Fibrodysplasia ossificans progressiva it is a disease a very rare disease where muscle turns to bone.When there is a injury joints become permanently frozen.so if she was a dance she might have had a lot of injuries.
ONLY 1 in 1 MILLION people get this disease, it is SO rare. This is listed under NORD - National Organization for Rare Disorders. And no, there is NO chemical imbalance in the blood or anywhere in the body. The disease has NO cure. We suffer from it every day, all day, every second of the day. Didn't you see her muscle wasting? Proof! I am stuck in the house because it is to painful to go out. My husband does EVERYTHING around the house. It is just as hard on him. He's a GEM! There ARE good men!
Yes! She is VERY lucky to have a WONDERFUL husband who cares for her as my husband does for me. Without help we can't function. Doubt all you want. Look it up and read several different searches on Stiff Person Syndrome. The disease completely robs you of everything in your life. Even a mix of medications I take does NOT make the rigidity and spasms go away. I feel for her as I go thru what she does. I never contacted the news though nor any newspapers. I've felt VERY alone with this. VERY rare.
I have this same thing. It's called Stiff Person Syndrome. You need a Movement Disorder Neurologist that has experience with this disease. This is how I was diagnosed. It IS progressive & gets to the point where you feel like you can't breathe. She is lucky she can lie on her side. I am stuck only sleeping in a recliner and can't have my back muscles touch a thing or they get rigid and spasm out of control. You people who doubt this are hatred people. It comes out of nowhere and takes our lives.
Odd that they can't get a diagnosis, even a partial one so they can try different treatments. Seems like a rheumatoid disease or Myositis ossificans (muscle calcification).
Come on you guys, this is a scam! They earned a lot of money by peoples donations and then took off. Check out Kandee Johnson's channel where she talks about it
So because you work at a homeless shelter, and because you give to charity on a regular basis (who's on their high horse now, might I add), it gives you unchallengable permission to take the piss out of a woman with a degenerative illness?
Seriously, keep talking, your IQ is dropping with every sentence you are typing on here.
@hempartist420 If you ever have the misfortune of enduring the things this woman has experienced, perhaps you can see how funny your, ahem, "joke", really is. Whether you want to admit it or not, tristankf has a point.
I wonder what your comeback will be ... sometime along the lines of "shut the f*** up", I'm guessing, since you clearly don't have the intelligence to comprehend why people might be offended by your insensitive comment.
@RigbyBullnut I don't care if you're offended or not, it's not as if she's reading these comments, offense is taken, not given, stop pretending as if you actually give a shit.
@hempartist420 True, I don't know this particular woman personally. But if it could happen to a complete stranger, it has just as much of a chance to happen to a loved one, so yes, I do "give a shit", as you would put it.
You could try thinking outside the box, but once again, you display your limited view, your small-mindedness, your lack of intelligence and lack of compassion to the world. Oh yeah, and your really SICK sense of humour too. A joke, please ...
@RigbyBullnut I work at a homeless shelter, and I give to charity on a regular basis, so you can quit pretending as if you know all things, get off your high horse because I don't give a shit.
She's the definition of lazy, that's all.
dkyx 1 week ago
It's bullshit guys, proven bullshit a long time ago.
RetroKingdomrules 1 week ago
her arm moved in 1:36
asiangangzter 3 weeks ago
it's not lupus
JoshTheAngryViewer 3 weeks ago
i hate to say it but SHES A FAKER! A LIAR!
zoeysmartie 4 weeks ago
@zoeysmartie and she is faking how?
ElenaLyics 3 weeks ago
Comment removed
malcolmmorin 1 month ago
The sex must be awkward.
IJustChillingI 1 month ago
Fibrodysplasia ossificans progressiva it is a disease a very rare disease where muscle turns to bone.When there is a injury joints become permanently frozen.so if she was a dance she might have had a lot of injuries.
amstelko2 2 months ago
What a great guy!!
ErikaMarlette 2 months ago
wonder if she can still make sandwiches?
tophfreak45 2 months ago
@tophfreak45 Your a dick. Sje has an ilness, and you just have to add a sexist comment you twat,
Make your own fucking food, fat mess.
GeoRaur 2 weeks ago
Also do a search for Stiff Person Syndrome here on You Tube! There ARE others with this! We are NOT alone!!! Good Luck!
checkingcomputer 2 months ago
ONLY 1 in 1 MILLION people get this disease, it is SO rare. This is listed under NORD - National Organization for Rare Disorders. And no, there is NO chemical imbalance in the blood or anywhere in the body. The disease has NO cure. We suffer from it every day, all day, every second of the day. Didn't you see her muscle wasting? Proof! I am stuck in the house because it is to painful to go out. My husband does EVERYTHING around the house. It is just as hard on him. He's a GEM! There ARE good men!
checkingcomputer 2 months ago
Yes! She is VERY lucky to have a WONDERFUL husband who cares for her as my husband does for me. Without help we can't function. Doubt all you want. Look it up and read several different searches on Stiff Person Syndrome. The disease completely robs you of everything in your life. Even a mix of medications I take does NOT make the rigidity and spasms go away. I feel for her as I go thru what she does. I never contacted the news though nor any newspapers. I've felt VERY alone with this. VERY rare.
checkingcomputer 2 months ago
I have this same thing. It's called Stiff Person Syndrome. You need a Movement Disorder Neurologist that has experience with this disease. This is how I was diagnosed. It IS progressive & gets to the point where you feel like you can't breathe. She is lucky she can lie on her side. I am stuck only sleeping in a recliner and can't have my back muscles touch a thing or they get rigid and spasm out of control. You people who doubt this are hatred people. It comes out of nowhere and takes our lives.
checkingcomputer 2 months ago
i heard this was fake .
Riana2134 2 months ago
Odd that they can't get a diagnosis, even a partial one so they can try different treatments. Seems like a rheumatoid disease or Myositis ossificans (muscle calcification).
hellashelle 2 months ago
now unless she can tell us wat diseas she has nd proof from the doctor i will keep being skeptical
Agomongo1235 2 months ago
Seems like some sort of chemical imbalance which bypass the nerves and simply tighten up the muscles. Hope they are able to diagnose. Good luck.
umaxen01 3 months ago
Come on you guys, this is a scam! They earned a lot of money by peoples donations and then took off. Check out Kandee Johnson's channel where she talks about it
bartsteijns 3 months ago
@bartsteijns Can you send me the link?
TheKurauchiha 2 months ago
she is possessed?!
SuperSbeastify 3 months ago
That guy is sch and amazing and loyal man! God bless him and his wife! I hope she gets better!
911FANGS 4 months ago
@911FANGS Think again. This whole thing was a huge scam.
ellabie 3 months ago
The Guy Is A Legend ....
obaidhrs 4 months ago
So because you work at a homeless shelter, and because you give to charity on a regular basis (who's on their high horse now, might I add), it gives you unchallengable permission to take the piss out of a woman with a degenerative illness?
Seriously, keep talking, your IQ is dropping with every sentence you are typing on here.
RigbyBullnut 4 months ago
she's just fucking lazy
hempartist420 5 months ago
@hempartist420 stop being horrible
TheZERAPPER 4 months ago
@hempartist420 Go die asshole.
tristankf 4 months ago
@tristankf oh shut the fuck up
hempartist420 4 months ago
@hempartist420 No u! Fucking idiot. Shes not lazy you moron. She has a serious illness you piece of shit.
tristankf 4 months ago
@tristankf it's a joke you retard, shut the hell up
hempartist420 4 months ago
@hempartist420 Fuck you
tristankf 4 months ago
@hempartist420 If you ever have the misfortune of enduring the things this woman has experienced, perhaps you can see how funny your, ahem, "joke", really is. Whether you want to admit it or not, tristankf has a point.
I wonder what your comeback will be ... sometime along the lines of "shut the f*** up", I'm guessing, since you clearly don't have the intelligence to comprehend why people might be offended by your insensitive comment.
RigbyBullnut 4 months ago
@RigbyBullnut I don't care if you're offended or not, it's not as if she's reading these comments, offense is taken, not given, stop pretending as if you actually give a shit.
hempartist420 4 months ago
@hempartist420 True, I don't know this particular woman personally. But if it could happen to a complete stranger, it has just as much of a chance to happen to a loved one, so yes, I do "give a shit", as you would put it.
You could try thinking outside the box, but once again, you display your limited view, your small-mindedness, your lack of intelligence and lack of compassion to the world. Oh yeah, and your really SICK sense of humour too. A joke, please ...
RigbyBullnut 4 months ago
@RigbyBullnut I work at a homeless shelter, and I give to charity on a regular basis, so you can quit pretending as if you know all things, get off your high horse because I don't give a shit.
hempartist420 4 months ago