Ann, I help people understand not to judge themselves for making assumptions but what to do with the assumptions they make. We can follow them or we can challenge them. The latter action can help us understand each other better. Your video was truly moving and your honesty appreciated. Your passion is wonderful and inspiring. And you helped us realize how our assumptions shape the way we think but more importantly, how we treat those around us.
I also find people make assumptions about what I am and am not capable of. They assume that if I am intelligent and educated, and strive to do my best - then if I can't do the same things as others, of the same way, I must be lazy, or undisciplined,obstinate, or not a team player, or maybe I'm just not that intelligent after all. I do not have muscular dystrophy- I have a form of autism. I find it sad "normal" judge me as having no empathy.
Usually when I read testimonials they only manage to make me feel worse.
But you captured a lot of the ways I feel. Even though on one hand I rather not have to deal with it in the first place, I finally feel a commonality with someone in the same situation. A literal example: when on an airplane I struggle asking for help with my luggage, since to everyone else I seem like a perfectly normal strong woman.
WTF is this.... how did i get from some black dude eating chicken to this!?!
Lucero0709 5 months ago
Ann, I help people understand not to judge themselves for making assumptions but what to do with the assumptions they make. We can follow them or we can challenge them. The latter action can help us understand each other better. Your video was truly moving and your honesty appreciated. Your passion is wonderful and inspiring. And you helped us realize how our assumptions shape the way we think but more importantly, how we treat those around us.
theandycohen 8 months ago
Thankyou, anne, for putting things so succinctly.
I also find people make assumptions about what I am and am not capable of. They assume that if I am intelligent and educated, and strive to do my best - then if I can't do the same things as others, of the same way, I must be lazy, or undisciplined,obstinate, or not a team player, or maybe I'm just not that intelligent after all. I do not have muscular dystrophy- I have a form of autism. I find it sad "normal" judge me as having no empathy.
xiphocostal 1 year ago
@xiphocostal Thank you for taking the time to comment. Your thoughts are appreciated.
anneharland 1 year ago
Hi Anne, I also have FSH
Usually when I read testimonials they only manage to make me feel worse.
But you captured a lot of the ways I feel. Even though on one hand I rather not have to deal with it in the first place, I finally feel a commonality with someone in the same situation. A literal example: when on an airplane I struggle asking for help with my luggage, since to everyone else I seem like a perfectly normal strong woman.
also, the sitting-water ski idea is ingenious!
spinkyspawow 2 years ago
what a wonderful video Anne-I too have MD; I feel your pain and every day I struggle with my disability, but like you I too am a survivor=)
humitagirl 2 years ago
Anne - I'm always so impressed everytime I see this video. Thank you for posting it to YouTube.
DandB923 2 years ago
Thanks for sharing this on YouTube. My 10 yo daughter has Bethlem Myopathy and we also struggle with the "assumptions" every day.
myopathymom 2 years ago
"Your passion for life, and living life passionately" is an encouragement to us all. No assumptions there.
Thank you for making this clip happen.
nhowarth 2 years ago
Hey Anne,
Great to see you 've got your story up too :)
Li
LianaGuitarBabe 2 years ago
Your spirit is great..you are blessed to be such a fighter.
sherry solow
dabuji 2 years ago
Anne, As a person with FSH-D I love this video. It says it all because people just don't understand. Thank you and I wish you the best.
Rod and a member of the fsh society.
1oledog 2 years ago
Anne,
Congratulations on your excellent video Anne and thank you for giving me greater insight.
TrieciaG 2 years ago
Well done!
rmlsd 2 years ago
Great video Anne, thanks for sharing your struggles and your positivity with the world.
cogsysgirl 2 years ago 2
well put :) thank you anne
mandaleeee 2 years ago
I am glad the clip had some meaning for you.Thank you for taking the time to comment.
anneharland 2 years ago
Anne, this is beautiful. Thank you.
ibwilliamsi 2 years ago