JEAN-DOMINIQUE BAUBY Unter Hausarrest

[Suuneschiin1]

danke für diesen film (:

[HoicnelixRex]

OMG! He wrote a book letter by letter just bliking his eye?! O_O

I must have to read that book.

[LISeVBerlin]

Sometimes you have a total locked-in syndrom. Then nothing can be moved. The patient locks like a death person. But usually the eyes can be moved. Your given explanation is about right. Only motor paralysis is involved, never sensory paralysis.

You fell everything, but you can not move and talk. Like in a nightmare ...

Sorry for the delay

Karl-Heinz Pantke

[TroyOi]

Is it always (or usually) the case that a person with locked-in syndrome can still move his or her eyes and eyelids? Why is that? Is there something unique about the neural pathway between the brain and the eyes? Does it bypass some point that all the other motor pathways take? And, by the way, does this syndrome only involve motor paralysis, or is there sensory paralysis as well?

[siukong]

@TroyOi I don't know the actual way locked-in syndrome works, but all the things he could do (see, move eyes around, move the neck/tongue, hearing, smell) are all provided by one or more of the 12 pairs of cranial nerves, which come out of the brain/brain stem rather than branching off the spinal cord. I'm not sure what level of somatosensory ability he had, but it was probably restricted to the face and some internal organs (facial nerve and vagus nerve).

[TroyOi]

@siukong Thanks for that. It's fascinating, when you think about it, that people in that condition retain just enough sensory, motor and autonomous pathways to have their vital organs continue to function, allow them to be fully aware of the world around them, and even, albeit in the most rudimentary manner, communicate.

[DavidDelGato]

@TroyOi The neural pathway between the brain and eyes is directly between them, and is entirely separate from the neural pathway that goes between the brain/brainstem/body.

[JimonesimaLady]

That material is incredible, I wanna read the book now!

[LISeVBerlin]

@ragdollish

This documentary is real! To my knowledge the only exsisting document. More information you will find in the book "The butterfly and the diving bell". See also the hollywood-film from Schnabel (same name), which is based on the documentary. (You might say, that the hollywood-film is a blown up version of the documentary!)

Best regards

Karl-Heinz Pantke

[ragdollish]

@LISeVBerlin Oh, thank you for clarifying! I've read and seen both but his last page did end around 1996 so he maybe he was doing this? I've been curious to what led to the stroke, etc. but this was very interesting to see. And the Schnabel movie was at least very pretty. :)

[LISeVBerlin]

@ragdollish

JEAN-DOMINIQUE BAUBY died three days bevore his book was publied. So it was 1996!

K H P

[alexanderkaplan]

@LISeVBerlin he actually died two days BEFORE his book was published. and he died in '97

[TroyOi]

@alexanderkaplan I'm not sure what the actual facts are, but Wikipedia says he died March 9m 1997, 2 days AFTER publication. At the end of The Diving Bell and the Butterfly, they claim that he died a full TEN days after publication. Clearly someone's wrong. Perhaps the publication date referred to in the movie is a pre-publication release to selected critics. (It could be a bit of artistic liberty, but at the movie's end, his friend is reading to him critics' reviews of his book.)

[leomatosuk]

is this his real footage??? i dont speak neither german or french thanks

[LISeVBerlin]

@leomatosuk

Yes, this is Jean-Dominique Bauby. To my know ledge the only video-document, which exists.

Karl-Heinz Pantke

[CaptainBluebear08]

the ghost in the machine

[doyelnupur]

@LISeVBerlin....as u said u had locked-in-syndrom ..how did it happened?..by a strock just like in the film "the diving bell and butterfly"?

is this syndrome recoverable?...how r u now?..and how much have u recovered?

[larkfeathers]

is this actually the author of the diving bell and the butterfly?

[LISeVBerlin]

Yes, this is the author of the diving bell and the butterfly.

k h p

[wolfgirl996]

the author of the book died just before it became a best seller in france, but he did have locked in syndrom

the guy in the film is just an actor

[saitekk]

yes, blinking his eyes while like a sign for what letter the writer had to write down

[LISeVBerlin]

Thats´s right. I had a locked-in-syndrom myself, but I am much better than Bauby. Every day is like a present ...

k h p

[TheAtma]

@LISeVBerlin

How did you recover?

[DanielTheWalrus]

i don't want to sound obvious, cliche and hipocrate, but that man' tragedy makes us seen our lifes from a totally differente point of view. Makes all of us enjoy our lifes in a much bigger way.

[GodLordWM]

damn, thats rly sad :| i just watched movie about him....

[ShutUpAndExplode]

Hey! Ich wär auch sehr interessiert an der Doku in DVD Form. Was muss man denn machen, um am so eine hernazukommen?

[LISeVBerlin]

Wir sind ein gemeinnütziger Verein. Schicken Sie mir bitte Ihre Anschrift und Sie erhalten die DVD kostenlos.

k h p

[NUIBUIC]

His book made me stronger

[EkansDam]

How can I get the full-lenght version of this Jean-Dominique Bauby documentary?!?! Is there any with english subs?!?! Or maybe portuguese?!?! Thanks a lot... His story is just outstanding, I've watched his movie las year and just bought his book to read. Its impressive how human life is so fragile and so strong at the same time!

[LISeVBerlin]

Have you got the DVD? Or have I mailed it to another person?

karl-heinz

[LISeVBerlin]

send me your address and I will send you a DVD (we are a non-profit organisation)

k h p

[tomastes]

Are you serious?

I would be very interested.

[cyril8727]

Thank you for sharing.. How can we see the whole short movie?

[flexoy]

this book (i´ve read it out 5 hours ago) made me thinking how beautiful my life is and how horrible it could be. i´m trying to enjoy every minute of life and myself. thank you, bauby, for this impressive descriptions! god bless you in heaven, now you can run and talk how often you want to! :)

[LISeVBerlin]

that´s right. I had a locked-in syndrom myself. Now every day is a present.

k h p

[natuankur]

holy shit!!seriously dude?.....tht sux man...it mustve been lik a fckin nightmare...

[AlejandroMunez]

@LISeVBerlin

Since you've had locked-in syndrom yourself, can you briefly describe what kind of feelings and emotions were you having during the syndrom? I don't mean your own memory, but basic human feelings (satisfaction,chaos,stress,pai­n). Does it make you feel uncomfortable, stressed .... , are all of the emotions that we "normally" feel of the same strengh & intensity as in locked-in syndrom? Have you ever felt feelings of massive rage, agression, feelings of wanting to cry & destroy?

[damiencholet]

repose en paix jean do! merci ce magnifique livre que tout a laissé.

je te souhaite plein de papillons

[LISeVBerlin]

je croix, le petit film (29 min.) est mieux, que le film de monsieur Schnabel. Mais rien connait le petit film. Il est fabriqué par ARTE il y a dix ans.

k h p

[shesaid]

Thankyou for uploading this, I'm reading the book & was curious to put a face to the words. Such an incredible man.

[LISeVBerlin]

to my knowledge it is the only film, which excists about JD Bauby.

k h p

[xicalintrue123]

is he the real person? JD Bauby?

[LISeVBerlin]

That's right.