Neurofibromatosis Type 1

[ElectricShark]

Keep being strong, Laura!

[HauntedKitty777]

fair enough

[mattpoopinmymouth]

smoking marijuana can help nf1

[peachy101ist]

hi i have nf 1 just wanted to say hi

[DavidHamiltonTyson]

I'm in the weird part of YouTube.

[Macday000]

@DavidHamiltonTyson shut the fuck up, dude. You're seriously so stupid, that you didn't even realize that someone else posted the same stupid generic "weird part of youtube" comment like 5 posts down

[DavidHamiltonTyson]

@Macday000 Guess what? That is so awesome! Good job.

[Macday000]

@DavidHamiltonTyson predictably terrible response

[DavidHamiltonTyson]

@Macday000 Predictably small hair like penis.

[Macday000]

@DavidHamiltonTyson See the reason why you are a terrible person is because this lady who is obviously afflicted with a disease that causes her to have facial deformity still has the courage to put up a video of herself on youtube. Then you come along with some crass remark, but instead of being remotely clever, you just blatantly display what a bland unremarkable person you are by posting a comment that you have read on a bunch of other youtubes.

[DavidHamiltonTyson]

@Macday000 You have pancake nipples on your buttcheeks... please enjoy.

[cayhuff]

@DavidHamiltonTyson You're ignorant. YOU clicked on this video, and were watching videos that were related to it somehow, so you're here on your own circumstances. There is nothing weird about this woman, she video she posted, or the message she is trying to share. Get a life and grow the fuck up!

[cayhuff]

@cayhuff the video she posted*

[DavidHamiltonTyson]

@cayhuff My asshole is smaller than your mouth.

[sydneyloveselmo]

@DavidHamiltonTyson no ur not

[GarethMalloyX]

Im in the weird part of youtube again ..

[sn9696]

@GarethMalloyX ,your rude!

[angerb0y]

Sometimes i ask myself.... How the hell did i get here from watching videos bout cops getting shot..

[sn9696]

@angerb0y ,you're rude!

[fatalhousewife]

i have NF all over my body im 15 from canada like this post if u have NF

[Supermassively]

@fatalhousewife No you don't. Stop whoring for thumbs up to satisfy your childish craving for artificial online popularity.

[Ayshirami]

@Supermassively yup, just look at the videos he's uploaded and you'll see. I feel more sorry for people like him than people that have NF... because at least they have esteem in themselves.

[ArmyRecruit260]

is your right eye fuctionable?

[ahleSunnah100]

hi i have nf 1

[ReturnToSender83]

I am 28 I have neurofibromatosis type 1 along with a rare side effect hydrocephalus.

[Lovellfire1]

i have type 1 i have lots of nerve pain and i get made fun of ppl dont no wat its like

[jody88100]

Hi I have nf type 1 also. I have a lot of bumps from head to toes. I have a hard time to, but I take it day by day.

[theshaanimawbeyshow]

i have nf1 too, i have a tumor growing behind my eye on the optic nerve its slowly going to push my eye straight out of its socket. im only 19 and really, im so scared of growing up.

[theshaanimawbeyshow]

@DeviousBetrayer well, its something called surgery Im going in to it in a week. The comment i made was a month old.

[ls4ever999]

i have nf type one but i was told its only the mild one but too me its just as the same as the other NF's i have cafu spots on my body about 4 lumps one on my little left finger one behond my right ear had one removed from my lower back and ive got on on my right side of my head top of head u can say skull havent tried to remove that cus dunno if my hair will grow back

[skipaday1]

I have nf type 1 a brain truma

 and im only 17

[iceberg931]

@skipaday1 i have NF type 1 and i never had a tumor im so sorry to hear that u have one

[cdrsportspaintball]

i have NF. the non cancerous kind. i have like 6 tumors total and im having one removed from my skull tomorrow

[BlessedBeyondCompare]

I also have NF1, so does my daughter.

[5311hellokitty]

I have nf1

[jody88100]

I have Nf 1

[jody88100]

I have Nf 1

[MetalBlare]

i have NF1 !

[UlTiMaTeOnExx]

You are beautiful

[iloveyou29483]

Some kid did this for his progect in science and kids were laugh and the teacher said: Who's ever laughing must stop! This is really series and they can't find a cure! Hows it like if ended up like that! And i agreed with my teacher

[fabrezee13]

thats sad im so thankful i dont have that or any other diseases

[DJDubz1977]

I also have it, diagnosed at birth

[iceberg931]

@ARTFLOP no not at all i have it

[allskulls100]

i have it, i was diegnosed when i was 9

[iceberg931]

@allskulls100 i was diagnosed at birth

[iceberg931]

@DeviousBetrayer im not i have a pretty lucky case i never a tumor or i have some spots on me but nothing serious and u know what fuck u u waste of life nigger people who have neurofibromtosis cant help the help the way they are. what would u do if ur baby monkey had it once again fuck u nigger

[iceberg931]

@DeviousBetrayer because niggers like u just find it so funny to fuck with people and i dont have a shitty life. why is so funny to mess with people like me why nigger. would u mess with ur offspring if they it

[iceberg931]

@DeviousBetrayer well nigger dont fuck with us. we did not ask to have this disease it's sux having it i dont look like the woman in this. u say we're assholes look at u nigger u say we're ugly i'd rather have nf then b a nigger ur people are ugly

[iceberg931]

@DeviousBetrayer u must think ur so cool but u know what ur not ur just the biggest piece of shit. i dont let nf get me down and u shit face doesnt bring me down so keep trying ur just gonna fail and do u think u offend me think again fagot i laugh at the shit u say and i dont give a fuck if i offend u or not if u were to get killed no one would care. so u have a nice day

[jessbritt121]

Hi im brittany. i have NF1

and i want to make a difference.

please join my faceook page called ' help brittany burgin raise awareness for NF.

[ilovecinemabizarre1]

that is 2

[browneyes04047]

@ilovecinemabizarre1 how would you know what type of nf she has? NF1 can be just as debilitating and disfiguring as type 2 and it can cause gliomas as well

[ilovecinemabizarre1]

@browneyes04047 BECOUSE I HAVE NF1 can i don't have a disfiguring why do you have it

[browneyes04047]

@ilovecinemabizarre1 Yea I do have nf1 you shouldn't make ignorant assumptions without knowing the whole story, and secondly not all cases of NF are the same, some might have tons of tumors while others get lucky, you should know that if you have nf1 and youve talked to a doctor about it.

[ilovecinemabizarre1]

@browneyes04047 i do have tumors but there small do you go for cats scans becouse i do you make me sound like i'm a bad person annd i'm not i have a neurofibor in my tummy i got for test ever 9 mouths and i wish i never had it i have some in my leg under the skin and some in my hands

[browneyes04047]

@ilovecinemabizarre1 I dont think your a bad person at all, I just don't think anyone has the right to diagnose another person for an illness they know all too well about, Im sorry for your tumors in your stomach, but although you might not get facial tumors like this woman, it does not mean that we don't all have the same disorder, thats whats crazy about nf it can take many different forms some have only cafe au laits while others are ravaged with neurofibromas, thats just how sporadic it is

[ilovecinemabizarre1]

@browneyes04047 i;m sorry and i agree i'm the only one in my family that has it

[ls4ever999]

@ilovecinemabizarre1 people have differnt symptoms its bad how life can be full of unwanted suprises

[sweetlea1975]

j'ai cette maladie mais a un stade moins évident

[MustLoveJennettte]

i have Nf 2

[Rickberg1966]

I think i have this where can i get more info on it Please. thanks

[morguebabe]

@Rickberg1966

nfinc.org or ctf.org

[jessbritt121]

@Rickberg1966

Hi im brittany. i have NF1

and i want to make a difference.

please join my faceook page called ' help brittany burgin raise awareness for NF.

[Dant3x1986]

i like your hair

[morguebabe]

Fuck you people who have NO idea what it's like.

[JOAchetumal]

Fuck Off! That's No NF1 You Sucks!

[SweeetKyChick]

I have type 1 as well I am the only one in my family that has it.. it does suck to have it but you cant let it get you donw. you just have to live life you never know what is going to happen.. just be happy that you wake up everyday, I wish that there was a pill or anything you can take and make it go away.

[MrCorpseNeverDies]

UGLY!!!

[sweetpumpkin334]

@MrCorpseNeverDies And you look any better? This is a serious illness. Your lucky you don't have it. BE GRATEFUL.

[kristingattinella89]

i hate NF1 :) and im not ashamed of it

[summertime3323]

I think I have well over 3000 bumps on my body 2 in my brain thats been there since I was at least 21 I am 39 now. They are really bad on my feet and back and chest. After having my child it exploded. People do not really notice unless I point them out thank GOD. I do hurt ever day .

[summertime3323]

To:MrCorpseneverdies What is your problem? Why even be on this if you do not want to see what REAL people look like. NFgal I think you are beautiful. I have Nf1. I have "bumps" (thats what I call them) I am proud to be a NF survior. This diese can kill you not just in body but in spirit.Corpse jacka#$ NFgal has more moxy and more guts then you could ever know. IDIOT !

[sloowburn]

find me on facebook Theodore Thompson And there are lots of us on there

[morguebabe]

I have NF type one.  Hello.

[MrCorpseNeverDies]

gross you should never show that face on camera.

[aerasacra]

don't look, and.... don't speak!!please

[ItzMichiLuv]

@aerasacra listen dick, this person probably has more balls then you wlll ever have for putting up a video of themselves. sorry your bored with your own pathetic life and you have nothing better to do than make fun of someone with a genetic disorder.

[aerasacra]

@ItzMichiLuv i spoke about a personn who have writen nasty think :Mr Corpseneverdies. i didnt say that for the personn on the video but against the speech of this poor guy !! i am not like that!! i know a little girl with a NB and i will never say nasty thing about that (sorry for mistakes i dont speak english well)

[sweetpumpkin334]

@aerasacra I don't know this woman, but she probably has a heart of gold. I don't know what you look like, but I can tell that your very ugly on the inside, which makes you very UGLY on the outside.

[aerasacra]

@sweetpumpkin334 i repeat, i spoke about the gay who have written horrible things about this poor personn, : fortunately, he decided to clean the nasty message but now, every body thinks my answer for him was destinate to this poor woman : it's a mistake, i am not like an ugly personn !!!!

[spiderman292007]

@MrCorpseNeverDies get a life asshole

[KaroSchlumpf]

hello I have Neurofibromatosis Type 1, too.

[peteboy1113]

@wrex123 your parents know you said this.

[Lena050103]

Hey, I'm 16 and I have nf1 too.. and i just wanted to say hello.. I have never spoken with other people who have neurofibromatosis..

[peteboy1113]

@Lena050103 hey gene transfers. is right around the conor. maybe it will cure you. i told the mass chapter they can use my genes. if they want.

[DameEdithDivine]

beebee890 will crush a can for you. He's my friend. He has neurofibromatosis type 1. Tell him DameEdithDivine sent you.

[hawker445]

i was also on the news.. because of my NF1 and my learning disability

[the11991]

hi i have nf type one i am at age 18 and i mine is mild case

[hawker445]

how many bumps do you have? and where are they? i want to compare mine to yours.. see if mines worse

[summertime3323]

I am 38 women with nf1 would love to chat I have yahoo. summertime3323 please let me know

[peteboy1113]

@summertime3323 i had acne as a kid. i know a little of what you go thur.

[allissium]

I have NF too, I got tumours in my spine, I'd like to keep in touch with you

[WeedsteRz]

OH GOD WHAT HAPPENED TO YOUR EYE

[mamasuzie]

I have NF 1 as well.

[xoxash123xox]

ive nf1 ... mild condition though .... its possible to live to that age my grandad is 80 and has it..

ive had no tumours yet but didnt get a scan in two years !! to scared to since i saw so many problems on this !! im afraid .. besides docter didn send out a appointment like they did when i was younger... im 16 now

[redrum0024]

i have nf when i i was 16 i had my last scan the doctor said tumor on my spine was going to affect my walking but out of fear i stopped going now im 21 and for a year i cant walk my back hurts and i have involuntary movements of the legs.. im going through treatment and physical therapy... i wish i wouldve keept on going maybe i wouldnt be in this situation.. go get checked out. sorry for it being long

[mq19]

how would I get in touch with you????

[mrsuera]

i have nf too i wish i can say its a gift from god but its not my mom died from it.....a beautiful and carring person who did no wrong to noone died from it...thats a gift? yeah didnt think so its a fukin curse i had tumors growin on my bodie since a baby..ive been in school since i was 3! i couldnt talk untill i was 6!!! how is that a fukin gift and now i have a fukin tumor growin on the stem of my brain! sum gift but i still manage to keep thriving everyday normal people dont know wat its like

[Mike4evermetal2]

I'm so sorry man, I hope you get through it.

[peterban1234]

Neurofibromatosis as any other disease is a gift from god. Be happy to be gifted!

[ZombieMahem]

In a way your right....the gift to be able to stuff it in other peoples faces that you have it....no....the ability to show the world that God is using you as a symbol that it won't keep you down.....yes :)....

[copacetique]

I did not watch this to laugh. I watched this to learn.

[pegz696]

Seriously fuck u all, Those who dont have NF have no idea whats its like, seriously maybe those that think this is funny are just not normal people and to laugh at something as serious as this is never acceptable.

Just to those that laugh, just think later in life what if your kids have NF... Will you laugh then>?

[whooseyerdaddy]

i have nf1 and want children and the biggest fear is they go through what i went through at school and have fun made of there lumps every day

[javoman13]

I hope that she is ok.

[Diamondbello]

U GUYS R SO MEAN!! THEY CAN ALMOST LIKE DYE FROM THIS AND B IN PAIN AND STUFF!! Don't b rude! I feel bad for tis girl! And there is this guy that has a video (It's sad) and it's 1 of my best friends bro's!! i forgot wut it is called!! but look on my page and look at my favs and the 1st words will b like "Cols Crew"... and then more!!

[MiggyJiggy]

what do they dye?

[ZombieMahem]

Its a VERY high chace of not even reaching the age of this woman.....its that serious....

[chipalex]

yay you can die from it can affect any organ in the body and growth of tumors along nerves in the skin, brain, so ya you can die from it

[timelord93069]

i know all too well i can die from it i have a tumor around my decending aorta they cant touch.

[jetsfan4life]

I also have NF1. Keep getting the word out. People need to know more about this.

[reggiebibbs]

I also have NF. Some people will accept you, and some will not. Words hurt no matter who you are. I wish the ones that say those words would think about the words that someone can say that might hurt them. It may not be words on how they look, but maybe about something else.

[hayleypetamarrs]

dont be so rude theres no need for that

[Hazekinse88]

u sick fuck, i have nf1 and if u r gonna be nasty, just get a life and dont annoy others.

[hayleypetamarrs]

i wasnt anoying others and i wasnt nasy ok i was standing up for her and i have nf to how do you think it makes me feel and do not call me a sick #uck cause you dont even know who i am i was refering to bonlue90 comment to whtch he said why are you telling us this so hazel im sorry if you took this the wrong way but why would i be rude and nasty when i have this myself

[hayleypetamarrs]

were you talking to me or that other person?

[Hazekinse88]

Hey sorry bt da missunderstanding but i was taking bt u i was taking about bonlue90.

i have nf1 myself. once again sorry.:(

[xXsarah1983Xx]

U r so ignorant, its u i feel sorry for not the people who have it, u cant help being an idiot can you ? I look after a lady who has NF, she has no problem with people talking about her, infact she will often introduce herself if people look cuious

[urturtleismine]

rofl

[KNOTTYMAN]

I have NF1 also.

[shaun1912]

hey loz i have nf1 as well, keep up making videos, and keep on smilying shaun1912

[cappaslappa]

hi, I have N.F 1 also, thank you for having the courage to make this video.