Added: 3 years ago
From: calonghurst
Views: 11,119
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  • I know what it's like to have this disease . When I was in year three I remember being carried out of school because I couldn't walk , I remember screaming because it hurt to fully extend my legs to stand , I remember sleeping in the hospital with my dad and seeing him cry. The disease is horrible and I pray for all those with it xx

  • @H2ohanzo yea thanks i had it 6 years ago when i was 18 years old wich is worse i went into a coma and basicaly died 3 times i had a brain hemmorage phneumonia mrsa kidney failure and bowel failure at the same time and barely survived. i also do pray for people with it.

  • I got that and its sucks and hurts and it ruined my legs

  • yea had this shit blood for a week had the rash for a month and lost 24 pounds

  • I got HSP this year and had it for 6 months, Im sure I was very lucky to get it off so well , but still it was the most painfull months in my entire life! My feets and legs looked horrible.. Shitting blood wasent so nice either, sorry if i made you (reader) a little ill there:P. HSP is nothing to play with, its really painfull

  • i got Hsp when I was in 1st grade and its occurence from st to 7th, and still get it, my nody cant fight off colds, I almost died when I was in 1st. and Scared to death. God bless everyone with this dieases, because i know how it is.

  • just spent 3 traumatic days with my son in hospital- he has been diagnosed with hsp- life was normal only a week and 1/2 ago- very scary- hope it never occurs again-outcome doesn't look very promising- never prayed so hard in my life before-worst experience ever!!!!!!!!

    monica johnson

  • I'm a 42 year old male. I've had HSP twice - once at age 24 (it lasted for a couple of months on and off) and once at age 36 (it went on for about 4 years on and off and got pretty severe at points). Both times I completely recovered although I did had some kidney problems the last time (protein and blood in urine) - but everything is normal now. This is not how the medical books describe the disease so don't expect your case to follow the textbook exactly.

  • @maureenkenna

    hi Ive been diagnose to have hsp last January..

    I was wondering if what food I should eat to prevent it from returning back again..

    hope you can help me..

  • @bostonalltheway1 hi. ahh i'm really sorry to hear that. how is she doing now? I had henoch-schonlein purpura when I was 4, I can't remember anything about it at the time but I remember being in hospital over christmas. I've been in and out of hospital since then for kidney problems and suffer from abdominal pain due to poor bowel movements weekly. I was just wondering did your daughter ever suffer kidney problems? I am 16 - I thought I am safe as it is 12 years from when I had it.

  • I had henoch-schonlein purpura when I was 4, I can't remember anything about it at the time but I remember being in hospital over christmas. I've been in and out of hospital since then for kidney problems and I was wondering could this be related? I am female and 16 years old.

  • I read an article from a lady saying that her husband had this and it went away after removing all milk products from his diet .. even things that may contain traces of milk. I tired this for my son and it worked !!

  • my son has it to .. is in constant pain ...

    vaccine began in 1796 and the first case of know hsp was in 1801. My son got his vaccine for hepatitis B not long before. Could it be a reaction?

    anyone know how to help with the tummy pain? I have tried so many things and am out of ideas.

  • i feel for this lady i have hsp to

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