Marilou epilepsie (09-07-07 8:59)

[Ing00]

waarom heeft ze een speen in op die leeftijd?

[xxxAlphaxxx5]

does she goes to school or talk?

[annabrasilpaula]

ola me cahmo an apula tenho um filho dignotisco epilepisia sindrome de wet ele hj esta bem anda como sozinho entre outra coisa me add msn e podemos trocar informaçoes sobre nossa bençao beijos a.p.brasil12@hotmail.com

[Neb1991styles]

poor little girl :(

[stopbeingnasty]

awww so sad, that rubbing of the eyes is what i use to do when i had seizures, its the light it hurts so friggin much!

[somercet1]

Poor baby.

[MartheHoekveen]

Ah gos, arm meisje.

[animeartist2016]

This is very sad.

[KribyIchigox3]

poor girl :( She looks like a little angel

[joelfukingmejor]

god...this make me feel so sad. kisses for her and bless.

[19Blizzard93]

please dont record so videos and upload it in youtube thats not okay.

God bless this child

[getacan1]

She is so pretty.

[ladragonaperla1988]

its a angel....

[CaseyLane91]

how old is she?

[RettNetwerk]

She is 13 years old now

[gtarplyr123]

@RettNetwerk what is elepsie?

[IXIWineIXI]

god i hope you realize that you're not supposed to have anything inside the mouth during a seizure.

[RettNetwerk]

That depends on kind of the seizures. Her kind is breathing related, so it at that time it soothed her. As for now, she has nothing in her mouth anymore.

[uncere4ever]

Thats so sad..

[NJFire1906]

hope marilou feels better!

[martahal2]

Ich habe alle Videos angesehen. Danke, dass Ihr das gefilmt habt!

So ist mir Marilou oft in Erinnerung. Ich kann an sie denken und für sie beten. Wenn ich für die bete, sehe ich ihr Gesicht vor mir. Und sie scheint mir oft ganz nah...

Danke.

(diesen Beitrag schrieb eine Medizinerin und Christin, die versucht , Euch besser zu verstehen)

[wtfsarahstfu]

shes beautiful.

[latincrazzy101]

she such a gorgeous lil gurl,

i hope the best 4 u + her

n god bless u and ur lil gurl

[AndresGates]

poor

I'm 13 years old i want to give all my support to the parents

my cat was epileptic but imagine all the pain that i feel with a cat

their parent are very strong.

[mia12390]

I was wondering. Why does she do that with her hands? she is a beautiful girl and you are so lucky to have her and remember no matter what anyone says she is perfect! What should i do if i see someone act like this?

[imherecuzimbored]

Usually before a seizure, people with epilepsy can get a warning called an aura. Common symptoms include:

Odd Smells

Forced thinking or talking

Sudden headaches

Forced actions and

Prickling in the fingers known as Pins and Needles.

Marilou was probably feeling those Pins and Needles at the time, and decided to move her fingers to make them stop, such as you can do with a common hand/finger cramp/

[Myherosangel34]

why do you seem to record alot of them?

[RettNetwerk]

Because the medicians, parents and caretakers of children with Rett syndrome can compare them to the ones they know or see.

[Myherosangel34]

oh...so like informative. It just seemed in her eyes...that she didnt like it

[shaian13]

Hello i'm an epileptic french womman and it's impossible for to understand why you watch this honey little girly while her episode syndrome ithink it's not really pure for her .Because it's very personal don't you ?Maybe you could explain me .

[RettNetwerk]

She's 12 years old

[PUNKROCKPRlNCESS]

how old is she?

[xoxspliff]

she's beautiful<3

i dont know much about epilepsie, but can you understand her movements?? like, if she wants something to eat, or drink etc?

[RettNetwerk]

Yes, I can, but she has Rett syndrome and this is a 'seizure' where I just have to wait until it ends. This is to let other parents and doctors see how a Rett syndrome episode looks like.