I had similar movements found out I had sydenham's chorea from rheumatic fever I never knew I had. the dr.s figured I had RF for at least a year before these symptoms occurred. I have been on antibiotic therapy for a year now and things are much better. not completely gone but i can function much better now.
Have u gotten ur calcium and cerruloplasmin levels checked. Also go for urinary copper. Huntihgtons chorea might not show up on mri but u shud get urself checked for wilsons disease
Oh my gosh I am so happy I finally found your videos again! You are my "twin" -- I am not kidding... our movements look exactly the same and I have been going through this for 8 months (episodic). We have finally found the trigger and I would love to talk to you about it. Please respond so I know that you are getting this-- Thanks!
It called 'hyperkinetic disorder', the most common may be Huntington's disease.
The abnormality related to imbalance of direct and indirect pathway of motor circuit of basal ganglia cause excessive excitation. The possible cause are degeneration of caudate and putamen (the part of basal ganglion) / death of neuron in frontal cortex ,temporal cortex, lower of GABA level may be result. (GABA is inhibitory neurotransmitter controlling excessive activity of circuit)
You may want to check out:Edwards MJ, Trikouli E, Martino D. Anti-basal ganglia antibodies in patients with atypical dystonia and tics: a prospective study. Neurology 2004; 63(1): 156-15.
The gist: Atypical/mixed adult movement disorders may be autoimmune in nature and if so, can be treated with an immunosuppressant regime. Consider having a rheumatologist test you for ANA (anti-nuclear antibodies) and AGBA (anti-basal ganglia antibodies) to confirm this possibility or rule it out.
@monday1429 Hey :) I showed a normal MRI and I have no history of huntington's. I do have an unknown chorea in the family history, but it wasn't the direct cause of death. Also, this is only episodic for me and I tend to have more episodes when under stress and lack of sleep. This particular case was at 1am after a really long day.
I had similar movements found out I had sydenham's chorea from rheumatic fever I never knew I had. the dr.s figured I had RF for at least a year before these symptoms occurred. I have been on antibiotic therapy for a year now and things are much better. not completely gone but i can function much better now.
cyndicudworth1 4 months ago
Have u gotten ur calcium and cerruloplasmin levels checked. Also go for urinary copper. Huntihgtons chorea might not show up on mri but u shud get urself checked for wilsons disease
DOCKASH76 4 months ago
Oh my gosh I am so happy I finally found your videos again! You are my "twin" -- I am not kidding... our movements look exactly the same and I have been going through this for 8 months (episodic). We have finally found the trigger and I would love to talk to you about it. Please respond so I know that you are getting this-- Thanks!
ohlivinthedream 4 months ago in playlist More videos from cypresshippie
It called 'hyperkinetic disorder', the most common may be Huntington's disease.
The abnormality related to imbalance of direct and indirect pathway of motor circuit of basal ganglia cause excessive excitation. The possible cause are degeneration of caudate and putamen (the part of basal ganglion) / death of neuron in frontal cortex ,temporal cortex, lower of GABA level may be result. (GABA is inhibitory neurotransmitter controlling excessive activity of circuit)
Medical student year 2.
Oath555 4 months ago
You may want to check out:Edwards MJ, Trikouli E, Martino D. Anti-basal ganglia antibodies in patients with atypical dystonia and tics: a prospective study. Neurology 2004; 63(1): 156-15.
The gist: Atypical/mixed adult movement disorders may be autoimmune in nature and if so, can be treated with an immunosuppressant regime. Consider having a rheumatologist test you for ANA (anti-nuclear antibodies) and AGBA (anti-basal ganglia antibodies) to confirm this possibility or rule it out.
ackrackpack 6 months ago
Have you had any imaging studies like MRI? Family history of Huntington's?
monday1429 9 months ago
@monday1429 Hey :) I showed a normal MRI and I have no history of huntington's. I do have an unknown chorea in the family history, but it wasn't the direct cause of death. Also, this is only episodic for me and I tend to have more episodes when under stress and lack of sleep. This particular case was at 1am after a really long day.
cypresshippie 9 months ago