NF-1

[toroga1]

This is like a school report. Chillax! Just talk

[5311hellokitty]

i have nf 1 and am 18. i feel that there isn't enough information out there, and that I can't really talk to people because they don't understand what it is.It might just be me that is like this though but... its May which means it is nf awareness month So please spread the message about this :)

[Jamez1391]

i have nf i have alot of birthmarks and a tumor behind my left eye which causes me to be blind which means i cant drive which sucks but im glad to be alive its not deadly u jus gotta keep ur eye on it so think u so much for this video

[bullbrooke]

i have NF1 i have more than 6 birthmarks, but im lucky to not have any tumours as of yet. but can i still get them anytime soon?

[AndreaCosco]

i got my eye removed last week because i am turning 30 and i haven t have a date yet due the fact i am very self conscious about the way i look. I only have a neurofibroma on my skin and i cannot imagine the pain some people had to bare growing up. I am barely cope with mine and i am lucky i have a strong persistance toward my ed...and i think you did a great job with this video thank u

[generationkill791]

i have nf1 and so do my sons its great that you are informing peeps about it i have it but not that bad i have the bumps

[allskulls100]

Ur not correct it is accully very rare get ur info together

[TheSouthSoldier1]

i also have NF, im 18 and i have the bowing of my lower leg, i also had trouble reading and writeing when i was at school, a few of my family members have it such as my mom and grand father.

[videolover2308]

i have nf type 1

i am lucky as only affect i have is a neurofibroma on my chin which has been removed

cafte o late spots and back pain but im doing great al the same

[VideoGuyNC]

I have NF. I am one of the rare cases where it damaged my optic nerves. I have an Optic Chiasm Glioma which caused scar tissue on the optic nerve causing me to be legally blind. I think I'm developing neurofibromas under the skin over the last several years.

[jws54]

the cause of NF1 is alien originated. It was that those who are such affected were originally designed to become workers only with no breeding capabilities inside the species. Invetro fertilization by another species has caused this abnormality to re-occur unto present day.There now is no cure for it.

Originally the experiment was about 35000 years ago.

[JuanJopZam]

@jws54 Come on.. you dont really beleive that, do you? It is a genetic mutation that could be on chromosome 17 and/or 22 and its trasnmited from parents at a 50% rate, or even a "De Novo" mutation, wich means you developed it on your own....

[jws54]

@JuanJopZam

Well, actually, "alien" was a misleading use of the word. At the time, the "beings" had control of this planet and were creating a workforce as needed for

harvesting of raw materials. There were many strata of creations using

combination's of DNA  to effect other species as well which were made for

specific tasks. Humans are one example. We have remnants of a tail and

lessened IQ compared to our designers , with a propensity for violence.

We were engineered as well.

[sloowburn]

great video... you did a very good job...

[xifxyouxseexkayx]

WOW!!! very good job you deserve an a for that. i sitll have a mild case but as time go by???...who know's what the furture holds .

[SweetBrwnSuga]

Secondly, let me thank you for your informative piece on NF. Thanks

[SweetBrwnSuga]

Hey, if this is such a common disease then why is NF not in the public eye ? The only thing i heard about NF on TV was an episode of MTV's Made focusing on a kid with it. And soon True Life: I Have NF. Why do you think that is?

[mamasuzie]

that's a good question. I have wonderedthe same thing my myself. I have nf 1 as well and would love to see more awarness out there about this.

[ry2k09]

My mother had NF1 but I have NF.2

[JuanJopZam]

@ry2k09 It could be your mam had Schwannomatosis wich means mutation in both chromosomes 17 and 22, each of wich causes NF1 and NF2 respectively, so it could be you inherited just one mutation and not both... its is common to miss-diagnose it for the disparity of factors, making only a genetical analize, the only way to verify it

[ry2k09]

You should subtitle this video many people with NF1 and 2 are deaf and would benefit from any information.

[RedUnicornLady]

thanks that was nice of you to put something like this out there. Do you have NF or know someone who does? what made you want to post a video with Nf info?

[beebee890]

i have nf too

[WeedsteRz]

did you die?

[Shahzada1prince]

I Have NF-1 too, but no one in family have this genetic disorder its only me who is suffering and more worried when I heard that there is no treatment for them.....As iam going to marry, just wondering what is the probabilty that dis genetic order will transfer to my children.......

[MAB4602]

Based on the information from the Children's Tumor Foundation, there is a 50% chance that your children will have NF-1. I am sorry that that is the case, I wish it wasn't. I am sorry that you have to suffer through this genetic disorder as well. If you have any other questions, please don't hesitate to ask me. God Bless!

[dayminerva]

I have NF -1 and no one in my family has it either. Its not fun being called a gentic mutation. But congrats on getting married. you give me hope

[burncruises]

@Shahzada1prince 50/50

[ls4ever999]

@Shahzada1prince if its too lat sorry my docter told me its 50/50 50 percent of ur children will have it so if u have 1 it be fine if u try for another it be 50/50 so if u have 4 2 will have it 2 will not thats what he told me or thats wat i remember

[DeaMus32]

@Shahzada1prince ya but it has incomplete penetrance, therefore fifty percent chance of passing on the bad genes, but not half will get it

[Zerlina12]

I have it too. NF1

[tombraider247]

both me and my brother have nf1 so did my mum and grandad. thank you for puting this up

[MAB4602]

You are very welcome! God Bless!

[ilikefriedfood]

im avery im 15 and i have nf1

[MissJessyDawn]

i have nf-1 too

[mpaiusan]

I have nf-1 too.

[ACRK05]

I also have nf-1

thank you for posting this.

[MAB4602]

You are very welcome.

God Bless you and your family!

[ndainio]

As a 38 old man with NF 1.

Thank you for posting this.

I may show friends and co-workers this.

To help them understand better what I am going through.

Take Care and God Bless

[MAB4602]

I am so glad that you appreciated this video. It was actually for a college assignment. I hope this video does help your friends and co-workers understand you and what your going through better.

God Bless you too!

[MyAngelsInHeaven]

I am 42 and have nf1&2 my daughters also have it i had 3 daughters but my youngest daughter had 1 turn to cancer.And sadly 11 months after she was diagnosed she passed away.She was 9 I have 2 grand daughters and they are showing signs of it too.I have 2 sons and they were lucky not to get it.We just have to try and educate people and make them understand it.

[MAB4602]

What is the difference between NF-1 and NF-2? I didn't do any research on NF-2. I am going to be a special education teacher and I was curious just in case I ever have a student with NF-2. Thank you!