Input Needed, Awareness vs Health Care and Vlog, Plus Dr issues? CTDs, Lupus, MS, Crohns, Autoimmune

[AnotherSoulToClingTo]

I am on Medicaid and I can't get any good healthcare. I have all the symptoms of lupus and I have not been treated well. I wish more attention would be brought to the subject of discrimination against people who have no medical insurance. I have been to some of the crappiest doctors where I am left with my jaw dropped because it seems like I knew more than they did. I just can't believe how different you are treated when you have Medicaid/Medicare. It makes me sad.

[Chadstravels]

Have you tried anti biotic therapy like 'the marshal protocol'? If so did it help you?

[kookieduck61]

I think than anyone with Lupus is going to be intensely interested in health care issues, comments, suggestions and information. I say put it all on one channel!! If there is anyone out there with Lupus that hasen't had any insurance/healthcare issues I'd like to hear from them!! To me, Lupus, healthcare and insurance can't be separated. (Sorry for my bad spelling.) This is just MHO. I like your videos.

[WillowDove40]

I would subscribe to as many channels as you had! I'm SO glad you shared all that about shopping around for a doctor. Too many people just blindly go and trust them without asking any questions. They aren't GODS!! They're humans and they work for us! I almost died because I stayed loyal to a doctor for too long. As soon as I fired him and found another I was diagnosed and put on the right path to healing within a month. As you can see I'm passionate about such things. Thank you! Love and Light

[philosophical29]

Hi,

I had RA for 13 years,recently developed lupus, within 7 months lost my kidneys. So just like the RA, the lupus is aggressive. Also, have a lot of sjogren symptoms with no longer producing my own tears and painfully dry eyes.

Had to deal with a lo of insurance issues off and on.

So very interested in your channel and your blog. I am political. a humanitarian. and I feel democrats care about the people more. I don't think getting healthcare is political however. I am with you on that

[Michellemlm]

Thank you so much. I like those ideas... Also, I'm in the process of starting an organization.. one for CTDs and all Autoimmune diseases.. One for Lupus and both will have their own websites, the ability to blog, have support forums and more... but it will be volunteer-based ran by people with the diseases (as well as professionals who specialize in the diseases.. both sites will be for support purposes but also all proceeds or any donations every received will go 100% to research.

[Ladyshystar]

Hi Michelle. Well this has taken off like wildfire. Good for you! LOTS OF US OUT HERE WHO NEED A FORUM. I think you should have 3 channels. One For awareness and updates, One for people to vent and bounce thoughts and feelings around on, and 3 THE ONE FOR YOU TO EXPRESS YOUR BLISS.

[TAMMpON]

I can't thank you for all that you're doing Michelle!:-)

I am sorry that you have too deal with so many health issues, but I support all that you support!:-)

YOu would never offend me as I am not into politics, but I believe we all should be covered medically!:)

If you do make more channels please inform me as I will support them all!:-) Take care and may you have a pain free and beautiful channel!:-)

You know you're doing great is when you have haters!:-)

peaceouTy!

TAMMpON

[itsme123445]

good video

[Michellemlm]

Thank you. Yes, I think with 2 channels I can talk about anything on the one& then it won't take away from awareness supportive or educational videos on this channel.. yet, I'd still be able to talk about serious issues or vlog about fun things too on a separate channel without it hurting the cause of this one.

Would love to go to Canada for medical if I could. They don't allow for us to come for that sole reason. If I were visiting and something happened, then I could.Or I'd need citizenship.

[1jtaztube]

Very nice vid. I think it's really great that you make two channels. Is it possible that you can seek proper treatment in Canada or other parts of U.S. for example?

[Ladyshystar]

YOU LOOK GOOD TODAY! THE ROIDS ARE KICKING IN! Re: BringIT. My husband has been trough hell with this. My daughter has NEVER KNOW ME WELL. Its hard sometimes. But you have to get over the why me and all that stuff and FOCUS ON Survival FOR YOUR "FAMILY". Thats what kept me hanging in through all the MESS. HANG IN THERE BRINGIT! I dont know what kind of a lady you wife was before she got sick but I DO KNOW SHE IS GOING TO NEED YOU NOW. YES AT TIMES IT IS HELL, but life is WORTH FIGHTING FOR..

[Michellemlm]

Yes,right now, from the front, they are making me look YOUNGER lol As long as I don't turn my head-it's not too noticeable on camera, yet. I've been on high-dose for 1-1/2 yr now, but they were lowered briefly& I was starting to look like myself again.Now I'm puffing up &getting the facial changes again. Pretty soon, I will look 100% not like me. It's weird how it changes the face so much isn't it? Also, Thank you for your supportive comments to others. Encouragement helps so much.

[salcedo199]

michille these videos have help and are helping alot of pepole pleas dont let eny "haters" stop you.and pleas dont say you are going to die it makes me sad to hear that.you will live a long life k. and the idea about the new page i think one page is good but if you feel you need to do so then just take it easy.ok sis good luck on what you decide

[Michellemlm]

Thanks Victor and big hugs to you. I hope you are feeling alright. On the page, I guess I am afraid of mixing too many topics and especially one that could deter people from awareness... so I want to be extra careful and thought it'd be good to see how everyone feels about it.

Sending you an email here in a min about other things and to see how you're doing okay?

[AmyTx]

.Lupus is all about maintenance and when you have no insurance its tough to get the proper treatment..If breast cancer is a quick way to get state insurance then why not lupus its better than nothing..Although Blue book on disability now has lupus listed as a disability...

great video dont change a thing honey your here speaking for those who may not get the chance.. so somewhere out there your making change by awareness...HUGS

hehe couldnt fit my thought in one comment...

[Michellemlm]

Exactly, it's really part of being sick, with any chronic illness really.. if you get to sick to work and you're the provider of the family, the insurance goes away not long after your job.. With me, they wouldn't let me buy it for any fee but I'm not sure if it was because of all the overlapping diseases or what.. but it was denied, denied, denied.. the nueromuscular disease is progressive and that is what I think did it... It's hard to not talk about the frustrations of med care.

[Michellemlm]

hard to not talk about it and other things, just every day life things with all of this.. the bad but the good too... I just don't want to distract from awareness, especially if I discuss something like health care issues and turn anyone away from learning about these diseases... I'm so thankful for the feedback too, it's really going to help because I've been torn about this for a few weeks now.

Thank you.

[AmyTx]

.long story short I went into a lupus flare that almost killed me and i had to file for disability and had to live in a nursing home for 3 months..i left with medicaid and a few months later got disability year later..I would not be here today if I hadnt gotten really sick.

[AmyTx]

michelle another great video.. I was umemployed but my husband was self employed and we applied for self employed insurance well they denied me because of lupus.. i tried buying the high risk insurance but who wants to pay 600 a month for limited care..I tried state insurance it didnt help my husband made too much.

[puglover50]

Michelle....Another great video that covers many things in a small period of time..This is YOUR video..Just give us any info that you want. I find some info in every video that is helpful...Just keep them coming. I don't care what you choose to talk about. I trust you :)

[karl9x]

Our health care system is so screwed up, those who need care the most are dropped from their plans. It's hard to recover or cope when you're afraid of bankruptcy.

[DeadlyBusiness]

It's good to get away. I'll follow you.

But keep this channel.

I'm just getting sick and tired of these games congress and doctors are playing with our health.

I pray something gets worked out. But if it doesn't at least we can look to our family and friends for some positivity.

[Michellemlm]

Thank you. I just worry about the different subjects and different tastes different people you know? and it interfering with educational and awareness information.. so far the comments day do it all here on one channel but if it's better to keep this one strictly awareness/educational and then be able to let loose on another channel I'm okay with that too... And thank you for YOUR vids btw... I know you've done some and are about to do more on health care issues. Thank you.

[Michellemlm]

LOL.. "say" not "day" dang typos.

[darylhorner]

As a man with Lupus (among other autoimmune issues) i support whatever you do on this channel

[Michellemlm]

Thank you Daryl. Yeah, that lupus, sure doesn't like to travel alone huh? I'm sorry you have to deal with it as well.

To others, if you wouldn't mind... check out Daryl's videos.. He's one of my favorites on Youtube. He's a comedian (does stand-up and YTube) and is GREAT at what he does...

Thanks again Daryl,

Michelle

[DeadlyBusiness]

Hang in there D!