Cystic Fibrosis Clinical Trials: A Child's Experience

[jas16899]

3rd grade? I can't fap to this... too old.

[dublinireland100]

How come the doctor had to have safety clothes i guess thats what it is called



[fanboysgirlfriend]

@dublinireland100 the doctors and nurses usually wear those when we (CFers) go to clinic and whenever we get admitted to the hospital, it's just a precautionary thing.

[chainedserendipity]

@dublinireland100 Because he's treating other patients with CF and most of us are immuno-deficient. So if we pass bugs on to one another we could get seriously sick.

[airsofter1198]

haha i got her nebuliser at 0:23

[Wbeliever7]

OH MY GOSH she is soooo cute

[CrazyPsychoChick25]

hey im 15 with cf. i wish i could just be normal. even for just one day. please help find a cure. we go though so much, i coulnd't wish this on my worst enemy. please us find cure.

[xxmizztiannahxx]

I have cf. I am 12 years old and I want to find a cure...

I am sick of my medicines, pep mask, nebuliser and all the clinics I have to go to.

I don't want to die so young.

Please help me...

[tardyduck17]

I GOT THE SAME AS U AND IM UR AGE

[fanboysgirlfriend]

@xxmizztiannahxx you're not alone. a cure would be great, but it's not just going to happen. it's going to take time and money. and if you want to help find a cure, you should talk to your doctors about being in clinical trials so that they can try new things that would maybe not be such a hassle for us to have to do.

[FHprincessX1]

i have CF too, i think a cure will be soon ;)

[apluskel]

I think if I had to wear that vibrating vest, it'd make me want to throw up from the shaking. In the long run, does the vest help? it seems like all that shaking wouldnt be too good for you.

[passion2act]

Yes it does help. Because it clears the mucas that the body can't remove itself :)

[yumskittles93]

It is really good for a CF patient, because the vest breaks up all the mucus caught in the lungs and allows them to breathe.

[ryryryryhas]

it helps loosen up the mucus stuck in our airways. and after the vest and breathing treatment we have to cough it out. and yes it is not so much fun.

[magick205]

And the primary cause is a single point mutation (F508) in the CFTR gene on Chromosome 7. Is this an adenovirus transfection to repair the affected cells in the lungs? My family has a history of this horrible genetic disease.

[Hreedproductions]

i have CF i want a cure..there are hard times

[outmabake]

hopefully these trials will work n help cure my girlfriend