Hi, thank you for your video, my name is Martha and I'm a Cerebral Palsy child, your video made me remember of what my father used to do to me when I was little. Honestly, it made me cry, thinking how proud my parents are whenever I made little achievements . Maybe that is also the reason why they praise me so much when I started to play the piano on my own. All I thought, they are just being supportive (Well, That is also their purpose). I never thought that I already made them proud. THANKS!
Thank you for posting this. My daughter is exhibiting some odd behavior and I watched your video to see if it could be CP (though I do not think it is). Your son is very fortunate to have a parent like you and it seems the two of you have an amazing relationship. Best of luck to both of you and I'm sure he'll live a long and happy life!
Zak is lucky to have you as a father. Not many dads are like you ;) I hope you continue making progress with your son. He's so cute btw! -3 this whole video kept making me go 'Awww' :3
@SasukeLover090 thank you for your kind comments. He's going to turn 5 very soon and he's really amazing! He's very musically inclined and amazes us every day. : )
Thank you so much for posting this. My son Aiden is 11 months and is in the beginning stages of therapies due to possible CP. it's so nice to see someone from personal experiience who can be so informative about CP. also Aiden wears glasses as well how did you get him to keep his on?
@TheColie81 Zak had his glasses with a wrap around cord to secure them on when we was a baby. For the most part, he'd let them be, but sometimes he'd reach up with his index finger, hook the side and pull them off. It's just a constant thing to put them back on when that happens. Nothing much you can do besides that. : ) Let us know if you have any other questions.
I think Renee is the luckiest woman in the world. My son's father skipped out when he found out our son had tethered cord and chairi malformation. God Bless you all! Our prayers are with you!
@76msjackie Wow, thank you! I'll have to tell Renee that one ... don't know if she'll believe it though. Seriously though, sorry to hear about your son's father. It's saddening and sickening to me when I see how many men across the board bug out of their responsibilities and duties as fathers. I hope you find a real man to be there for you and your son. God bless
This video brought tears to my eyes. I myself am a young mother with a daughter who has CP... It is a very great video and has opened my eyes to trying new things with her! Thank you ssooo much and god bless you all.
My son has all the symptoms you described above and in addition cannot see properly as well. I have a faint hunch that he is able to see things very partially etc. How did you know about the spectacles for your son. I pray to god that my son too would have something as mild as distance vision and not actual blindness...please let me know...we did consult an opthalmist who said that his eyes are clinically fine but the brain rvisual ecepters could have taken a beating...
@SPKORGSP Zak had severely crossed eyes whe born.He had 2 surgeries to correct that.Thru that experience, he had to see a child eye doctor, who did some "tests" to determine Zak's eye sight. With measuring dialated pupils, etc, the doc determined Zak was far-sighted & gave a prescription for glasses. however, it's been hard for us to tell whether he really needs them or not.He succeeds at identifying stuff & doing tasks both near & far away. Guess we have to wait til he's older to know for sure
My son has all the symptoms you described above and in addition cannot see properly as well. I have a faint hunch that he is able to see things very partially etc. How did you know about the spectacles for your son. I pray to god that my son too would have something as mild as distance vision and not actual blindness...please let me know...we did consult an opthalmist who said that his eyes are clinically fine but the brain rvisual ecepters could have taken a beating
Hello agaiin. How is Zachary doing. Hope all is well. We just had twins premature 23 weeks and one has bleeding in the brain when he was born. The bleeding stopped but no one knows the outcomes until the baby starts developing and do things own his own. At what age did you noticed Zachary with cp. thanks.
@manny2741 Hi. We had noticed Zak was doing weird things (fisting hands, scissoring legs, cross eyes) from about 2-3 months of age. However we really didn't get a diagnosis until he started having seizures at 7 months old and the doctors did an MRI which revealed the brain damage giving us a cerebral palsy diagnosis. He only had the seizures for a month and we were able to get them stopped by medication.
Great video. Your a great father! My son was born premature and had some brain bleeding. We are keeping an eye out for any signs of cp currently and this really allowed me to see some items to look for. Just a real nice video in general. You are really great with your boy!
@ferguslogic Thank you very much for you kind comment. Please let us know how your son progresses and if you have any questions at all. We'd love to help. It can take us some time to respond, but we try to respond to everyone who contacts us with questions.
@The1foxycougar He's doing great, thanks for asking. If you have the time, you should go to our channel and check out some of the more recent videos of his progress. He's 4-years-old now and surprising us every day : )
wow that is very nice on how the baby is trying to pick up the toys. I have a blind child with mild CP and at first he was so stiff but once you work and work they do better little bu little, now my boy is 4 and he moves his both hands and is not stiff, I am happy that dad is doing so much for the little one, it brings a lot of joy in my heart.
hello im a mom of a quadriplegic cerebral palsy baby he is now three....im so happy to see that ur baby is progressing...and it gives me hope...its so hard there r hardly no PT available in my area ..im so sad that my baby is still stuck and i havent see no progress but i seen ur video and i seen ur angel and how great hes doing:)
@antnjaxz04@antnjaxz04 Your baby is going to do great. Keep the hope and prayers. Anything you work with directly with your child will help them in so many ways. Sometimes there will be plateaus where you don't see progress, but don't give up. Pretty soon, they'll amaze you with their little successes!
Great to watch your videos, I have a son who is 2yrs old and has CP with high tone in his legs aswell. You are an amazing father and Zach seems like such a happy kid with a great sense of humour and loves a bit of fun (just like my little boy). I wish you all the best..
@Lollykenny001 thank you! Wish you all the best with your kiddo too. If you ever have any questions or just want to talk about your journey in raising him, let us know, any time. Cheers.
hi! what a wonderful video..it just shows how long are parents willing to go through for their child. I also have a 13 month old baby with cp..you're video give my heart such hope..salute for a very supportive parents like you guys.. :D
I must say... You are great man and father. I also have a CP child and your video helped me much to understand how does it look from the side... Thank You for such a video!
Hi. Thanks so much for posting your videos of wonderful little Zachary. I feel like I've gotten to know this sweet boy through all of your postings. We adopted a baby girl who is 4 months old and still has very clenched hands and only rarely opens them. Her pediatrician is worried she may have CP but we won't know for sure till she is 6 months old. As we await diagnosis, I am wondering if you recall what signs/symptoms Zach may have had this young, realizing every child is different.
@shelbywelbypurple Thank you for contacting us. I wish you the best in this time of "unknowns". The things we noticed with Zachary were the following: clenched fists, pointed toes, stiff legs, scissored legs, severe eye-crossing, stiff arms and twisted out, rigid movements compared to other babies, very delayed on all developmental milestones.
i lived at the willowbrook state school from 1969 to 1980 and one of my punshments was clean and washing kids and adluts with cp i didnt know what they had at the time but i rememabr they had people with cp that would lay on these wooded carts with the mattres on it. all day long. but when iw as getting use to it and didnt mind helping them they sent me to another word with the real sever disabled the onces that where filenet onces and had to wash the walls and the floors.
My son is 10 months old and we just saw a pediatric specialist and I was told that he's showing signs of cerebral palsy..I'm looking at this video and I see alot of the things your baby is doing that mine is also doing. Thank you for sharing this video..this gives me some hope for him..
@ZoNLove07 Hope is the best thing you can provide for your child. Be strong and positive for them so they will know the love you have for them. It is very important the attitude a parent takes, as some parents live in their depression of their child's condition and that affects the growth and personality of the child. Faith, hope and love : ) Let us know if there's anything we can help you with
Your family is absolutely beautiful! It is times when i see families like yours, and parents like yourself and your wife, that i remember how good people can be. Your gorgeous son is lucky to have such lovely, caring and supportive parents. Thank you for posting :) All the best!
Your family is absolutely beautiful! It is times when i see families like yours, and parents like yourself and your wife, that i remember how good people can be. Your gorgeous son is lucky to have such lovely, caring and supportive parents. Thank you for posting :) All the best!
I think it is people like you that make life worth living. I know a lot of people that would have given up on there child and that is what makes you better than most people.
@fohalo Wow, that is extremely kind of you to say. Thank you so much. We are blessed by your comments and it is our hope that our son's life can impact others as much as he has positively changed ours.
Your child is very lucky to have very involved parents like you. I see in this video where you hold his right hand down for him to concentrate on pressing buttons with his left hand. This is very good constraint induced movement therapy for his left arm but I think if you somehow wrap his right arm behind is back and have him play and do various activities with your supervision he will concentrate more on his left arm. I believe we concentrate more when unaffected side is tied down. good luck.
@manny2741 Thanks for the suggestion. We're always looking for great ways to improve his left side's strength. Really appreciate you watching and your kind comment.
@jmarovich007 thank you so much. it's tough to do all the therapies sometimes. We balance it out with just letting him be a kid so we're not doing therapy all the time, but it sure helps his development. Thanks for watching our channel.
She is determined for sure. We get the diagnosis on the 26th of this month, and im going to be requesting an MRI for sure and some blood work as well to rule out other syndromes. She works hard with physio everyday...she's my little love bum :)
She also keeps her hands in fists but is able to open them easily. she doesnt use both hands when reaching for objects either. When she is sits were usually bending at least one knee. She also really resists rotation, but were working on it. Another thing is she wants to walk so bad, so we do little walks but she tends to push her upper body backwards. She also doesnt speak at all. But she is an absolute doll, always smiling, and she's smart too. Keep on the good work!
@TheTutulover It sounds like your daughter is a strong & determined little girl! Thank you for sharing about her. Would love to hear about her progress. Are you working w/ doctors on getting a diagnosis? Have they offered an MRI? The MRI showed us with certainty that Zak had CP-it showed the areas of the brain that were damaged. I hope & pray the best for you. Feel free to message us anytime & check out our online community for families raising children with special needs at eFamilyTV (dot) com
I really love your video. It looks like our 13month old daughter may also have cp. She also has very tight/ tense muscles. Through a lot of physio we have broke a lot of her tone. She can now stand with her feet flat, and she is finally commando crawling. She is still unable to sit up by herself, but can sit safely if sat on her own because she spreads her legs quite wide. She is left hand dominant so it also take a lot of encouragement to get the right hand out. She has made vast improvements.
im 17 and also have cerebral palsy with a left heamaplegia i honestly think there needs to be more people like you because when i was younger there wasnt much acknowledgement and awareness by my carers etcetc. now as a teenager i am paying the consequence...
@notyourz that's very kind of you. thank you. my wife and I are doing what we can to spread awareness and understanding. We feel the more that is out there, hopefully, the less ignorance and fear others will have. And it's the ignorance and fear that can make others harsh. you should also check out our website at ExceptionalFamilyTV
Hi, I'm in london with a 2yr old with c.p. I applaud you for making this video( he is so cute) It would be lovely to hear from either of you as you're in the same boat and I'm so tired of people saying how pretty she is then when c.p is mention they say "oh she's slow?" NO c.p affects her back and legs not her mind.
She is so funny and clever and all mine! <3 love to you and your family
@mssobriety1 Hello and thank you for your comment. We would love to connect with you. I will message you through YouTube to exchange contact info. Totally understand what you're going through too. No one understands and with their ignorance, unfortunately, comes really bad comments or questions.
Nice care you are taking of your child, my nephew is also a cp patient please mail me if you have other important information regarding the cp please help me because we people have lost our heart.........
I'm so glad to see that you are so involved with your son. I'm a 2yr old teacher with a CP student in my class and he is the light of my day every day!!! Best of luck and keep up the outstanding parenting!!!
Thanks so much for giving us this insight into your life with Zach. I'm a med student too and have found your videos so helpful in my understanding of CP. I'll recommend your videos to all my med buddies. And you're such a fantastic dad! You've made my day:)
Thanks so much for giving us this insight into your life with Zachary. I'm also a med student and have found your videos so helpful in understanding CP. I'm going to recommend it to all my med buddies as I'm sure they'll all benefit. Also you are such a fantastic dad! Thanks again, Han:)
Thanks so much for giving us this insight into your life with Zachary. I'm also a med student and have found your videos so helpful in understanding CP. I'm going to recommend it to all my med buddies as I'm sure they'll all benefit. Thanks again! Han:)
You are a GREAT dad first of all and thank you for sharing this video with us, it helped me understand a lot more about CP since I'm going to take a nursing test soon
@beninay I'm always amazed to hear from medical students and how they learn more about CP through this vlog. Thank you! I'm happy in any way it can help spread awareness, knowledge and understanding of CP. Let us know how your nursing test goes!
Hey! I'm a medical student and I think your videos have been in invaluable for my understanding and recognition of CP. I've recommended this to my medic friends as we don't really get to see many CP patients on the ward. Thanks very much for sharing Zachary with us! He is absolutely adorable! Hope everything works out well for him x
@MeeraThay truly means a lot that you commented. It's amazing to hear that this kind of video can help out medical students understand children with special needs, in Zachary's case, CP. Blessings to you on the rest of your studies! Please also know we created an online docu-reality series for families raising children with special needs - look up Exceptional Family TV dot com
Hey! I'm a medical student and I think your videos have been in invaluable for my understanding and recognition of CP. I've recommended this to my medic friends as we don't really get to see many CP patients on the ward. Thanks very much for sharing Zachary with us! He is absolutely adorable! Hope everything works out well for him x
Thank you so much for putting information out there about CP, as it's really important people understand the varying degrees of the condition & how it can effect the body. I'm 37 and was born with CP which only mainly effects my right leg. I had operations as a child to lengthen my tendons etc, but have been left with a limp. I just wanted to say that Zach is gorgeous & I'm sure he will achieve everything he wants in life, just as I have. Take Care Lisa :)x
@hobobird thank you Lisa. We're also working on putting information out there on all diagnoses for children with special needs and the families that raise them. it's called Exceptional Family TV and we do a weekly docu-reality series. eFamilyTV . com
Hi my name is Jeremy and I have CP. I think it is great that you put videos up like this. I think its a great thing to inform people about CP. I am 21 years old and I love to educate people about CP I think you should contenu to post videos.
@jdog43089 Howdy Jeremy. Thanks for stopping by and watching! We posted a bunch of family videos and even started an online docu-reality series called Exceptional Family TV - exceptionalfamilytv. com. I watched your video and wish you the best in becoming a motivational speaker. You will really be an advocate for those with disabilities. Thanks!
Hi, love your video, our daughter and son-in-law have a 5mnth old boy who has been diagnosed with Quad/Spas/CP - married and together 10yrs and long planned baby - pls can u contact me with a talk?
@utubeabm Hi, I am trying to put your videos onto a dvd for our daughter and son-in-law - they can't get broadband in their area until later this year - am not good with technology so pls bear with me - also want to pass dvd copy onto husbands parents
I will definetly keep watching and refer my niece to your channel. She is a mentor at her local boys and girls club and was recognized there by the National Honor Society.
She is also on a sled hockey team and has been since the age of 10. She has accomplished more in her 18 years than some abled bodied people I know.We are so proud of her.One piece of advice I offer is always work with Zach for the things he can do not the things he can't. And remeber...There is POWER in LOVE! Take Good Care!
Zach is adorable and you are so great with him.I really enjoyed this video! My great neice has C.P. she is 18 just graduated high school and is on her way to college.She recieved P.T. from about 6mos. similar to Zach and thoughout her years growing up.She is wheel chair bound.However she graduated with honors.And is always teaching the people around her a new way of seeing things,she is very perseptive. I hope all the best to you and your wife and believe Zach will be fine with you on his side.
My cousin has cp and they said he would never walk or talk, at the family reunion on the 4th of July he ran around and nearly talked me to death. He's a great person and about 14 now, and the way I see you interact with your son makes me feel as though there truly is no problem that can't be solved. I hope I can be as great a person as you and your wife, and tell Zachary to keep up the great work.
@myjcakebatter that's really awesome to hear about your cousin. We hope and pray that will be just what happens with Zachary some day too! We'll keep encouraging him and will definitely let him know you said to keep up the good work. Thanks!
Lovely to see other parents as dedicated as us...our son Bjørn is 6 years old now and is in a similar situation. Bjørn was born in South Africa, but 2 years ago we made the sad decision to move to Denmark (where my husband is from) because of the amazing healthcare and treatment for him, we've never looked back! :0) I just wanted to say thank you for sharing your story and I hope more people do this to show how special these children are.
@lingus74 Hello Denmark! So glad to connect with you. It is our pleasure to share our story - it's all been in the hopes of meeting other families around the world, just like you! Looking forward to hearing more from you. We also started a global online community with a weekly webisode reality show on families raising children with special needs. It's called Exceptional Family TV. (since YouTube will not allow websites posted, just google the name) Check it out when you can.
Your calm and kind disposition with Zachary is touching. I was born with a mild form of CP, and this vid gives me a window into what my parents did with me as a baby. Physio taught me how to relieve/mange my discomfort, but the best medicine for me was the constant encouragment and confidence from my parents. To them, there was nothing I couldn't do. Zacahry is absolutely lovely, and I can see you feel blessed to be his father. Very inspiring....All the best!
@shmimca I am humbled by your comment. Thank you kindly. It almost pains me to hear about the discomfort, because now I know that's what Zachary is feeling. He cannot communicate that to us yet, but it is something that is good to know overall. Thank you. We appreciate the encouragement and look forward to hearing from you more.
@ncharlan Sir, please forgive me, I didn't mean to alarm you when I mentioned the discomfort. I hope I can make it better by saying that as I got older and stronger, the discomfort comes only when I am tired or feeling run down, and I suspect this will be the same for Zachary as he gets stronger too. That's why physio is so good, it's a tool that Zachary can use his whole life. Again, I truly apologize to you for not being more clear, I wasn't thinking. Take care.
@shmimca No need to apologize! I'd rather know all the truth rather than not know. I'm sure it's just a matter of a few years or so before Zach will be able to communicate with me all that he's going through. It's really good to hear from you and the positive side to everything as well. Thank you very much for your comments and reply. I hope you stay in touch with us!
hi my name is veronica from los angeles ( La crescenta )
my sis son has the same problem and i try to take a long bath with him to warm is stiff muscle but he also has a pt ot and i also signed him to swimming water therapy through the pt now i want to know what else i should do please help me
@veronicag555 Sounds like you're doing a great job for your nephew! You're doing all the right things already. The only additions I could say is daily stretching and playing with him. Make sure "therapy" doesn't run his life and that you still have fun together. How old is he now?
@dalewillo Wow, thank you. When I hear this kind of feedback from students and doctors in the field, it really means a lot. Blessings to you on your pursuit to be a Physiotherapist!
@ncharlan.. Hi I am a physical therapist and I have worked with CP children for last 4 years. Bobath is a good technique but from my experience I have noticed that a cerebral palsy treatment is a combination of more than one approach. I would like you to support his back a little more there in that video.you can use bolsters and gym balls for reinforcement. Myofascial release is one good treatment. I don't prefer botox until good cognitive response develops. hope this helps.
Dude, I've gotta say, you're a great dad! Zach is very fortunate to have both of you as parents. I never comment on YouTube videos, but was so impressed by your dedication to your son, both you and wife, I had to commend you. There are a lot of dads out there that could learn a thing or two from you!
I ha ve just found out my grandson of 10 months has this and I don't believe the doc. thay wont even give him a mri that observed him and the said he has this cp what sould I do?
@russellynnh You could request to see a neurology specialist to get the MRI, or see another pediatrician to get the recommendation for an MRI per your concerns. Cerebral Palsy is brain damage, so making a diagnosis off plain developmental delay, in my opinion, is not enough. It's better to have the proof from the brain scan.
I'm a 16 and I have cerebral palsy. As your child grows up, he'll have some social difficulties(getting made fun of, condescending teachers, etc) My advice to you is be there for him emotionally. If he decides that he doesn't want therapy at some point, do not force him into it. Treat him like a person, let him understand the he's different and that different doesn't mean bad
The Anat Baniel method is unbelieveable. I have researched and tried so many different things to help our son Maddox and nothing has made more sense to us than this method. I just received a packed of information and a video of the children before, during and after. It is amazing how much progress she is having with these kids. I could make copies of this for You. I would love to share this information with other loving and believing parents. Ara
Yes, Ara, I would love to get more information about it. Please let me know if you need my email address or if you want to send it through YouTube messages or connect on Facebook.
hi, i´m a physiotherapist student and when i see your boy, he realy looks like a child who is in treatment every day and with a big support. i want to ask you about what kind of therapy he gets. Bobath and Vojta's therapies are realy good treatments
@fcosepmarttz Zachary received regular physical and occupational therapy since 6 months old. He now does Conductive Education once a week and my wife works with him each day too (she's a certified massage therapist). We never heard of Bobath nor Vojta's so we'll have to look into that. Any additional information on that would be appreciated.
I saw your video and your son is so unbelievably lucky to have a father like you. You seem like an amazing, loving, patient, positive father, you son couldn't ask for a better role model. It warms my heart to see you with your son. this world would be a much better place if we had more dads like you.
My son Maddox has cerebral palsy too. Pretty much struggles with the same tone as your son. He is almost 4 now. A couple of therapies that have really helped him tremendously are acupuncture, therasuit, and the anat baniel method. I would highly suggest that you look into the anat baniel method and find a practitioner in your area. It is amazing how effective it is and very non invasive. Much luck on your journey.
@araflores707 Thank you so much for these suggestions. We currently have him in Conductive Education, but we want to get him into accupuncture, and we'll have to look into the anat baniel method too. It's very new to us. What have you discovered with that process?
Hi, I have Mild CP and I have Full control of my left body. I have no control of my left leg except for walking, of course, I limp. I have limited control of my right hand. I feel his pain, its hard to do stuff with my right hand.
my daughter too is CP and she's only 4 months old. How did you identified Zachary's exact diagnosis...I mean did Zachary show any symptoms during his first 6 months? I am asking this as I believe that both me and my wife are still shocked with the news the doctors gave us but at the same time we are (to date) not seeing any consequences of the CP. What should I expect?
My son has CP and they did Auqua Therapy for him and he loved it and it helped him for his gross motor skills. He was very tight too. Now he is alot better. He is now 5 years old and running. I hope this helps.
@admoscato Thanks! Zachary loves the water and we hope to get him more "water therapy" just because he has so much fun there! Hope things are going well for you and your son.
My son Cutter has cp with torsion dystonia. Ans it has been a very rough road for me. I would love to connect with you. I dont have a really good support group. And it would be really nice to talk to someone else who is going through what Im going through.
How old is Zachary now? My son has strong fisting as well and I saw that your son seems to have overcome this. Did you do daily therapy at home with him as well as his normal therapy? How many times a day did you stretch him? My son has just received his second round of botox and it seems to be working well. Any pointers you have would be greatly appreciated, though I've learned a lot, there's always room to learn more :-)
He is 2 1/2 years old now. Zach is diagnosed with spastic quadriplegia cp, all four limbs are affected by tightening & rigidity. But he also is considered "dynamic" in his tone, meaning he is able to control it and open his hands, relax his muscles. We hope as he gets older he controls better. We stretch him 3-4 times a day. Pointers would be love, love, love, play, fun, & positive attitude. Go all out to get him the treatments & therapies he needs. We can talk more through email if you'd like.
It's good to see videos like this. My son has spastic cp and like it was said before, you're a good father. It's good to see parents educating like this.
Omg! My name is Susan and i am 22 yrs old and i have cp! and watching this video is like watching my self at that age i had 8 surguys on my legs to to leghtin my heal cords and coutless braces this video warmed my heart and brought tears to my eyes i know excatly what your little boy feels like in every way god bless you little zack and your family!
Thanks for posting this. My son is one month old and we've been told he's got CP (he had a fit so they did an MRI and discovered why). From what they're telling us we'll be going through what you're doing with Zac. We're hoping Alex will do as well. I had tears in my eyes watching the video.
I hope and pray the best for you and your son. If you need to talk/connect with a family who has been there before, let us know. If you have any questions too, we would love to help any way we can.
i love watching this video because you are such a good dad,, and with you he has lots of potential,, he looks like he is doing a good job,, he is soo adorable god bless you and your family especaially your little miracle
I'm very glad I came across this video and decided to watch it, it's given me a few pointers on how to work with someone and this condition and as I said I hope your sons' progression continues.
Thank you - we are doing our best to take a positive approach to what we have and to administer education about cerebral palsy as much as possible. It is such a blessing to hear from you that this video is making a positive impact. Thank you so much for commenting. Zachary continues his improvements and we'll post more videos soon.
You're very welcome, I'm in a relationship with someone who has CP and when I first found out I was a little baffled because he honestly lead no clue that he had it, but as time progressed he told me and I began researching it further to understand more of what it was, if there were any physical therapys' that could help relieve some of the effects of CP and most of all what to expect. It's been about a month and a half since and things are going great.
That is so amazing to hear! It gives me such hope to hear that for my son as I wish him to live a normal life and to be independent and have a family of his own one day. Thank you for telling me your connection!
Wow, thank you so much. This was entirely free flow because I was so bottled up with all the information I had just found out when we got Zach's diagnosis and I always wanted to take the opportunity with this and reach out to others. I'm very happy you found it educational!
Has he always been able to see? My 9 month old nephew who has spastic CP can't see yet (he can differentiate between light and dark, and some movement) and I was wondering if your little one's vision improved over months..
Zachary has always been able to see. He was born cross-eyed and we've had two surgeries to correct it. he's worn glasses since he was 7 months old. We went to a pediatric eye doc who determined he was very far-sighted. Since the surgeries, it seems Zach's vision has gotten much better as he functions very well with the glasses off. The eye doc just lowered his prescription as well. So it didn't naturally improve - it was aided by strabismus surgery and prescription glasses
theres a girl who lil girl had cp and acu puncher cured her she can now speak walk and alot of stuff she couldnt b4 look it up on youtube Cerebral Palsy
Awesome. Thanks for the insight and suggested therapy. It's something we've wanted to try with Zach - we just have to fit it into the HUGH schedule of other therapies.
wow seeing your son is amazing to me. my 2 year old boy is VERY similar in his mobility. (he also has cp) i am just in aw at the similarities between your son and mine. i hope all goes well with your sons therapies good luck to all of you. he seems like a very happy child which speaks loads about yours and your wife's parenting skills god bless
Your comments are very sweet. Thank you. Zachary just turned two years old. We will be getting some more recent videos up soon. What types of traditional and alternative therapies are you doing for your son?
Hi, thank you for your video, my name is Martha and I'm a Cerebral Palsy child, your video made me remember of what my father used to do to me when I was little. Honestly, it made me cry, thinking how proud my parents are whenever I made little achievements . Maybe that is also the reason why they praise me so much when I started to play the piano on my own. All I thought, they are just being supportive (Well, That is also their purpose). I never thought that I already made them proud. THANKS!
angela022692 1 week ago
Thank you for posting this. My daughter is exhibiting some odd behavior and I watched your video to see if it could be CP (though I do not think it is). Your son is very fortunate to have a parent like you and it seems the two of you have an amazing relationship. Best of luck to both of you and I'm sure he'll live a long and happy life!
ericvecc 3 weeks ago
Such a precious, beautiful relationship you two have! Beautiful, beautiful, beautiful!
bethanykmyers 1 month ago
Zak is lucky to have you as a father. Not many dads are like you ;) I hope you continue making progress with your son. He's so cute btw! -3 this whole video kept making me go 'Awww' :3
SasukeLover090 2 months ago
@SasukeLover090 thank you for your kind comments. He's going to turn 5 very soon and he's really amazing! He's very musically inclined and amazes us every day. : )
ncharlan 1 month ago
Thank you so much for posting this. My son Aiden is 11 months and is in the beginning stages of therapies due to possible CP. it's so nice to see someone from personal experiience who can be so informative about CP. also Aiden wears glasses as well how did you get him to keep his on?
TheColie81 2 months ago
@TheColie81 Zak had his glasses with a wrap around cord to secure them on when we was a baby. For the most part, he'd let them be, but sometimes he'd reach up with his index finger, hook the side and pull them off. It's just a constant thing to put them back on when that happens. Nothing much you can do besides that. : ) Let us know if you have any other questions.
ncharlan 2 months ago
I think Renee is the luckiest woman in the world. My son's father skipped out when he found out our son had tethered cord and chairi malformation. God Bless you all! Our prayers are with you!
76msjackie 2 months ago
@76msjackie Wow, thank you! I'll have to tell Renee that one ... don't know if she'll believe it though. Seriously though, sorry to hear about your son's father. It's saddening and sickening to me when I see how many men across the board bug out of their responsibilities and duties as fathers. I hope you find a real man to be there for you and your son. God bless
ncharlan 2 months ago
This video brought tears to my eyes. I myself am a young mother with a daughter who has CP... It is a very great video and has opened my eyes to trying new things with her! Thank you ssooo much and god bless you all.
JasmariesMommy 2 months ago
@JasmariesMommy You are very welcome. God bless you too. If you have any questions or need to talk about therapies/strategy, let us know.
ncharlan 2 months ago
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my little brothers got cerebal palsy
530BigBen 4 months ago
Hi,
My son has all the symptoms you described above and in addition cannot see properly as well. I have a faint hunch that he is able to see things very partially etc. How did you know about the spectacles for your son. I pray to god that my son too would have something as mild as distance vision and not actual blindness...please let me know...we did consult an opthalmist who said that his eyes are clinically fine but the brain rvisual ecepters could have taken a beating...
SPKORGSP 4 months ago
@SPKORGSP Zak had severely crossed eyes whe born.He had 2 surgeries to correct that.Thru that experience, he had to see a child eye doctor, who did some "tests" to determine Zak's eye sight. With measuring dialated pupils, etc, the doc determined Zak was far-sighted & gave a prescription for glasses. however, it's been hard for us to tell whether he really needs them or not.He succeeds at identifying stuff & doing tasks both near & far away. Guess we have to wait til he's older to know for sure
ncharlan 4 months ago
@SPKORGSP My 19 month old Gdaughter is the same exact way. They say it is CVI
and like looking through swiss cheese. She doesn't do anything but hold her head up in a special chair. No, sit, crawl, speak. We are so sad......
sonneegirl 2 months ago in playlist More videos from ncharlan
Hi,
My son has all the symptoms you described above and in addition cannot see properly as well. I have a faint hunch that he is able to see things very partially etc. How did you know about the spectacles for your son. I pray to god that my son too would have something as mild as distance vision and not actual blindness...please let me know...we did consult an opthalmist who said that his eyes are clinically fine but the brain rvisual ecepters could have taken a beating
SPKORGSP 4 months ago
What a adorable baby. I really do hope everything goes your and his way :)
iZishu 4 months ago
You're doing a great job. Your son is so lucky to have you as his dad.
raevt 5 months ago
thank you sooooooooo much for posting this video my son has this kind of cerebral palsy and i now know that we arent alone
capreshapunkin 5 months ago
Hello agaiin. How is Zachary doing. Hope all is well. We just had twins premature 23 weeks and one has bleeding in the brain when he was born. The bleeding stopped but no one knows the outcomes until the baby starts developing and do things own his own. At what age did you noticed Zachary with cp. thanks.
manny2741 5 months ago
@manny2741 Hi. We had noticed Zak was doing weird things (fisting hands, scissoring legs, cross eyes) from about 2-3 months of age. However we really didn't get a diagnosis until he started having seizures at 7 months old and the doctors did an MRI which revealed the brain damage giving us a cerebral palsy diagnosis. He only had the seizures for a month and we were able to get them stopped by medication.
ncharlan 5 months ago
Great video. Your a great father! My son was born premature and had some brain bleeding. We are keeping an eye out for any signs of cp currently and this really allowed me to see some items to look for. Just a real nice video in general. You are really great with your boy!
ferguslogic 6 months ago
@ferguslogic Thank you very much for you kind comment. Please let us know how your son progresses and if you have any questions at all. We'd love to help. It can take us some time to respond, but we try to respond to everyone who contacts us with questions.
ncharlan 6 months ago
Great info!! Thanks!
santamonicagirl4life 6 months ago
How is your son doing now?
May God bless you and him always.
The1foxycougar 7 months ago
@The1foxycougar He's doing great, thanks for asking. If you have the time, you should go to our channel and check out some of the more recent videos of his progress. He's 4-years-old now and surprising us every day : )
ncharlan 7 months ago
You are a great father and an inspiration. I wish the best for your son and you.
TheAnahitak 7 months ago
@TheAnahitak Thanks for watching and thank you kindly for your comment.
ncharlan 7 months ago
wow that is very nice on how the baby is trying to pick up the toys. I have a blind child with mild CP and at first he was so stiff but once you work and work they do better little bu little, now my boy is 4 and he moves his both hands and is not stiff, I am happy that dad is doing so much for the little one, it brings a lot of joy in my heart.
Nanina1100 7 months ago
Thank you for sharing this video ~ it is helpful ♥
angelahotgirlinsd 8 months ago
hello im a mom of a quadriplegic cerebral palsy baby he is now three....im so happy to see that ur baby is progressing...and it gives me hope...its so hard there r hardly no PT available in my area ..im so sad that my baby is still stuck and i havent see no progress but i seen ur video and i seen ur angel and how great hes doing:)
antnjaxz04 8 months ago
@antnjaxz04 @antnjaxz04 Your baby is going to do great. Keep the hope and prayers. Anything you work with directly with your child will help them in so many ways. Sometimes there will be plateaus where you don't see progress, but don't give up. Pretty soon, they'll amaze you with their little successes!
ncharlan 8 months ago
Great to watch your videos, I have a son who is 2yrs old and has CP with high tone in his legs aswell. You are an amazing father and Zach seems like such a happy kid with a great sense of humour and loves a bit of fun (just like my little boy). I wish you all the best..
Lollykenny001 8 months ago
@Lollykenny001 thank you! Wish you all the best with your kiddo too. If you ever have any questions or just want to talk about your journey in raising him, let us know, any time. Cheers.
ncharlan 8 months ago
you are so brave and positive!
afra128 9 months ago
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hi! what a wonderful video..it just shows how long are parents willing to go through for their child. I also have a 13 month old baby with cp..you're video give my heart such hope..salute for a very supportive parents like you guys.. :D
iyelzephyr 9 months ago
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iyelzephyr 9 months ago
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im really wonderin how old he is in this video your son? let me know if u want love_glowz@hotmail.com
YouveBeenKeightyfied 9 months ago
im really wonderin how old he is in this video your son?
YouveBeenKeightyfied 9 months ago
@YouveBeenKeightyfied He's about 8-9 months old
ncharlan 9 months ago
I must say... You are great man and father. I also have a CP child and your video helped me much to understand how does it look from the side... Thank You for such a video!
MYSIASIA 9 months ago
Great daddy. :)
AlixZin 10 months ago
Hi. Thanks so much for posting your videos of wonderful little Zachary. I feel like I've gotten to know this sweet boy through all of your postings. We adopted a baby girl who is 4 months old and still has very clenched hands and only rarely opens them. Her pediatrician is worried she may have CP but we won't know for sure till she is 6 months old. As we await diagnosis, I am wondering if you recall what signs/symptoms Zach may have had this young, realizing every child is different.
shelbywelbypurple 10 months ago
@shelbywelbypurple Thank you for contacting us. I wish you the best in this time of "unknowns". The things we noticed with Zachary were the following: clenched fists, pointed toes, stiff legs, scissored legs, severe eye-crossing, stiff arms and twisted out, rigid movements compared to other babies, very delayed on all developmental milestones.
ncharlan 10 months ago
i lived at the willowbrook state school from 1969 to 1980 and one of my punshments was clean and washing kids and adluts with cp i didnt know what they had at the time but i rememabr they had people with cp that would lay on these wooded carts with the mattres on it. all day long. but when iw as getting use to it and didnt mind helping them they sent me to another word with the real sever disabled the onces that where filenet onces and had to wash the walls and the floors.
jb55101 10 months ago
My son is 10 months old and we just saw a pediatric specialist and I was told that he's showing signs of cerebral palsy..I'm looking at this video and I see alot of the things your baby is doing that mine is also doing. Thank you for sharing this video..this gives me some hope for him..
ZoNLove07 11 months ago
@ZoNLove07 Hope is the best thing you can provide for your child. Be strong and positive for them so they will know the love you have for them. It is very important the attitude a parent takes, as some parents live in their depression of their child's condition and that affects the growth and personality of the child. Faith, hope and love : ) Let us know if there's anything we can help you with
ncharlan 10 months ago
Your family is absolutely beautiful! It is times when i see families like yours, and parents like yourself and your wife, that i remember how good people can be. Your gorgeous son is lucky to have such lovely, caring and supportive parents. Thank you for posting :) All the best!
MIGHTYLLUCKY 11 months ago
@MIGHTYLLUCKY thank you abundantly for your kind words!
ncharlan 10 months ago
Your family is absolutely beautiful! It is times when i see families like yours, and parents like yourself and your wife, that i remember how good people can be. Your gorgeous son is lucky to have such lovely, caring and supportive parents. Thank you for posting :) All the best!
MIGHTYLLUCKY 11 months ago
I think it is people like you that make life worth living. I know a lot of people that would have given up on there child and that is what makes you better than most people.
fohalo 11 months ago
@fohalo Wow, that is extremely kind of you to say. Thank you so much. We are blessed by your comments and it is our hope that our son's life can impact others as much as he has positively changed ours.
ncharlan 11 months ago
Your child is very lucky to have very involved parents like you. I see in this video where you hold his right hand down for him to concentrate on pressing buttons with his left hand. This is very good constraint induced movement therapy for his left arm but I think if you somehow wrap his right arm behind is back and have him play and do various activities with your supervision he will concentrate more on his left arm. I believe we concentrate more when unaffected side is tied down. good luck.
manny2741 11 months ago
@manny2741 Thanks for the suggestion. We're always looking for great ways to improve his left side's strength. Really appreciate you watching and your kind comment.
ncharlan 11 months ago
You are a very inspirational family and your little by is so lucky to have parents like you :)
It is people like you who make the world a better place :)
jubhubub 1 year ago
@jubhubub wow, we are humbled by your kind words. Thank you very much for your encouragement. it truly means a lot.
ncharlan 1 year ago
You and your wife are amazing. I know what it's like to work with my son with daily therapies for PT, OT, Speech and ABA therapy
jmarovich007 1 year ago
@jmarovich007 thank you so much. it's tough to do all the therapies sometimes. We balance it out with just letting him be a kid so we're not doing therapy all the time, but it sure helps his development. Thanks for watching our channel.
ncharlan 1 year ago
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May God bless you, your wife, and your beautiful child.
mgun3232 1 year ago
May God bless you, your wife, and your beautiful child.
mgun3232 1 year ago
@mgun3232 thank you kindly. That was sweet of you
ncharlan 1 year ago
She is determined for sure. We get the diagnosis on the 26th of this month, and im going to be requesting an MRI for sure and some blood work as well to rule out other syndromes. She works hard with physio everyday...she's my little love bum :)
TheTutulover 1 year ago
She also keeps her hands in fists but is able to open them easily. she doesnt use both hands when reaching for objects either. When she is sits were usually bending at least one knee. She also really resists rotation, but were working on it. Another thing is she wants to walk so bad, so we do little walks but she tends to push her upper body backwards. She also doesnt speak at all. But she is an absolute doll, always smiling, and she's smart too. Keep on the good work!
thanks for sharing
TheTutulover 1 year ago
@TheTutulover It sounds like your daughter is a strong & determined little girl! Thank you for sharing about her. Would love to hear about her progress. Are you working w/ doctors on getting a diagnosis? Have they offered an MRI? The MRI showed us with certainty that Zak had CP-it showed the areas of the brain that were damaged. I hope & pray the best for you. Feel free to message us anytime & check out our online community for families raising children with special needs at eFamilyTV (dot) com
ncharlan 1 year ago
I really love your video. It looks like our 13month old daughter may also have cp. She also has very tight/ tense muscles. Through a lot of physio we have broke a lot of her tone. She can now stand with her feet flat, and she is finally commando crawling. She is still unable to sit up by herself, but can sit safely if sat on her own because she spreads her legs quite wide. She is left hand dominant so it also take a lot of encouragement to get the right hand out. She has made vast improvements.
TheTutulover 1 year ago
you're hot
bigpopcornn 1 year ago
I would like to use some of your videos for trainings in the Ukraine. Could you contact me please at sanflan@ptd.net. Great videos! Thank you. Sandie
sandieflannery 1 year ago
im 17 and also have cerebral palsy with a left heamaplegia i honestly think there needs to be more people like you because when i was younger there wasnt much acknowledgement and awareness by my carers etcetc. now as a teenager i am paying the consequence...
honestly hats off to you
notyourz 1 year ago
@notyourz that's very kind of you. thank you. my wife and I are doing what we can to spread awareness and understanding. We feel the more that is out there, hopefully, the less ignorance and fear others will have. And it's the ignorance and fear that can make others harsh. you should also check out our website at ExceptionalFamilyTV
ncharlan 1 year ago
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There is another good video of someone with Cerebral Palsy by Bob Segalman on Youtube and the title is "Telephone access for AAC users".
drbob85 1 year ago
Hi, I'm in london with a 2yr old with c.p. I applaud you for making this video( he is so cute) It would be lovely to hear from either of you as you're in the same boat and I'm so tired of people saying how pretty she is then when c.p is mention they say "oh she's slow?" NO c.p affects her back and legs not her mind.
She is so funny and clever and all mine! <3 love to you and your family
mssobriety1 1 year ago
@mssobriety1 Hello and thank you for your comment. We would love to connect with you. I will message you through YouTube to exchange contact info. Totally understand what you're going through too. No one understands and with their ignorance, unfortunately, comes really bad comments or questions.
ncharlan 1 year ago
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Do not depurate be happy with naughty women mworld5.info
KaciQuill 1 year ago
I just wanted to say you guys are awesome!! I realize it's God's strength living through you. You guys are a blessing to my wife and I, thanks.
jadoriffic 1 year ago
@jadoriffic Praise God and thank you for your comment! Really appreciate the encouragement as it truly helps us along the journey : )
ncharlan 1 year ago
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prasoondelhi1 1 year ago
Nice care you are taking of your child, my nephew is also a cp patient please mail me if you have other important information regarding the cp please help me because we people have lost our heart.........
prasoondelhi1 1 year ago
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Sweet girl want to marry good guys naneedj.info
darseeify 1 year ago
God bless that little guy
artman4444 1 year ago
I'm so glad to see that you are so involved with your son. I'm a 2yr old teacher with a CP student in my class and he is the light of my day every day!!! Best of luck and keep up the outstanding parenting!!!
kkenny15 1 year ago
@kkenny15 Thanks! Keep up the good teaching : )
ncharlan 1 year ago
I have CP as well. This is such a great vdeo. Your a wonderful dad.
abe1289 1 year ago
@abe1289 wow, thank you very much for you kind comment
ncharlan 1 year ago
That is one inspirational daddy!:)
alsedenmark 1 year ago
@alsedenmark Wow, thank you so much for the compliment!
ncharlan 1 year ago
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Thanks so much for giving us this insight into your life with Zach. I'm a med student too and have found your videos so helpful in my understanding of CP. I'll recommend your videos to all my med buddies. And you're such a fantastic dad! You've made my day:)
hannahmeyer1 1 year ago
Thanks so much for giving us this insight into your life with Zachary. I'm also a med student and have found your videos so helpful in understanding CP. I'm going to recommend it to all my med buddies as I'm sure they'll all benefit. Also you are such a fantastic dad! Thanks again, Han:)
hannahmeyer1 1 year ago
@hannahmeyer1 Also, thank you for sharing with your med buddies! Really appreciate that!
ncharlan 1 year ago
Thanks so much for giving us this insight into your life with Zachary. I'm also a med student and have found your videos so helpful in understanding CP. I'm going to recommend it to all my med buddies as I'm sure they'll all benefit. Thanks again! Han:)
hannahmeyer1 1 year ago
You are a GREAT dad first of all and thank you for sharing this video with us, it helped me understand a lot more about CP since I'm going to take a nursing test soon
beninay 1 year ago
@beninay I'm always amazed to hear from medical students and how they learn more about CP through this vlog. Thank you! I'm happy in any way it can help spread awareness, knowledge and understanding of CP. Let us know how your nursing test goes!
ncharlan 1 year ago
Hey! I'm a medical student and I think your videos have been in invaluable for my understanding and recognition of CP. I've recommended this to my medic friends as we don't really get to see many CP patients on the ward. Thanks very much for sharing Zachary with us! He is absolutely adorable! Hope everything works out well for him x
MeeraThay 1 year ago
@MeeraThay truly means a lot that you commented. It's amazing to hear that this kind of video can help out medical students understand children with special needs, in Zachary's case, CP. Blessings to you on the rest of your studies! Please also know we created an online docu-reality series for families raising children with special needs - look up Exceptional Family TV dot com
ncharlan 1 year ago
Hey! I'm a medical student and I think your videos have been in invaluable for my understanding and recognition of CP. I've recommended this to my medic friends as we don't really get to see many CP patients on the ward. Thanks very much for sharing Zachary with us! He is absolutely adorable! Hope everything works out well for him x
MeeraThay 1 year ago
Thank you so much for putting information out there about CP, as it's really important people understand the varying degrees of the condition & how it can effect the body. I'm 37 and was born with CP which only mainly effects my right leg. I had operations as a child to lengthen my tendons etc, but have been left with a limp. I just wanted to say that Zach is gorgeous & I'm sure he will achieve everything he wants in life, just as I have. Take Care Lisa :)x
hobobird 1 year ago
@hobobird thank you Lisa. We're also working on putting information out there on all diagnoses for children with special needs and the families that raise them. it's called Exceptional Family TV and we do a weekly docu-reality series. eFamilyTV . com
ncharlan 1 year ago
Hi my name is Jeremy and I have CP. I think it is great that you put videos up like this. I think its a great thing to inform people about CP. I am 21 years old and I love to educate people about CP I think you should contenu to post videos.
jdog43089 1 year ago
@jdog43089 Howdy Jeremy. Thanks for stopping by and watching! We posted a bunch of family videos and even started an online docu-reality series called Exceptional Family TV - exceptionalfamilytv. com. I watched your video and wish you the best in becoming a motivational speaker. You will really be an advocate for those with disabilities. Thanks!
ncharlan 1 year ago
Hi, love your video, our daughter and son-in-law have a 5mnth old boy who has been diagnosed with Quad/Spas/CP - married and together 10yrs and long planned baby - pls can u contact me with a talk?
utubeabm 1 year ago
@utubeabm I will reply to you through the messages. Thanks
ncharlan 1 year ago
@utubeabm Hi, I am trying to put your videos onto a dvd for our daughter and son-in-law - they can't get broadband in their area until later this year - am not good with technology so pls bear with me - also want to pass dvd copy onto husbands parents
utubeabm 1 year ago
@utubeabm Very cool! Let me know how it goes! Just don't start selling them ;)
ncharlan 1 year ago
I will definetly keep watching and refer my niece to your channel. She is a mentor at her local boys and girls club and was recognized there by the National Honor Society.
She is also on a sled hockey team and has been since the age of 10. She has accomplished more in her 18 years than some abled bodied people I know.We are so proud of her.One piece of advice I offer is always work with Zach for the things he can do not the things he can't. And remeber...There is POWER in LOVE! Take Good Care!
anchor2me 1 year ago
Zach is adorable and you are so great with him.I really enjoyed this video! My great neice has C.P. she is 18 just graduated high school and is on her way to college.She recieved P.T. from about 6mos. similar to Zach and thoughout her years growing up.She is wheel chair bound.However she graduated with honors.And is always teaching the people around her a new way of seeing things,she is very perseptive. I hope all the best to you and your wife and believe Zach will be fine with you on his side.
anchor2me 1 year ago
My cousin has cp and they said he would never walk or talk, at the family reunion on the 4th of July he ran around and nearly talked me to death. He's a great person and about 14 now, and the way I see you interact with your son makes me feel as though there truly is no problem that can't be solved. I hope I can be as great a person as you and your wife, and tell Zachary to keep up the great work.
myjcakebatter 1 year ago
@myjcakebatter that's really awesome to hear about your cousin. We hope and pray that will be just what happens with Zachary some day too! We'll keep encouraging him and will definitely let him know you said to keep up the good work. Thanks!
ncharlan 1 year ago
What a cute child you have
MsFancypants1975 1 year ago
Hello from Copenhagen, Denmark! :0)
Lovely to see other parents as dedicated as us...our son Bjørn is 6 years old now and is in a similar situation. Bjørn was born in South Africa, but 2 years ago we made the sad decision to move to Denmark (where my husband is from) because of the amazing healthcare and treatment for him, we've never looked back! :0) I just wanted to say thank you for sharing your story and I hope more people do this to show how special these children are.
lingus74 1 year ago
@lingus74 Hello Denmark! So glad to connect with you. It is our pleasure to share our story - it's all been in the hopes of meeting other families around the world, just like you! Looking forward to hearing more from you. We also started a global online community with a weekly webisode reality show on families raising children with special needs. It's called Exceptional Family TV. (since YouTube will not allow websites posted, just google the name) Check it out when you can.
ncharlan 1 year ago
Your calm and kind disposition with Zachary is touching. I was born with a mild form of CP, and this vid gives me a window into what my parents did with me as a baby. Physio taught me how to relieve/mange my discomfort, but the best medicine for me was the constant encouragment and confidence from my parents. To them, there was nothing I couldn't do. Zacahry is absolutely lovely, and I can see you feel blessed to be his father. Very inspiring....All the best!
shmimca 1 year ago
@shmimca I am humbled by your comment. Thank you kindly. It almost pains me to hear about the discomfort, because now I know that's what Zachary is feeling. He cannot communicate that to us yet, but it is something that is good to know overall. Thank you. We appreciate the encouragement and look forward to hearing from you more.
ncharlan 1 year ago
@ncharlan Sir, please forgive me, I didn't mean to alarm you when I mentioned the discomfort. I hope I can make it better by saying that as I got older and stronger, the discomfort comes only when I am tired or feeling run down, and I suspect this will be the same for Zachary as he gets stronger too. That's why physio is so good, it's a tool that Zachary can use his whole life. Again, I truly apologize to you for not being more clear, I wasn't thinking. Take care.
shmimca 1 year ago
@shmimca No need to apologize! I'd rather know all the truth rather than not know. I'm sure it's just a matter of a few years or so before Zach will be able to communicate with me all that he's going through. It's really good to hear from you and the positive side to everything as well. Thank you very much for your comments and reply. I hope you stay in touch with us!
ncharlan 1 year ago
hi my name is veronica from los angeles ( La crescenta )
my sis son has the same problem and i try to take a long bath with him to warm is stiff muscle but he also has a pt ot and i also signed him to swimming water therapy through the pt now i want to know what else i should do please help me
veronicag555 1 year ago
@veronicag555 Sounds like you're doing a great job for your nephew! You're doing all the right things already. The only additions I could say is daily stretching and playing with him. Make sure "therapy" doesn't run his life and that you still have fun together. How old is he now?
ncharlan 1 year ago
Thank you....
I am a Physiotherapy student in the UK and this was very insightful
I wish you all the best x
dalewillo 1 year ago
@dalewillo Wow, thank you. When I hear this kind of feedback from students and doctors in the field, it really means a lot. Blessings to you on your pursuit to be a Physiotherapist!
ncharlan 1 year ago
@ncharlan.. Hi I am a physical therapist and I have worked with CP children for last 4 years. Bobath is a good technique but from my experience I have noticed that a cerebral palsy treatment is a combination of more than one approach. I would like you to support his back a little more there in that video.you can use bolsters and gym balls for reinforcement. Myofascial release is one good treatment. I don't prefer botox until good cognitive response develops. hope this helps.
kingshah10 1 year ago
Dude, I've gotta say, you're a great dad! Zach is very fortunate to have both of you as parents. I never comment on YouTube videos, but was so impressed by your dedication to your son, both you and wife, I had to commend you. There are a lot of dads out there that could learn a thing or two from you!
Brattyblueboy 1 year ago
@Brattyblueboy I'm humbled by your compliment and your word of encouragement. Thank you sincerely, from my heart. It truly means a lot to me.
ncharlan 1 year ago
I ha ve just found out my grandson of 10 months has this and I don't believe the doc. thay wont even give him a mri that observed him and the said he has this cp what sould I do?
russellynnh 2 years ago
@russellynnh You could request to see a neurology specialist to get the MRI, or see another pediatrician to get the recommendation for an MRI per your concerns. Cerebral Palsy is brain damage, so making a diagnosis off plain developmental delay, in my opinion, is not enough. It's better to have the proof from the brain scan.
ncharlan 2 years ago
I'm a 16 and I have cerebral palsy. As your child grows up, he'll have some social difficulties(getting made fun of, condescending teachers, etc) My advice to you is be there for him emotionally. If he decides that he doesn't want therapy at some point, do not force him into it. Treat him like a person, let him understand the he's different and that different doesn't mean bad
tycore1234 2 years ago
I will. Thank you very much for the kind advice. It does help!
ncharlan 2 years ago
The Anat Baniel method is unbelieveable. I have researched and tried so many different things to help our son Maddox and nothing has made more sense to us than this method. I just received a packed of information and a video of the children before, during and after. It is amazing how much progress she is having with these kids. I could make copies of this for You. I would love to share this information with other loving and believing parents. Ara
araflores707 2 years ago
Yes, Ara, I would love to get more information about it. Please let me know if you need my email address or if you want to send it through YouTube messages or connect on Facebook.
ncharlan 2 years ago
hi, i´m a physiotherapist student and when i see your boy, he realy looks like a child who is in treatment every day and with a big support. i want to ask you about what kind of therapy he gets. Bobath and Vojta's therapies are realy good treatments
fcosepmarttz 2 years ago
@fcosepmarttz Zachary received regular physical and occupational therapy since 6 months old. He now does Conductive Education once a week and my wife works with him each day too (she's a certified massage therapist). We never heard of Bobath nor Vojta's so we'll have to look into that. Any additional information on that would be appreciated.
ncharlan 2 years ago
I saw your video and your son is so unbelievably lucky to have a father like you. You seem like an amazing, loving, patient, positive father, you son couldn't ask for a better role model. It warms my heart to see you with your son. this world would be a much better place if we had more dads like you.
izzydnr 2 years ago
@izzydnr Wow, I am humbled and honored by your amazing compliment. Thank you so much as it truly touches my heart.
ncharlan 2 years ago
My son Maddox has cerebral palsy too. Pretty much struggles with the same tone as your son. He is almost 4 now. A couple of therapies that have really helped him tremendously are acupuncture, therasuit, and the anat baniel method. I would highly suggest that you look into the anat baniel method and find a practitioner in your area. It is amazing how effective it is and very non invasive. Much luck on your journey.
araflores707 2 years ago
@araflores707 Thank you so much for these suggestions. We currently have him in Conductive Education, but we want to get him into accupuncture, and we'll have to look into the anat baniel method too. It's very new to us. What have you discovered with that process?
ncharlan 2 years ago
Hi, I have Mild CP and I have Full control of my left body. I have no control of my left leg except for walking, of course, I limp. I have limited control of my right hand. I feel his pain, its hard to do stuff with my right hand.
napsterking 2 years ago
@napsterking Thank you for watching our video and for commenting. Do you have any suggestions/advice for Zachary?
ncharlan 2 years ago
my daughter too is CP and she's only 4 months old. How did you identified Zachary's exact diagnosis...I mean did Zachary show any symptoms during his first 6 months? I am asking this as I believe that both me and my wife are still shocked with the news the doctors gave us but at the same time we are (to date) not seeing any consequences of the CP. What should I expect?
Thanks for your support!
Jef
cassar22 2 years ago
My son has CP and they did Auqua Therapy for him and he loved it and it helped him for his gross motor skills. He was very tight too. Now he is alot better. He is now 5 years old and running. I hope this helps.
admoscato 2 years ago
@admoscato Thanks! Zachary loves the water and we hope to get him more "water therapy" just because he has so much fun there! Hope things are going well for you and your son.
-Nathan, Renee & Zachary
ncharlan 2 years ago
My son Cutter has cp with torsion dystonia. Ans it has been a very rough road for me. I would love to connect with you. I dont have a really good support group. And it would be really nice to talk to someone else who is going through what Im going through.
Lily021476 2 years ago
@Lily021476 You are more than welcomed to speak with me, i have a 4 yr old daughter with CP (she is about to start school this fall).
SexyEyez89 1 year ago
How old is Zachary now? My son has strong fisting as well and I saw that your son seems to have overcome this. Did you do daily therapy at home with him as well as his normal therapy? How many times a day did you stretch him? My son has just received his second round of botox and it seems to be working well. Any pointers you have would be greatly appreciated, though I've learned a lot, there's always room to learn more :-)
DiminishedFaith 2 years ago
He is 2 1/2 years old now. Zach is diagnosed with spastic quadriplegia cp, all four limbs are affected by tightening & rigidity. But he also is considered "dynamic" in his tone, meaning he is able to control it and open his hands, relax his muscles. We hope as he gets older he controls better. We stretch him 3-4 times a day. Pointers would be love, love, love, play, fun, & positive attitude. Go all out to get him the treatments & therapies he needs. We can talk more through email if you'd like.
ncharlan 2 years ago
It's good to see videos like this. My son has spastic cp and like it was said before, you're a good father. It's good to see parents educating like this.
DiminishedFaith 2 years ago
Omg! My name is Susan and i am 22 yrs old and i have cp! and watching this video is like watching my self at that age i had 8 surguys on my legs to to leghtin my heal cords and coutless braces this video warmed my heart and brought tears to my eyes i know excatly what your little boy feels like in every way god bless you little zack and your family!
mommy62287 2 years ago
Hi Susan - thanks for your comment. Are you able to walk now after all those surgeries and braces? Do you have any advice for us with Zachary?
ncharlan 2 years ago
Thanks for posting this. My son is one month old and we've been told he's got CP (he had a fit so they did an MRI and discovered why). From what they're telling us we'll be going through what you're doing with Zac. We're hoping Alex will do as well. I had tears in my eyes watching the video.
Ausglock 2 years ago
I hope and pray the best for you and your son. If you need to talk/connect with a family who has been there before, let us know. If you have any questions too, we would love to help any way we can.
ncharlan 2 years ago
i love watching this video because you are such a good dad,, and with you he has lots of potential,, he looks like he is doing a good job,, he is soo adorable god bless you and your family especaially your little miracle
wendme 2 years ago
You're definitely welcome.
=]
Good luck!
I'll be checing back every little bit to watch Zachary's progession.
consumegore 2 years ago
Alots of potiential in his future.
walkingdan 2 years ago
Thank you. We think he has great potential that will show itself in the years to come.
ncharlan 2 years ago
I'm very glad I came across this video and decided to watch it, it's given me a few pointers on how to work with someone and this condition and as I said I hope your sons' progression continues.
consumegore 2 years ago
Thank you - we are doing our best to take a positive approach to what we have and to administer education about cerebral palsy as much as possible. It is such a blessing to hear from you that this video is making a positive impact. Thank you so much for commenting. Zachary continues his improvements and we'll post more videos soon.
ncharlan 2 years ago
You're very welcome, I'm in a relationship with someone who has CP and when I first found out I was a little baffled because he honestly lead no clue that he had it, but as time progressed he told me and I began researching it further to understand more of what it was, if there were any physical therapys' that could help relieve some of the effects of CP and most of all what to expect. It's been about a month and a half since and things are going great.
consumegore 2 years ago
That is so amazing to hear! It gives me such hope to hear that for my son as I wish him to live a normal life and to be independent and have a family of his own one day. Thank you for telling me your connection!
ncharlan 2 years ago
This is an amazing educational video for parents, or even people who have a relationship with a person who has CP.
I'm glad I watched it, and I hope your son progresses.
=]
consumegore 2 years ago
Wow, thank you so much. This was entirely free flow because I was so bottled up with all the information I had just found out when we got Zach's diagnosis and I always wanted to take the opportunity with this and reach out to others. I'm very happy you found it educational!
ncharlan 2 years ago
what a beautiful, intelligent son you have... wee cutie.. thank you so much for this information. clever wee man!
wairua89 2 years ago
Thank you for the wonderful and encouraging comment! It means so much to us!
ncharlan 2 years ago
Has he always been able to see? My 9 month old nephew who has spastic CP can't see yet (he can differentiate between light and dark, and some movement) and I was wondering if your little one's vision improved over months..
talie1964 2 years ago
Zachary has always been able to see. He was born cross-eyed and we've had two surgeries to correct it. he's worn glasses since he was 7 months old. We went to a pediatric eye doc who determined he was very far-sighted. Since the surgeries, it seems Zach's vision has gotten much better as he functions very well with the glasses off. The eye doc just lowered his prescription as well. So it didn't naturally improve - it was aided by strabismus surgery and prescription glasses
ncharlan 2 years ago
hes a cutie!
filmbuff87 2 years ago
Thank you!
ncharlan 2 years ago
theres a girl who lil girl had cp and acu puncher cured her she can now speak walk and alot of stuff she couldnt b4 look it up on youtube Cerebral Palsy
Peachis911 2 years ago
Awesome. Thanks for the insight and suggested therapy. It's something we've wanted to try with Zach - we just have to fit it into the HUGH schedule of other therapies.
ncharlan 2 years ago
wow seeing your son is amazing to me. my 2 year old boy is VERY similar in his mobility. (he also has cp) i am just in aw at the similarities between your son and mine. i hope all goes well with your sons therapies good luck to all of you. he seems like a very happy child which speaks loads about yours and your wife's parenting skills god bless
carriemae88 3 years ago
Your comments are very sweet. Thank you. Zachary just turned two years old. We will be getting some more recent videos up soon. What types of traditional and alternative therapies are you doing for your son?
ncharlan 2 years ago
Thank you so much. Your encouraging words mean a lot to us!
ncharlan 3 years ago