Item on M.E. and DLA/IB - Politics Show

[TheHazeyQ]

Well done. lass. You go, girl. X



[petchharrison]

MOST OF THESE HEALTH TESTS ARE INVALID ITS JUST AWAY TO MAKE AS DEGRADING AS POSIBLE...JEFF ASPIE...DONT FIT THE BOXES AS WELL...

THIS NEEDS THE EUROPEAN COURT IN TO LOOK AT THIS...

[edmilfan69]

Well done Sam Brown, for fighting your corner and that of others in your situation too. It's something all of us in similar situations need to be doing now, especially since the cuts and reforms are continuing.

[edmilfan69]

My advice to anyone going for a medical assessment is get a relative to go with you as a witness, or better still, a representative from one of the mental health charities and organisations. Tell the truth and be as open about your condition(s) you experience/suffer, and don't be talked down or bamboozled, or let physical tests be all they do - SPEAK OUT about your FULL illnesses and experiences in the everyday sense - and how things may change from one to another.

[edmilfan69]

So much for the Coalition's claims that disability/sickness welfare reforms will encourage "independence". It's just another way of shaving-off money from the poor, sick and vulnerable. Those who are already finding life tough enough, and those of them who are already trying to be as independent as possible. Now their lives are just being made more trying. What is happening in this country is absolutely inhumane and disgusting. Assessments are often irrelevant to the person's every experience.

[Adreamofhoney]

This girl is my new hero! How admirable to go and do this when she could so easily be misjudged as "well if she's well enough to do that... she must be making it up/fit enough to work". I have recently discovered that there are a proportion of cu*ts out there that STILL think this is a made up illness. And she is out there ranting and being angry about it. Wonderful. I'm scared to do this for fear of people misjudging me like I mentioned about - which has happened.

I was at university with M.E

[bigfist255]

I have been in the atos fail and appeal system now for 2 years for a mental condition had enough now going on jsa but I am not fit to work but have to say I am to get the £65.better than having to constantly appeal and get more ill.

[Emma20055]

thats Bollox.......She should get it......Shes right...Tests does not relate to a persons Illness......Ive heard of this, Like many Chronic Illness u have good days and bad days.......Looks can Be deceiving....When is People going to stop Judging a book by its Cover....Hope all is sorted out now

[guesspy287]

what an inspiring video.

Stay strong Sam, you deserve this.

[guesspy287]

i love you so much ryan ...

[SAMMYBABYLOVE]

Hello everyone

Its Samantha here, im so so taken back by all your kind comments! Im trying my hardest to make changes for us guys...

I will be writing a letter to the secretary of state later in the year! And im going to send him a copy of this video to let him know that im not going to stop till he sorts it out.

Im trying to get into the fashion world as a stylist you can guess how hard that will be for me with all this negitivity that surrounds M.E!

Stay strong all

Love Samantha

[petchharrison]

@SAMMYBABYLOVE HI IT JEFF A 48 YEAR OLD ASPIE TRY THE EUROPEAN COURT FUK POLITICIANS THER TO AFRADE OF MURDOCK AND THE BANKS THEY WONT DO ANYTHING MABE A JUDICIAL REVIEW

SORRY IVE GOT DYSLEXIA JEFF...SEE ME AT QRZ.COM UNDER MY HAM CALL = M6GLH...

[StopUnumNow]

Many thanks for posting

[GBCOne]

Bear in mind that no government minister appeared, hinting that this is non-existent on a list of priorities, so a lot more has to be done. Things are going to get tougher. Congratulations to Samantha for what she did but there has to be more of it and from more people.

[BARMA1982]

Well done Sam - very inspiring :-)

[Lothiane]

Thank you, Sam!

[jorgepeterbarton]

this is quite a relief to hear someone campaining about this. I'm not quite well enough to do so,am housebound 95% of the time living off a single parent's salary.

I'm at the stage where i would be at university after getting AAB at a level from home study(i did only a month or two, before it made me worse).

Infact, i have not had an explanation to why i cant get benefits. theres been no reply to letters i have sent. and its been 4 months where they occasionally ask me to fill out another form.

[ahoghill54]

Well done Sam! I have had ME for six and a half years. I used to manage an adult education centre and was a part-time tutor in the Royal Welsh College of Music and Drama. This is the only TV feature on ME I have seen this week. Thank you for making it happen.

[oldshoremore]

Good for you, Sam. I wish you all the best in your studies and with trying to get real change for those of us with ME.

[hirsutemal]

As a "moderate" ME sufferer, in my early 60's, unable to work since 2003, I really appreciate the efforts Sam is making.

An unfortunate fact of ME is that 25% of sufferers fall into the category of bedbound/housebound. I only hope that Sam in her attempt to pursue a degree course and continue her campaigning will not suffer a relapse into a more severe condition.

[Meezermagic]

Thank you, Samantha, for putting yourself through this, and I hope you don't suffer too much "payback".

I will be very interested to see the eventual outcome of your work.

Best of luck with your university course.

[happydays4ME]

Thank you sam for doing this. if you were to try to work as well you would make yourself ill and i know only to well that that could put you into a much more severe level of this illness that could take years to recover from. Good for you for remembering that THEY WORK FOR YOU.

[SAMMYBABYLOVE]

Thats me...samantha brown...any questions please get in touch :)

[haggisagain]

Thankyou for downloading this as I missed it on sunday

[MEagenda]

ME Awareness week. Today is 12th May.

Dr Shepherd (MEA), Dr Enlander, Dr Kerr and associates have chosen today, of all days, to launch news of a new title.

A journal called "FATIGUE".

Why not just take Myalgic Encephalomyelitis and put it on a plate marked F48.0 and hand it over right now to Wessely, White, Sharpe, Creed, Chalder, Moss-Morris, Mayou, Escobar, Kroenke, Fink, Barsky, Henningsen...

Lost for words. Blind with anger.

"A new Journal FATIGUE will debut early 2010."

[ahoghill54]

I haven't heard about this. Where did you find out about it?

[MEagenda]

A brief notice, unsigned, but presumably eminating from the proposed journal's Editor, D Enlander, was circulated via the HelpMECircle list and via Co-Cure on 12 May.

In response to concerns, Enlander has has made various statements, which can be read at Co-Cure list archives along with commentaries. There is a copy of the original 12 May notice on my website. If and when the Editorial Board issues an official position statement setting out their proposals, I will publish that on my site.

[luminescentfeeling]

Thanks for uploading this. :)