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From: 420littlefox
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  • This video is absolutly amazeing...it almost made me cry. I am 20 going on 21 and i have not been diagnosed with fibro just yet but it is the only answer i can find to the question.I have been having every symptom since i was 16 and it is so frustrating, i dont know what to do anymore. I do feel so alone, noone knows how much i hurt or anything. i just wish that people would watch videos like this and like others and try and see what we go throught every second of every day.THANK YOU

  • beautiful video and so true to how most of us feel

  • Had FMS, CFS, etc since age 8, I am now 44. Some days I truly want to give up and leave this world. I am not able to be the best that I can be to my children. My extended family and friends just don't understand. They think that it is all in my head or that I am being lazy when I say that I can't do things. A close relative recently made a mockery of the disease. I pray that she stays in good health & never has to go through life with a monkey on her back. Thanks for this video. I am encouraged.

  • @Spo1ledbratbaby1 I would love to get to talk with your sometime. I have Fibromyalgia and RSD. I've had these things since I was 9, and now I am 21. It's hard to think about what it will be like if I truly have to live with this my whole life. And I've had fears of how I'll be able to keep a job, find love, ever have a family. It would be interesting to hear more of your story and how you've coped for so many years.

  • @BeccaBear1990 interesting and helpful/encouraging. I haven't known many people, especially to have these things so young

  • Thank you so much for making & posting this.

    It is the only video I've seen that describes exactly how I feel

    and I'm sure many more of us FM sufferers feel the same.

    Bless you Kathy.

  • i loled at "bad flare day"....so true.

  • How wonderful. The hurtful Words of Family is the very worst pain of this disease. Thanks for Sharing. Gentle Hugs. MaryAnn

  • @01Ellera1 That is so true!!

  • beautiful vid. i could be negative and lord know i want to be sometimes. if you look at my vids i move fluently, i do dog agility and it saved me but its come at a price. the dog world can be nasty and i am well known for swearing at myself when it all used to go 'wrong' those who think now they know me will never have any idea of what barriers i've gone through to do what i do. i stay positive and keep looking to the future. any haters in ur life i say fuck em!!

  • I finally got a diagnoses of fibromyalgia last year after being in and out of specialists since 2005. I suffered a car accident in 05' which left me with 4 ruptured disks in my back. Right after my wreck along with back pain from my accident, I began suffering other symptoms. I am only 28 years old and at the time I was only 22 years old when I had my accident. My heart breaks for anyone enduring this.

  • As with LizKS48, much worse as I age..MUCH MUCH WORSE. Diagnosed 1995, Suffering since 1989

  • An enormous amount of individual suffering from Fibromyalgia are experiencing incredible results with Protandim. Please see my page on Facebook to learn more and feel free to ask any questions you may have. Go to facebook.com and type "Fibromyalgia and Protandim into the search box.

  • I have always been that person that smiles and helps others. I didn't know how to say no. But now I'm tired and I can't hide it no more. I just want to do normal things. Clean house, bake, go for walk! I watched this video and I did cry because that is how I feel and its like someone finally gets it. I just wish my family did. I want to thank you Kathy

  • Cannot cry because I know I could not stop!!! Solution for me is hide behind a smile. It works!!

  • I've been fighting this demon since I was 9. I'm 63 now. My pregnancies were a nightmare but worth it. I have 2 beautiful children who gave me grandchildren who are the lights of my life. I met the Lord through it all and He has been my sustainer through it all. These last 20 years of my life have been the worst. Maybe as you get older and things start to wear out you get worse. Some say Fibro doesn't get worse, it's static. Come talk to me. Thanks for the video. We need it. :)

  • Amen, Kathy. We are trapped in our bodies. Beautiful video. <3 <3 <3

  • you cant overcome it.you can only learn to live with it and choose not to let it run you over.

  • I was diagnosed with fibro 5 months ago, and I've just had it. Sometimes I feel as if I can't go on. It helps to know there are others out there who are going through the same thing and understand. It's disheartening to have people not believe or think you're exaggerating. I guess I just wish people could be a little more compassionate.

  • Thank you Kate , I have the same and I hate my life every day i have chronic pain its to mush but I hope some day they faind the cure ...

  • So True about "You never see me cry for I cry inside" I Have just Started Therapy and cherish every second to hopefully get back somewhere close to the person I was. I find the loneliness unberable, We are all beautiful people and each and everyone needs to believe in themselves and that's The GREATEST LOVE of all"

  • Thanks for sharing. :-) Suffering too.

  • I suffer with Fibro. The ONLY reason I'm still here, is because of the great love of a GREAT God, that also suffered & died, but rose again, so that I may have eternal life. Our lives on earth are short, our pain will end, IF we know him. Even here on earth, knowing I have a true friend in Christ that will never forsake me, and never stop loving me when I cry to him about it. Believe my fibro friends, in the Lord, lean on him, not your understanding, He promises to go through the pain with you.

  • I listened :) I  have it too, thanks for sharing , take care :)

  • life is a cruel joke. How ever, Because its wroght for the musement of god. Most of it goes over our heads. I still try to laugh along though:} Some times it helps. I am a man with fibro.

  • Amen. its truely what we live thanx bunches for your perspective!

  • Great video, yeah 420 helps, although everyday is a struggle.

  • i have cronic pain all the time i have lost friend and family menbers are their to help me along they just tell me to buck up and u can do it and its so hard to just move for wor i just fill like giving up its so dang hard and their arent suport groups wear i live so i cant talk to know on it sucks i just try to live day buy day and keep going thats all i can do.

  • Awesome video 420! (my fav number) I hope all the normals in my life c this. Take care

  • I, too, suffer. Thanks for this beautiful video. So real. So true. Yet, there is hope. Sometimes, that is all there is, but it's something. I just heard Dr. Rodger Murphree on Youtube. He's a doctor AND a chiropractor. The things he said are very good. I am going to continue my recovery, using the natural things I already take, and incorporating his ideas in. I've been drug free for over a year, and have a MUCH better quality of life. I highly recommend trying it. Blessings to all.

  • Brought tears to my eyes, hit the nail on the head with this. Thank you.

  • ja het dagelijkse leven met fibro :-((

  • If Christ was real then why the hell do we all suffer, there is no real god

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  • Very well done. Just remember you do not have to go through it alone. I to suffer from the awful painful disorder. I have learned to lean on Christ because he is truly the only one who understands. You can not worry about what others think about you or say, because they truly do not understand. But we can not give up on the fight to get legislation for better study and for them to look for a cure. Instead of just throwing more drugs at us. There is hope and an answer waiting to be found,.

  • Beautifully put together. thankyou for spreading awareness.

  • Thank you 

  • Fibromyalgia is called Adrenal Fatigue in alternative medicine or Hormone Resistance(hypothyroidism) by Lowe look for the symptoms are exactly the same.

  • I have fibromyalgia and yes I am in pain, yes some things are difficult but life goes on. I just try and deal with each day as it comes, I try to keep my diet as simple and healthy as possible, I take supplements and vitamins and I do yoga. Sorry but I'm not ready to give up and die just yet!

  • You are not alone.Have massive tears running down my cheeks and typing with one hand as also having an emotional nosebleed.

    I am finally going to speak up,been suffering in silent for years and since I have no family I do not know what I am going to do...but find comfort fro people like you.Hope you have family and are getting some help.Thanks for speaking up for those like us,THANK YOU!

  • As a person who has costochondritis and fibromyalgia, I say thank you for creating this video.

  • kathy what a beautiful film and so true. officially diagnosed in october '09 after taking several LOA's from work over the last 18 years, always being diagnosed as depression, one attempt of suicide because i couldn't understand how depression could cause so much physical pain.  i will share your vid w/ some family and friends who just won't or can't comprehend this syndrome. thank you for producing this and know that all fibro suffers are in my prayers daily!

  • thank you for using the fibromyalgia symbol i created in this video ( The Hope-a-gram) I am hoping to talk to the NFA to see if they would like to make it an official symbol instead of just another ribbon. Take care....Lori, Purple Butterfly Hope-a-gram.

    I am a 17 year survivor and believe awareness is key in finding a cure.

  • Yes, I was diagnoised with Fibro combined with Polymyalgia,It hurts like Hell,severly in the a.m. I have some good days,so I am luckier than others.except for the fading vision,Mine was brought on by trauma of the stress being in a Domestic Violence relationships,on top of the physical trauma I endured. I live with it, I curse satan for this,I Love God who holds my hand through this.There is no cure, and will be in my life forever,But, my will is powerful and God supports me,as do my friends.

  • I know most people think that all of a sudden you get sick......but the truth is that fibro , lupus, ms, are degenerative diseases caused by years of toxic exposure from any number of or composition of factors. Smoking, aspartane, aluminuim, poor diet, vitamin deficencies, etc. Most doctors are not trained to look for these causes. Any vitamin supplied by a drug company is highly suspect. They are not into healing. Drug company vitamins are synthetic. There is so much you have to know.

  • @cottoncandypoms Im sorry but this is not correct , many who have these have always eaten very healthy , not smoked been very conscientious about keeping healthy.....You are also wrong about Fibro being a degenerative disease it is not....may feel like it sometimes as it causes severe pain and can make it hard to function when having a flare but is not Degenerative. Doesnt sound like you are a suffer or you would know these things.

  • @dianneo34 oh I have this crap mark my words!!!!!! Sounds like you have no clue

  • @katpeterson326 Well sorry u feel that way but you may want to do some more research on it if you think I have no clue....I have it my mom had it my 2 sisters , aunts and so on...i know lotsof people who do and I have done lots of my own research about it all so I do know about it ......I dont know what you think makes you a specialist on it that you can listen to others opinions on it. but anyway

  • Kat, When I viewed & posted my note on FB, I didn't realize YOU were the person who made the video. Great Job!! I need to learn how to do stuff like this. lol This video gives people an insight as to what we (Fibro Fighters) go through every day. I showed it to Bill & he pulled it up on here (UTube). He thought you did a good job also. It was only at the end of it that I realized it was made by you, my dear Fibro Friend. Thank you! Bill & I both shared it on FB. Soft Hugs! Cheryl <3

  • Thank you Thank you Thank you.....beautiful~

  • This is caused by inflamation and can be stopped by eliminating sugar in your diet number one. You also should eliminate as much as possible heavy metals and toxins from vaccines, metal fillings, and as many other environmental toxins as possible. Don't overlook those in soaps, shampoos, cloths detergents, etc.

    A great help to undo and strengthen your immune system is taking a good quality omega 3 fish oil,. Shaklee Omega Guard is a good one. Go to mercola.com for more information.

  • @cottoncandypoms I am a Type 2 Diabetic & don't get much sugar in my system. I also take prescription Lovaza (Omega 3 Fish Oil). Unless you suffer from this I don't think you fully understand what we go through. I don't believe it is caused by sugar & toxins, etc. in your system. The doctors that we see aren't all uneducated, etc. What is the cause of Chronic Fatique or Lupus or MS or AIDS..too much sugar or toxins? I think not.

  • AWESOME video!!! Using it to try to help my family understand what I have been trying to explain! I am newly diagnosed, April of this year. I take Paxil, so there are no medications I can take. Need OTC sleep aids to get to sleep, OTC pain meds don't do much. Trying to get more exercise, but, it just HURTS!!! Thank you and God Bless you for this video!!!!!

  • supposedly a non medical liquid-nopalea helps with this condition....we are going to try it...don't like the tramadol and tylenol to curb the pain...my husband suffers

  • I've been suffering for 15 years with fibro pain, the tender points, swollen lymph nodes all over my body. I've had migraines that won't let up. Had them three weeks at a time. Confusion, not being able to remember what happened the day befor or what program I watched, everyone swears I watched it but I can't recal a single thing as I watch it again. I manage to drag myself out of bed just to make it to the living room to lie back down. I feel so alone. People tell me how great I look.

  • This is Kathy, I am who made this video.. Thank you ALL SO very much for the great comments.. I wish you each a day that is filled with less pain, lots of love and happiness..

  • Thank you for this video..........its everyone else that needs the education about those of Us who suffer this horrible condition !!~

  • i have it also!for many years now.and many more chronic diseases.lucky for me i have many sweet people around me like my awesome daughter,my boyfriend,my best friends,my friends,and my familyetc .i,m 32 but with the horrible pain in almost my whole body every day i feel more like i,m 90!not in my mind and soul but because of my body!i hope they find a cure for us soon!!because it is really a hell to live with so much pain!i have all the sympt there is with fibro.except for 2.lucky me lol

  • It cut me off from my chldren and husband in my 30's and 40's and now cuts me off from my grandchildren in my 60's.. I don't believe they will ever find a cure, but live day by day in my faith...it's all I have. But thank you for putting all this in words.

    Mary (Edmonds)

  • Thank You so much for this! as a patient this was awesome to me and all the right words!

  • I am a recovered fibromyalgic who left the care of the medical profession to discover the cause and cure of this horrific condition without drugs. I am living proof you can cure this and take back your life. Please, do not give up from failed hope and keep going!!!

    Valerie Lumley, Recovered Fibromyalgic and author of

    "Curing Chronic Fibromyalgia - Choosing What Works"

  • Thank you so very much for being brave enough and strong enough to create such a beautiful piece of work...every word and every photo speaks so clearly to the deepest reaches of 21 years of pain and sorrow...both physical and emotional. I echo Mr. Diamond's words. Living with our Father beside me, in me and all around is the only way I know how cope! Sending uplifting prayers and (((gentle hugs))) to you. May your days be filled with His love, blessings and joy. Debbie

  • all so true.....

    Thank you for this beautiful vid

  • Well said my friend, well said!

  • Thanks- great video!!! Hang tough- we'll be in heaven ONE day.. I remind myself DAILY that this life is but a 'blip' on the radar of eternity... in heaven there will be no more pain and no more tears! :) and I see you have prob. found His perfect cure- guessing by your screename... It's such a shame.... the HUGE pharmaceutical companies would NEVER stand for something so effective and pure that doesn't make them ALL fat, rich, and happy!!!

    Peace!

  • IF ONLY MY FAMILY WOULD WATCH THIS

  • This is beautiful. You are beautiful.

  • this video really sums up so much of what I feel everyday...

  • thank you for this video

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