Hey thanks lizzy i am natalie and i also am diagnosed with epidermolysis bullosia :) i have simplex. on my public speaking i actually did a speech on EB and i did it based on what EB has done to my life. it is a terrible condition that i have to put up with. i get a wheel chair when i cant walk but i like wheel chairs because it is fun. but my feet are very bad since i cut off the dead skin and the flesh is very dry on my feet
Hey thanks lizzy i am natalie and i also am diagnosed with epidermolysis bullosia :) i have simplex. on my public speaking i actually did a speech on EB and i did it based on what EB has done to my life. it is a terrible condition that i have to put up with. i get a wheel chair when i cant walk but i like wheel chairs because it is fun. but my feet are very bad since i cut off the dead skin and the flesh is very dry on my feet
natalie22p 1 year ago
Its amazing to see that the word is spreading on EB and debra's help! I also have Epidermolysis bullosa and you are such an inspiration! xx
lucy12195 1 year ago
Thanks so much, Lizzy - hope the new job is going fantastically!
Gena
ebadvocate 1 year ago
Hey Liz! Thanks for sharing this and spreading the word. I'm adding it to ebfriends(dot)ning(dot)com. Hope you join us there!
magicpez 2 years ago
much respect for doing this!
cactusbrandy 2 years ago 3
Really touching piece, Liz. Fantastic job!
californiastarlight 2 years ago 3