Added: 4 years ago
From: Maptcb
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  • my name is dorene and i have a 10 years old daughter her name is tiffiny and she is doing ok she was just in for only one week for a tune up

    i found out she was going to be born with it when i was only like 4 mounths pregnet with her

    then at like 8 and a half mounths she was not moveing around had to do a c-section

    did surgery on her at only 4 hours old she is great now

    i only hope she keeps it up god bless your girl so pretty

  • @espdorene

    Thank You and good luck to you and Tiffiny....

  • i lost my dad to cf when i was 2 still miss you dad

  • Cystis Fibrosis rules

  • @TatianaSword why do you say that?

  • Comment removed

  • i have it to Im fightting for a cure for all of us in the world

  • more awareness needs to be spread;

    i do event for cf every year and im shocked for the lack of people who about the diease

  • Hi Marissa, I love your confidence! Keep up the positive thoughts and go for it!

  • r.i.p angel!

  • Thank You....

  • beautiful girl..Little sweet angel!

  • Thank You for those kind words....She was and is our Angel....

  • sorry for ur loss...my sister died of CF

  • I`m so sorry you had to experience that....You truly understand.

  • Hi Marissa,

    Thank you for your thoughts and Atta Girl! I love your attitude on life! Keep it up. Michael and Gail

  • This is a wonderful tribute for you daughter. She was beautiful and looked so happy. It's not hard to tell she had a loving family. Take comfort in the memories from the 17 years she was blessed to be with you. She'll remain in your heart forever.

    God Bless, Pam

  • Thank You Pam

  • Hi Sophie, Thank You for your condolences. We do know that this is hard. Yes. Please just concentrate on being healthy. The more you follow your program, the better off you`ll be. I know you`ve probably heard all this before but, Traci had a hard time following her treatments and excersize. This would have helped her more. Mike

  • I'm sorry for your loss.

    I have CF too, and it hard.

  • sorry it has taken me so long to respond with this but I was curious as to how old your daughter was when she left you...I know its a hard subject but I am curious to the standards that the states and canada have for treatment and what not...and I am now going too be 23 living with CF all my life now and have been told most won't live past 40 and this is a fear I face everyday and I'm just wanting to learn more about others like me who have it....

  • Traci was 17

  • I am sorry about your daughter. I have cf as well it can be tough but remember this......There is going to be a cure. I know it seems like thats never gonna happen at all but you know what they are advancing so so much now more and more medication is helping our cf patients *including myself* You stay strong :) :) my prayers are with you

    Love a fellow Cf patient

  • Your attitude is great! Keep the positive going! Good Luck....

  • Thanks you to.I hope that a cure comes soon :D

  • Just a little poem i found,

    My 2 kids have C.F and it sucks

  • Sammie, Thank You. The poem was beautiful. I only wish the best for your two beautiful children. I`m sure the`ll have complete lives. C.F truely does suck. We know this. Traci was absolutely a treasure to us. She enjoyed everything in life. Never did complain that she could not do what most others just take for granted. She just kept that beautiful smile on her face and tried to enjoy everything that life could give her. Good luck to you, your children and your family. Michael and Gail

  • I have Cystic Fibrosis so they say It's something that will never go away. It doesn't give me much time to live Tell me Lord: How much time will you give? Can anyone answer the question I've got? Will I drive a car and fall in love or not? Will I graduate, get married or be alone? Or will I ever have children of my very own? A cure, Cystic Fibrosis has none! My life, a battle that won't be won. I have Cystic Fibrosis how can that be? What have I done so wrong? Why Lord..Why me?
  • So sad, im sorry for your loss.

    Traci Ann looked like she realy enjoyed life

    despite having C.F.

  • I'm sorry for your Loss....

  • Thank You Flight....

  • This is so messed up... she was almost my age and I also have CF. I therefore express my condolences to Traci's family, and let's hope that someday no one longer has to bear the pain and difficulties this ailment continues to bring today.

  • Thank you....

  • I support this very much as I too have cystic fibrosis and know that it is inevitable that eventually I too will have to short of a life and that is why I am looking for help from everyone too help me and others that suffer from cystic fibrosis... we have already lost too many to the battle, don't let another child of god go so early....The Dream Starts With YOU!!!

  • Johnny, All I can tell you is, please keep up your treatments and do what you have to do to keep healthy. Just because one leaves us so early doesn`t mean another will. Please don`t stray....

  • Thank You Lisa....

  • We`re so sorry to hear about your beautiful children. No matter how they leave us, it will never close the hole in our hearts. Your advice was right on target. Please use it for yourself also...Thank You...

  • Thank You. Yes she sure was beautiful....

  • Thank You Lady.....

  • I have CF, Im 24, and I like to think that I am healthy but I can tell my health has been deteriorating over the past several years. It breaks my heart to see others in this misery and it pleases me to see so many families and people in general supporting people with this disease. I lost my mother to ALS this year and the stress has put a lot on my lungs, I would just like to thank the people who put this video up of the most beautiful girl in the world. Thank you.

  • Please try not to focus on the ones who have lost their battle. Just concentrate on yourself, do your treatments, excersize and just focus on being happy. The more you focus on yourself and your health you can battle this and have a long and happy life. We are so sorry about your Mother....She would want you to continue to take care of yourself, you know this....Good luck with everything and we`ll be thinking of you!

  • thanks so much for posting this. we'll never forget how beautiful she is. :)

  • Thank You....

  • Im very sorry, i know words cant patch the hole in your heart but be assured that God is holding on to her tight, and he is saving her in complete safety, and when u get to heaven she will be there, waiting for you. May god bless you and your family, you have been through so much and god will never forget that, keep praying and keep your head up, im am in your heart <33

  • Hello Everyone, I want to thank each & every one of you who has posted a comment or just watched our video of our precious daughter....

  • I too, have two grandchildren that has CF and the oldest was born in Mar 88 and already has lost his lung. In saying that I know what this will do to your life and what a loss and tragedy to lose someone that we love so much by this terrible genetic defect. She is free and sick no more, just like someone has already stated, the spirit goes back to the one that gave it and she is in a much better place than we all are, though you miss her so. Reunion will be wonderful, keep the faith

  • Thank You cbeal....Only the best is in our hearts for your Grandchildren. You know that...Thank You again....

  • Is this a new video Gail? It is a wonderful tribute to Traci, absolutely beautiful.

    Sandy

  • We`ve watched your videos over and over. I know Matt and Traci are hanging together up there....

  • Very nice tribute to your beautiful daughter

  • Thank You....

  • That is heartbreaking. Its so sad to see someone so young robbed because of this horrible disease.

    God Bless

  • wow she is very very beautiful. I cant even tell you how sorry I am to hear about what happened but God has a place for her so rest assured hes taking good care of her for you sir.

    -Robbie

  • Thank You Robbie....

  • we are having a benefit concert for my friend with cystic fibrosis. you should look at my video about her. =]

  • Thanks. Your video was lovely...

  • I am very sorry. These are some Great pictures. Sharon was an amazing girl as I am positive your daughter was. They both remain in our hearts forever and we will fight for a cure in memory of them!

  • Thank You......I`m sure your Sharon was a beautiful soul......Our thought are with you. This is just so hard. A pain that will never go away, but neither will our memories of them.

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