What about 5 people in the same family having it? I have been diagnosed. 4 other people in my family have the my same symptoms as me (some worse) but have not gone to be diagnosed. I'm pretty confident you're on to something here. What kind of coincidence would that be if it only hits 1 in 2,000?
There is definitely a genetic component - 85% of narcoleptics have a particular gene that is present in only a quarter of the general population. But it's not the whole story, because even with identical twins, if one has narcolepsy there is only a 1/3 chance the other will too.
My many thanks to Dr. Mignot and everyone at the Center for Narcolepsy at Stanford University. I am so grateful that you "like challanges!" -- A hopeful parent.
@Martin420PockSMOT no, it is naturally occuring. due to the physical chemicals in the body that overreact. there is nothing external that can cause it.
Narcolepsy is much, much worse than anything I have previously experienced, and I've been through a good deal of medical issues (Burkit's Lymphoma, HIV, etc.). This gives me hope though, especially as I'm HIV+, because knowing that both disorders attack T-cells could mean that getting my HIV under better control (I've had it since birth and have been having trouble keeping on medications to which I'm at least somewhat resistant) will allow me to take fewer stimulants. Ugh, I hate them...
@mtv12344321 Yes, it is! I was diagnosed last fall, but have had it since my junior year in high school. It is difficult to keep up in school, because of it, even though I am a good student (graduated in my high school's top 10% etc.). I wish I had better coping strategies.
stimulants dont work for very long........and sooner then later just make me feel irritable and weak
MyUsagirl 6 months ago
OMG they might be on a verge of finding a cure! Hopefully it's something more permanent! Meds suck and are expensive.
missb8609 10 months ago
What about 5 people in the same family having it? I have been diagnosed. 4 other people in my family have the my same symptoms as me (some worse) but have not gone to be diagnosed. I'm pretty confident you're on to something here. What kind of coincidence would that be if it only hits 1 in 2,000?
sparklingsspit 1 year ago
@sparklingsspit
There is definitely a genetic component - 85% of narcoleptics have a particular gene that is present in only a quarter of the general population. But it's not the whole story, because even with identical twins, if one has narcolepsy there is only a 1/3 chance the other will too.
fateola 1 month ago
I WILL BE YOUR LAB RAT!!!GET RID OF MY NARCOLEPSY PLEASE
AngelaWilkins919 1 year ago 5
I just wish there was a cure...
Rilleys 1 year ago 18
My many thanks to Dr. Mignot and everyone at the Center for Narcolepsy at Stanford University. I am so grateful that you "like challanges!" -- A hopeful parent.
TheTuttlevision 1 year ago 3
Can Narcolepsy occur from using drugs (meth) in the past?
Martin420PockSMOT 1 year ago
@Martin420PockSMOT no, it is naturally occuring. due to the physical chemicals in the body that overreact. there is nothing external that can cause it.
sweethindi 8 months ago
Narcolepsy is much, much worse than anything I have previously experienced, and I've been through a good deal of medical issues (Burkit's Lymphoma, HIV, etc.). This gives me hope though, especially as I'm HIV+, because knowing that both disorders attack T-cells could mean that getting my HIV under better control (I've had it since birth and have been having trouble keeping on medications to which I'm at least somewhat resistant) will allow me to take fewer stimulants. Ugh, I hate them...
MeGoobie 2 years ago
Do you have any more information to share since May?
Tagarashi 2 years ago
Please continue your research. Taking amphetamines everyday is no fun.
Tagarashi 2 years ago 3
Narcolepsy !! It is hell ....
mtv12344321 2 years ago 17
@mtv12344321 Yes, it is! I was diagnosed last fall, but have had it since my junior year in high school. It is difficult to keep up in school, because of it, even though I am a good student (graduated in my high school's top 10% etc.). I wish I had better coping strategies.
avalonsathena 1 year ago