omg i was so suprized to see your vid and see other people! i have a daugther that was born with cmv she will be 15yrs old end of the year. we are in the UK and have never met any other family faced with this. its been a veary lonly, isolating jerny! she had seizures upon till she was 11yrs, blind in 1eye limited sight in the other deaf in 1 ear, talipes of both feet, microcephaly ( small head) feeding timewas a battel and a half add the vomiting. gastrostomy tube put in when she was 12 yrs.
Hey Shortsexy2, thanks for stopping by and commenting. Sorry, it's been a while since I've taken time to respond. Please be sure to stop by the web site in the video description above. stopcmv DOT... com. There is no need to be alone. You can join the site and talk with other moms and share stories and advice about our kids with cmv.
When I first found this out about my baby girl, I thought I was alone. I didnt know anything about this virus. I had never even heard of it. I cant believe that something as big as CMV is hidden from everyone. I wish more mothers knew about it. God bless you all!
She is blind, deaf in one ear, she has a seizure disorder. She has to take medicine to have bowel movements. She is now 2 years old. She cant crawl, walk, feed herself. It is a fight to get her to eat..Im praying that it never comes to a feeding tube. Bless this little girls heart.
Hello. My name is Amber and I also have a daughter that was born with CMV. I had an uncomplicated pregnancy and I had no idea anything was wrong with my baby until she was about 5 months old. By that time she should have been doing small things..she was doing nothing...
Hello! My Name is Julie an I also have a daughter who was born with CMV. Believe me she was born with all of the above.
she was born 2 wks early but her birth wt was 4lbs 14oz so was very tiny. she also had a seizure right after she was born. at the time I was only 15 yrs old. The doctors told she wasn't going to live to 3-6 months old. To this day I'm very thankful that the man up stairs has given us going on 18 yrs old. She will forever be our Special Angel. And I Thank God everyday day
My son, Kaiden was born 6wks prem by emergency c-section cuz he had stopped moving. At 5 days of age we received the devastating news- he has Congenital CMV. We were told he was never expected to live and that if he did he'd likely have CP, Autism, Mental Retardation, Blindness, Deafness, etc. He was born July 4 2007 3lb 14oz. He DID live and his only permanent damage is to his hearing. I attached my video for anyone interested or you can jus go to my home page here.
I hate that they keep saying its uncommon. It's not uncommon. So many people have contracted this virus. My daughter was born with it.
moriahar 4 days ago
omg i was so suprized to see your vid and see other people! i have a daugther that was born with cmv she will be 15yrs old end of the year. we are in the UK and have never met any other family faced with this. its been a veary lonly, isolating jerny! she had seizures upon till she was 11yrs, blind in 1eye limited sight in the other deaf in 1 ear, talipes of both feet, microcephaly ( small head) feeding timewas a battel and a half add the vomiting. gastrostomy tube put in when she was 12 yrs.
shortsexy2 2 years ago
Hey Shortsexy2, thanks for stopping by and commenting. Sorry, it's been a while since I've taken time to respond. Please be sure to stop by the web site in the video description above. stopcmv DOT... com. There is no need to be alone. You can join the site and talk with other moms and share stories and advice about our kids with cmv.
Kingtexas2 2 years ago
When I first found this out about my baby girl, I thought I was alone. I didnt know anything about this virus. I had never even heard of it. I cant believe that something as big as CMV is hidden from everyone. I wish more mothers knew about it. God bless you all!
22MsAmber 2 years ago
She is blind, deaf in one ear, she has a seizure disorder. She has to take medicine to have bowel movements. She is now 2 years old. She cant crawl, walk, feed herself. It is a fight to get her to eat..Im praying that it never comes to a feeding tube. Bless this little girls heart.
22MsAmber 2 years ago
Hello. My name is Amber and I also have a daughter that was born with CMV. I had an uncomplicated pregnancy and I had no idea anything was wrong with my baby until she was about 5 months old. By that time she should have been doing small things..she was doing nothing...
22MsAmber 2 years ago
Hello! My Name is Julie an I also have a daughter who was born with CMV. Believe me she was born with all of the above.
she was born 2 wks early but her birth wt was 4lbs 14oz so was very tiny. she also had a seizure right after she was born. at the time I was only 15 yrs old. The doctors told she wasn't going to live to 3-6 months old. To this day I'm very thankful that the man up stairs has given us going on 18 yrs old. She will forever be our Special Angel. And I Thank God everyday day
gilariver520 2 years ago
My son, Kaiden was born 6wks prem by emergency c-section cuz he had stopped moving. At 5 days of age we received the devastating news- he has Congenital CMV. We were told he was never expected to live and that if he did he'd likely have CP, Autism, Mental Retardation, Blindness, Deafness, etc. He was born July 4 2007 3lb 14oz. He DID live and his only permanent damage is to his hearing. I attached my video for anyone interested or you can jus go to my home page here.
dueaug132007 3 years ago