i wuold not like to have it but childred have them to i'm 10 ahhh
Hi, I am also suffering from cluster headache - during 3 years I wasn't suffering and since 15 days ago, it started again - mostly during the night, but at least one attack a day.
It's always on the left side, you go trough hell during an attack
While I do not suffer from cluster headaches, my deepest sympathy is out to you for having to endure such horrendous pain all the time. Not that I know much about cluster headaches, but have you tried Psilocybin Mushrooms for treating the pain? Supposedly they have met with success in some people in treating the pain.
Just had my 3rd of the day, my newest way is crunch pain or medication tablets till there a powder tip it in redbull, and sink it fast,carbonated liquid enters the bloodstream faster and taurine also helps but to long too post here....oh and i pray to any god thats listening,i also do the ch dance quite well, peace to you all
I am so sorry you have to go through this. I would never wish this pain on anyone. I suffer from these usually beginning late November through January. I had 5 or 6 attacks today and sleep is actually frightening because I know I'll wake up with one.
People need to be told about this. I'm tired of everyone treating me like I'm crazy.
The worst pain! I went to an ER and they thought is was a migraine. I didn't know at the time that it was a cluster. I had to be in there for 5 hours without treatment. The nurse even seemed irritated as I sobbed under the bed sheet. They treated it as a migraine. I didn't find out that it was a cluster until a follow up with a regular Dr. the next day.
my boyfriend was afflicted w/ cluster headaches for about 20 yrs, but he's been able to keep them at bay for over 2 yrs. however, he had 2 episodes the other nite, and that's what led me here. thank u for posting this.
I too suffer from cluster headaches. i'm 22 yrs old and have suffered since i was 15. To answer the guy down there... the pain doesnt neceserilly get worse, but different cluster periods bring different pains. I am currently in one of the worst i've been in for a couple years. it's affecting both sides of my head each time not just 1, and the pain is undescribable...
I have tried many pain reliefs to no affect, have tried herbal remedies too... anything i can to try n bring the pain down... and oxygen never worked for me. All i use is a lot of ice water to drink usually 2-3 pints each headache, a cold, wet flannel (face cloth) and 4Head a herbal rub on stick. in america n canada 4Head is not available but u do have a thing called HeadOn... similar thing...
i suggest (personal experience only) that u buy 4Head or the trongest form of HeadOn and apply liberally to head, then hold the cold, wet facecloth on top of that.... sends a freezing feeling into ure head and, for me, really does ease the pain a bit. Always carry 4Head with me wherevere i go. I hope this really does help someone, because i know what these fuckin headaches are like its now 6pm and ive literally just had my 3rd headache today already.
thanks for your reply manunited,i was on that quiz and yes i do suffer from cluster headaches. will the pain increase with age? cos im not sure if id be able to put up with the pain that guy is going through.
i have had bad headaches in my day,but nothing as bad as this poor man.when i get a headache it starts from the top of my neck,and around my whole head.i get these every day! can someone help me??
bad thing to hear. just go to site clusterheadaches-dot-com and click on the cluster quiz. what you describe is not clusterheadache but do it anyway.
next thing to do is call on a neurologist and check everything out. next thing is to call on a very good specialist for headaches. I hope you will find one around your hometown 'cause there are not so many (that's my experience in switzerland). anyway, wish you all the best and painfree future. greets
Cluster headaches can afflict you at anytime in your life. It is an unimaginable pain and has been called the most severe pain known. I pray that you never have first hand knowledge of this. All of your laughter will turn to tears.
I am a eph (good luck not a cph). and I have this headache since 20 years.
it's such a nightmare I know it very good. but what about 100% oxygen? you don't have a bottle at home. and what about imigran (that's what it's called here in switzerland) spray or injection? that's what every cluster patient needs to have at home.
if you need to get in touch with me, pls feel free to wright me back.
you are such an idiot. get out of here. you can't imagine how this hurts and you think that's funny. this headache is also called suicide-headache 'cause it hurts so much that you would like to kill yourself. Myself I have it for 20 years and a good college of mine had killed himself during the last of his more than 1000 attacks. so pls stop writing this crab. we don't need that, ok?!
Ok, This video is of me. Any that want to interact with other clusterheads, go to clusterheadaches dot com. Only a true sufferer knows exactly what these are like. Thank God for my oxygen!
The best solution for headache is the one that Muslims know from the prophit Mohammad, and it is known as "hejamah" in Arabic, and "Cupping" in english, which is sucking some blod from the back of shoulders and behind the neck.
I have been a sufferer for 17 years now. I HAVE to see this documentary. I have tried almost every treatment that the best specialists know of. I barely get by with HIGH doses of verapamil, and about 60 shots of Imitrex a month. Pain meds when needed. Even the strongest pain med does not alieviate the pain. They do help me to better cope with the pain though.
I am planning to under-go neurosurgery where they dull the nerves behind the sinus cavity. Does anyone have any experience with that?
My heart and prayers go out to you Chuck and all others that suffer with "the beast." I also suffer with C.H. and myoclonus and no one seems to understand what we go through but us. May God bless and keep you and maybe through stemcell research something can be done. God Bless You, Katrina victim and C.H. sufferer
Anyone that thinks this is funny dont run into me. You might get yout wig split and I would find that hilariouse. :D
trucker1773 4 months ago
I started getting these about 5 yrs ago, just found out what they where about a yr ago. I have no medical insurance so i dont get much medical help at all. A friend gave me some oxygen bottles and another gave me a non rebreather mask just the other day. I only get about 6 a week. They went in remission for a few months but they are back and seem to be getting more frequent. Thanks for the post this is the only way I get solutions for the CH's.
trucker1773 4 months ago
I seem to get cluster headaches while sleeping and waking up with them full force. I quit smoking cigs 4 years ago and have changed my lifestyle to make them happen less often. They seem to come 2 times a year now julyish and decemberish and the beast stays with me for 2 weeks to a month. When I smoked cigs my Chs were cronic. Quit smoking cigs If you get CHs duhhhhhhhhhh. I am 2 weeks into a cycle and I must rant hehe thanks all = )
Userofname69 6 months ago
this is so sad i cant watch this =( i am so sorry for you
prismoviestar 8 months ago
This has been flagged as spam show
Natural remedy for sale from a former sufferer ! Just search for cluster headache remedy on ebay
daniacea 9 months ago
i also have clusterheadache
mokmok8080 1 year ago
Such a horrible, horrible condition... I feel sympathy for all of those who suffer from this. I'm currently studying biotechnology and I seriously want to do research on cluster headaches. I believe (and hope) brain stimulating electrodes will defeat this terrifying beast in a decade.
Bionuker 1 year ago
I too suffer from cluster headaches and am in cycle now. When I first began getting them I was twelve (didn't smoke, didn't drink, was under a lot of stress and trauma in my living environment). For those of us that have to deal with useless doctors who do not take this affliction seriously I have a method that I would like to add to the list of things we can try. After over three hours of pain and nothing else working, I tried downing as many cups of water as I could stand and it worked.
yuna36 1 year ago
@yuna36 .....I know some people that swear by the water,water,water method....you are not alone!
Jonnymule 1 year ago
It takes a lot to make me cry, but this did it. We love you, stay strong.
Enthos2 1 year ago
GOD PLEASE HELP US - I HAVE THIS CH TOO.
09omac 1 year ago
This video made me cry. I've had clusters for about eleven years now but I was just in remission for almost three years, due in part to oxygen therapy. Well, they're back and the oxygen doesn't seem to be working that well any longer. I really feel for this man, as I'm now having six to eight of these a day.
JML1970 2 years ago
Since about a week I've been shadowing stronger again, and with stronger I mean not the ones we feel most of the time, but really strong - almost borderline CH.
I expect to get hit soon, though I haven't till now.
Keeping my fingers crossed I'm not going into cycle again.
PF to all from the Netherlands.
Pascal.
maalstroom1974 2 years ago
Mmm, nog een metalliefhebber met koppijn. Zou het aan onze muzikale voorkeur liggen? ;)
ninthdegreeburn 2 years ago
quando vedo questo video sto male sono 25 anni che soffro di ceffalea grappollo
e fortunatamente sono da 7anni che mi sta lasciando vivere ( un abbaracio fortissimo a tutti quelli che soffrono: gerry)
bradgerry 2 years ago
oh my god this looks scary! and i thought a bad migraine was like going thur hell. my deepest sympathy to all who has cluster headaches
ErlendYo91 2 years ago
@ErlendYo91 ....Thank you!
Jonnymule 1 year ago
my mom has a lot of them i do not what it fells like but i help her a lot i fell bad for her i wuold not like to have it but childred have them to i'm 10 ahhh
clamfinder1 3 years ago
Hi, I am also suffering from cluster headache - during 3 years I wasn't suffering and since 15 days ago, it started again - mostly during the night, but at least one attack a day.
It's always on the left side, you go trough hell during an attack
smartforever 4 years ago
i usually have one attack to sometimes two a day but lately it's only been just one. sometimes the pain isn't as bad as other times i wonder why?
niniharris1 2 years ago
While I do not suffer from cluster headaches, my deepest sympathy is out to you for having to endure such horrendous pain all the time. Not that I know much about cluster headaches, but have you tried Psilocybin Mushrooms for treating the pain? Supposedly they have met with success in some people in treating the pain.
Spudst3r 4 years ago 4
Thank you!
clusterbustersDOTcom ;)
Jonnymule 4 years ago
Disturbing but not on his own
Just had my 3rd of the day, my newest way is crunch pain or medication tablets till there a powder tip it in redbull, and sink it fast,carbonated liquid enters the bloodstream faster and taurine also helps but to long too post here....oh and i pray to any god thats listening,i also do the ch dance quite well, peace to you all
priorsway 4 years ago
I am so sorry you have to go through this. I would never wish this pain on anyone. I suffer from these usually beginning late November through January. I had 5 or 6 attacks today and sleep is actually frightening because I know I'll wake up with one.
People need to be told about this. I'm tired of everyone treating me like I'm crazy.
Kleverkreep 4 years ago
Your not crazy!!!
Jonnymule 4 years ago
The worst pain! I went to an ER and they thought is was a migraine. I didn't know at the time that it was a cluster. I had to be in there for 5 hours without treatment. The nurse even seemed irritated as I sobbed under the bed sheet. They treated it as a migraine. I didn't find out that it was a cluster until a follow up with a regular Dr. the next day.
knidonovan 4 years ago
my boyfriend was afflicted w/ cluster headaches for about 20 yrs, but he's been able to keep them at bay for over 2 yrs. however, he had 2 episodes the other nite, and that's what led me here. thank u for posting this.
h0neyw1ne 4 years ago
I too suffer from cluster headaches. i'm 22 yrs old and have suffered since i was 15. To answer the guy down there... the pain doesnt neceserilly get worse, but different cluster periods bring different pains. I am currently in one of the worst i've been in for a couple years. it's affecting both sides of my head each time not just 1, and the pain is undescribable...
brettgee 4 years ago
I have tried many pain reliefs to no affect, have tried herbal remedies too... anything i can to try n bring the pain down... and oxygen never worked for me. All i use is a lot of ice water to drink usually 2-3 pints each headache, a cold, wet flannel (face cloth) and 4Head a herbal rub on stick. in america n canada 4Head is not available but u do have a thing called HeadOn... similar thing...
brettgee 4 years ago
i suggest (personal experience only) that u buy 4Head or the trongest form of HeadOn and apply liberally to head, then hold the cold, wet facecloth on top of that.... sends a freezing feeling into ure head and, for me, really does ease the pain a bit. Always carry 4Head with me wherevere i go. I hope this really does help someone, because i know what these fuckin headaches are like its now 6pm and ive literally just had my 3rd headache today already.
brettgee 4 years ago
That looks fucking horrendous. Ouch. Poor guy.
StarFighter2000 4 years ago
thanks for your reply manunited,i was on that quiz and yes i do suffer from cluster headaches. will the pain increase with age? cos im not sure if id be able to put up with the pain that guy is going through.
isishmaxo 4 years ago
The cluster site is not there to diagnose you, only a doctor can do that. see a neuro!
Jonnymule 4 years ago
hi jonnymule
I'm really sorry for you that you can't use tablets or similar things to stop a cluster attack because of your heart problems.
but you can't even use 10mg or 20 mg sumatriptan nasal spray?
I'm with you and hope that this nightmare will come to end immediately. I wish you all the best. painfree time for you. bye so far
ManUnited007 4 years ago
i have had bad headaches in my day,but nothing as bad as this poor man.when i get a headache it starts from the top of my neck,and around my whole head.i get these every day! can someone help me??
isishmaxo 4 years ago
bad thing to hear. just go to site clusterheadaches-dot-com and click on the cluster quiz. what you describe is not clusterheadache but do it anyway.
next thing to do is call on a neurologist and check everything out. next thing is to call on a very good specialist for headaches. I hope you will find one around your hometown 'cause there are not so many (that's my experience in switzerland). anyway, wish you all the best and painfree future. greets
ManUnited007 4 years ago
LOL! FUNNY!
supercoolboy45678 4 years ago
So is your name, idiot!
Jonnymule 4 years ago
Cluster headaches can afflict you at anytime in your life. It is an unimaginable pain and has been called the most severe pain known. I pray that you never have first hand knowledge of this. All of your laughter will turn to tears.
artonio7 4 years ago
hi artonio and flapke22.
I am a eph (good luck not a cph). and I have this headache since 20 years.
it's such a nightmare I know it very good. but what about 100% oxygen? you don't have a bottle at home. and what about imigran (that's what it's called here in switzerland) spray or injection? that's what every cluster patient needs to have at home.
if you need to get in touch with me, pls feel free to wright me back.
I wish you all the best and a painless future.
ManUnited007 4 years ago
@supercoolboy45678:
you are such an idiot. get out of here. you can't imagine how this hurts and you think that's funny. this headache is also called suicide-headache 'cause it hurts so much that you would like to kill yourself. Myself I have it for 20 years and a good college of mine had killed himself during the last of his more than 1000 attacks. so pls stop writing this crab. we don't need that, ok?!
ManUnited007 4 years ago 2
Ok, This video is of me. Any that want to interact with other clusterheads, go to clusterheadaches dot com. Only a true sufferer knows exactly what these are like. Thank God for my oxygen!
ClusterChuck50 4 years ago
Most people will never comprhend the level of pain, Chuck.
Thank you for doing what you did for the folks just finding a safe haven!
Jonnymule 4 years ago
i feel for this guy, could barely watch it
OpalsAndPearls 4 years ago
The best solution for headache is the one that Muslims know from the prophit Mohammad, and it is known as "hejamah" in Arabic, and "Cupping" in english, which is sucking some blod from the back of shoulders and behind the neck.
harbime 4 years ago
You sir are an idiot!
Jonnymule 4 years ago
I respect your openion, and you are free to belive my words or not. No problem with me at all.
harbime 4 years ago
i alreadt try this treatment
but i still get this pain
akulelakiitu 2 years ago
I have been a sufferer for 17 years now. I HAVE to see this documentary. I have tried almost every treatment that the best specialists know of. I barely get by with HIGH doses of verapamil, and about 60 shots of Imitrex a month. Pain meds when needed. Even the strongest pain med does not alieviate the pain. They do help me to better cope with the pain though.
I am planning to under-go neurosurgery where they dull the nerves behind the sinus cavity. Does anyone have any experience with that?
dunskie 5 years ago
My heart and prayers go out to you Chuck and all others that suffer with "the beast." I also suffer with C.H. and myoclonus and no one seems to understand what we go through but us. May God bless and keep you and maybe through stemcell research something can be done. God Bless You, Katrina victim and C.H. sufferer
ma25s 5 years ago
Aint that the truth, Dee!
Jonnymule 5 years ago
only ch suffers know what this pain is like.
deenava 5 years ago
I feel for this guy - I have cluster headaches too. Where can I get this programme?
johnbunyan 5 years ago
Also known as the 'suicide headache'
RiffRaffEsq 5 years ago