Help Jeff Johnson raise money to find a cure for Multiple Sclerosis. Visit his fund raising home page at nationalMSsociety website and add /goto/jeffjohnson to the URL
Some understand more than you know, I do probably because I'm in the same situation. It is important to remember that “acceptance” does not mean “giving up” or “admitting defeat”. It's the place where you can begin to discover the "tools" you will need to fight this disease. You have a very beautiful smile.
There is now a Reformed Multiple Sclerosis Society that is urging for the medical community to check out Dr Paolo Zamboni's discovery that MS is caused by poor blood drainage from the brain. The answer to restore blood drainage from the brain is angioplasty. Watch the before & afters for this surgery called CCSVI on youtube- simply amazing. In just 24 hours a world of difference. Standing on one foot eyes closed in just 24 hours!
I am probably days from being diagnosed with ms. :( It has been suggested by a couple doctors that I have this disease. Now the more research that I do on it the more that I am convinced that I have it. I have a multiple of the same symptoms. It is tearing me apart. Skier, backpacker, mtn biker. :( I too have had friends that don't even talk to me anymore and my mother still insists it is a pinched nerve. I wish someone would just call me and ask me how i'm feeling today. ;(
Great video, I am a huge advocate for M S Support Groups. I have a wonderful, supportive support system of family and friends, but they don't/can't understand how I feel. Fellow MS'ers can.
Hi hun I have recently been diagnosed with MS, I enjoy watching your videos nice to see someone from the uk doing a video. What neurologist you under at Hope Hospital? im under Dr Richardson xx
im going to the doctor on july 5 2011 to see am i one of the few to have two different disease!! MS is one of them! now i have to see do i have neurofibromtosis! 90% chance that i have it! along with my daughter! shit sucks!
I do not know the feeling of horror if I had children and MS. I was 15 when I was diagnosed with MS and I just was worried about the idiots at my high school making of me when I couldn't go down stairs fast enough or I would drag my foot when walking. So I don't know about dealing with my own future children when I have MS, I just had to deal with asshole students making fun of me in my already awkward time of life and plus MS.
They taught us to say "I have MS but MS doesn't have me." That was in the beginning but now it has been insideous and takes advantage of any health difficulty.
Thanks fr watching the video i really do hope and pray you dont have MS - this year started of bad for me- im slowly picking myself back up its hard but we have to keep fighting still think why me? im childish at times - have the odd cry now and then i have lots of loving people around me so takes my mind off things but the minute im home in bed i cant even sleep thinking about they may have got it wrong...anyway thanks for watching and keep watching my videosxxxxx
I know how u feel!! I to got goods days where I'm happy! I got days where I'm sad!! I got ms! I was told on April 7 2011!! I'm on copaxone!!! I too will never accept the fact I got ms
i was dx in 1995, had a breakdown, lost my job and marriage, NO member of my family understood so i ran away, met up with my now wife, have 3 step daughters and 2 grandchildren, like is ok BUT i would not expect anybody to understand as nobody can possibly know what it is like apart from us ms'ers, on ldn and thats all, ms may be in your body but not in you. none of the neurologists, ms nurses, consultants, so how can they understand, how can there be one drug for all as every ms is different
i dont have MS but i understand how you feel. well the whole no one understands part. i am 18 years old and have whats called Congenital Lumbar Spinal Stinosis. its very rare and people just dont understand. its very very painful and i have spent my days in bed bc of the pain. its not fair. im only 18 i feel very unblessed
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Hi, I'm 14 and my mum has had ms since I was 6, at first they thought it was a brain tumer, but then they reliesed it was ms, now my mum has the worst case of ms, constant choking, cant speek properly cant move has to be fed by pipe to stomache I get upset everytime I remember going to the park with my mum, and when we go on holiday to wales everytime I get upset because of memories... I live about 5 minutes away of manchester aswell. thanks
Thanks xxx have been on tysabri for 9 months - dont feel any different as yet - thats because i keep getting the cold and just recovered from sinusitis xxx remember me in your prayers
the docters say i was born with ms i got diagnosed 2 years ago i fucking hate my sickness , enemy i hate the fucking media because they talk about new drugs to give grand pa a hard on or one better to make old people look young wtf
Beautiful video, hope you find that there are many of us that do understand, and have the same fears, and share the same motivation to keep going (our angels) I wish you luck on your journey, and many happy, healthy years to come
hi to all who have ms. we have to accept ms then get on with our lives get stronger for our self because when you do that every thing falls in place when you are good the family is good. mind body and soul the mind is a powerful thing it can heal your body thats all we want is the symptoms to go away far away never to return . we will always have ms but it will not take our lives. god bless all and there will be a cure if not from the doctors from a person who has ms
Beautiful video and beautiful family. I was diagnosed in March of this year. Woke up with blurred vision like you. Good days and bad days: your video says it all. Keep on keeping on. Best wishes.
I think many people with MS can relate to this video on how people who don't have MS won't understand and can't. And even if you have MS we are all different with how it affects us individually. I was diagnosed 2 weeks ago and I'm 20. My parents were very supportive however they treat me like I'm going to break and at the same time treat me as if I'm just being lazy if I'm sleeping a lot.
Well I'm with you, everything's gonna be all right. We'll keep fighting together :D and smiling lol
I Love This Video.. Im 20 Years Of Age And Was Diagnosed With MS A Little Over A Week Ago.. My Whole Life Has Turned Upside Down.. My Family And Friends Are Very Supportive And Keep Telling Me Things Are Going To Be Ok And My Life Will Get Better.. I Just Keep Smiling And Say Im Ok But Really Im Not The Pain I Go Through Everyday Is A Struggle, I Stuggle To Get Out Of The Bed, Some Days I Just Cant.. 5 Days A Week I Feel Drunk But Really Im Sober.. I Will Not Accept That I Have Ms Either..
@littleange100 I am so sorry to hear about your diagnosis your so young and it isn't fair I always say 'why is it the good people' I have two children and I have to be strong for them this year gas been really bad for 'me I have just gone back to work after 5 weeks off I can't out of bed and the pain is unbearable I split up with him last year which was bad I'm always here if you need a chat,rant or anything even advice xxx and that's to anyone xx
I really feel this video. I understand. I even understand how you feel about no one else understanding how you (we/US) are feeling. But let's do the best with what we got.
. I have had ms for nearly 30 years and No-one, no-one, no-one can ever know, you look normal and you look drunk, clumsy and awkard, you will never be graceful again. You need nappies and baby wipes and your'e not a toddler! ms is a beast and its terribly isolating, you have to be pro-active with it, you cannot let it win, and no-one, no-one ... people see my stick and ask me 'what did i do??'
NOTHING!! I did nothing to deserve this! Plse check me out, my channel is 'multiplesclerosis101'
MS is a one hell of an illness i have and go through everything - i piss my self regular and you know what i am just so used to it now that i dont bother hiding it - we all did nothing to deserve this our kids did nothing to deserve this they do suffer too .no one cane ever understand the real ins and outs even our families no one knows wha it feel like when you out shopping and suddenley you wet yourself no one will ever know - but i know - a person with ms knows what its like xx
I so much needed this video tonight. You expressed everything I have be feeling. I too have MS. I was diagnosed in 8/2008. I feel your pain and I know you feel my too. I also have two children and husband, with multiple of friends and family. They never know how much pain and what I feel having this MS. Thank you for sharing. I will keep you on my favorites and check back to see how you are doing. We must go on for our children and husbands, it is a daily fight. This I know.
Thanks browneyes i think this video has helped a lot of people - specially the ones who dont have MS i mean no can imagine the pain we are going through - its nice to know that we have a lot of support and family around to pick us up but see it as this is going to be forever - kids will grow up and move on and husband oh well what can i say? Thanks keep a lookout for my next video xxxxx
i understand and i dont have ms :-( i was born so weird... no friends at age 18 never did probably never will i know how it feels to be crushed under all this weight and trying to still be strong i will never fit in my family hates me no one ever visits... no one will let me have a job i cant get into college i have a bad life i just want to kill myself i am barely strong and i feel like my life is being drained every day my eyes teared up while typing this and this is true ill have a bad life
I dont know what to say but i felt like killing myself at one point as i couldnt take the pain the pain is unbearable - i lost some friends when i was hit with MS i am sorry but you shouldnt feel like that i shall send you a message xxxxx big hugs and i am your friend i here if you ever need a rant or rave or just someone to talk to xxxx
Thanks for sharing your video. I got diagnosed with MS about a month ago. After reading all the literature, I realized I probably had MS for several years but was not aware of it because my initial symptoms were mild. The scary thing for me is not knowing what the future holds .... the disease is so unpredictable..... I've never known anyone with MS so I don't know what to expect, but I understand some people with MS are in a wheelchair, and some can still dance ....
My friend just found out he has MS. It's been a very rough week for everyone but he seems to be the strongest of us, and that concerns me. I'm afraid it will mean he constantly has to carry the emotional load and If there is anytime were the rest of us have to do the heavy lifting, it's now. Is that the wrong way to feel? Like you, he has a beautiful family and all his strength goes to them. I admire your strength and courage in the same way I admire his. My best wishes to you.
Thanks for watching the video my thoughts are with you all and with your friend i know its easy for people to say stay strong but its hard i am sure he has a lot of good people around him all my love and if yiou ever need any advice feel free to contact me as i know their will be lots of questions all my love to you all xxxx
I love you! I cant help but cry this video is so great and no, no one will ever understand what we MS patients go through emotionally and physically. I really do hope you get this msg because your upload was the most amazing and moving thing I have seen and trust me lol Ive been watching alot of these stories, its my own way of not feeling alone.
Thanks for the message its a moving video but its the truth people who have ms will understand but people who dont have it wont or dont understand the ins and out of this awful illness one day tey will xxxx night
I understand! Dx in Nov 09'. Had my 6 month last week and was told Rebif has done nothing for me. 4 new lesions. I'm starting Tysabri in 2 weeks. Some of us do understand. Keep Smiling! We will win the fight in the end.
Hi All hope your all well just wanted to say thanks for all your support and comments you all make me smile :) although going through a rough time at the moment will be starting tysabri soon though xxxx hugs from me xxx
I have MS and i know how u feel, but ima get to the point! They think they found a cure!!! the liberation treatment is in trial now! you should look it up. i cried when i saw it. go check it out! when i feel down i always look at the stories and news packages!
Low-vision really IS the pitts... before my Dx, I was losing depth-perception. Then, one day @ work, I couldn't read the sign out sheet... "hmm - that's weird" was all I thought. Then I lost my sight while driving thru a darkened area of town 1 nite, next day, go to the ER, and BAM - diagnosed. I had double-vision for almost 2 years (still partially but not near as bad) didn't drive for 2 years, and now I'm color-blind. haha - couldn't read the font on your video, you're not alone!
You have done a great job with this video. Lots of people know how you feel, including me - I've had MS for over 20 years. I'm sure I noticed the word "Ipswich" flash on the screen, is that Ipswich in England? I was born near there but live in Canada now.
Hang in there and make the most of your "good days"
such a touching video. I was in a severe auto accident a yr ago. Neurologist found lesions on my brain that suggest I have MS. Not fully diagnosed as having MS yet because I don't have medical insurance to delve deeper. Funny how had it not been for the accident I would have never known of possible MS. need to have lumbar puncture soon once I save enough money to do so. Not having insurance really stinks. Having symptoms though everyday, fatigue, numbness,dizziness
my dad has ms, he soupports 3 kids all by himslef, he drove the car into a wall in our house and has fell down meny times. he is the only person i look up too in my life. i wish i could do something but he dosent want any help with anything he has done other things, in cases harming other my falling and im pretty shure he knows what your going thorugh because he has been dealing with it for about 20 years
Hi Ethan thanks for your comment your dad isvery strong to be dealing with so much whilst having MS it is very hard - for anyone and i am sure he is proud to have a son like you - I personally at times feel like a failure becuase i cant give my children everything i.e going out, bowling, ski-ing etc but i have to stay stron - we all have to be strong and fight this awful thing we have give him my love xxx
Thanks Peggy its sad but we have to be strong no one will ever really understand why...i still want my answer and i will wait...i hate it ...i hate having it ...
I also have MS. The last 20 years have had ups and downs. I was a teacher but had to retire in my 40's. I am not recovering quickly from my last flare up. I am having problems getting groceries going to the doctor and depression.
I can certainly relate to your experience..I love the way you put this video together..You are beautiful person and have a lovely family..our little angels are our drive to push on with the good and the bad days..but don't give up and keep on pushing the best way you know how..and keep on smiling!!
Really a great job on your video. I know that I am not the only person who feels this way, but your work on this video really says it all... Needed this on this day. Thankyou for sharing your life with us. I wish you every happiness.
fight it with everything you got,. i am in the same boat as you except my wife left me and the kids.. there is always someone worse off than us. dont let it win.
Your very rite,some 1 that don't have ms has no idea what we that have it have to go through.I was dx'd in feb of 2005.Mine started like your's,almost over nite.Woke up 1 morning blind in my left eye.Like I'v always said "Through good or bad life is what you make out of it,Not what it makes out of you" Just hang in there and keep your chin up.
Hey all just wanted to let you know that i am going through a bad relapse was in hospital last week but thumbs up eh i am still smiling and keeping my chin up massive change in my personal life too so watch this space xxxx
Hi Hannah thank you so much for your message i am sat here in tears after reading your message - everyones messages thanks all for helping me through this tough time xxx
You are awesome!! Your video brought tears to my eyes, I was able to cry for me, for you, for everyone of us who struggle everyday with our lives, to survive and to keep taking weekly injections. Your video woke me up again and made me feel my pain. I was diagnosed in 2000 and lost everything I worked all my life for---all the degrees can not replace my family, my husband. Thank you so much for sharing!
Thanks very much its very moving i understand but it helps i will be starting my third video i am going through a terrible relapse at the moment so will start that soon i am a strong person but its very hard very very hard and im struggling to accept it - i mean how can i
Wow! I can honestly say I'm probably about in the SAME PLACE u r, I UNDERSTAND! My MS has progressed to the point of being wheelchair bound. Hang in there, the more we fight this disease the less chance it has to tear us down. I cried as i watched ur video. I know how u feel. . .
I pray that your spirit remains strong so that this awful disease does not define you. I am a cancer survivor, and a very good friend of mine has MS, so I have a slight understanding of your battle.... stay strong and peace!!!
ABC News reports on how Multiple Sclerosis was effectively treated by a new acoustic medical device. The technology, Medsonix also has a profound beneficial effect on a wide range of medical disorders and is FDA registered as a Class One Medical Device, the safest classification possible. ... Look it up here on youtube... If you want more info contact me!!
My daughter (8 years old) undestands this more than the 4 year old boy - she dosnt know what it isbut sh knows why mummy cantdo th normalthings like he used to example drive - because i have ms...no further cmment
Thanks gigglegirl i am just in the process of making my next one as people want an update - alot has changed i did one but they put it on but muted the music because of copyright issues...It was tinchy strider/ndubz number 1 so watch this space sis xxxxx
Hey thanks for the comment yes i am very tough most times but at the moment necks stiff and really stressing me out oh god please help...stress stress stress and more stress...apologies guys but i am just scared and stressed but in the process of making my new video xxxxxx
jesus h..... 3.10 made a lunp appear in my throat.... kid your a toughie... keep smiling... but remember there is a cure baby...never ever stop believing sweet cos one day you will get better as will this wythenshawe pisscan..........
Hey guys sorry for the late reply but thanks for your comments - i am just working on my next video i dont know how to start it though maybe a day in the life of...what is it really like anyways lots of love and hugs and xxxxxx
Your video moved me to tears. Ten years ago I received the news of MS. I look fine and most of the time I walk fine. At first people would tell me to get over it. They try to understand but only the people with this dreaded illness have a clue. God bless you and your family.
Thanks for your comments and yes i knwo people who have ms or who look after someone with ms understand but its just getting a bit harder day by day...xxx
i just wanted to tell you that i appreciate you putting upp this video!,i my self am 23 years old and have hade the diagnosis in 10 years now!, and i do well understand that no one can understand the situation,but i do wish the best for YOU!
Hi Katee alls i can say is to support your mum in every way it is very very hard to understand as one minute your on cloud 9 and the next your just thrown down - well thats how i feel - since doing the video i feel a teeny weeny bit better but i live for my babies io think about the future every day its so hard to deal with i dont think i can every come to terms with it - the pain is unbearable xxxx love meexxxxxxxxxxx
You are so beautiful and your words are so true. I am on my 23infusion with Tysabri. Ups and downs but mostly up. You have a beautiful family too. keep looking up your angels will keep you going. I got diognosed 3 1/2 years ago. I am 52. Surround your self with positive people. You look positve and up yourself. What you think might happened will...so think all good things and get rid of the bad The mind is a powerful thing.Turn a negative to a positive .. God Bless
Thank you very much for all your support i have just had some 3 day iv steroids as another terrible relapse - and on the saturday as i was tucking into my kebab burger my left side just went - dface dropped and that was a minor stroke i am so scared but i am just stayiong positive for my angels and everyone around me but it is really hard i give up sometimes huff and puufff my hjeads all over the place so many drugs i dont know...thanks xxxwendy here if you wana chat xxx
My prayers are with you! I will think good thoughts of you all day today .You are a very important person,you can huff and puff all you want it helps release aniety.Then grab on to a happy thought and sighhhh.
hi ms26babe - that is scary even to me, a world away...listen if you are relapsing anything like once per month you need to see your neuro, not your MS nurse....pls dont lose any more.....please
hi Jenn - I have been chatting to ms26babe on her profile page and I just saw your post now that you have declined badly only in the past few weeks. Have you seen the videos here for Tysabri ? I have Crohns and it is used for that too, although designed for MS. If you search for it on Youtube, you will understand the MSer users see it as a chance to reverse some symptoms and even some disability. Seek and you will find.
I got diagnosed mar'08, i also have 2 kids, i can understand the pain.. your video brought tears to my eyes. i hav been on so many different meds over the past year but nothings working to help me, especially the pain in my head. so i am starting from tomarrow 'black seed oil', its said in most religions that its is the cure for every desease except death.. a spoon or 2 a day, even if it dosn't work i'm still going to have a go. Never say Never, you WILL get better, my prayers r with u.
My father has had MS since i was 5 but at that time i didnt really understand until he couldnt walk and its been so hard knowing your fathers never gonna be able to play football with you but you get it and when people stare it doesnt make me angry because i know theres nothing we can do but wait for a cure...im 13 right now but if you ever get to the point where you cant walk very well my dad got this machine that goes up and down the stairs so this video was very touching
I am struggling to walk at the moment i keep thinking what have I done to make my legs hurt so much but havent done anything MS sucks every day i cant even sleep thinking whats going to happen next xxxxxx
Great video, I cried throughout. I was dx'ed right before I got my college diploma in 98. Been 10 yrs and I am consciously not having kids to give them this as well. Stay strong!!
It is quite moving specially when the angels come on i am scared of the future really scared going through a relapse now and i just feel like shit thanks for your messagexx
Just to let you know I know how difficult it is. Have my love, and if you have any questions I can answer I will if I can. Lovely children, like mine. My MS has been around since 1982, and life is still worth it.
I have to tell you I do understand, got my Ms at 2003, 17 years old.
Today I have the worst medicine of all, and my sister also got the diagnose, last year. I also...Always smile... And we have to.. Thats whats make us stronger to keep our heads High. Wish you all the best,
I am so sorry you got it younger than me it must be hard for you and of course your sister and i know i always say i am a strong person and i know i can be but their are times like right now i just think why me? what have i ever done? but i will carry on and try my best to be as normal as possible i like yourself am on hardcore medication and ii was that kind of a person i never had a paracetamol i never had a headache until the lumber puncture test its awful
Thanks for sharing. I do know how you feel since I was diagnosed in 2004. Funny how we keep smiling no matter how bad we feel. I guess as long as we can smile, MS has not won.
what a lovely video, i have MS have been diagnosed 6 months now and its been a very emotional time trying to come to terms with it but im getting there slowly thanks for shareing your feelings with us xx
Very moving video! I can never say I understand, because I dont.... My sister was diagnosed 11 months ago at the age of 13. It has been very hard for her to make people understand that they could never understand everything she goes through. But just like your song says... I will ALWAYS be around... :D she will never be alone...
Hi eric thanks for watching i am so sorry to hear about your sister MS is just an awful thing to happen to anyone and your sister is so young - i am gutted that i am so young i have met a few girls from the ms society who are younger than me but alls i can say is to be strong and positive i have my monets like yesterday and today that i just think its not far why me? it isnt fair but i am always here if your sis ever needs a chat xxxxxxx all the best and hugs xxxxxxxxxxxxxxxxxxxxxxxxx
Thanks i always fall over specially when coming down the stairs and you te the rollercoaster head and then you tell someone how you fel because they asked and they think your mad!!! I am trying my best xxxxxxxxxx will keep trying xxxxxxxxxxx
flame146 its a shame you have removed your comment i suppose this video is good for people like yourself who just really dont understand and think you do and have nothing better to do - i dont think the video is bullshit the video is the truth - the truth about a 26 year old woman who has had her life ruined but is still working and trying to lead a normal unlike other people who are sat at home on benefits - your entitled to your 'bullshit' opinion feel free 'bullshitter'
Hi, can I make a suggestion, and that is to search for the MS-ers on youtube who are on Tysabri, those videos show the results and they happen clearly and rapidly - and best of all Tysabri is on the NHS over there in the UK.
wow,tears 2my eyes,i feel u."We might live with MS BUT we have a hold on it", just remeber that 4me,one day we will kick him out. Ur kids understand as they grow,they start fighting ur battles with the un-educated public -- just like my 2 girls have.trust me they feel & know ur pain, which helps them & helps u. dont hold back nothin. u & family will be great, no worries about that, people around ya learn,it may take time, just as ur learnin ur new body how it works 4 u.
Hi Steve hope you are well it is very hard for the carer too - husband had to leave work because of my ms as i could no longer manage the 2 children the youngest is just 3 and half then i cant even lift him onto the toilet but looking at me know one knows that i have nbo strenght but i will take each day as it comes and enjoy it as much as i can hope your well and give your wife my regards if you or you wife ever want a chat or moan i will always be here xxxxx
i felt like all the joy was taken from my life when the whole MS thing began. i too didn't think anyone understood. others with MS can understand.
i too have has issues with walking and balance. i had to leave my apartment and live with my parents. i never started a family of my own and now doubt anyone will ever take interest in me.
all we can do is hope. believe things will get better and support each other. believe we will be ok.
hugs,
Sanjay in Toronto (actually just outside Toronto now)
Yeah - I hear you. I don't think we'll every understand this thing called MS. I agree with Marlo - you are not alone. Many of us all over the world experience similar symptoms, challenges and have little angels to nurture. I hope you find comfort and peace amidst this crazy disease. To me you are normal! I see you with your stick and think - hey there is someone like me!! Bless you, Kerri xo
Thank you so much for the compliment i try my best...i love my eyemakeup but the days when i cangt be bothered people say 'yuou having a bad day' i just so no i could not be bothered but its really hard and will never get easy xxxxx thanks again xxxx
Wow. Very moving and a good insight into the emotional side of MS.Thank you for sharing and it has helped me understand how my boyfriend must be feeling a bit more as he has been recently diagnosed.
I hope your boyfirend is ok - i know he wont be at this moment - my husband is very supportive and helps me a lot i have my moments where i just scream and think why me this video has helped let me know if you or your boyfriend ever need a chat or advice and my heart goes out to you both thinking of you xxxxx
Thanks hazel it took me two weeks to do the video and then a few weeks to find the courage to put it on here and facebook - its to show people who never understand xxxxxxxxxx
the guy just left you? knowing what condition you are in? wow. ...SCUMFUCK.
ephemerous 2 months ago
YOU ARE STRONG...I WAS FEELING SO BAD THEN I CAME ACROSS THIS VIDEO.
SCHOOLFORDUMMIES 3 months ago
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Help Jeff Johnson raise money to find a cure for Multiple Sclerosis. Visit his fund raising home page at nationalMSsociety website and add /goto/jeffjohnson to the URL
Ekorn999 4 months ago
All I can say is I can relate. I was dx with MS February 12th of this year. My husband also told me I was just being lazy (along with his family)
Snugglebunnyac8165 5 months ago
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reneljon 6 months ago
Some understand more than you know, I do probably because I'm in the same situation. It is important to remember that “acceptance” does not mean “giving up” or “admitting defeat”. It's the place where you can begin to discover the "tools" you will need to fight this disease. You have a very beautiful smile.
reneljon 6 months ago
There is now a Reformed Multiple Sclerosis Society that is urging for the medical community to check out Dr Paolo Zamboni's discovery that MS is caused by poor blood drainage from the brain. The answer to restore blood drainage from the brain is angioplasty. Watch the before & afters for this surgery called CCSVI on youtube- simply amazing. In just 24 hours a world of difference. Standing on one foot eyes closed in just 24 hours!
2ndSamuel710 6 months ago
I am probably days from being diagnosed with ms. :( It has been suggested by a couple doctors that I have this disease. Now the more research that I do on it the more that I am convinced that I have it. I have a multiple of the same symptoms. It is tearing me apart. Skier, backpacker, mtn biker. :( I too have had friends that don't even talk to me anymore and my mother still insists it is a pinched nerve. I wish someone would just call me and ask me how i'm feeling today. ;(
marknrogers 7 months ago
Great video, I am a huge advocate for M S Support Groups. I have a wonderful, supportive support system of family and friends, but they don't/can't understand how I feel. Fellow MS'ers can.
dczurcher 7 months ago
you have such a beautiful smile! <3
softdawn777 7 months ago
I know how you feel, I have Lyme Disease and no one understands... Bless you, you're a wonderful woman.
lukaluei 7 months ago
HEY BABE IM UNDER DR ROG/TALBOT XXX
ms26babe 8 months ago
Hi hun I have recently been diagnosed with MS, I enjoy watching your videos nice to see someone from the uk doing a video. What neurologist you under at Hope Hospital? im under Dr Richardson xx
kelly19832010 8 months ago
im going to the doctor on july 5 2011 to see am i one of the few to have two different disease!! MS is one of them! now i have to see do i have neurofibromtosis! 90% chance that i have it! along with my daughter! shit sucks!
now most of my family treat me like im disable!
ninamyhua 8 months ago
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sugarmagnolia506 8 months ago
@sugarmagnolia506 hey! at lease u have your brother helping you! my brothers dont even care! all they think about is themself!
ninamyhua 8 months ago
I do not know the feeling of horror if I had children and MS. I was 15 when I was diagnosed with MS and I just was worried about the idiots at my high school making of me when I couldn't go down stairs fast enough or I would drag my foot when walking. So I don't know about dealing with my own future children when I have MS, I just had to deal with asshole students making fun of me in my already awkward time of life and plus MS.
TheKatieb1991 8 months ago
They taught us to say "I have MS but MS doesn't have me." That was in the beginning but now it has been insideous and takes advantage of any health difficulty.
It sucks
Frances1964able 9 months ago
I'm in the process of getting a diagnosis of MS, just wanted to let you know this video is so wonderful and thank you for putting it out there.
hope your feeling a lot better.
ps... you have a beautiful family =)
lazydaisy1966 10 months ago
@lazydaisy1966
Thanks fr watching the video i really do hope and pray you dont have MS - this year started of bad for me- im slowly picking myself back up its hard but we have to keep fighting still think why me? im childish at times - have the odd cry now and then i have lots of loving people around me so takes my mind off things but the minute im home in bed i cant even sleep thinking about they may have got it wrong...anyway thanks for watching and keep watching my videosxxxxx
ms26babe 10 months ago
I know how u feel!! I to got goods days where I'm happy! I got days where I'm sad!! I got ms! I was told on April 7 2011!! I'm on copaxone!!! I too will never accept the fact I got ms
ninamyhua 10 months ago
Comment removed
sugarmagnolia506 8 months ago
i was dx in 1995, had a breakdown, lost my job and marriage, NO member of my family understood so i ran away, met up with my now wife, have 3 step daughters and 2 grandchildren, like is ok BUT i would not expect anybody to understand as nobody can possibly know what it is like apart from us ms'ers, on ldn and thats all, ms may be in your body but not in you. none of the neurologists, ms nurses, consultants, so how can they understand, how can there be one drug for all as every ms is different
2010ironside 11 months ago
My bad and you to
MrDOZER1224 11 months ago
I feel you but god has something planed for me
MrDOZER1224 11 months ago
and i have done many tests and things to help but none of them work
timeandtimeagain2544 11 months ago
i dont have MS but i understand how you feel. well the whole no one understands part. i am 18 years old and have whats called Congenital Lumbar Spinal Stinosis. its very rare and people just dont understand. its very very painful and i have spent my days in bed bc of the pain. its not fair. im only 18 i feel very unblessed
timeandtimeagain2544 11 months ago
This has been flagged as spam show
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Gregmills007 11 months ago
Dear friend,
Recently we found out that our brother suffer MS. It was a shocking news for us.
As a Baha'i the only thing I can do , is , to say Healing prayer for you and others.
I wish i knew your name X
forouzandeh1 1 year ago
Recently we got the news that my brother also suffer from MS. It was a big shock for all of us.
The only thing people who do not suffer MS is, to pray for you and friends who also suffer from MS or any other illness.
You'll be allways in my prayers. wish i knew your name... X
forouzandeh1 1 year ago
Recently we got the news that my brother also suffer from MS. It was a big shock for all of us.
The only thing people who do not suffer MS is, to pray for you and friends who also suffer from MS or any other illness.
You'll be allways in my prayers. wish i knew your name... XXX
forouzandeh1 1 year ago
Hi, I'm 14 and my mum has had ms since I was 6, at first they thought it was a brain tumer, but then they reliesed it was ms, now my mum has the worst case of ms, constant choking, cant speek properly cant move has to be fed by pipe to stomache I get upset everytime I remember going to the park with my mum, and when we go on holiday to wales everytime I get upset because of memories... I live about 5 minutes away of manchester aswell. thanks
xgrazantx 1 year ago
Thanks xxx have been on tysabri for 9 months - dont feel any different as yet - thats because i keep getting the cold and just recovered from sinusitis xxx remember me in your prayers
ms26babe 1 year ago
check out the liberation treatment and CCSVI. It looks promising. Wishing you the best.
worktosser 1 year ago
the docters say i was born with ms i got diagnosed 2 years ago i fucking hate my sickness , enemy i hate the fucking media because they talk about new drugs to give grand pa a hard on or one better to make old people look young wtf
JMAN19851 1 year ago
Beautiful video, hope you find that there are many of us that do understand, and have the same fears, and share the same motivation to keep going (our angels) I wish you luck on your journey, and many happy, healthy years to come
~Adriana
DX'ed in May, 2010 RRMS
DarkSweetDutch 1 year ago
hi to all who have ms. we have to accept ms then get on with our lives get stronger for our self because when you do that every thing falls in place when you are good the family is good. mind body and soul the mind is a powerful thing it can heal your body thats all we want is the symptoms to go away far away never to return . we will always have ms but it will not take our lives. god bless all and there will be a cure if not from the doctors from a person who has ms
AWDESIGNS8 1 year ago
Beautiful video and beautiful family. I was diagnosed in March of this year. Woke up with blurred vision like you. Good days and bad days: your video says it all. Keep on keeping on. Best wishes.
wisdaniel 1 year ago
I was diagnosed with MS 12/09 when I was just 16.
vanessamrose 1 year ago
I think many people with MS can relate to this video on how people who don't have MS won't understand and can't. And even if you have MS we are all different with how it affects us individually. I was diagnosed 2 weeks ago and I'm 20. My parents were very supportive however they treat me like I'm going to break and at the same time treat me as if I'm just being lazy if I'm sleeping a lot.
Well I'm with you, everything's gonna be all right. We'll keep fighting together :D and smiling lol
Saibachick 1 year ago
i know
grok7777777 1 year ago
I Love This Video.. Im 20 Years Of Age And Was Diagnosed With MS A Little Over A Week Ago.. My Whole Life Has Turned Upside Down.. My Family And Friends Are Very Supportive And Keep Telling Me Things Are Going To Be Ok And My Life Will Get Better.. I Just Keep Smiling And Say Im Ok But Really Im Not The Pain I Go Through Everyday Is A Struggle, I Stuggle To Get Out Of The Bed, Some Days I Just Cant.. 5 Days A Week I Feel Drunk But Really Im Sober.. I Will Not Accept That I Have Ms Either..
littleange100 1 year ago
@littleange100 I am so sorry to hear about your diagnosis your so young and it isn't fair I always say 'why is it the good people' I have two children and I have to be strong for them this year gas been really bad for 'me I have just gone back to work after 5 weeks off I can't out of bed and the pain is unbearable I split up with him last year which was bad I'm always here if you need a chat,rant or anything even advice xxx and that's to anyone xx
ms26babe 1 year ago
I really feel this video. I understand. I even understand how you feel about no one else understanding how you (we/US) are feeling. But let's do the best with what we got.
Tommy4028 1 year ago
. I have had ms for nearly 30 years and No-one, no-one, no-one can ever know, you look normal and you look drunk, clumsy and awkard, you will never be graceful again. You need nappies and baby wipes and your'e not a toddler! ms is a beast and its terribly isolating, you have to be pro-active with it, you cannot let it win, and no-one, no-one ... people see my stick and ask me 'what did i do??'
NOTHING!! I did nothing to deserve this! Plse check me out, my channel is 'multiplesclerosis101'
jactress 1 year ago
@jactress
MS is a one hell of an illness i have and go through everything - i piss my self regular and you know what i am just so used to it now that i dont bother hiding it - we all did nothing to deserve this our kids did nothing to deserve this they do suffer too .no one cane ever understand the real ins and outs even our families no one knows wha it feel like when you out shopping and suddenley you wet yourself no one will ever know - but i know - a person with ms knows what its like xx
ms26babe 1 year ago 2
I so much needed this video tonight. You expressed everything I have be feeling. I too have MS. I was diagnosed in 8/2008. I feel your pain and I know you feel my too. I also have two children and husband, with multiple of friends and family. They never know how much pain and what I feel having this MS. Thank you for sharing. I will keep you on my favorites and check back to see how you are doing. We must go on for our children and husbands, it is a daily fight. This I know.
browneyesdiva1 1 year ago
@browneyesdiva1
Thanks browneyes i think this video has helped a lot of people - specially the ones who dont have MS i mean no can imagine the pain we are going through - its nice to know that we have a lot of support and family around to pick us up but see it as this is going to be forever - kids will grow up and move on and husband oh well what can i say? Thanks keep a lookout for my next video xxxxx
ms26babe 1 year ago
i understand and i dont have ms :-( i was born so weird... no friends at age 18 never did probably never will i know how it feels to be crushed under all this weight and trying to still be strong i will never fit in my family hates me no one ever visits... no one will let me have a job i cant get into college i have a bad life i just want to kill myself i am barely strong and i feel like my life is being drained every day my eyes teared up while typing this and this is true ill have a bad life
TheWolloradoodle 1 year ago
@TheWolloradoodle
I dont know what to say but i felt like killing myself at one point as i couldnt take the pain the pain is unbearable - i lost some friends when i was hit with MS i am sorry but you shouldnt feel like that i shall send you a message xxxxx big hugs and i am your friend i here if you ever need a rant or rave or just someone to talk to xxxx
ms26babe 1 year ago
Comment removed
TheWolloradoodle 1 year ago
Thanks for sharing your video. I got diagnosed with MS about a month ago. After reading all the literature, I realized I probably had MS for several years but was not aware of it because my initial symptoms were mild. The scary thing for me is not knowing what the future holds .... the disease is so unpredictable..... I've never known anyone with MS so I don't know what to expect, but I understand some people with MS are in a wheelchair, and some can still dance ....
PMSAvenger1 1 year ago
My friend just found out he has MS. It's been a very rough week for everyone but he seems to be the strongest of us, and that concerns me. I'm afraid it will mean he constantly has to carry the emotional load and If there is anytime were the rest of us have to do the heavy lifting, it's now. Is that the wrong way to feel? Like you, he has a beautiful family and all his strength goes to them. I admire your strength and courage in the same way I admire his. My best wishes to you.
incipidsigninsetup 1 year ago
@incipidsigninsetup
Thanks for watching the video my thoughts are with you all and with your friend i know its easy for people to say stay strong but its hard i am sure he has a lot of good people around him all my love and if yiou ever need any advice feel free to contact me as i know their will be lots of questions all my love to you all xxxx
ms26babe 1 year ago
I love you! I cant help but cry this video is so great and no, no one will ever understand what we MS patients go through emotionally and physically. I really do hope you get this msg because your upload was the most amazing and moving thing I have seen and trust me lol Ive been watching alot of these stories, its my own way of not feeling alone.
JoleneMarie27 1 year ago
@JoleneMarie27
Thanks for the message its a moving video but its the truth people who have ms will understand but people who dont have it wont or dont understand the ins and out of this awful illness one day tey will xxxx night
ms26babe 1 year ago
te endiendo que seria de nuestros hijos que dios los bendiga hoy siempre
yulios2 1 year ago
oh my God this video make me think about my childrens and fight for it everyday thanks. diagnosed in dic 28 2004 and now i goin to be in tretmant
yulios2 1 year ago
Rick Simpsons Hemp oil cures all. Modern Medicine is designed to keep you sick, hence why it did not work. Good job,.
MrMaryJanes 1 year ago
I understand! Dx in Nov 09'. Had my 6 month last week and was told Rebif has done nothing for me. 4 new lesions. I'm starting Tysabri in 2 weeks. Some of us do understand. Keep Smiling! We will win the fight in the end.
JinxNH 1 year ago
Good video, I was dxg April 23, 1998 but I believe that I have MS it does not have me! Keep up the fight.
cazcooke1 1 year ago
There is new hope!
9gabbycats 1 year ago
You are gorgeous!!!! keep smiling!
JoshuaIlana 2 years ago
@JoshuaIlana
Thanks xxxx
ms26babe 1 year ago
SOME do understand... My prayers are sent your way, dear lady.
Roger in WV diagnosed in 1994...
RogerWV 2 years ago
Hi All hope your all well just wanted to say thanks for all your support and comments you all make me smile :) although going through a rough time at the moment will be starting tysabri soon though xxxx hugs from me xxx
ms26babe 2 years ago
A story that is best told to share your pain and bring strength to all, your courage is awesome! Our prayers are with you
Jordmate 2 years ago
I have MS and i know how u feel, but ima get to the point! They think they found a cure!!! the liberation treatment is in trial now! you should look it up. i cried when i saw it. go check it out! when i feel down i always look at the stories and news packages!
cityonfire31811 2 years ago
Low-vision really IS the pitts... before my Dx, I was losing depth-perception. Then, one day @ work, I couldn't read the sign out sheet... "hmm - that's weird" was all I thought. Then I lost my sight while driving thru a darkened area of town 1 nite, next day, go to the ER, and BAM - diagnosed. I had double-vision for almost 2 years (still partially but not near as bad) didn't drive for 2 years, and now I'm color-blind. haha - couldn't read the font on your video, you're not alone!
drewfuss2121 2 years ago
You have done a great job with this video. Lots of people know how you feel, including me - I've had MS for over 20 years. I'm sure I noticed the word "Ipswich" flash on the screen, is that Ipswich in England? I was born near there but live in Canada now.
Hang in there and make the most of your "good days"
cheers, Carol P.
dickeybor 2 years ago
Comment removed
TheDaal92 2 years ago
such a touching video. I was in a severe auto accident a yr ago. Neurologist found lesions on my brain that suggest I have MS. Not fully diagnosed as having MS yet because I don't have medical insurance to delve deeper. Funny how had it not been for the accident I would have never known of possible MS. need to have lumbar puncture soon once I save enough money to do so. Not having insurance really stinks. Having symptoms though everyday, fatigue, numbness,dizziness
all the best to you
SMILE
44bugaboo 2 years ago
my dad has ms, he soupports 3 kids all by himslef, he drove the car into a wall in our house and has fell down meny times. he is the only person i look up too in my life. i wish i could do something but he dosent want any help with anything he has done other things, in cases harming other my falling and im pretty shure he knows what your going thorugh because he has been dealing with it for about 20 years
360ETHAN 2 years ago
Hi Ethan thanks for your comment your dad isvery strong to be dealing with so much whilst having MS it is very hard - for anyone and i am sure he is proud to have a son like you - I personally at times feel like a failure becuase i cant give my children everything i.e going out, bowling, ski-ing etc but i have to stay stron - we all have to be strong and fight this awful thing we have give him my love xxx
ms26babe 2 years ago
Respect for you, lady!
I feel your pain.
Name: Peggy
Age: 28
Diagnosed: nov. 20th, 2008
HANG ON! xx
p399y81 2 years ago
Thanks Peggy its sad but we have to be strong no one will ever really understand why...i still want my answer and i will wait...i hate it ...i hate having it ...
ms26babe 2 years ago
I also have MS. The last 20 years have had ups and downs. I was a teacher but had to retire in my 40's. I am not recovering quickly from my last flare up. I am having problems getting groceries going to the doctor and depression.
I have 2 angels and they are grown up.
Good luck
lightweaver7 2 years ago
I can certainly relate to your experience..I love the way you put this video together..You are beautiful person and have a lovely family..our little angels are our drive to push on with the good and the bad days..but don't give up and keep on pushing the best way you know how..and keep on smiling!!
mizunderstood75 2 years ago
Really a great job on your video. I know that I am not the only person who feels this way, but your work on this video really says it all... Needed this on this day. Thankyou for sharing your life with us. I wish you every happiness.
suburbansusie8 2 years ago
fight it with everything you got,. i am in the same boat as you except my wife left me and the kids.. there is always someone worse off than us. dont let it win.
MrNickGibbs 2 years ago 4
hi ms26babe,
My name is Denis and was diagnosed with MS in April 2004.
I viewed your video and read all comments. What to say or do to make you feel okay? I am so sorry your going through a major relaspe at the moment.
Great your keeping strong. I can relate to the 'no one' scenario.
I smile alot also but i keep in mind ' were the sun always shine nothing but desert'.
Again i can relate and so can individuals with MS.
Thinking on you!
Regards and the very best wishes,
Denis.
MACGWEEDORE 2 years ago 2
the cure has been found! research CCSVI
I have ms and no this is not a joke youtube or google it now
celebrate and share the joy :)
gekiryudojo 2 years ago
Hey thanks for the message and watching the video as for the cure... No comment xxxxxx
ms26babe 2 years ago
Your very rite,some 1 that don't have ms has no idea what we that have it have to go through.I was dx'd in feb of 2005.Mine started like your's,almost over nite.Woke up 1 morning blind in my left eye.Like I'v always said "Through good or bad life is what you make out of it,Not what it makes out of you" Just hang in there and keep your chin up.
un4gvn42 2 years ago
Hey all just wanted to let you know that i am going through a bad relapse was in hospital last week but thumbs up eh i am still smiling and keeping my chin up massive change in my personal life too so watch this space xxxx
ms26babe 2 years ago
Hi Hannah thank you so much for your message i am sat here in tears after reading your message - everyones messages thanks all for helping me through this tough time xxx
ms26babe 2 years ago
You are awesome!! Your video brought tears to my eyes, I was able to cry for me, for you, for everyone of us who struggle everyday with our lives, to survive and to keep taking weekly injections. Your video woke me up again and made me feel my pain. I was diagnosed in 2000 and lost everything I worked all my life for---all the degrees can not replace my family, my husband. Thank you so much for sharing!
rainegirl100 2 years ago
Thanks very much its very moving i understand but it helps i will be starting my third video i am going through a terrible relapse at the moment so will start that soon i am a strong person but its very hard very very hard and im struggling to accept it - i mean how can i
ms26babe 2 years ago
lovly vid. babe wish u gud luk. lov u loads
pdnzad 2 years ago
Wow! I can honestly say I'm probably about in the SAME PLACE u r, I UNDERSTAND! My MS has progressed to the point of being wheelchair bound. Hang in there, the more we fight this disease the less chance it has to tear us down. I cried as i watched ur video. I know how u feel. . .
moniemone2009 2 years ago
very inspirational
I pray that your spirit remains strong so that this awful disease does not define you. I am a cancer survivor, and a very good friend of mine has MS, so I have a slight understanding of your battle.... stay strong and peace!!!
ready4peace 2 years ago
I am bawling right now as I watched this . I am going for my MRI this week. I am so scared.
lemonfishy 2 years ago
This has been flagged as spam show
ABC News reports on how Multiple Sclerosis was effectively treated by a new acoustic medical device. The technology, Medsonix also has a profound beneficial effect on a wide range of medical disorders and is FDA registered as a Class One Medical Device, the safest classification possible. ... Look it up here on youtube... If you want more info contact me!!
erwinmeyer 2 years ago
My daughter (8 years old) undestands this more than the 4 year old boy - she dosnt know what it isbut sh knows why mummy cantdo th normalthings like he used to example drive - because i have ms...no further cmment
ms26babe 2 years ago
i thin this is an amazing video i have ms and it is helping me alot because your right no one will ever really understand thanksxxxxxxxx
gigglegirl151 2 years ago 4
Thanks gigglegirl i am just in the process of making my next one as people want an update - alot has changed i did one but they put it on but muted the music because of copyright issues...It was tinchy strider/ndubz number 1 so watch this space sis xxxxx
ms26babe 2 years ago
Hey thanks for the comment yes i am very tough most times but at the moment necks stiff and really stressing me out oh god please help...stress stress stress and more stress...apologies guys but i am just scared and stressed but in the process of making my new video xxxxxx
ms26babe 2 years ago
jesus h..... 3.10 made a lunp appear in my throat.... kid your a toughie... keep smiling... but remember there is a cure baby...never ever stop believing sweet cos one day you will get better as will this wythenshawe pisscan..........
mark9873 2 years ago
Hey guys sorry for the late reply but thanks for your comments - i am just working on my next video i dont know how to start it though maybe a day in the life of...what is it really like anyways lots of love and hugs and xxxxxx
ms26babe 2 years ago
Your video moved me to tears. Ten years ago I received the news of MS. I look fine and most of the time I walk fine. At first people would tell me to get over it. They try to understand but only the people with this dreaded illness have a clue. God bless you and your family.
susan7006 2 years ago 2
Thanks for your comments and yes i knwo people who have ms or who look after someone with ms understand but its just getting a bit harder day by day...xxx
ms26babe 2 years ago
Hi!
i just wanted to tell you that i appreciate you putting upp this video!,i my self am 23 years old and have hade the diagnosis in 10 years now!, and i do well understand that no one can understand the situation,but i do wish the best for YOU!
Whoelsebutmeee 2 years ago
Hi Katee alls i can say is to support your mum in every way it is very very hard to understand as one minute your on cloud 9 and the next your just thrown down - well thats how i feel - since doing the video i feel a teeny weeny bit better but i live for my babies io think about the future every day its so hard to deal with i dont think i can every come to terms with it - the pain is unbearable xxxx love meexxxxxxxxxxx
ms26babe 2 years ago
Very Very Nice!!!! Says it well.....
saltcaycindi 2 years ago
Thanks very much - and thank god for windows media player lots of love and hugs xxxxxx
ms26babe 2 years ago
I understand.... GREAT VIDEO
This may help youtube these two people: Ann Boroch, Noel Batten
These two have helped me and a hope they can do the same for you
hmack2005 2 years ago
Comment removed
jjbthats 2 years ago
You are so beautiful and your words are so true. I am on my 23infusion with Tysabri. Ups and downs but mostly up. You have a beautiful family too. keep looking up your angels will keep you going. I got diognosed 3 1/2 years ago. I am 52. Surround your self with positive people. You look positve and up yourself. What you think might happened will...so think all good things and get rid of the bad The mind is a powerful thing.Turn a negative to a positive .. God Bless
jjbthats 2 years ago
Thank you very much for all your support i have just had some 3 day iv steroids as another terrible relapse - and on the saturday as i was tucking into my kebab burger my left side just went - dface dropped and that was a minor stroke i am so scared but i am just stayiong positive for my angels and everyone around me but it is really hard i give up sometimes huff and puufff my hjeads all over the place so many drugs i dont know...thanks xxxwendy here if you wana chat xxx
ms26babe 2 years ago
This has been flagged as spam show
My prayers are with you! I will think good thoughts of you all day today .You are a very important person,you can huff and puff all you want it helps release aniety.Then grab on to a happy thought and sighhhh.
jjbthats 2 years ago
hi ms26babe - that is scary even to me, a world away...listen if you are relapsing anything like once per month you need to see your neuro, not your MS nurse....pls dont lose any more.....please
7mumfred7 2 years ago
Hi
Brilliant video, believe me when I say I understand
Love and best wishes
Wendy (newley diagnosed)
tinribs65 2 years ago
Very nice video,it brought tears to my eyes,I,ve had ms now 4yrs and i,ve been in a wheelchair for 3weeks no feeling.good luck. jenn
katelynn9f 2 years ago
Comment removed
7mumfred7 2 years ago
hi Jenn - I have been chatting to ms26babe on her profile page and I just saw your post now that you have declined badly only in the past few weeks. Have you seen the videos here for Tysabri ? I have Crohns and it is used for that too, although designed for MS. If you search for it on Youtube, you will understand the MSer users see it as a chance to reverse some symptoms and even some disability. Seek and you will find.
Somehow, I hope you get some feeling back.
BEST
Steve
7mumfred7 2 years ago
I got diagnosed mar'08, i also have 2 kids, i can understand the pain.. your video brought tears to my eyes. i hav been on so many different meds over the past year but nothings working to help me, especially the pain in my head. so i am starting from tomarrow 'black seed oil', its said in most religions that its is the cure for every desease except death.. a spoon or 2 a day, even if it dosn't work i'm still going to have a go. Never say Never, you WILL get better, my prayers r with u.
omexmc80 2 years ago
My father has had MS since i was 5 but at that time i didnt really understand until he couldnt walk and its been so hard knowing your fathers never gonna be able to play football with you but you get it and when people stare it doesnt make me angry because i know theres nothing we can do but wait for a cure...im 13 right now but if you ever get to the point where you cant walk very well my dad got this machine that goes up and down the stairs so this video was very touching
callmenoob03 3 years ago
I am struggling to walk at the moment i keep thinking what have I done to make my legs hurt so much but havent done anything MS sucks every day i cant even sleep thinking whats going to happen next xxxxxx
ms26babe 3 years ago
My doctor at the MS clinic told me a lumbar puncture will not tell them anything...meanwhile...I live with this everyday since 2001.
readingrymer 3 years ago
Great video, I cried throughout. I was dx'ed right before I got my college diploma in 98. Been 10 yrs and I am consciously not having kids to give them this as well. Stay strong!!
luvlyc2003 3 years ago
It is quite moving specially when the angels come on i am scared of the future really scared going through a relapse now and i just feel like shit thanks for your messagexx
ms26babe 3 years ago
Sorry you are in relapse now, I understand and care, where do u live? and where are you from? You are in my prayers :)
luvlyc2003 3 years ago
I just stopped driving. What a drag after 50 + years of driving!
Hugs and in solidarity
Sefardisafran
Hoboken NJ USA
Sefardisafran 3 years ago
I just got myu licence back last week for 3 years...i drove a biot but this week i can im to shattered its so crap though!! thanks for watchingxxx
ms26babe 3 years ago
Have MS since 1976 and Progressive MS since 1999.
I know what you mena, a least Alex and myself lend our ears to your cries.
Sefardisafran
Hoboken NJ
Sefardisafran 3 years ago
Thank you very much its hard...cant drive to work ads left arm is not working its so shit man i cant cope with this.
ms26babe 3 years ago
Just to let you know I know how difficult it is. Have my love, and if you have any questions I can answer I will if I can. Lovely children, like mine. My MS has been around since 1982, and life is still worth it.
Alexknobsob 3 years ago
I have to tell you I do understand, got my Ms at 2003, 17 years old.
Today I have the worst medicine of all, and my sister also got the diagnose, last year. I also...Always smile... And we have to.. Thats whats make us stronger to keep our heads High. Wish you all the best,
BreakYourSelfFoO 3 years ago
I am so sorry you got it younger than me it must be hard for you and of course your sister and i know i always say i am a strong person and i know i can be but their are times like right now i just think why me? what have i ever done? but i will carry on and try my best to be as normal as possible i like yourself am on hardcore medication and ii was that kind of a person i never had a paracetamol i never had a headache until the lumber puncture test its awful
ms26babe 3 years ago
Thanks for sharing. I do know how you feel since I was diagnosed in 2004. Funny how we keep smiling no matter how bad we feel. I guess as long as we can smile, MS has not won.
jules2u 3 years ago
what a lovely video, i have MS have been diagnosed 6 months now and its been a very emotional time trying to come to terms with it but im getting there slowly thanks for shareing your feelings with us xx
jondudno 3 years ago
Very moving video! I can never say I understand, because I dont.... My sister was diagnosed 11 months ago at the age of 13. It has been very hard for her to make people understand that they could never understand everything she goes through. But just like your song says... I will ALWAYS be around... :D she will never be alone...
ericamar03 3 years ago
Hi eric thanks for watching i am so sorry to hear about your sister MS is just an awful thing to happen to anyone and your sister is so young - i am gutted that i am so young i have met a few girls from the ms society who are younger than me but alls i can say is to be strong and positive i have my monets like yesterday and today that i just think its not far why me? it isnt fair but i am always here if your sis ever needs a chat xxxxxxx all the best and hugs xxxxxxxxxxxxxxxxxxxxxxxxx
ms26babe 3 years ago
Thanks i always fall over specially when coming down the stairs and you te the rollercoaster head and then you tell someone how you fel because they asked and they think your mad!!! I am trying my best xxxxxxxxxx will keep trying xxxxxxxxxxx
ms26babe 3 years ago
flame146 its a shame you have removed your comment i suppose this video is good for people like yourself who just really dont understand and think you do and have nothing better to do - i dont think the video is bullshit the video is the truth - the truth about a 26 year old woman who has had her life ruined but is still working and trying to lead a normal unlike other people who are sat at home on benefits - your entitled to your 'bullshit' opinion feel free 'bullshitter'
ms26babe 3 years ago
Comment removed
flame146 3 years ago
Hi, can I make a suggestion, and that is to search for the MS-ers on youtube who are on Tysabri, those videos show the results and they happen clearly and rapidly - and best of all Tysabri is on the NHS over there in the UK.
GOOD LUCK,
Steve
7mumfred7 3 years ago
wow,tears 2my eyes,i feel u."We might live with MS BUT we have a hold on it", just remeber that 4me,one day we will kick him out. Ur kids understand as they grow,they start fighting ur battles with the un-educated public -- just like my 2 girls have.trust me they feel & know ur pain, which helps them & helps u. dont hold back nothin. u & family will be great, no worries about that, people around ya learn,it may take time, just as ur learnin ur new body how it works 4 u.
much luv
johnny
xxxxx
n95johnny 3 years ago
Hi Steve hope you are well it is very hard for the carer too - husband had to leave work because of my ms as i could no longer manage the 2 children the youngest is just 3 and half then i cant even lift him onto the toilet but looking at me know one knows that i have nbo strenght but i will take each day as it comes and enjoy it as much as i can hope your well and give your wife my regards if you or you wife ever want a chat or moan i will always be here xxxxx
ms26babe 3 years ago
Oh, dear friend, I do know what you are going through and I am so sorry that you have to have MS too!
I wish I could erase this disease off the face of the earth...and bring everyone back to smiling!
You are a strong woman and I know your angels are very lucky to have a great mom like you.
I will be thinking of you and I will keep you in my prayers.
Take care and never loose your great spirit!
Best wishes,
Angela
angelusa73 3 years ago
i felt like all the joy was taken from my life when the whole MS thing began. i too didn't think anyone understood. others with MS can understand.
i too have has issues with walking and balance. i had to leave my apartment and live with my parents. i never started a family of my own and now doubt anyone will ever take interest in me.
all we can do is hope. believe things will get better and support each other. believe we will be ok.
hugs,
Sanjay in Toronto (actually just outside Toronto now)
sanjaylakhana 3 years ago
Yeah - I hear you. I don't think we'll every understand this thing called MS. I agree with Marlo - you are not alone. Many of us all over the world experience similar symptoms, challenges and have little angels to nurture. I hope you find comfort and peace amidst this crazy disease. To me you are normal! I see you with your stick and think - hey there is someone like me!! Bless you, Kerri xo
kezzcass 3 years ago
I was diagnosed with MS 13 Dec 2004. I also woke up with blurry vision. Overnight. bang! life changed.
No one knows how anyone feels, especially when you have something inside you like MS. But, people who have MS can understand a lot of how you feel.
Never mind 'normal'. Who is to say what is normal?
When I look at you I don't see 'not normal.' I see a beautiful woman.
wishing you all the best,
Marlo
teslagirlM 3 years ago
Thank you so much for the compliment i try my best...i love my eyemakeup but the days when i cangt be bothered people say 'yuou having a bad day' i just so no i could not be bothered but its really hard and will never get easy xxxxx thanks again xxxx
ms26babe 3 years ago
i know how you feel.
im going to use this for my event on facebook if you dont mind
i love it
my mother has ms.
sh0rtygotgamex33 3 years ago
Yeh sure not a problem xxxx
ms26babe 3 years ago
Wow. Very moving and a good insight into the emotional side of MS.Thank you for sharing and it has helped me understand how my boyfriend must be feeling a bit more as he has been recently diagnosed.
funkidiva 3 years ago
I hope your boyfirend is ok - i know he wont be at this moment - my husband is very supportive and helps me a lot i have my moments where i just scream and think why me this video has helped let me know if you or your boyfriend ever need a chat or advice and my heart goes out to you both thinking of you xxxxx
ms26babe 3 years ago
Thank you xx
funkidiva 3 years ago
Thanks hazel it took me two weeks to do the video and then a few weeks to find the courage to put it on here and facebook - its to show people who never understand xxxxxxxxxx
ms26babe 3 years ago
You are so brave & really hit the nail on the head!
Thank you for sharing & showing how so many of us feel.
Hazel (hazelwah)
ambulancekidd 3 years ago