I understand far to well what ur going though. I'm a young mother of two boys. My 3 year old was diagnose with this condition back in April. I had to do my own research because the doctors didn't even know that much about this condition. AHCPresident is there anyway u can contact me. I have some questions that I would like to ask about my son.
Voting begins November 1. There is a Facebook Page called AHC Foundation How to Vote for us on Pepsi Refresh that describes in detail the instructions on wht to do now to help & how to vote beginning November 1 (instructions for voting are also in this video). Vote EACH DAY please November 1-30. This is the ONLY we pull off this miracle!
Some viewers have emailed me that they were not able to leave a comment. Not sure why that would be the case. I have confirmed that the comments option is set to ALLOW for everyone :) .
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New Online Community in 5 languages for people living with AHC.
Created by EURORDIS, NORD, and international AHC patient groups.
Check it out by Googling Rare Disease Communities
RobEURORDIS 10 months ago
I'll be praying for your family.
LuvsDoctorWho 1 year ago
@santana204 send me an email jeff@ahckids.org with your contact info.
AHCPresident 1 year ago
I understand far to well what ur going though. I'm a young mother of two boys. My 3 year old was diagnose with this condition back in April. I had to do my own research because the doctors didn't even know that much about this condition. AHCPresident is there anyway u can contact me. I have some questions that I would like to ask about my son.
santana204 1 year ago
Have updated easy voting instructions available if you email me. Also, please text vote also 104112 to 73774!
AHCPresident 1 year ago
I will send this out to everyone I know. I have met Mathew at his school and he is a wonderful little man!
woodward919 1 year ago
Happy to share this video with my network! I hope you win the grant!
DinosLounge 1 year ago
Jeff (AHCPresident) - I am casting my votes and spreading the info. My prayers go out to Matthew.
jdwalte3 1 year ago
Voting begins November 1. There is a Facebook Page called AHC Foundation How to Vote for us on Pepsi Refresh that describes in detail the instructions on wht to do now to help & how to vote beginning November 1 (instructions for voting are also in this video). Vote EACH DAY please November 1-30. This is the ONLY we pull off this miracle!
AHCPresident 1 year ago
Some viewers have emailed me that they were not able to leave a comment. Not sure why that would be the case. I have confirmed that the comments option is set to ALLOW for everyone :) .
AHCPresident 1 year ago