ELA... Esclerosis Lateral Amiotrófica, infórmate sobre ella. Haloperidol, Sialorrea, Morfina, Codeína, Vía Subcutánea, Hidratación, Disatría Severa, Alimentación, Fentanilo, Vómitos centrales, Extreñimiento, Tramadol... Escúchala, Acompáñala, Préstale tu tiempo, Empatiza. He aprendido más de lo esperado. Gracias por el curso básico de Cuidados Paliativos, deseando hacer el intermedio y el avanzado.
This is so powerful and timely and certainly shook my and muy lovely lady out of our quietude. There is no hiding. I was diagnosed a couple of months ago. My first wheel chair arrives next week.
I was diagnosed with MND in June this year (2011) but my symptoms date back to December 2010. I'm now unable to work and even doing small simple tasks has become a real nightmare.
But in the words of Winston Churchill.. never give in, never, never, never.
And I intend not to. There is a cure for this disease, they just haven't found it yet.. or is it they haven't found a way to make money from it yet?
This has happened to a friend of mine...she is the same age as me...and all the peeps I went to school with...it has been enough for us to want ot do something special....make a difference....tick boxes on her bucket list....what are we going to do about Maria??? How do you hold a moonbeam in your hand.....we can do alot...actually :)
This has happened to a friend of mine...she is the same age as me...and all the peeps I went to school with...it has been enough for us to want ot do something special....make a difference....tick boxes on her bucket list....what are we going to do about Maria??? How do you hold a moonbeam in your hand.....we can do alot...actually :)
I was diagnosed with MND/ALS in September. Already I have been in a wheelchair 24/7 for 3 months and I am now virtually paralysed and am having trouble speaking and swallowing. My arms are skinny and all the muscle has gone and my hands are curled up and my fingers stiff. This is a hideous disease and I will not be staying around for the final nasty stages.
This video puts everything into prespective, MND/ALS is the most terroristic disease, shame on the people who banned it, how the hell are we going to make an impact about this disease if it is shown in a "sugar coated" way, we have all these commercials about cancers,drunk driving, etc etc it is shameful to ban this one, by the way my husband has MND aka as ALS soe we know what it does.
I am a nurse and work in neurology. I've seen this disease at it's very worst and this video puts it into perspective in a way which words never could.
Scary and shocking--- everyone needs to see this! I don't see how it's any more 'offensive' than the driving-speeding advert where the girl is slammed into a tree, and then her limbs unbreak & she is dragged back. That advert is more physically violent than this one... Sarah's Story needs to be aired, so money can be raised to help find treatment and medication for people with MND!!
It's different because when people get slammed into the bonnet of a car - that's what really happens and the advert reflects that. Sarah's Story is more complex because it feeds on able bodied peoples' fears and negative views of disability. I've got progressive MD. I don't like this one bit. I can kind of see what they were trying to do but I think seeing a woman physically attacked is sending out the wrong messages.
It's exactly the kind of thing that needs to be aired to create awareness. Yes, it's shocking, but the shock factor is what it takes for people to sit up, listen, and take notice these days.
It should NOT be banned on TV, but should be posted throughout the net too, to reach an additional audience.
Wow... When I got told about this clip by a friend I never imagined it to be as disturbing... I know a child of about 9 who has MND and I can't even begin to imagine what it's like for her. From watching this video you really see the horrers of having the disease... It really should be aired even if it is disturbing and shocking, it really does create awareness
I saw an ad for this on the train and the fact that it has been banned is a joke. It does what it sets out to do and shows the horrors of MND. I think the way it has been done is brill. It needs to be shown in such as shocking manner to make people sit down and listen. By doing it in any less of a shocking way would have defeated the point of the video. MND is awful and that is what the video is trying to convey.
Yeah this video does seem a bit too strong and violent its makin it as if there is no hope for them. Also the clothes ripping wasn't exactly needed. The message is right but the video is wrong.
The video was banned because of the scenes with the woman who really has MND. Her diminished limbs were deemed too disturbing by clearcast. (they said they could air all the violent parts but leave out the end shots of the real sufferer)
Totally agree. The Motor Neurone Disease Association is campaigning for a national strategy for this much neglected disease. Please visit the MNDA website and add your signature to the petition.
I agree that the violent nature of the ad doesn't really say anything about MND - in fact interferes with a person's contemplation of it - but I'd take it a step further. While I think the violent attack was the wrong way to play it, the message of this video as-is would've been just as effective if they hadn't ripped her clothes off. The horror-movie tactic of an invisible attacker trivializes the message, victimizes the survivor, THEN likens it all to a sexual assault. Big budget, bad writing.
Saw the advert for this on the tube. I disagree too that we should 'dumb down' this message. MND is a horiffic disease as anyone who has seen someone they know suffer will testify.
I disagree with most of the comments here - I think this definitely is a way to get through to the masses, as the every-day problems aspect of MND is the subject of the billboards etc. which make reference to this video. One tactic to raise awareness in the form of real life problems surely wouldn't be as effective as the combination of the two in their current mediums.
While I think its essential that diseases and disabilities such as MND do recieve more awareness, I think adverts/campaigns such as this can be seen to trivialise such issues. If this video were to show how underfunded research is, or how people live with the disease and how it affects their lives, then it would be far more effective. Shock tactics do not always work.
I agree. I think a video thats educates people about the real problems that people with MND face would achieve far more than this. Its a bit silly. I don't think it raises awareness of the realities of the situation.
My heart goes out to people with this disease, but afraid to say think this video could possibly take away all hope? Most people I have known with it have been incredibly brave and lived good lives, despite their problems. Hope my comment doesn't offend - just feel this ad could scare some unfortunate people that have the disease already.
Sarah you are the strongest person i know, and i am so grateful we became friends on facebook, i lose my mum in 2007.. and readin your story and all your inspration you have, is complete heart lifting.. xxxx
I lost my grandad to mnd. I miss my grandad as he died at a young age, younger than any should and support things like this that raise awareness, i hope people will start to recognise we're here people are suffering and that there's no cure.. :) This video is not completely wrong, i feel cross that you should even say that. It shows about how people feel with mnd, it's nothing to do with disability, it's all about mnd..
im 23 and have mnd.. this video is scary but its true.. you could have the life 2day and take it for granted.. then 2morrow you could be like sarah or me... relying on ppl and equipment, no 1 really understands but this video is just a little bit of our pain..
@hldout85 I really don't mean to sound mean but what exactly is the disability and what deos it stop you from doing .i do not mean to sound rude and you don't have to answer
@cjlpowerdude999 the disease is a progressive disorder thats incurable, it shuts down the motor functions and abilities, all muscles in he body become utterly useless. the very best way to describe it...imagine a healthy mind trapped in a withering body.
cont. this advert was done very specifically, the choking at the beggining symbolises the general struggle to do almost anything, including breathing, most MND patience need machines help to breath. the loss of clothing is the loss of dignity, everything is done for them, cleaning, toileting, and getting around, which brings us to the general fragging in the film, that sybolises how they can't move around in wheelchair's like some disabled people can. their wheeled by someone else.
@cirraxlankart In nov. 2010 I was told I have this disease and some of these things are starting to happen to me. And I am very scared.I think that Sarah was the BRAVEST Person for Doing this Video.And I thank you for explaining this Video.
ELA... Esclerosis Lateral Amiotrófica, infórmate sobre ella. Haloperidol, Sialorrea, Morfina, Codeína, Vía Subcutánea, Hidratación, Disatría Severa, Alimentación, Fentanilo, Vómitos centrales, Extreñimiento, Tramadol... Escúchala, Acompáñala, Préstale tu tiempo, Empatiza. He aprendido más de lo esperado. Gracias por el curso básico de Cuidados Paliativos, deseando hacer el intermedio y el avanzado.
ceguillany 3 weeks ago
Comment removed
eligwennie 1 month ago
The people who are commenting that they have MND, how are you able to type?.. Just curious.
lickchick14 2 months ago
This is so powerful and timely and certainly shook my and muy lovely lady out of our quietude. There is no hiding. I was diagnosed a couple of months ago. My first wheel chair arrives next week.
kiwicafe 3 months ago
I was diagnosed with MND in June this year (2011) but my symptoms date back to December 2010. I'm now unable to work and even doing small simple tasks has become a real nightmare.
But in the words of Winston Churchill.. never give in, never, never, never.
And I intend not to. There is a cure for this disease, they just haven't found it yet.. or is it they haven't found a way to make money from it yet?
groveservices 3 months ago
This has been flagged as spam show
This has happened to a friend of mine...she is the same age as me...and all the peeps I went to school with...it has been enough for us to want ot do something special....make a difference....tick boxes on her bucket list....what are we going to do about Maria??? How do you hold a moonbeam in your hand.....we can do alot...actually :)
michmay137 7 months ago
This has happened to a friend of mine...she is the same age as me...and all the peeps I went to school with...it has been enough for us to want ot do something special....make a difference....tick boxes on her bucket list....what are we going to do about Maria??? How do you hold a moonbeam in your hand.....we can do alot...actually :)
michmay137 7 months ago
I think that Sarah was the Bravest person> I wish I would have got to meet her.
Hammermanrocks 7 months ago
I was diagnosed with MND/ALS in September. Already I have been in a wheelchair 24/7 for 3 months and I am now virtually paralysed and am having trouble speaking and swallowing. My arms are skinny and all the muscle has gone and my hands are curled up and my fingers stiff. This is a hideous disease and I will not be staying around for the final nasty stages.
phuketrex 10 months ago
;(
agnessailormoon 11 months ago
This video puts everything into prespective, MND/ALS is the most terroristic disease, shame on the people who banned it, how the hell are we going to make an impact about this disease if it is shown in a "sugar coated" way, we have all these commercials about cancers,drunk driving, etc etc it is shameful to ban this one, by the way my husband has MND aka as ALS soe we know what it does.
PeopleNeed2LoveMore 1 year ago
these people are attention seekers who need to roll up their sleeves and work in coal mines, if they refuse i will tease them relentlessly
scoita 1 year ago
nickoli82 - it's not directed by someone with MND. he (jim weedon) has since directed a commercial I wrote, and he's in great nick.
hugobone 1 year ago
it amazes me how distrubed some ppl get just watching this video....Ignorance is plentiful... If you think this is hard to watch...try living it!
weimaraner6 1 year ago 4
I am a nurse and work in neurology. I've seen this disease at it's very worst and this video puts it into perspective in a way which words never could.
mongungadin 1 year ago 2
stripping her down to her undies was a nice touch.
erictheactorlynch 2 years ago
Scary and shocking--- everyone needs to see this! I don't see how it's any more 'offensive' than the driving-speeding advert where the girl is slammed into a tree, and then her limbs unbreak & she is dragged back. That advert is more physically violent than this one... Sarah's Story needs to be aired, so money can be raised to help find treatment and medication for people with MND!!
ashvelvet 2 years ago
It's different because when people get slammed into the bonnet of a car - that's what really happens and the advert reflects that. Sarah's Story is more complex because it feeds on able bodied peoples' fears and negative views of disability. I've got progressive MD. I don't like this one bit. I can kind of see what they were trying to do but I think seeing a woman physically attacked is sending out the wrong messages.
funnylittleprawn 2 years ago
It does what it says on the tin.
It's exactly the kind of thing that needs to be aired to create awareness. Yes, it's shocking, but the shock factor is what it takes for people to sit up, listen, and take notice these days.
It should NOT be banned on TV, but should be posted throughout the net too, to reach an additional audience.
shantelle88 2 years ago
Wow... When I got told about this clip by a friend I never imagined it to be as disturbing... I know a child of about 9 who has MND and I can't even begin to imagine what it's like for her. From watching this video you really see the horrers of having the disease... It really should be aired even if it is disturbing and shocking, it really does create awareness
horseykid 2 years ago
yes the horrors of MND must be shown on tv
badhead99 2 years ago 2
This comment has received too many negative votes show
So this disease takes your clothing off for you? That's cool I guess...
tardcorewtf 2 years ago
My dad DIED of Motor Neurone Disease when i was 9, 4 days after my birthday on August 1st 2005 :'-(
Fr3ya1996Babii33 2 years ago 3
This comment has received too many negative votes show
"Hello Sarah. I want to play a GAME with you..."
SpeakMoreClearly 2 years ago
Excellent! This advert got my attention, that's the point really.
1Trescha 2 years ago 7
I saw an ad for this on the train and the fact that it has been banned is a joke. It does what it sets out to do and shows the horrors of MND. I think the way it has been done is brill. It needs to be shown in such as shocking manner to make people sit down and listen. By doing it in any less of a shocking way would have defeated the point of the video. MND is awful and that is what the video is trying to convey.
missmrmilton 2 years ago 7
i think this ad does exactly what its meant to do, which is shock you and make you think.. The fact it has been banned is ridiculous.. good job MNDA
musiq8888 2 years ago 6
written and directed by someone with MND, 'nuff said.
nickoli82 2 years ago 8
Yeah this video does seem a bit too strong and violent its makin it as if there is no hope for them. Also the clothes ripping wasn't exactly needed. The message is right but the video is wrong.
coolboyc2 2 years ago
The video was banned because of the scenes with the woman who really has MND. Her diminished limbs were deemed too disturbing by clearcast. (they said they could air all the violent parts but leave out the end shots of the real sufferer)
Talk about being ass-backwards.
MuNkaPOtaMuS 2 years ago 8
Totally agree. The Motor Neurone Disease Association is campaigning for a national strategy for this much neglected disease. Please visit the MNDA website and add your signature to the petition.
lswlsn 1 year ago 2
I agree that the violent nature of the ad doesn't really say anything about MND - in fact interferes with a person's contemplation of it - but I'd take it a step further. While I think the violent attack was the wrong way to play it, the message of this video as-is would've been just as effective if they hadn't ripped her clothes off. The horror-movie tactic of an invisible attacker trivializes the message, victimizes the survivor, THEN likens it all to a sexual assault. Big budget, bad writing.
cwicseolformask 2 years ago
Saw the advert for this on the tube. I disagree too that we should 'dumb down' this message. MND is a horiffic disease as anyone who has seen someone they know suffer will testify.
bongbong101 2 years ago 3
I disagree with most of the comments here - I think this definitely is a way to get through to the masses, as the every-day problems aspect of MND is the subject of the billboards etc. which make reference to this video. One tactic to raise awareness in the form of real life problems surely wouldn't be as effective as the combination of the two in their current mediums.
Mattwhite89 2 years ago
this advert is coool
iamabbieee 2 years ago
While I think its essential that diseases and disabilities such as MND do recieve more awareness, I think adverts/campaigns such as this can be seen to trivialise such issues. If this video were to show how underfunded research is, or how people live with the disease and how it affects their lives, then it would be far more effective. Shock tactics do not always work.
Chubbster01 2 years ago 2
I agree. I think a video thats educates people about the real problems that people with MND face would achieve far more than this. Its a bit silly. I don't think it raises awareness of the realities of the situation.
ButtonJazz 2 years ago 3
There must be a better way to raise awareness. It's tragic, but this is such a violent portrayal, I don't think that it supports the cause.
Please do a new version. Raise awareness by all means. But not like this.
yazzphoto 2 years ago 3
The need to make people aware is very important, but I dont think this add is the correct way to do it.
harrylime22 2 years ago 2
My heart goes out to people with this disease, but afraid to say think this video could possibly take away all hope? Most people I have known with it have been incredibly brave and lived good lives, despite their problems. Hope my comment doesn't offend - just feel this ad could scare some unfortunate people that have the disease already.
Soamsie 2 years ago 2
Sarah you are the strongest person i know, and i am so grateful we became friends on facebook, i lose my mum in 2007.. and readin your story and all your inspration you have, is complete heart lifting.. xxxx
mrsmilford 2 years ago 2
I lost my grandad to mnd. I miss my grandad as he died at a young age, younger than any should and support things like this that raise awareness, i hope people will start to recognise we're here people are suffering and that there's no cure.. :) This video is not completely wrong, i feel cross that you should even say that. It shows about how people feel with mnd, it's nothing to do with disability, it's all about mnd..
xxHAitchxx 2 years ago
I've got MND and if this is what it takes to raise awareness then its worth it .
After all there is a lot less funding to research a cure for MND than there is for other more well known diseases.
JohnTthefirst 2 years ago
This has been flagged as spam show
i'm sorry to hear that some of you either have mnd or know someone with it, it's horrible but together we can fight back
xxHAitchxx 2 years ago
im 23 and have mnd.. this video is scary but its true.. you could have the life 2day and take it for granted.. then 2morrow you could be like sarah or me... relying on ppl and equipment, no 1 really understands but this video is just a little bit of our pain..
hldout85 3 years ago 5
i'm sorry to hear that some of you either have mnd or know someone with it, it's horrible but together we can fight back
xxHAitchxx 2 years ago
@hldout85 I really don't mean to sound mean but what exactly is the disability and what deos it stop you from doing .i do not mean to sound rude and you don't have to answer
cjlpowerdude999 2 years ago
@cjlpowerdude999 the disease is a progressive disorder thats incurable, it shuts down the motor functions and abilities, all muscles in he body become utterly useless. the very best way to describe it...imagine a healthy mind trapped in a withering body.
cirraxlankart 1 year ago
cont. this advert was done very specifically, the choking at the beggining symbolises the general struggle to do almost anything, including breathing, most MND patience need machines help to breath. the loss of clothing is the loss of dignity, everything is done for them, cleaning, toileting, and getting around, which brings us to the general fragging in the film, that sybolises how they can't move around in wheelchair's like some disabled people can. their wheeled by someone else.
cirraxlankart 1 year ago 3
@cirraxlankart In nov. 2010 I was told I have this disease and some of these things are starting to happen to me. And I am very scared.I think that Sarah was the BRAVEST Person for Doing this Video.And I thank you for explaining this Video.
Hammermanrocks 7 months ago
@cirraxlankart thank you for answering
cjlpowerdude999 1 year ago
This video is so bad... I have ALS and im 27 years old My daughter died 2 years ago to Trisomy18 then i got this.....
mofolo23 3 years ago 3
This has caused alot of controversy on the BBC Ouch! Disability Messageboards.
Those who want to understand why this advert is incredibly wrong should check that discussion out. :)
CamperAlex 3 years ago
Don't show her this..
lxsofia 3 years ago
My closest friend's daughter was recently diagnosed with MND. I don't think I'll be showing her this.
flashmaggie 3 years ago
This has been flagged as spam show
i'm sorry to hear that some of you either have mnd or know someone with it, it's horrible but together we can fight back
xxHAitchxx 2 years ago