Added: 2 years ago
From: kentjsjs
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  • i have dermatomyocitis am 17 i been diagnosed at the age of three..i hope the best

  • stay stromg emma, i have had JDM for 3 years and got it wen i was 15.... if u think positive u will fight this disease.. i am nearly in remission and u must just be patient my girl

  • keep going emma my son finn has jdm he has had it since he was five, he is now six and is still in treatment , i know how brave you are !!!

  • I have JDM as well...I am so proud of all my fellow JDM kids because they are so strong. I pray for them. :) I've had it for 2 years...its a life changer for sure.

  • hello i have juvenile dermatomyositus my self and im 10 ive had it since i was 2. its really opened my eyes about life and how much you have to appreciate it. me and my mom are now working with cure jm. every night i pray to god that he will banish this terrible diasese. emma is in my prayers.

  • i have it as well but im using my brothers account so yeah

  • Hello iam have Juvenile Dermatomyositis too its not easy to life with them. iam sorry my english isnt good

  • She has one green eye and one blue eye. Thats really neat :) Pretty too.

  • My daughter Alex has had JM for more than six years. I have had this lump in my throat for so long now its now just a part of me.We now fly from Philadelphia to Chicago to see Dr. Packmin She seems to be of more help to us.

  • My daughter Emma has this disease and it is not fair. She is doing her treatment and responding well. I hope your emma never has to deal with this again in her lifetime. That is something i will pray for.

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