my father was diagnosed with adult onset tay sachs at the age of 21. They told him he would be dead by 27. Hes 42 now!! He has trouble speaking, he lost the ability to walk 3 years ago, has almost no motor skills, and chokes on everything he tries to eat. He is now rapidly losing control of his muscle movements. And guess what, he lives everyday with a smile and uses what little bit of disability he gets to make his children happy. Thanks POPS
could you talk for that long? jeesh booooorrinng! put some excitement i know it is hard, but crack a joke once in a while. jeesh you think someone could
WOW This really helps haha. Kinda sad. No, really sad. Supposedly from what my tacher told me, the baby might even seem a little bit more "beautiful" than most other babies. Saaad
I'm saying haha cause at the time I posted his, I needed to know things about Tay-Sachs disease, and I have a lot of hahas in my comments/messages, because that's just how I write
I KNOW it's not funny. That's just how I write. So don't go hating me for this, because I know it's not funny
my father was diagnosed with adult onset tay sachs at the age of 21. They told him he would be dead by 27. Hes 42 now!! He has trouble speaking, he lost the ability to walk 3 years ago, has almost no motor skills, and chokes on everything he tries to eat. He is now rapidly losing control of his muscle movements. And guess what, he lives everyday with a smile and uses what little bit of disability he gets to make his children happy. Thanks POPS
lamiac2411 1 year ago 2
ur cute :)
superswimster 1 year ago
oh wow your more boring than my textbook i mean really did you think ppl were going to give u 5 stars? what a lame movie
jhskichick1 2 years ago
hey shut up troll he is close to five stars its probably for a project anyway lots of people turn in projects through youtube dumbass
JoeMama59031 2 years ago
your more boring than my textbook. and oh yeah i went there
jhskichick1 2 years ago
could you talk for that long? jeesh booooorrinng! put some excitement i know it is hard, but crack a joke once in a while. jeesh you think someone could
jhskichick1 2 years ago
good job
7672547 2 years ago
It's a good video, easy for people to know about Tay-Sachs.
Good job guys
Ubytsa89 2 years ago 2
I can't stop thinking about this HORABLE disorder.
1992peter 3 years ago
It is very sad that this disorder is around. There is a cure out there, and I WILL JOIN IN THE FIGHT TO FIND IT.
1992peter 3 years ago
Near the end, I saw him swinging.
WHY?
1992peter 3 years ago
Very sad video.
I hate to hear this word even used.
Its so depressing.
Every time I hear this word used, It just sounds so earry.
Even the word.
I WILL FIND A CURE FOR THIS DISEASE.
1992peter 3 years ago
Very good and sad video.
There is only one problem.
That shirt, did NOT go well with the video.
Win a date?
Listen.
I loved your awsome video.
But, that shurt didn't go well with it.
1992peter 3 years ago
Hello.
My name is Peter John. I'm 16 and have several health problems.
But, eve though I'm visually impared, and have a weak immune system.
I'm GOING TO FIND CURE 4 THIS DREADED DISEASE KNOWN AS TAY-SACHS DISEASE.
IT HURTS ME TO SEE THESE VIDEOS OF CHILDREN WHO ARE GOING TO DIE BECAUSE OF TAY-SACHS DISEASE.
I'LL DO WHATEVER I CAN.
I WILL FINDA CURE.
I WILL.
I DON'T CARE IF I HAVE TO GIVE UP MY LIFE.
I'LL FINDA CURE 4 TAY-SACHS DISEASE
1992peter 3 years ago
Comment removed
languagenut5 4 years ago
you really helped me finish my last minute homework
goggalore004 4 years ago
WOW This really helps haha. Kinda sad. No, really sad. Supposedly from what my tacher told me, the baby might even seem a little bit more "beautiful" than most other babies. Saaad
frenchVanilla13 4 years ago
There is nothing funny abut Tay-Sachs disease.
Why did you put haha?
Listen.
With Tay-Sachs The baby or affected person ALWAYS dies.
I'm very sad to say this, but THERE IS NO CURE FOR TAY-Sachs.
Please don't use haha.
1992peter 3 years ago
I'm saying haha cause at the time I posted his, I needed to know things about Tay-Sachs disease, and I have a lot of hahas in my comments/messages, because that's just how I write
I KNOW it's not funny. That's just how I write. So don't go hating me for this, because I know it's not funny
frenchVanilla13 3 years ago
OK!
I'm not going to go hating you.
I understand.
I'm going to find a cure for this disease.
I'm visually impared and I have several health problems, but THAT WILL NOT STOP ME.
I AM DETERMINED TO FIND A CURE!.
I WILL.
1992peter 3 years ago
Visually impaired?
I won't ask
But how can you find a cure?
What is the cure?
NEVERMIND!! AND YES, YOU WILL FIND THE CURE!
I believe anyone can find or do anything if they really try
You go on tying to find this cure for this sad disease
KEEP ME UPDATED
if you wish
frenchVanilla13 3 years ago
LONG STORY, but I was born with SEVERE health problems.
I know how I will find this cure.
I will trust in God to help me find it.
He will.
I'm already doing research.
I WILL FIND THIS CURE.
I WILL.
Because It hurts me to se these children dying because of this DREADFUL disease.
I WILL FIND THE CURE FOR Tay-Sachs Disease.
1992peter 3 years ago
I don't mean to be nosy or anything, and you don't have to reply back, but just out of curiosity...
Do you happen to have a close family member or friend that has it?
frenchVanilla13 3 years ago
I don't think a dad would say "reduced mobility" in a cold tone like that. Poor acting, but good info.
Rubystars1000 4 years ago
THANKS FOR THE INFORMATION.. :)
NON55378008 4 years ago
very informative
Thetroubleboys00 5 years ago