Added: 3 years ago
From: John71377
Views: 42,836
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  • You have grace and class. Thanks for posting this.

  • That took a while to do, I hope it's not painful. Are you not able to kneel? It looks like you put so much weight in your arms when you're on your knees

  • Just out of curiosity would anabolic steroids help this kind of muscle diseases?

  • i am very prod of people like u because they work very hard good job

  • Ive been doing these exact same things for about 6 yrs now....and i totally thought i was the ONLY one. What guts. From one 31yr old LGMD patient to another....Kepp up the awesome work and much love!

  • The things people take for granted :(

  • Thank you for viewing and I'm glad to know that this video was informative as well as helpful for you.

  • Thank you for making this video and sharing. I am a nursing student and this is very informative and helpful. Thanks again.

  • Wow, thank you so much for providing us with these videos.

    In my drama class we have to accurately portray a physical disability, I chose Limb-Girdle MD, and these are really great resources for me, it really shows what the struggle is. And I must agree with what's been said before, it's really amazing that instead whining about it, you accept it and show others what it's like. God bless you man!

  • yeah man, oh my gosh,exactly thats what we do to rise up....

  • The specialist in holidays for disabled in seaside resort Hua Hin, Thailand with wheelchair accessible beaches. Adapted holiday homes for handicapped people with free use of beach wheelchair and other aids / medical equipment.

  • I too have LGMD, dont know the exact type. Ive watch a few of your videos & they are painfu to watch only because I suffer to & its heartbreaking to know we have to live like this, but its also amazingly inspirational because you take with stride & pride. Something I am constantly working on! Thanks! *Mirabel

  • im 13 with LGMD and scoliosis and mine is not as bad as yours but i think mine is getting worse

  • i don't think that i could handle this..yall are all insanely wonderful people and yall can do ANYTHING

  • i am from india i am also victim with this deases..my two sisters also victim with mascular dysthorpy.

  • what a great guy, you are helping so many people out there, that it's self must be a great feeling, good on yeah! take care, and good luck with everything

  • I used to do that when i used to walk. I have MD - Spinal Muscular Atrophy, I stopped walking at 12 years old and I used that same procedure to stand up.

    Keep on being brave!

  • When I used to walk, I used to do just what he does. I have MD Spinal Muscular Atrophy type 3 =]

    Bless you al

  • Thank you for the inspirational videos (to me anyway) I have LGMD too, and think these videos are AWESOME!!! Thanks.

    Michele E

  • Becker's MD here and I sure can Identify with that procedure!

    I got tired of falling all the time. it became to painful not having the strength to stop the fall and smacking my face on the floor. I have since lived in a chair and have gained 120 lbs.

  • youre a inspration dude and also you look like francis from malcolm in the middle

  • You are amazing !!

    God bless you always.

  • You are such a Hottie <333 You are a inspiration to many ppl. :) Luv Lillie xoxo

  • i totally admire you!

  • Hey John you are a total inspiration to so many people. Your videos are marvellous inspiration and I do admire your tenacity and endurance but above all the overwhelming positive attitude you have developed towards your condition. May God bless you and all the other disabled poeple living their disabilities on a daily basis.

    I really admire you John, you are such an example for all of us in our quest for life!

    Love & HUGGZ, Jean-Jacques, Montreal, Canada

  • Thats what I do to get on my bed when when Im on the floor. I've never seen another person with MD, I'm not as weak as you yet, but I like that I know my future now. :) Thanks alot John!

  • Hey Buddy you are a total inspiration to so many people. You video is marvellous and I do admire your tenacity and endurance but above all the overwhelming positive attitude you have developed towards your condition. May the Almighty God shower his abundant Blessings unto you, and may he alone continue to guide and protect you by the dawn of each day and may this new year be a very successful and prosperous one for you.

  • Thanks for the posting, it's interesting to see different people techniques.

    Thanks for sharing, really infomative

  • You are a total inspiration to disabled people

  • also no offence intended

  • are your arm muscles weak or is it just ur legs? just wondering

  • I watched a couple of your videos, and i am truly proud of the human being you have become,

    heres a guy. who has a few bodily limitations, and instead of sitting back and whining about it, you turn around and make something good into it!

    God bless you, and may others with Limb-girdle muscular dystrophy see these videos and learn these tecniques from you and use them to get around and have independance!

  • i have congenital muscular dystrophy

  • thanks for posting these videos man. ...it's amazing how most people don't even see how we have to do things in our own way just to get up.

  • I take it from your choice of words that you too have Limb-Girdle MD.

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