Added: 3 years ago
From: wpsu
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  • Prayer

  • watch the first documentary about huntington disease in portuguese made in brazil, we're looking for channels to show it.

    see on my profille, the " convivendo com a doença de huntington" video

  • HD wiped out my whole Moms side of my family ... i havnt been tested Yet ... if i do have im still gald that i was born ... my brother has it now he is in first stage and he is still the coolest person i ever met in my life ... Ronnieboy RULES ...

  • Gundikori - you are correct in that the only way to stop HD presently is to not have children. Having said that, I completely disagree with you that reproducing is "cruel and irresponsible". Had my mother made that decision, my two brothers and I would not be here. My oldest brother has HD and would he agree with you that he never should have been born because life for him now that the HD has set in is cruel? Never. He's had 40 years in this life to touch lives, make a difference, and en

  • When did this interview take place?

  • The recipe to deal with Huntington is the same as dealing with life: making the best of everything and loving everyone around you. Behind the HD there is a person that have the same rights of everyone else. Everyone have imperfections, who are we to judge?

  • @jpayres - there is probably more that can be done right now. Glutamate excito-toxicity is in chain of steps that kills neurons... and nature's endo-cannabinoid system is in place to stop this toxicity. Eating plenty of Omega-3s, limiting Omega-6, and avoiding MSG, alcohol + sugar should help the body slow progression of the dementia (neuron stress and death). These are NOT cures, but might help to greatly slow the progression.

  • Hello early-to-mid 90's!

  • @YawnGod and still no cure available. My best friend has hd and it fucked up!!!

  • the sad thing about HD is that it has a late symptom onset, when one ALREADY had children. Go study Genetics, it will explain you a lot about hereditary diseases.

  • completely agree

  • Thats easily said considering you are probably not a Huntington's patient, nor would you have a parent with Huntington's? If one of your parents had this disease, and had you before being diagnosed, would you no longer appreciate your life and wish no longer to exist?

  • I think she has a fair point if she doesn't want her children tested. After all, at this current stage there is no effective cure so having the children knowing would serve no beneficial purpose. They won't be able to do anything about it. It is the same as Alzheimer's, no current cure for this degenerative disease, and you can get genotyped to see if you will get later in life, but what's the point?

  • @esbliss  I can think of something worse than reproducing with the Huntington's Gene, reproducing with the stupidity gene, STOP REPRODUCING!!

  • the only way to stop it is to make more research and find a cure!!!

  • Don't know how I missed this one... what a strong couple... do you know how they are doing today? My dad died from HD and my beautiful sister has HD. I am at risk and considering testing in the very near future...

  • I thought this was really good. It's hard to find video of someone in the earlier stages. My husband has HD too.

  • When was this filmed? Recently? It looks like the nineties or something :P

  • i don't know but the description says 12. August 2008

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