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I urge everyone with mg to take a look at this woman blog and then you will have an understanding of what you are up agains Google her name and see for yourself. Freya ross .
ecobra169 1 year ago
I Have ocular myasthenia gravis. My condition only affect the eyes eyelids and mucles in the face, chich makes me see double .However i refuse to use prednisone. Hi have used mestinon which did nothing for .They tell you that therr is no curefor this . well their is . Dherbs.com or Dr,sebi.com will help with this and more .prepair
ecobra169 1 year ago
This wasn't made to scare anyone; he speaks the truth. He isn't saying there's no hope, he's stating facts. I've dealt with MG for 2 years and it IS horrible, BUT Prednisone DOES work, as does the Cellcept AND Imuran. Unfortunately, the fluctuation of the disease requires changes and the medication takes months to work. Get a good Neuro who specializes in this ( U of I Chicago) and work with them. There IS hope but this is a chronic (and manageable) condition.
hrtalk 1 year ago
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Greetings,
Also have this. Was diagnosed about 8 weeks ago. First noticed Double Vision then slurring of my speech. Went to Dr. and he found or diagnosed it in a few luckydays. I did have a "Crisis" about two weeks ago and had to be air flighted to a much larger hosp. in NW PA. I was almost DOA due to respiratory failure.
I'm now under controlled meds and seem to be getting well from this last attack but also know this is a controlled disease and no real cure for it. Good Luck. :)
TheKaneGuy
thekaneguy 1 year ago
So there is no hope? Great! :(
jensonbond 2 years ago
stay strong
solomonkane 3 years ago
that scared the sh!t out of me, duno what im gona do..
axelucho 3 years ago