Added: 6 months ago
From: LivingWithEDS
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  • Bless you, $375 an hour to be treated like that, really disgusting, vets treat animals with more empathy and compassion.

    Good luck, i hope you find a good caring specialist that has a passion for the wellbeing and life of his fellow man rather than a passion for the dollar and self preservation.

    All the best to you.

  • watching more of your vid - I'd say contact a lawyer or even small claims court - for the horrible dissmisive incompetant service?

    Get some weed Eat the weed? search rick simpson

  • Most Astonishing Health Disaster of the 20th Century

    youtube.com/watch?v=FPI7zdGdqo­4

    Dr. Joseph Mercola, everyone should know that for over 100 years conventional medicine has seized control of the US health care system and as a result we have over 800,000 people who are killed by interacting with this system.

  • Hi Nadia, You have symptoms of mast cell activation disorders (rashes, anaphylaxis, etc.). You could get some quick relief from over the counter meds while you wait for an appt with a mast cell specialist. Your headaches may be from slightly high pressure on your brain. That can be reversed, too with an inexpensive medication. I'm on the medical advisory board at EDS Network CARES, and I don't sell anything!! :) If you can contact me through my website, I'd be happy to talk you through it!

  • @PrettyIll1 Thank you so much! I will definately be in touch :)

  • Hey, the doctors DO NOT WANT TO CURE, that want to TREAT, otherwise they'd be out of a job.  There's a turn in the medical community in the past 80 years. Look at the medicine from that time period , look at what was IN the medicine. Look at when the major illnesses started to take hold of us.

  • where did u get those stats from? have you ever met a doctor that has eds?

  • @m0b1liz3 The stats is from a government study done by the Department of Health and Human Services...I have yet to meet a doctor that has EDS. I met a genetic counselor that said EDS runs in her family, but she hasn't been affected by it and doesn't experience any symptoms. Have you met a doctor with EDS?

  • Hi Nadia, Check out Dr Driscolls new theory, it explains how increased spinal fluid pressure causes the adreanal problems, mast cell problems, joint hyperexlaxticity etc. She might have a cure for us soon!

  • I have had these same problems with neurologists at teaching hospitals. I have been to five of the greatest hospitals in the country and their answers were highly defensive because I knew about what I was talking about. They got their $495 an hour and I got 'there is nothing we can do". If they read the paperwork I had filled out before my appointment, they could have cancelled my appointment. There is no cure for me, and very little treatment for my symptoms. Good Job!!!

  • @SamiBebe2

    SO sorry to hear about your struggle, I truely believe that the human body is an amazing machine. It can cure almost anything given the right "medicine" or food. have you looked into Raw food diet? I'm sure you've looked into everything, what about cannabis.???

  • Insightful post! A must-view for ANY patient.

  • Sounds like Deepak Chopra - talking in circles and metaphors - he learned that from Maharishi Mahesh Yogi when he was with the Transcendental Meditation movement selling amrit kalash (rose petal paste) for $50 per ounce.

    Ya, what can I say, it is a hard one to get over - the greed etc that motivates many doctors.

    And it makes sense that he wouldnt address genetic conditons because then he might actually treat his patients properly and they would get cured and he'd lose a source of income.

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