I went to my hep doctor last Friday. That was the last visit for the 48 week therapy. Now I have to wait 3 months. After 3 months they will do another blood test and check my viral count. It has been undetectable since week 12. I hope it remains so at 3 months and 6 months.
I look forward to getting the drugs out of my system. It will be nice to not feel like crap 90% of the time.
Been off the interferon for a week and off the riba for 4 days.
I really can't say I feel very much better. Tummy still feels upset and there is the fatigue. My skin still itches too. I am glad to report the itching has slacked off a little.
There is a spot on my chin that has been an intense itch spot. It would feel like a needle being poked into my skin. It was the kind of itch that no amount of will power could prevent you from digging with your nails. Well, that one has calmed down.
I'm happy you like the video petrabilities. If it helps only one person, it was worth the effort.
Did my number 48 on Friday night. No more of that interferon needle fest every week. I still have to take the riba till this coming friday. Also I still have 2 more shots of blood booster to do. So it isn't completely over, but close.
I'll check out your charity. Is there a link other than facebook? I don't really care for facebook.
Good luck omacron..I too have Geno type one..I had all of what you are experiencing..I finished my 48 wks in early April...Don't forget World Hepatitis Day is July 28th .We are all in this together.
What a fantastic video! Where are you located? Glad to meet you, I treated last year, and am one of the lucky few! We have started our own charity Hepatitis C Global Initiatives, since i have volunteered for 3 years now! Please look us up....on Facebook, under Petra Hoffmann Good luck to you James...you are a brave man to go through this! Please keep in touch! petrabilities
What a fantastic video! Where are you located? Glad to meet you, I treated last year, and am one of the lucky few! We have started our own charity Hepatitis C Global Initiatives, since i have volunteered for 3 years now! Please look us up....on Facebook, under Petra Hoffmann Good luck to you James...you are a brave man to go through this! Please keep in touch! youtube/petrabilities
What a fantastic video! Where are you located? Glad to meet you, I treated last year, and am one of the lucky few! We have started our own charity Hepatitis C Global Initiatives, since i have volunteered for 3 years now! Please look us up....on Facebook, under Petra Hoffmann Good luck to you James...you are a brave man to go through this! Please keep in touch! youtube/petrabilities
Just to let you know, I am now at week 38 of 48 in treatment. I feel pretty blessed too. I am an early responder and the virus has been undetectable sense week 12.
I have type 1, and that is the tough one to get rid of. You only have a 50-50 chance to clear with type 1.
I've been very lucky so far. I'll keep praying that ALL of my precious brother and sister heppers come out of this on top. I do mean that too. Even though I don't know you in person, you all are precious gems to me.
@groovysherri65 You are playing a dangerous game. Yes, you could get hit by a Mac truck tomorrow, but you do things to avoid it. Not getting the treatment you need, you could get cirrhosis or liver cancer and die just the same, but you aren't doing anything to avoid it. Also as long as you are positive for the virus, your family and friends are at risk. It may be a small risk, but it is a risk never the less.
Exercize is always good sick or not. But your sick, so don't over do it. Sometimes we get used to being sick, then we feel better than normal and over do things.
This bit me in the ass once. I felt ok so I ran to catch that bus. I caught the bus, but when I got on my head started spinning, got hot flashes, then puked my guts out.
These hep meds can make you very anemic. So without the proper amount of red blood cells, your body can become low on oxygen. So don't push it.
Sorry for not posting for a while. Been preoccupied.
Main symptoms I get is rashes and fatigue. The rashes were driving me nuts with the itching, and I was tearing up my skin with the scratching. I started using an oatmeal bath and cut out soap completely. Doing that cut the itching out by 90%, and my skin is clearing up too.
i c...but many sources say the chance of getting cured is 50% or more?
so is your chronic?
can you live a normal life for the rest of your life with this?
i still dont know if i have it im going to get tested in 2 days i think i got it about 3/4 years ago im so scared about this that im thinking about suicide because my life will never be the same...
@groovysherrie65 Dude i've had Hep C for 4 years now and i only wish i had insurance or could afford interferon because it's only getting worse. It's fucked up how you can actually feel it. The pressure and just enough pain so that you never forget it's there. It sucks. Please don't adopt that attitude. Those side effects, the one you mentioned being rare, are nothing compared to how wonderful it would be to live past 40 or 50
@shmuk87 I put this video here because I knew you would watch it now. Looks like it worked out.
Keep on fighting shmuk87. I am half way through treatment and am now undetectable. Still a long way to go before it is over. I think you will do just fine with your treatment too. Don't ask why I think you will do good. I just have a feeling that saying you will do good is better than saying you will do bad.
What type do you have? Type 2 or 3 would be better than the type 1 I have.
@omacron Just wanted to say cheers for you're comments mate, after what I said I feel like a real twat. At the time I made the comments I was drunk so I took the clip the wrong way. Just like you I have type 1 and I am confident that I can beat it. I'am glad to hear that you are doing well and I just wish you the best of luck.
@shmuk87 Don't worry about it bro. There are plenty of times I get cranky too. Having the knowledge that we have a desase munching on our livers, and the effects it has on our brain, no wonder we get cranky some times. Heck! If my friends and family didn't know what is going on with me, they would all hate me for being such a jerk. They stick by me anyway. God bless them.
Please sir, lay off the drink. With the stress of battle your liver has aginst HCV, you surely don't need to provide ammo.
I have 1a ....tried the tx, but to no avail. Waiting for the hemomodulator to be approved by the FDA......which will take forever! Best of luck to all who have diagnosed!
Thanks for making this video. I also have Hep C. This video made me cry because I dont know of my future. I suffer alot with liver pain, especially at night. Constant diareah, fatigue and sadness. When I found out it was a few weeks after I lost my home to Hurricaine Katrina. I felt like I wanted to end it all right there. I got mine through a transfusion in 1992. But now I want to beat this DAMN THING. Some days are bad and some are good. But we must fight and keep going.
@pepgrl601 It sure can be rough. Stupid virus is like a crap shoot. The treatment is a crap shoot. All we can hope for is that we beat the odds. You have a lot of brothers and sisters out there, People that you don't even know, who care deeply about you and me and us. Sure, sence this happened to me I have been exposed to uncaring, thoughtless people. Also during this time, I have been exosed to loving, caring and selfless people too. Hang in there. Take in every bit happieness you can.
@omacron Thank you for the kind words. I strugle everyday with predudice thats nothing new. I do tell people about my DRAGON. Ether they accept it or they can leave it. Alot of people have been good to me. They dont understand how we feel because of this illness, but they can still try to understand the disease. I hope ou are well. leslie
Having hep c and cirrhosis myself I want to thank you for making this video so that I can share it on facebook with others. What a sad reality the disease truly is. Hard to live with it to. Completely changes lives. Thanks again
Beautifully done. There are some treatments out there do work. I was diagnosed in early 1991, but wasn't treated until 2000 -01 when I spent a year on Interferon and Ribavirin. It was a grueling year but I have had no trace of it since then. There is still so much research to be done to help those who don't respond well to the present treatments out there. Give where you can and support those you love who still have it or will be diagnosed in the future. Be aware and be careful.
As a Veteran from the Vietnam era all this is true as I indeed have this virus. From military service it is 100% disabling. And a silent killer. How many of you really support our troops? It doesn't stop when you get home.More Often than not its the beginning of their plight.
I intended for this to be kind of sad. I wanted it to evoke emotion. My hope in making it was to inform and maybe hopefully turn around some attitudes. Maybe if some HCV victim's family or friend seen it, they would be more understanding and compassionate.
Lord knows we need it.
I hope your fight with the dragon goes well. I also have HCV type 1. I wanted them to tell me type 2 or 3, but no. I guess I'll have to be happy with 50%
Very powerful, though sad. Well, done. But there is hope for a good life even with Hepatitis C, and for some hope of a cure. I want that to be known to all who see this too.
I went to my hep doctor last Friday. That was the last visit for the 48 week therapy. Now I have to wait 3 months. After 3 months they will do another blood test and check my viral count. It has been undetectable since week 12. I hope it remains so at 3 months and 6 months.
I look forward to getting the drugs out of my system. It will be nice to not feel like crap 90% of the time.
omacron 7 months ago
Been off the interferon for a week and off the riba for 4 days.
I really can't say I feel very much better. Tummy still feels upset and there is the fatigue. My skin still itches too. I am glad to report the itching has slacked off a little.
There is a spot on my chin that has been an intense itch spot. It would feel like a needle being poked into my skin. It was the kind of itch that no amount of will power could prevent you from digging with your nails. Well, that one has calmed down.
omacron 7 months ago
I'm happy you like the video petrabilities. If it helps only one person, it was worth the effort.
Did my number 48 on Friday night. No more of that interferon needle fest every week. I still have to take the riba till this coming friday. Also I still have 2 more shots of blood booster to do. So it isn't completely over, but close.
I'll check out your charity. Is there a link other than facebook? I don't really care for facebook.
omacron 7 months ago
Good luck omacron..I too have Geno type one..I had all of what you are experiencing..I finished my 48 wks in early April...Don't forget World Hepatitis Day is July 28th .We are all in this together.
Nannyducks 7 months ago
This has been flagged as spam show
What a fantastic video! Where are you located? Glad to meet you, I treated last year, and am one of the lucky few! We have started our own charity Hepatitis C Global Initiatives, since i have volunteered for 3 years now! Please look us up....on Facebook, under Petra Hoffmann Good luck to you James...you are a brave man to go through this! Please keep in touch! petrabilities
petrabilities 7 months ago
What a fantastic video! Where are you located? Glad to meet you, I treated last year, and am one of the lucky few! We have started our own charity Hepatitis C Global Initiatives, since i have volunteered for 3 years now! Please look us up....on Facebook, under Petra Hoffmann Good luck to you James...you are a brave man to go through this! Please keep in touch! youtube/petrabilities
petrabilities 7 months ago
What a fantastic video! Where are you located? Glad to meet you, I treated last year, and am one of the lucky few! We have started our own charity Hepatitis C Global Initiatives, since i have volunteered for 3 years now! Please look us up....on Facebook, under Petra Hoffmann Good luck to you James...you are a brave man to go through this! Please keep in touch! youtube/petrabilities
petrabilities 7 months ago
Just to let you know, I am now at week 38 of 48 in treatment. I feel pretty blessed too. I am an early responder and the virus has been undetectable sense week 12.
I have type 1, and that is the tough one to get rid of. You only have a 50-50 chance to clear with type 1.
I've been very lucky so far. I'll keep praying that ALL of my precious brother and sister heppers come out of this on top. I do mean that too. Even though I don't know you in person, you all are precious gems to me.
omacron 10 months ago
@groovysherri65 You are playing a dangerous game. Yes, you could get hit by a Mac truck tomorrow, but you do things to avoid it. Not getting the treatment you need, you could get cirrhosis or liver cancer and die just the same, but you aren't doing anything to avoid it. Also as long as you are positive for the virus, your family and friends are at risk. It may be a small risk, but it is a risk never the less.
GET TREATED! Your family doesn't want you to die.
omacron 10 months ago
Exercize is always good sick or not. But your sick, so don't over do it. Sometimes we get used to being sick, then we feel better than normal and over do things.
This bit me in the ass once. I felt ok so I ran to catch that bus. I caught the bus, but when I got on my head started spinning, got hot flashes, then puked my guts out.
These hep meds can make you very anemic. So without the proper amount of red blood cells, your body can become low on oxygen. So don't push it.
omacron 10 months ago
Sorry for not posting for a while. Been preoccupied.
Main symptoms I get is rashes and fatigue. The rashes were driving me nuts with the itching, and I was tearing up my skin with the scratching. I started using an oatmeal bath and cut out soap completely. Doing that cut the itching out by 90%, and my skin is clearing up too.
omacron 10 months ago
@groovysherrie65
hey
when you took your took your hep c test
how did itlook like
did they show results for a bunch of stuff like milorubin,AIT,hemoglobin....right?
SlavonicGreek 10 months ago
@groovysherrie65
oh...so you will be having the simptoms for the rest of ur life or they will stop?
and how big are the chances for you to live through this?
some say you will have hep C and die from something else...
SlavonicGreek 10 months ago
@groovysherrie65
i c...but many sources say the chance of getting cured is 50% or more?
so is your chronic?
can you live a normal life for the rest of your life with this?
i still dont know if i have it im going to get tested in 2 days i think i got it about 3/4 years ago im so scared about this that im thinking about suicide because my life will never be the same...
SlavonicGreek 10 months ago
@groovysherrie65
thanks for the info i have been googleing it but i wanted to hear it from somone who felt it...
but how long was till you found out you have it ?
can it be cured?
have you tried?
SlavonicGreek 10 months ago
@groovysherrie65
does your daughter have it? how long do you got hep C?
and when did you got the simptoms after you got it?
thanks again
SlavonicGreek 10 months ago
@groovysherrie65
thanks for the reply
when did you get the simptoms?
and does exercise help like in fighthing this?
SlavonicGreek 10 months ago
@groovysherrie65
did you have any simptoms?
SlavonicGreek 10 months ago
@groovysherrie65 Dude i've had Hep C for 4 years now and i only wish i had insurance or could afford interferon because it's only getting worse. It's fucked up how you can actually feel it. The pressure and just enough pain so that you never forget it's there. It sucks. Please don't adopt that attitude. Those side effects, the one you mentioned being rare, are nothing compared to how wonderful it would be to live past 40 or 50
sprinkler5802 10 months ago
Cheers for the uplifting video you knob jockey. This was just what i needed a month before I start my treatment.
shmuk87 1 year ago
@shmuk87 I put this video here because I knew you would watch it now. Looks like it worked out.
Keep on fighting shmuk87. I am half way through treatment and am now undetectable. Still a long way to go before it is over. I think you will do just fine with your treatment too. Don't ask why I think you will do good. I just have a feeling that saying you will do good is better than saying you will do bad.
What type do you have? Type 2 or 3 would be better than the type 1 I have.
omacron 1 year ago
@omacron Just wanted to say cheers for you're comments mate, after what I said I feel like a real twat. At the time I made the comments I was drunk so I took the clip the wrong way. Just like you I have type 1 and I am confident that I can beat it. I'am glad to hear that you are doing well and I just wish you the best of luck.
shmuk87 1 year ago
@shmuk87 Don't worry about it bro. There are plenty of times I get cranky too. Having the knowledge that we have a desase munching on our livers, and the effects it has on our brain, no wonder we get cranky some times. Heck! If my friends and family didn't know what is going on with me, they would all hate me for being such a jerk. They stick by me anyway. God bless them.
Please sir, lay off the drink. With the stress of battle your liver has aginst HCV, you surely don't need to provide ammo.
omacron 1 year ago
I have 1a ....tried the tx, but to no avail. Waiting for the hemomodulator to be approved by the FDA......which will take forever! Best of luck to all who have diagnosed!
swertman1 1 year ago
Thanks for making this video. I also have Hep C. This video made me cry because I dont know of my future. I suffer alot with liver pain, especially at night. Constant diareah, fatigue and sadness. When I found out it was a few weeks after I lost my home to Hurricaine Katrina. I felt like I wanted to end it all right there. I got mine through a transfusion in 1992. But now I want to beat this DAMN THING. Some days are bad and some are good. But we must fight and keep going.
pepgrl601 1 year ago
@pepgrl601 It sure can be rough. Stupid virus is like a crap shoot. The treatment is a crap shoot. All we can hope for is that we beat the odds. You have a lot of brothers and sisters out there, People that you don't even know, who care deeply about you and me and us. Sure, sence this happened to me I have been exposed to uncaring, thoughtless people. Also during this time, I have been exosed to loving, caring and selfless people too. Hang in there. Take in every bit happieness you can.
omacron 1 year ago
@omacron Thank you for the kind words. I strugle everyday with predudice thats nothing new. I do tell people about my DRAGON. Ether they accept it or they can leave it. Alot of people have been good to me. They dont understand how we feel because of this illness, but they can still try to understand the disease. I hope ou are well. leslie
pepgrl601 1 year ago
Just found out I have Hep C. Haven't even found out if it's 1,2, or 3 yet. Was told it'd be another 4 days or so... I'm scared. Any advice?
TheAngryDragon2024 1 year ago
Having hep c and cirrhosis myself I want to thank you for making this video so that I can share it on facebook with others. What a sad reality the disease truly is. Hard to live with it to. Completely changes lives. Thanks again
MONSTxx 1 year ago
Well done..diagnosed 2 yrs ago...transfused in 1988..a very silent killer indeed..Awaiting treatment....good luck to fellow travellers out there.
Nannyducks 2 years ago
Beautifully done. There are some treatments out there do work. I was diagnosed in early 1991, but wasn't treated until 2000 -01 when I spent a year on Interferon and Ribavirin. It was a grueling year but I have had no trace of it since then. There is still so much research to be done to help those who don't respond well to the present treatments out there. Give where you can and support those you love who still have it or will be diagnosed in the future. Be aware and be careful.
EWheeler57 2 years ago
GOOD JOB! Never enough videos about Hep C! Thank you :-)
PeachStatePam 2 years ago
As a Veteran from the Vietnam era all this is true as I indeed have this virus. From military service it is 100% disabling. And a silent killer. How many of you really support our troops? It doesn't stop when you get home.More Often than not its the beginning of their plight.
Hepper27 2 years ago
Thank you NursePhillis,
I intended for this to be kind of sad. I wanted it to evoke emotion. My hope in making it was to inform and maybe hopefully turn around some attitudes. Maybe if some HCV victim's family or friend seen it, they would be more understanding and compassionate.
Lord knows we need it.
I hope your fight with the dragon goes well. I also have HCV type 1. I wanted them to tell me type 2 or 3, but no. I guess I'll have to be happy with 50%
omacron 2 years ago
Very powerful, though sad. Well, done. But there is hope for a good life even with Hepatitis C, and for some hope of a cure. I want that to be known to all who see this too.
DragonSlayer of Avon, Genotype 1B
NursePhyllis 2 years ago