This is freaking terrifying. Can you just randomly get this? As far as i know no one in my family has this, but i have a really shitty sleeping schedule. Can i just randomly one day get this disease?
@mpp101 There is sporadic FFI, but it is extremely rare, much rarer than genetic FFI which is what this documentary is about. If you are able to sleep despite your erratic schedule, then you don't have FFI. If you didn't have a mother or father that died from this then you don't have it. It's an extremely rare genetic disorder and only about 40-50 families in the world has it, so I wouldn't worry about it.
@Freyaloulou Yes there is SFI, sporadic fatal insomnia, but it is extremely rare, I can't remember what the percentages are but you are more than likely to get Creutzfeltdt-Jakob disease, which I will point out is rare as well, then you would get FFI or SFI. The book by T.D. Max, "The Family that Couldn't Sleep," gives a history and thesis on FFI and other prion diseases, you should check it out.
It just really bothers me that these people knew their family had the disease and proceeded to have children...I would never do that to another human being
@Skulliesaur yes, i read the book about it the family that couldn't sleep and only one person in the family/story decided not to have kids for that reason, the rest kept having kids. its stupid
I think i am having an insomnia.. it's like my eyes can"t be close durring the night. And if i get sleep, it's only about 2 hours.. any tips? i'm worried... :[
@ArionaMew I am awake at 5AM. I have been having sporadic insomnia, but still am able to sleep. I just came seem to fall asleep at this time. But I know it's not FFI.
@WeatherMondacicci, I have a terrible time falling asleep, and when I'm asleep, I have to frequently get up to urinate. Still, I do manage to take naps during the day to make up for the loss the previous night.
Taking melatonin for the last two years has greatly helped me fall asleep.
@ArionaMew Don't worry. You'd be able to tell if you had it.
People with FFI cannot sleep AT ALL. So if you are able to fall asleep even for a few hours a week, or if you are able to fall asleep even a little with the help of sleep medication, you do not have the disease.
Anyway, you're more likely to win the lottery multiple times than get this.
@hippotoast I agree with this. It blows my mind that someone who knows they have this would be so incredible selfish and irresponsible as to have a child.
but if you ask the children if they think it would have been better to have never been born? They'd likely say no, it is better that i had 50 years on this earth than none at all. Remember they can commit suicide when and if symptoms start appearing. That's what i'll do if I get incurable cancer or something.
also, there may be those among the ultra rich that think it is selfish of us to have children who are condemned to a life of hard work in order to support themselves.
@meggie590 Its hard to say,your children may get it,or nor 50|50...so that what is right? you and even me havent right say somebody you should have children because of
@meggie590 No. It's genetic. Genetic conditions are passed down families, but created by an original mutation - which can happen at any time. So even if the 40 families in the world that have this stopped having children, sooner or later it would appear again. Secondly, the average age of onset for FFI is 50 years old but can be as late as 60. By this point, you tend to have had children already. By the time you realise your parents have it, you're already born.
Some kind of nervepioson might yeah, but the problem is probebly if they can try it without going up against some law. And I have a feeling that they have also tried some on thire own, it might be that the brain is made unable to sleep like some kind of imunedesease that are rather normal like being unable to produce bloodcells or something like that.
@30303018 No you dont sleep all the time,you just getting attack of sleep,but you dont sleep all the time,when you talk about sleeping all the time it called Kleine Levin syndrome,..they are similar diseases,but not the same
So mysterious this world is... There's an illness that's the direct opposite that you get sleepy day by day till you literally sleep for eternity and never wakes up,,, Though I forgot the name of the illness is...
@russellbar01 Yes it would but into Non-REM (rapid eye movement) sleep. Its suggested that REM type sleep is the sleep where the brain is repaired. So they would wake up and be exdactly the same. Drug treatment has been reported to speed up FFI.
I've had intractable insomnia off and on most of my adult life and I wouldn't wish it upon anyone. Insomnia causes so many problems and this is proof that it can, in rare cases, be deadly. Even for regular insomnia, sleeping pills, be it antidepressants or benzos, are never the answer. Invariably, they only make it worse as is the case with this disease.
can't they put them to sleep with drugs? at least they'll be able to rest. its a temporary solution i know. but that would at least bring them back to a more conscious/aware state of mind.
While I sometimes feel the same way, I wouldn't opt to never sleep even if it was harmless to do so. Why? Because I think dreams can be so cool. Some of my best adventures in life have been while I was sleeping.
@WeatherMondacicci Actually i think sleep should be on commands , like you dont need to do it and it doesnt affect your health but if you get sick or you are bored and got nothing to do , you sleep to pass the time or to heal quicker know what i mean ?
@WeatherMondacicci sounds like you are one lazy old bastard. i work my ass off all day long and also got to do my studying. and at the end of the day when i get to bed it feels like heaven and at that moment it seems like nothing can be better than that.
Sleep is a vital part of life. I understand that it seems to be a waste of time, but it's far from it. During that time, our brains practice free association & neurons link with each other to help us assimilate knowledge & learn. It's part of how we evolve a personality.
I recently began to sleep again after several years of getting less than 2 hours a day. It was a painful experience. I went through much of what these people did & more. I'm very happy to sleep 5 hrs a nite.
@WeatherMondacicci We all have to sleep, animals and humans. Whether it is down to the predation theory, to escape predators or due to a restoration theory where sleep restores our energy. It is highly unlikely that any species will evolve to a stage where they have an alternative to sleep. It is far too important for all species.
@KlayKillProductions We aren't quite related to the monkeys you see in say, Africa anymore, we developed from primate species. Pay attention in Biology for fuck's sake. I'm like, 16 and I'm schooling you.
@dylanmcdonald95 if were not related to them then how did we evolve from them? seriously, you keep giving me things to prove you wrong, you're saying we evolved from primates but you're then saying were very different from them, again, your theory is invalid.
@KlayKillProductions We developed from them. We have changed to the point where we are incapable of reproducing with them. Stupid guy... Christ. Thread over. I can't use education and logic to fight unreasonable ignorance. You fight with redneck rules-of-thumb that are fragmented as they are ridiculous.
@dylanmcdonald95 evolution is a fake, you give me info to prove you wrong, we're extremely different but we evolved from them? nuh uh, there has to be GENETIC EVIDENCE, SPOT ON, to prove we actually did, and also the first evolution theory was 500 years ago, the bible, A LONG, LOOONG time ago, so the truth is, evolution is NOT real.
@KlayKillProductions Well, genes change over time, with mutation and allele cross-over, you know, plenty of backed scientific evidence that supports it. But, you passionately force your fragmented opinion and I respect that.
@KlayKillProductions ummm religion isnt necesarly against evolution, you cant take bible literally it just not posible. using bible people dated when the universe was created and we now know is older than what they think. We have seen evolution,in virus,in bacterias, they all change. And it's quite amazing,if you see genetic material is so alike among animals.And the genetic code, is the same for every organism. Just give it a chance and read about it. =)
@WeatherMondacicci I doubt it, anything and everything with a brain "sleeps", though, not all sleep like we do. Bacteria needing sunlight go in to periods of low brain activity analogous to sleep. Though, it would be nice to never NEED sleep.
@crazedJSLive the most accepted theory at the moment as to why we sleep is that sleep repairs specific areas of the brain - restoration of neurotransmitters and replenishment of synapses. Theres no real evidence that sleep is used to repair our body and organs. Just so you know :P
@WeatherMondacicci You have a valid point. I've often said we need to direct nearly all scientific research to eliminating the need to sleep, safely. Imagine how much faster we could advance civilization if we suddenly had 33% more time each day.
Did Meghan and her brother have it? I could not find anything on google about either of them. Some posts on here say that they have it, some say they do not, and some say that they never found out.
@TheCaptainLulz Actually it is more like 40 or 50 and now sterilization should not be used. Eugenics is never the answer and besides this is a very rare disease that I think it would take thousands of years before it becomes a problem. To say that they should be sterilized is inhumane. We have other genetic diseases and such out there but we don't ask for their sterilization.
@WeatherMondacicci But if you had this disease, why would you want to have kids? It would be extremely selfish. Public health is not the main problem here, but the suffering of the individual. You know that your offspring has a 50% chance of becoming ill, you know they would live their whole lives worried about that, you know they can experience a horrible suffering and die of the disease. So why give birth to them?
@Qodaet I personally would have an abortion if I was a carrier of this disease so I guess I can say that maybe that it would be better to do so. However there are other people out there that think differently. I have Asperger's but you don't die from a form of autism. I do think that it is the person's choice. If a carrier of FFI wants children they should be able to do so, but yeah I agree it wouldn't be fair to put a soul through that but there might be a reason.
@WeatherMondacicci It's basically asking whether you want your children to have suffering or have death. Both difficult choices, but one must be taken.
But you have to realize, people who have this disease only actually start showing symptoms around their 50s. Even if their eventually, going to die from it, 50 years is a good life. Hell, barley 100 years ago 50 was ancient.
@TheCaptainLulz Now hang on! Just go and do your homework on the subject. There may be a nominal amount of families who may be passing FFI to their offspring but you can also get sporadic FFI sufferers, that is people who for no known reason just suddenly seem to contract it, so there's no hard and fast rules to who can get this awful diease. So dictating that these people should be strerilized - totally wrong IMO - wouldn't erraidcte it.
@TheCaptainLulz That is an incredibly ignorant thing to say. First do you think that they may not have identified everyone with it ? Secondly it may prove important in the developing field of prion research and virology to monitor and study theese people and their children. Maybe we should sterlize you so your ignorant seed wont contaminate the rest of us
@astakask2 1st off, it may seem all hunky dory to employ a few scientists to observe these people AS THEY FUCKING GO INSANE AND DIE, but ending the suffering is infinitely more important than any scientific data that could be gained and if a vasectomy or a tubal means there are no more victims, I stand by it.
My apologies, I didnt go and research the disease, Im not a scientist.
Secondly: I dont have kids, dont want them, and would gladly undergo a vasectomy.
@TheCaptainLulz It is an inherited mutation in the thalamus from what I am told in Psychology so even if it wasn't passed on it doesn't necessarily mean it will be gone forever, others can also develop it spontaneously. We still don't know the real function of sleep, whether it is for Restoration (which this illness supports) or if it has been evolved to conserve energy, or to escape dangerous times of day (night in our ancestors)
What is the true cause of death in FFI after all? The brain damage or the lack of sleep? If you keep a 'normal' person awake for months, would he/she suffer the same symptoms of a person with FFI and die in the same way? I read an article about a man with FFI who underwent treatment to make his remaining life better, and he could even (sometimes) sleep, but he died anyway (though he survived almost 1 year more than the usual, and he was still relatively lucid in his final days)
@Qodaet Essentially you die because your brain just can't operate without sleep. It slowly shuts down to the point that it can no longer do the things necessary to keep your body alive. You asked what the true cause of death was... well it's kind of like asking if you get shot with a shotgun in the chest, did you die from the shotgun blast or the profuse bleeding and gaping wound in your chest? The lack of sleep is the cause, and the effect is the brain damage.
@kb1686 Ok, but there are other prion diseases and all of them lead to death. Creutzfeldt-Jakob disease doesn't involve insomnia (as far as I know), but the prions destroy the brain as in FFI. I believe that even if there was a way to make the FFI patients sleep normally, the brain destruction caused by the prions would not cease and death would occur anyway. Of course, it would take more time for the patient to die, and symptoms would be much softer. Without sleeplessness, it'd be like CJD.
@kb1686 Ok, but there are other prion diseases and all of them lead to death. Creutzfeldt-Jakob disease doesn't involve insomnia (as far as I know), but the prions destroy the brain as in FFI. I believe that even if there was a way to make the FFI patients sleep normally, the brain destruction caused by the prions would not cease and death would occur anyway. Of course, it'd take more time for the patient to die, and symptoms would be much softer. Without sleeplessness, it'd be like CJD I think.
@airmaxltd94 Being knocked unconscious is different from falling asleep naturally. REM sleep (which is when your brain actually relaxes and rests) can only occur by actually falling asleep.
im glad that i dont having that bad of sleeping problems, ive actually been up for four days now, but is that insomnia, oh well, i just lay down and wait for the sun to come up, then i give up and try again the next night.
This type of information is going to be on at 10:00 pm at National Geographic, Tuesday, if you can watch it, this will give you more information about this.
"Nobody can imagine, not even I, who has witnessed it"
That pretty much sums up the situation. Anybody who ever had a mild insomnia - say, for example, a little over 48 hours - knows that already is a nightmare.
One would like to imagine that after a certain time, they don't realize what's going on anymore anyway - but likely they'll 'experience' the whole thing until the very end!
I went without sleep for over 3 days after taking a medication that didn't agree with me. I thought I was going to die! Can't imagine going for 9 months without sleep.
I had hallucinations after only three weeks without sleep, that scared me so bad I went to a shrink who got me over the worst of it. I still have trouble sleeping though.
The other night I couldn't sleep the whole night, and I started having these weird doubts that God Forbid I have developed such a disease. But thankfully I was able to sleep last night.
evolution is the root of all evil, cloning should be the new way foward
ProfitMuhammed 1 week ago
this made me not sleep >:D
rho070170527 2 weeks ago
I gave up sleeping at night. 3 o'clock in the afternoon is my bedtime.
jamesgrey13 2 weeks ago
Serious question : What if you were 'shot' with a tranquilizer? Wouldn't it work?
TheDezmona 3 weeks ago
@TheDezmona They've tried something similar to that, the patients skipped REM sleep and slipped into a coma.
rayzrblayd24 3 weeks ago
This is freaking terrifying. Can you just randomly get this? As far as i know no one in my family has this, but i have a really shitty sleeping schedule. Can i just randomly one day get this disease?
mpp101 3 weeks ago
@mpp101 There is sporadic FFI, but it is extremely rare, much rarer than genetic FFI which is what this documentary is about. If you are able to sleep despite your erratic schedule, then you don't have FFI. If you didn't have a mother or father that died from this then you don't have it. It's an extremely rare genetic disorder and only about 40-50 families in the world has it, so I wouldn't worry about it.
WeatherMondacicci 3 weeks ago
I heard this disease can be sporadic, though the chance is extremely rare, is it?
Freyaloulou 1 month ago in playlist Dying To Sleep (My shocking story)
@Freyaloulou Yes there is SFI, sporadic fatal insomnia, but it is extremely rare, I can't remember what the percentages are but you are more than likely to get Creutzfeltdt-Jakob disease, which I will point out is rare as well, then you would get FFI or SFI. The book by T.D. Max, "The Family that Couldn't Sleep," gives a history and thesis on FFI and other prion diseases, you should check it out.
WeatherMondacicci 3 weeks ago
It just really bothers me that these people knew their family had the disease and proceeded to have children...I would never do that to another human being
Skulliesaur 1 month ago
@Skulliesaur yes, i read the book about it the family that couldn't sleep and only one person in the family/story decided not to have kids for that reason, the rest kept having kids. its stupid
AnArrogantFrog 1 month ago
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17tumba 1 month ago
@17tumba tumba! love your music!
kabo123 3 weeks ago
i finally found the cure to my insomnia praise god
baselinez 2 months ago
I finally found a cure for my insomnia and ringing tinnitus in my ear
baselinez 2 months ago
My god this is possibly the worst disease anyone can suffer from. My heart goes out to anyone who is going through this...
JDillaDudas 2 months ago
No need to fear anything guys. Only 40 people world wide have this gene. If other people in your family never had this, chances are you wont either.
VictumRoManius 3 months ago in playlist My Shocking Story - Dying to Sleep
i'm sleepy just watching this.
i know i'm FFI free.
klime13 3 months ago 3
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gercekcommander 3 months ago
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gercekcommander 3 months ago
I think i am having an insomnia.. it's like my eyes can"t be close durring the night. And if i get sleep, it's only about 2 hours.. any tips? i'm worried... :[
mh294m 3 months ago
@mh294m may be u stop trying to think too much & wrry abt this. i had the same issue... more u worry abt this more it gets bad...
dewy200884 3 months ago
my granpa once said to me "you dont have insomnia you have a fucked up sleeping pattern"
mazafuzle 4 months ago 27
"the white children" lol racist xD
xWolfyChanx 4 months ago 5
@xWolfyChanx or last name lol
CarlosCoolidgeAlden 3 months ago
@CarlosCoolidgeAlden ik it was a joke lol
xWolfyChanx 3 months ago
I'm awake at 1 am and quite unable to sleep. I am worried now...
ArionaMew 5 months ago 11
@ArionaMew I am awake at 5AM. I have been having sporadic insomnia, but still am able to sleep. I just came seem to fall asleep at this time. But I know it's not FFI.
WeatherMondacicci 5 months ago 11
@WeatherMondacicci, I have a terrible time falling asleep, and when I'm asleep, I have to frequently get up to urinate. Still, I do manage to take naps during the day to make up for the loss the previous night.
Taking melatonin for the last two years has greatly helped me fall asleep.
LloydChristmas777 4 months ago
@WeatherMondacicci
It's just anxiety, likely caused from watching or reading stuff like this.
CharlieTeague 1 week ago
@ArionaMew i stay up at 1 all the time and i feel like a cant go to sleep. But when i read or do somthing boring i feel like i want to go to sleep XD
xWolfyChanx 4 months ago
@ArionaMew Don't worry. You'd be able to tell if you had it.
People with FFI cannot sleep AT ALL. So if you are able to fall asleep even for a few hours a week, or if you are able to fall asleep even a little with the help of sleep medication, you do not have the disease.
Anyway, you're more likely to win the lottery multiple times than get this.
mickeymouse12678 1 month ago
@ Meggie590.....There is also a Sporadic Form. It isn't just genetic, it can actually occur in anyone.
tranceofdances 5 months ago
See, it could always be much worse.....
hollybee43 5 months ago
why do these people have children if they know they have this deadly disease it is not fair to the unborn child
amcpacer100 6 months ago
@amcpacer100 Exactly, if they want to be responsible they should undergo voluntary sterilization procedures and wipe out their family strain forever.
hippotoast 5 months ago
@hippotoast I agree with this. It blows my mind that someone who knows they have this would be so incredible selfish and irresponsible as to have a child.
hollybee43 5 months ago
@hollybee43
but if you ask the children if they think it would have been better to have never been born? They'd likely say no, it is better that i had 50 years on this earth than none at all. Remember they can commit suicide when and if symptoms start appearing. That's what i'll do if I get incurable cancer or something.
also, there may be those among the ultra rich that think it is selfish of us to have children who are condemned to a life of hard work in order to support themselves.
thepotatovagina 5 months ago
@amcpacer100 The symptoms appear when they are about fifty.
AsixAjax 2 months ago
There was something unlocked from their Brain.
As we train our Brain into something, something also unlocks and stays there.
The problem is internal circuitry and needs an extremely complex thinking on how to debug the human brain.
Nullstr1ng 6 months ago
Families with this shouldn't have children then, it won't affect any future people right?
meggie590 7 months ago
I never thought of it like that. That makes me wonder about other diseases that can be inherited...
iluv2cheer2010 7 months ago
@iluv2cheer2010
Loads more. Get an education mate.
kodoku7otaku 7 months ago
@meggie590 Its hard to say,your children may get it,or nor 50|50...so that what is right? you and even me havent right say somebody you should have children because of
bibi5027 7 months ago
@meggie590 No. It's genetic. Genetic conditions are passed down families, but created by an original mutation - which can happen at any time. So even if the 40 families in the world that have this stopped having children, sooner or later it would appear again. Secondly, the average age of onset for FFI is 50 years old but can be as late as 60. By this point, you tend to have had children already. By the time you realise your parents have it, you're already born.
xXcharleXx 6 months ago
Also, a cure could be around the corner. Also, I'd rather be alive for 50 years than not at all.
xXcharleXx 6 months ago
this is making me sleepy...
roliver31483 7 months ago
Some kind of nervepioson might yeah, but the problem is probebly if they can try it without going up against some law. And I have a feeling that they have also tried some on thire own, it might be that the brain is made unable to sleep like some kind of imunedesease that are rather normal like being unable to produce bloodcells or something like that.
Spiqen 8 months ago
im thankful for my narcolepsy... this sounds horrible!
caitlinfxck 8 months ago
@caitlinfxck Narcolespy? I have heard about that. Ur sleepy all the time. Wow! But Yes u r lucky not to have this dieses
30303018 8 months ago
@30303018 No you dont sleep all the time,you just getting attack of sleep,but you dont sleep all the time,when you talk about sleeping all the time it called Kleine Levin syndrome,..they are similar diseases,but not the same
bibi5027 7 months ago
@bibi5027 Sorry! i dont really know a lot about it! Sorry!
30303018 7 months ago
@30303018 so already you know :>,there is around 80 disease as far as sleep ..Have a nice day
bibi5027 7 months ago
So mysterious this world is... There's an illness that's the direct opposite that you get sleepy day by day till you literally sleep for eternity and never wakes up,,, Though I forgot the name of the illness is...
systom111 8 months ago
Surely substances like opium or heroin would make them sleep?
russellbar01 8 months ago
@russellbar01 Yes it would but into Non-REM (rapid eye movement) sleep. Its suggested that REM type sleep is the sleep where the brain is repaired. So they would wake up and be exdactly the same. Drug treatment has been reported to speed up FFI.
lolageXD 7 months ago
Perpetual Insomnia......
kr4yzi32k 8 months ago
btw FFI isnt just genetic one,you can get it spontaneous too
bibi5027 9 months ago
Oh my god.. this is so cruel.. let's pray for them
TripleKAllTheWay 9 months ago
I've had intractable insomnia off and on most of my adult life and I wouldn't wish it upon anyone. Insomnia causes so many problems and this is proof that it can, in rare cases, be deadly. Even for regular insomnia, sleeping pills, be it antidepressants or benzos, are never the answer. Invariably, they only make it worse as is the case with this disease.
mustwinder 9 months ago
This must suck :/ It would be like being in a real life horror movie
hazzabananza 9 months ago
can't they put them to sleep with drugs? at least they'll be able to rest. its a temporary solution i know. but that would at least bring them back to a more conscious/aware state of mind.
t0psecretshit 10 months ago
@t0psecretshit that just make it worst, they go to a coma.
cerikah1991 8 months ago
I was reading about this today, terrible fate.
ComaLies225 10 months ago
4:50 Hitler!
Kadadj 10 months ago
lol.... for some some months i coudn't sleep properly....
i wanted to sleep but cudn't... sometimes i didnt sleep for even 1 hr in 36 hrs lol...
i wondered what it was,,,,,,
ahhh.... i am ok now..... i mean now i can sleep... :P
939virgo 11 months ago
Why are they allowed to reproduce? What the fuck?
Arnebananlolo 11 months ago
people with this gene shouldnt have kids. Its like playing russian roulette with a baby.
TheSquelzy 1 year ago
Can't they be injected with something that would knock them out for 9 hours whenever they need to sleep?
aselyatheslayer 1 year ago
@aselyatheslayer sleep aids only make it worse
USNavySEALs34 1 year ago
@USNavySEALs34 ...that's not good :(
aselyatheslayer 1 year ago
wow, the human body is fascinating...i mean something so simple like not being able to sleep is so fatal..
dendara100 1 year ago
I admire their bravery, if I had it I'd be the coward that commits suicide.... If I could at least function to that extent...
MPwillPWNyou 1 year ago
i cant beleive something like this can exist,
restrained from everything...
SSTGproductions 1 year ago
Wow, just when I think here could be no worse disease than AIDS or cancer, something like THIS comes up. Where is the mercy?
ChaoBreeder051491 1 year ago
im proff that.... sleep isnt nessecary.... i dont sleep i havent sleept for bout a few weeks now... lolzz i do this alot lolzz
kirishyan123 1 year ago
@kirishyan123 yes I believe you LOL
bibi5027 9 months ago
@bibi5027 i belive i lol TOO XDD
kirishyan123 9 months ago
is it ironic that im watching this when i should be sleeping?
anticubitalpossae 1 year ago 11
Freddy will never get to kill them.
Amyescence 1 year ago 4
Personally I enjoy sleep, but you are right in saying that it does take up time which could be used for other things.
Many people I know complain that there are not enough hours in one waking day to do everything that they need to do...
But even if humans do evolve to never need sleep, it won't be in our life time.
pokemonprincess1988 1 year ago
This is just so sad and so awful. Sleep is something that we all take for granted.
pokemonprincess1988 1 year ago 38
@pokemonprincess1988 I WISH we didn't have to sleep, really, I think it's a waste of time.
Perhaps later on the evolutionary road we perhaps will evolve to the point where sleep is eradicated from our genetics.
WeatherMondacicci 1 year ago 16
While I sometimes feel the same way, I wouldn't opt to never sleep even if it was harmless to do so. Why? Because I think dreams can be so cool. Some of my best adventures in life have been while I was sleeping.
KatarinaSu 1 year ago
@WeatherMondacicci Actually i think sleep should be on commands , like you dont need to do it and it doesnt affect your health but if you get sick or you are bored and got nothing to do , you sleep to pass the time or to heal quicker know what i mean ?
Alowne90 1 year ago
@WeatherMondacicci
sleep? a waste of time?lol it's like saying" i wish we didn't have to have sex ,eat, take a dump or breathe" we're humans, not machines.
lesrambles1 1 year ago
@WeatherMondacicci
That would be awesome, but sadly there are so many benefits our bodies receive from sleep of which we need to carry on.
CharlieTeague 1 year ago
@WeatherMondacicci lol that would be cool ... me 3 i think its a waste of time ...
Verification11 1 year ago
@WeatherMondacicci hahas no. As long as there is mind, there will be sleep.
jayoori1 1 year ago
@WeatherMondacicci sounds like you are one lazy old bastard. i work my ass off all day long and also got to do my studying. and at the end of the day when i get to bed it feels like heaven and at that moment it seems like nothing can be better than that.
vendalsavage 1 year ago
@WeatherMondacicci you keep wishing. im glad we will never get to that point. atleast not in our lifetime...
BeppeOwnage 1 year ago
@WeatherMondacicci Sleep is an amazing part of the day/night cycle. I mean you get to DREAM. I hope there is a cure for FFI soon!
dendara100 1 year ago
@WeatherMondacicci
Sleep is a vital part of life. I understand that it seems to be a waste of time, but it's far from it. During that time, our brains practice free association & neurons link with each other to help us assimilate knowledge & learn. It's part of how we evolve a personality.
I recently began to sleep again after several years of getting less than 2 hours a day. It was a painful experience. I went through much of what these people did & more. I'm very happy to sleep 5 hrs a nite.
CrossTheGrigori 1 year ago
@WeatherMondacicci i love sleep. you don't like your dreams?
fastmclaren71 11 months ago
@WeatherMondacicci We all have to sleep, animals and humans. Whether it is down to the predation theory, to escape predators or due to a restoration theory where sleep restores our energy. It is highly unlikely that any species will evolve to a stage where they have an alternative to sleep. It is far too important for all species.
YokimotoSupra 10 months ago
@YokimotoSupra Actually, fish don't sleep.
Twoinamillion 10 months ago
@Twoinamillion They don't 'sleep' but they have something that resembles sleep. Like dolphins, they sleep half a brain at a time.
YokimotoSupra 10 months ago
@YokimotoSupra Sounds like my boss.
mustwinder 9 months ago
@mustwinder Do you like your boss?
YokimotoSupra 9 months ago
This has been flagged as spam show
@YokimotoSupra No they havent,
bibi5027 9 months ago
@Twoinamillion Human,is human,fish is fish,
bibi5027 9 months ago
@WeatherMondacicci evolution is fake, if we evolved from moneys then why cant we fuck them and recreate?
BUT you can make plants recreate no matter what species of plant they are.
your theory is invalid
KlayKillProductions 9 months ago
Comment removed
dylanmcdonald95 9 months ago
@KlayKillProductions You can't impregnate chimpanzees because we are very different, genetically, but plant species are much more similar.
dylanmcdonald95 9 months ago
@dylanmcdonald95 different geneticly? then how are we related to them?
KlayKillProductions 9 months ago
@KlayKillProductions We aren't quite related to the monkeys you see in say, Africa anymore, we developed from primate species. Pay attention in Biology for fuck's sake. I'm like, 16 and I'm schooling you.
dylanmcdonald95 9 months ago
@dylanmcdonald95 if were not related to them then how did we evolve from them? seriously, you keep giving me things to prove you wrong, you're saying we evolved from primates but you're then saying were very different from them, again, your theory is invalid.
KlayKillProductions 9 months ago
@KlayKillProductions We developed from them. We have changed to the point where we are incapable of reproducing with them. Stupid guy... Christ. Thread over. I can't use education and logic to fight unreasonable ignorance. You fight with redneck rules-of-thumb that are fragmented as they are ridiculous.
dylanmcdonald95 9 months ago
@dylanmcdonald95 just because my point was simply said dosnt make me redneck, stop being so butthurt and admit you're WRONG.
KlayKillProductions 9 months ago
@KlayKillProductions Eh starting to feel your troll motivations so we're good
dylanmcdonald95 9 months ago
@dylanmcdonald95 troll? is that what you call me? is saying the truth trolling these days?
you people are PATHETIC, ABSOLUTELY PATHETIC.
KlayKillProductions 9 months ago
@KlayKillProductions What's your truth?
dylanmcdonald95 9 months ago
@dylanmcdonald95 evolution is a fake, you give me info to prove you wrong, we're extremely different but we evolved from them? nuh uh, there has to be GENETIC EVIDENCE, SPOT ON, to prove we actually did, and also the first evolution theory was 500 years ago, the bible, A LONG, LOOONG time ago, so the truth is, evolution is NOT real.
KlayKillProductions 9 months ago
@KlayKillProductions Well, genes change over time, with mutation and allele cross-over, you know, plenty of backed scientific evidence that supports it. But, you passionately force your fragmented opinion and I respect that.
dylanmcdonald95 9 months ago
@KlayKillProductions ummm religion isnt necesarly against evolution, you cant take bible literally it just not posible. using bible people dated when the universe was created and we now know is older than what they think. We have seen evolution,in virus,in bacterias, they all change. And it's quite amazing,if you see genetic material is so alike among animals.And the genetic code, is the same for every organism. Just give it a chance and read about it. =)
cerikah1991 8 months ago
@WeatherMondacicci I doubt it, anything and everything with a brain "sleeps", though, not all sleep like we do. Bacteria needing sunlight go in to periods of low brain activity analogous to sleep. Though, it would be nice to never NEED sleep.
kr4yzi32k 8 months ago
@WeatherMondacicci we have to rest our organs but i'm not saying it's impossible
crazedJSLive 8 months ago
@crazedJSLive the most accepted theory at the moment as to why we sleep is that sleep repairs specific areas of the brain - restoration of neurotransmitters and replenishment of synapses. Theres no real evidence that sleep is used to repair our body and organs. Just so you know :P
lolageXD 7 months ago
@WeatherMondacicci You have a valid point. I've often said we need to direct nearly all scientific research to eliminating the need to sleep, safely. Imagine how much faster we could advance civilization if we suddenly had 33% more time each day.
ramv36 6 months ago
@pokemonprincess1988 is it bad that i just pulled an all nighter?
NEOCUBEST 10 months ago
so the wops are to blame for this? cool
IwontConform 1 year ago
why did they get a retard to translate for the italian dr?
atkm2891 1 year ago
god Venice is beautiful
phamtastic0 1 year ago
Without sleep:
1 day: tired
3 days: lacking concentration, extremely tired
5 days: no concentration, only basic functions, zombie like
8 days: hallucenating
12 days: dying
14 days: dead
SquizzleGwen 1 year ago
@SquizzleGwen This disease takes 7-18 months to run it's course. So imagine what the people who are affected with FFI go through.
roguegirl29 1 year ago
Did Meghan and her brother have it? I could not find anything on google about either of them. Some posts on here say that they have it, some say they do not, and some say that they never found out.
josephrl82 1 year ago
30 families have it...STERILIZE THEM! that will kill it for good.
TheCaptainLulz 1 year ago 30
@TheCaptainLulz Actually it is more like 40 or 50 and now sterilization should not be used. Eugenics is never the answer and besides this is a very rare disease that I think it would take thousands of years before it becomes a problem. To say that they should be sterilized is inhumane. We have other genetic diseases and such out there but we don't ask for their sterilization.
WeatherMondacicci 1 year ago 7
@WeatherMondacicci Read my PM
TheCaptainLulz 1 year ago
@WeatherMondacicci
yeah,but with the others you can sleep.
linuxpowerification 1 year ago
@WeatherMondacicci But if you had this disease, why would you want to have kids? It would be extremely selfish. Public health is not the main problem here, but the suffering of the individual. You know that your offspring has a 50% chance of becoming ill, you know they would live their whole lives worried about that, you know they can experience a horrible suffering and die of the disease. So why give birth to them?
By the way thanks for the video.
Qodaet 1 year ago 20
@Qodaet I personally would have an abortion if I was a carrier of this disease so I guess I can say that maybe that it would be better to do so. However there are other people out there that think differently. I have Asperger's but you don't die from a form of autism. I do think that it is the person's choice. If a carrier of FFI wants children they should be able to do so, but yeah I agree it wouldn't be fair to put a soul through that but there might be a reason.
WeatherMondacicci 1 year ago
@WeatherMondacicci It's basically asking whether you want your children to have suffering or have death. Both difficult choices, but one must be taken.
ionglacier 1 year ago
@WeatherMondacicci
I don't think aspergers is genetic anyway.
1997xander 9 months ago
@1997xander asperger is kind of autism,it is not genetic
bibi5027 9 months ago
@bibi5027 Yeah, that's kinda my point.
1997xander 9 months ago
@Qodaet
i believe the symptoms only start showing when you're in the 40's, an age at which many ppl already have children at
jaejunie 1 year ago
@Qodaet People with this disease should just consider adopting a children
pocho31 1 year ago
@Qodaet
But you have to realize, people who have this disease only actually start showing symptoms around their 50s. Even if their eventually, going to die from it, 50 years is a good life. Hell, barley 100 years ago 50 was ancient.
Sunderland4745 1 year ago
@Qodaet exactly
pozionmynd 9 months ago
@WeatherMondacicci Are you retarded? what more inhumane between giving that to your kid or sterilizing yourself?
QCBEC 1 year ago
@WeatherMondacicci
eyyy its not inhumane its honesty... if they stop having kids the entire gene will die off...
simple.... and in regards to other generics diseases they should sterilize them to.
Just like people with aids wouldn't be able to reproduce...
You are to worried being social correct that you forget to use your real brain.
pozionmynd 9 months ago
@pozionmynd
"in regards to other generics diseases they should sterilize them to."
YEAH, NO PARENTS WITH DISLEXIC CHILDREN SHOULD REPRODUCE!!
Or did you mean serious genetic diseases.
1997xander 9 months ago
@pozionmynd all o us have at leat a defective gen, we just have a backcopy. sterilazing people doesnt solve the problem
cerikah1991 8 months ago
@TheCaptainLulz I KNOW! why try to find a cure, when we can stop it for good!
msdarkstar1012 1 year ago
@TheCaptainLulz Now hang on! Just go and do your homework on the subject. There may be a nominal amount of families who may be passing FFI to their offspring but you can also get sporadic FFI sufferers, that is people who for no known reason just suddenly seem to contract it, so there's no hard and fast rules to who can get this awful diease. So dictating that these people should be strerilized - totally wrong IMO - wouldn't erraidcte it.
Siouxhealer 1 year ago
@TheCaptainLulz go to hell you sad fucker
jayoori1 1 year ago
@jayoori1 sorry, theres no hell to go to.
TheCaptainLulz 1 year ago
@TheCaptainLulz yeah true. well you will have a shitty life on earth though
jayoori1 1 year ago
@TheCaptainLulz That is an incredibly ignorant thing to say. First do you think that they may not have identified everyone with it ? Secondly it may prove important in the developing field of prion research and virology to monitor and study theese people and their children. Maybe we should sterlize you so your ignorant seed wont contaminate the rest of us
astakask2 1 year ago
@astakask2 1st off, it may seem all hunky dory to employ a few scientists to observe these people AS THEY FUCKING GO INSANE AND DIE, but ending the suffering is infinitely more important than any scientific data that could be gained and if a vasectomy or a tubal means there are no more victims, I stand by it.
My apologies, I didnt go and research the disease, Im not a scientist.
Secondly: I dont have kids, dont want them, and would gladly undergo a vasectomy.
TheCaptainLulz 1 year ago
@TheCaptainLulz It is an inherited mutation in the thalamus from what I am told in Psychology so even if it wasn't passed on it doesn't necessarily mean it will be gone forever, others can also develop it spontaneously. We still don't know the real function of sleep, whether it is for Restoration (which this illness supports) or if it has been evolved to conserve energy, or to escape dangerous times of day (night in our ancestors)
roggies2008 1 year ago
@TheCaptainLulz I feel the same way about Hungtingtons.......
brendaeileen 11 months ago
What is the true cause of death in FFI after all? The brain damage or the lack of sleep? If you keep a 'normal' person awake for months, would he/she suffer the same symptoms of a person with FFI and die in the same way? I read an article about a man with FFI who underwent treatment to make his remaining life better, and he could even (sometimes) sleep, but he died anyway (though he survived almost 1 year more than the usual, and he was still relatively lucid in his final days)
Qodaet 1 year ago
@Qodaet Essentially you die because your brain just can't operate without sleep. It slowly shuts down to the point that it can no longer do the things necessary to keep your body alive. You asked what the true cause of death was... well it's kind of like asking if you get shot with a shotgun in the chest, did you die from the shotgun blast or the profuse bleeding and gaping wound in your chest? The lack of sleep is the cause, and the effect is the brain damage.
kb1686 1 year ago
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Qodaet 1 year ago
This has been flagged as spam show
@kb1686 Ok, but there are other prion diseases and all of them lead to death. Creutzfeldt-Jakob disease doesn't involve insomnia (as far as I know), but the prions destroy the brain as in FFI. I believe that even if there was a way to make the FFI patients sleep normally, the brain destruction caused by the prions would not cease and death would occur anyway. Of course, it would take more time for the patient to die, and symptoms would be much softer. Without sleeplessness, it'd be like CJD.
Qodaet 1 year ago
@kb1686 Ok, but there are other prion diseases and all of them lead to death. Creutzfeldt-Jakob disease doesn't involve insomnia (as far as I know), but the prions destroy the brain as in FFI. I believe that even if there was a way to make the FFI patients sleep normally, the brain destruction caused by the prions would not cease and death would occur anyway. Of course, it'd take more time for the patient to die, and symptoms would be much softer. Without sleeplessness, it'd be like CJD I think.
Qodaet 1 year ago
@kb1686
you dont die from lack of sleep, rather in FI the prion proteins make holes in your brain similar to mad cow diesease. you die from these holes.
ASSHOLELA 1 year ago
i know this is a bit far fetched, but can't they knock the victim out? or trigger a neck pressure point to knock the victim out?
it's entirely possible
airmaxltd94 1 year ago
@airmaxltd94 Being knocked unconscious is different from falling asleep naturally. REM sleep (which is when your brain actually relaxes and rests) can only occur by actually falling asleep.
BeNNNdude 1 year ago
@airmaxltd94 That's not true sleep. There are three stages of sleep and all essential.
roguegirl29 1 year ago
ive been a week without sleep but nine months... thats terrible. i'd go insane.
MrWestsida1234 1 year ago
im glad that i dont having that bad of sleeping problems, ive actually been up for four days now, but is that insomnia, oh well, i just lay down and wait for the sun to come up, then i give up and try again the next night.
sissybearsheba 1 year ago
This type of information is going to be on at 10:00 pm at National Geographic, Tuesday, if you can watch it, this will give you more information about this.
froggies100 1 year ago
@froggies100 Thank you!! I have it set up to record the show, should be interesting.
WeatherMondacicci 1 year ago
"Nobody can imagine, not even I, who has witnessed it"
That pretty much sums up the situation. Anybody who ever had a mild insomnia - say, for example, a little over 48 hours - knows that already is a nightmare.
One would like to imagine that after a certain time, they don't realize what's going on anymore anyway - but likely they'll 'experience' the whole thing until the very end!
fenriz218 1 year ago
Why, just damn it why?!
KMxHearts 1 year ago
I went without sleep for over 3 days after taking a medication that didn't agree with me. I thought I was going to die! Can't imagine going for 9 months without sleep.
curlytoes79 1 year ago
I had hallucinations after only three weeks without sleep, that scared me so bad I went to a shrink who got me over the worst of it. I still have trouble sleeping though.
I can't imagine nine months.
kittenskysong 1 year ago
What an awfull disease /:
shorteylove 1 year ago 6
The other night I couldn't sleep the whole night, and I started having these weird doubts that God Forbid I have developed such a disease. But thankfully I was able to sleep last night.
JudasPriestSlayer 2 years ago
you would not know if you had the disease till you were around 50 years old and its hard to diagnos
Asteroidking13 1 year ago
@JudasPriestSlayer i also cant sleep sometimes 1,2 nights,but then i sleep,every man cant sleep sometimes,but this is something else
bibi5027 9 months ago
I have lost an Aunt and 2 cousins to this disease FFI, where can I get a full copy of this show??
Bernibigrocks 2 years ago
I actually got it off a torrent, just google for "Discovery Health- My Shocking Story: Dying to Sleep torrent"
WeatherMondacicci 2 years ago