Friends of FSH Research 2007 Informational Video

[turlyer123]

i suffer from fshd, i was diagnosed about 4 years now.My mother noticed the same symtoms with the winged scapula when i was 15, i attended physiotherapy and visited doctors, but no one knew what it was. Finally over a year later i did the genetic tests and got the results. in the past year my legs have dereriorated a great deal, they get tired easily and i trip up somtimes aswell. however i have recently been thinking about the scapula fixation surgery? has anybody had it done? thanks :)