Thank you for this wonderful research and discovery. My son died in 1993 at 20 of a pulmonary embolism from Proteus syndrome diagnosed at Mass General. He was#15 in world at time of his diagnosis. Hopefully this will help Proteus patients and others. Also thanks to PSF persevering efforts for our children.
Thank you for this wonderful research and discovery. My son died in 1993 at 20 of a pulmonary embolism from Proteus syndrome diagnosed at Mass General. He was#15 in world at time of his diagnosis. Hopefully this will help Proteus patients and others. Also thanks to PSF persevering efforts for our children.
topcatjuju2 6 months ago
Very interesting !
rafaelwaa 7 months ago