Sadly in the year 2009 Brianna had to be hospitalized for a month... luckily God loves everyone and she was able to come out of her coma and is living a healthy life today...
i have mitochondrial disease but i use a wheelchair becaues i get servere pain in my legs. but when i do walk i look normal and know exactly what you mean by the stares. hope evreything goes okay in the future.
This is a great video. I don't have mitochondrial disease, but I have an invisible disability, and this video echoed my own sentiments exactly. Thank you for making this. :)
hey brianna, my names Justin Bousquet I'm 16 years old from Agawam, Ma. We've actually meet once or twice at the local MDA telethon. I have Emery Dreyfus. I totaly know what your going through... on the outside completely normal... on the inside we couldn't be further.
Everyone please support the MDA, it has honestly become one of the more forgotten organizations and muscular dystrophy has fallen into out of the general public. Lets bring it back into view.
Great Video! People really need to stop summing up others with one look. There's much below the surface that goes unseen, yet plays an enormous role in who we are and what we struggle with daily.
Thank you so much for this video. It is just what I was looking for. My son will soon be diagnosed with Mito. The one thing he has always said is that people don't understand him because he looks "normal" and "talks" normal. They don't see the disabilities until they really get to know him. That is the most frustrating thing. Especially when he says it would be easier if something on the outside looked handicapped.
I have mitrochondrial.Its its a teribal thing to have I'm lucky compared to a lot but I'm just as tierd as every one with it. I wish every one that has mitrochondrial luck in life
My 15 year-old son was diagnosed with MNGIE Syndrome 7 months ago. It is a mitrochondrial disorder: there is only like 150 confirmed cases currently in America. Looking at him you wouldn't be able to tell he was totaly disabled.
Once again I also know exactly how you feel!! I have Mitochondrial Cytopathy and so does my daughter. Luckily she is still very well and only has a few symptoms that get her down, me well that's a whole different story!!! I am 40 years old and I feel 140. I am not very mobile at all now and feel pretty bad all of the time. I am just thankful that people like yourself get out there and show the world that there is more to a disability than just what your eyes see first!!!
I know exactly where you are coming from. I am from NC and I have Hermansky Pudlak Syndrome. The perfect picture of health, but look beneath my clothing, you will see things most people would never think were there. I really think this video is awesome, cause it gives even more creadance to "Don't judge a book by it's cover" Thank you for being so brave!!!!
Sadly in the year 2009 Brianna had to be hospitalized for a month... luckily God loves everyone and she was able to come out of her coma and is living a healthy life today...
miss you at the drama studio
BSBchampion 3 weeks ago
AWESOME! I too have mito
FlyinHyy 1 year ago
i have mitochondrial disease but i use a wheelchair becaues i get servere pain in my legs. but when i do walk i look normal and know exactly what you mean by the stares. hope evreything goes okay in the future.
Joe
joe170192 2 years ago
This is a great video. I don't have mitochondrial disease, but I have an invisible disability, and this video echoed my own sentiments exactly. Thank you for making this. :)
crashxxbrn 2 years ago
hey brianna, my names Justin Bousquet I'm 16 years old from Agawam, Ma. We've actually meet once or twice at the local MDA telethon. I have Emery Dreyfus. I totaly know what your going through... on the outside completely normal... on the inside we couldn't be further.
Everyone please support the MDA, it has honestly become one of the more forgotten organizations and muscular dystrophy has fallen into out of the general public. Lets bring it back into view.
thank you,
-Justin Bousquet
tenordude14 2 years ago 2
get better Bri, you can survive this, people all round the world are praying for you :)
twinklekl 2 years ago
I love you Brianna Couture.
DevilyWeevles 2 years ago
Great Video! Hopefully this will bring pause to some who are judgmental not knowing the whole story.
autismsolutioncenter 2 years ago
Great Video! People really need to stop summing up others with one look. There's much below the surface that goes unseen, yet plays an enormous role in who we are and what we struggle with daily.
autismsolutioncenter 2 years ago 2
Thank you so much for this video. It is just what I was looking for. My son will soon be diagnosed with Mito. The one thing he has always said is that people don't understand him because he looks "normal" and "talks" normal. They don't see the disabilities until they really get to know him. That is the most frustrating thing. Especially when he says it would be easier if something on the outside looked handicapped.
wild2day 2 years ago
I have MS, my son, now 20 has pancreatitis- which is mito related. I LOVE your video-
Thank you for sharing in such an informative way- you are great!
marblejar 3 years ago
Thank so much for tuning in. I wish you the best and hope more and more people become educated about Mito and its implications.
many blessings,
Brianna
prajnajewelry 3 years ago
I have mitrochondrial.Its its a teribal thing to have I'm lucky compared to a lot but I'm just as tierd as every one with it. I wish every one that has mitrochondrial luck in life
bernadette17ann 3 years ago
Great job, guys. *pokes friends in video*
jilliankuehn 3 years ago
My 15 year-old son was diagnosed with MNGIE Syndrome 7 months ago. It is a mitrochondrial disorder: there is only like 150 confirmed cases currently in America. Looking at him you wouldn't be able to tell he was totaly disabled.
Cherri59 4 years ago
Once again I also know exactly how you feel!! I have Mitochondrial Cytopathy and so does my daughter. Luckily she is still very well and only has a few symptoms that get her down, me well that's a whole different story!!! I am 40 years old and I feel 140. I am not very mobile at all now and feel pretty bad all of the time. I am just thankful that people like yourself get out there and show the world that there is more to a disability than just what your eyes see first!!!
Jordyalan 4 years ago
Great job!..thanks for doing this.. I understand this all too well!
yackityyack1 5 years ago
I know exactly where you are coming from. I am from NC and I have Hermansky Pudlak Syndrome. The perfect picture of health, but look beneath my clothing, you will see things most people would never think were there. I really think this video is awesome, cause it gives even more creadance to "Don't judge a book by it's cover" Thank you for being so brave!!!!
tommytillman 5 years ago