Added: 4 years ago
From: famof6
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  • amazing :D

  • I wish I could teach my daugher this.

  • @Treehuggerapryl , we had the help of a speech therapist, if your daughter is getting speech therapy then ask her therapist if it is an option for her.

  • How much do one of these units cost???

    

  • @Treehuggerapryl , we got ours covered by insurance and medical coupon both, but it took quite awhile. It was over $7,000. An iPad may be an option, you can look at the newer videos we have of my daughter using hers.

  • I wish my daughter had been given the opportunity for this therapy. She is 21 now and cannot communicate at all.

  • i need one for my son!!!! :D this is so neat!

  • You have a beautiful little girl and you should be very proud. Best wishes!

  • I can tell she loves bubbles - she makes the same hand motions I do when I'm excited.

  • awwww shes cute

  • What a sweetie.

  • Omg! I really need to get one of these for my autistic daughter! Thats amazing!

  • I stumbled on this video and just cried like a baby as I watched. Then after typing that first sentence my 3yr old girl woke up to go pee. I helped her back to bed. Laid down with her and prayed a long prayer of gratitude. Thank you for a great night.

  • How long did some of you guys have to wait to get this machine? I have a little boy w/ autism, and just spoke with someone from Dynavox today. One of my freinds had to wait 5 years before they got this device. Thats really depressing. Did anyone else have to wait so long?

  • @ijwtfsu It took about 6 months for us...

  • What voice are you using on your device o use Cristal on by sons

  • This was AWESOME! I hope she is doing well, I am trying to think of something to do with my son that has autism. If this works would you please let me know and what are your views on it.

  • aw bless her. shes adorable. i have aspergers syndrome, milder autism, so i understand it must be difficult.

  • AWW so cute!

  • A child who has behaviors due to bad parenting will be obvious-they look at the parent and yell. Their tantrums are verbal refusals. Autistic children do not scream about what they want; they just scream. They have movements and behaviors are not intentional. Love how quickly she learned. Some of us in the schools are trying to implement technology, but it is expensive. Special ed uses 60% of the budgets for 15% of the students. Good luck to you!

  • @MargoLouiso quote:A child who has behaviors due to bad parenting will be obvious-they look at the parent and yell" maybe they are just frustrated because they can't communicate what they really want. Ever think of that?

  • Autism is one of 14 disability categories Emotional Disturbances is a category that includes mental illnesses like clinical depression and bipolar disorder, and conduct disorders like oppositional defiance. Mental Retardation is a category that has to do with inability to remember. These are all real. A child can have one, two or all of the 14 disabilities. A child who has behaviors due to bad parenting will be obvious-they look at the parent and yell. Tantrums are verbal refusals

  • She is beautiful. Don't let anyone dehumanise her. Too often society portrays the disabled as unintelligent and unnecessary burdens who are leeches on society's money. This video, along with countless other examples prove otherwise.

  • she is so beautiful. :) how old is she??

  • Amazing, looks like she is getting the hang of it. What kills me though is that this could probably be done a hell of a lot cheaper than what there asking for. I am sure the open source community develop hardware and software that would do what this device is doing at a fraction of the cost.

  • May God bless you and your family.

  • AWESOME!!! Way to go!

  • I also have an Autistic daughter, she is 3. She is verbal, but there are still times she can't communicate what she needs or wants. How young can someone be to use this? Great job with her by the way!

  • autism could have something to do with being fed up with imitating other people and following the same path as everyone else in their genes. I would feel suffocated surrounded by those people all focused on me.

  • to the autism world these devices are covered by medicaid and medicare and private insurance just apply you will get approved my son did and he has autism it did not cost me a dime

  • @gscarpa6 Yes, not quite that simple, depending where you are, may be a long process, it sure was for us!

  • @gscarpa6 I doubt medicaid would get one for me. Most of the time my speech is ok. But sometimes I have some problems. Enough of a problem that I have experimented with text to speech software on my laptop.

    If you can do something, they wont pay for assistive tech. My friend had to go through hell and high water to get Medicaid to pay for his wheelchair. Because he is capable of walking, medicaid didn't want to pay. Your level of impairment has be severe enough before medicaid will pay.

  • to all the people with autism and there parents these devices are covered my medicaid and medicare and private insurance just apply you will get approved

  • Cute girl.

    I'm also autist.

  • Our daughter just got approval for her's Friday. We are so excited. She has CP and is completely nonverbal. Based on what we've seen with the many borrowed devices we've used, this is going to change her life.

  • That is really cool. She is a beautiful little girl. Best of luck to you both.

  • We need this device! Where are the hoops I need to jump through? How can we get one?

  • @conduirty Depends what kind of funding you are trying to use to pay for it, but our speech therapist and the funding dept at the company did a lot of the work, with some help from our pediatrician. It was a long process, but worth it in the end.

  • I want one of those for my non-verbal seven year old!

    Please!

  • @conduirty Go to the speech therapist that your child sees, tell your pediatrician or contact the company directly.

  • Wow! This is awesome. My brother has a Dynavox but it doesn't help him. The only thing he says is "halloween" etc. Just things he is obsessed with. I'm glad it helps your little girl :)

  • @Evanescenceafied You have to find what really motivates them, in the beginning. Find what they really want and put those buttons on it. This is what worked for Abbey...then it gave her the understanding to use more and more...

  • Adorable little girl! I have a 4-year-old with autism. My son is verbal, though has limited expressive language and sensory processing issues. Any word on whether your funding went through? You might check out some of the cheaper alternatives to Dynavox that are emerging as iPhone/iPod apps. My wife and I created a picture-based communications app called "iPrompts" (customizable visual schedules, timers, and choices). Other groups of folks also made voice output apps. The wonders of technology!

  • @HandHoldAdaptiveLLC This video was done about 3 years ago...I didn't even know what an iPhone was at that time...we are working on looking into apps now and getting her an iTouch..thank you!

  • you're a GREAT mom. way to go to bat for your little girl.

  • my daughter is 8 for most of her life she lived with her mom well i finaly got custdy  of all 3 of my kids my older son been telling me that he was taking care of her most of the time while there mother sleeped. well had few people tell me was becouse she was spolied while we where out in public. my daughter is 8 she is not potty trained doesnt speak just makes sounds and is way behind. now a spolied child even spolied would be able to do all of them things. i really need to get one ofthem

  • That was excellent! This video proves that just because someone has autism or is nonverbal doesn't mean that they aren't smart. We don't know what these people are able to do until we give them a chance. These devices are so neat.

  • Abbey loves letters and has them all on her Dynavox and she also has many toys that say the letters. She very purposely pics what she asks for on her machine! She gets tons of love from us, rest assured!:) Thanks!

  • you have good video on youtube shanaharris5

  • This is one fantastic video and can I just say that Abbey is one great girl. I'm an uncle of many children from different siblings on the spectrum all with various capabilities.

  • I am sorry you feel that way, but my daughter cannot talk and she cannot communicate to us without it. I am glad you can communicate so well, I hope my daughter can communicate as well as you one day. We received funding from both insurance and the state for her device, but it took a very long time to get and we are very happy with it.

  • I've been researching Speech Pathology and I found your videos. You have a beautiful girl and I can tell she's really trying! She was so quick with the puzzle pieces, such a bright little girl! I pray you'll be able to have funding for more help.

  • She is Beautiful! So nice to see a great use of dynavox and she picked it up so fast!  Did the funding go through?

  • wow she's so smart

  • fantastic :) what a wonderful kid too!

  • While I believe autism is real, I also believe that much (note: not ALL) of the diagnoses comes from irresponsible parenting. Children need work and don't sit still on their own. It's the parent's job to guide them and give them positive motivation. Who all of these false diagnoses hurts most is the people with the real illness that need the treatment(like your child). Not only do they get lumped in with the people taking the easy way out, they also have to wait in the queue of those people.

  • I have to say, this may be some cases, but I honestly know probably over 100 families here and none are like that. I have a son who is higher functioning also. While his challenges aren't as obvious, they are still very, very disabling, in trying to function in this world. It is not necessarily behavioral issues, but processing issues, which he has been tested over and over for. I can assure you, they are very real. He also has extreme sensory issues, at times worse than my littler one.

  • @dan725 I don't believe that that is the case at all. I am very active with my son, and always has been. My oldest daughter is 4 and she already knows how to read and write, and I taught her that. She's never been to daycare or any kind of learning environment accept for what I teach her, and I tried to do that with my son, but he started "turning" when he was 4 months, so it was hard from the very beginning. I think that this is closed minded thinking, and I am very offended.

  • I do agree that it's misdiagnosed sometimes, but saying that most of them are kids with irresponsible parenting is just not true. If you truly understood and were around a child with severe autism you would see their struggles, it is heartbreaking. Please know that people with these uneducated opinions make life very difficult for myself and my daughter and all others in the autism community who are already struggling so much. Thank you for your post, please do educate yourself and reconsider.

  • Thank you

  • Thanks for posting this. I actually work for DynaVox in the funding department. Watching this makes me realize why I need to go back to work on Monday. Best wishes to you.

  • This is fabulous. It's great having this video accessible to everyone to see how hard these little guys/gals work each and every day.

    She is absolutely adorable. What a clever and hard working child!

    Joanna, Author

    A Is for Autism, F Is for Friend (YouTube)

  • What a very bright little girl. I am deeply saddened to hear that there isn't funding for your sweet little girl to get the therapies she has a right to. Autism is an epidemic, and we need a system in place to take care of all people who have autism.

  • Yes, it is sad and very hard for us...constantly fighting to get her just the basics of what she needs.

    Thank you!

  • Do the pictures have writing underneath? If they do, then this could lead into eventually typing her messages, which would give her much more freedom to communicate (not limited only to what her device has).

  • Yes, the pictures do have words, and yes, we are very, very hopeful she will type one day...I know she has tons to say!!:)

  • You're daughter is just so amazing! I can really see her potential, honestly. I work with autistic children everyday. They are just such beautiful and amazing children.

  • Thank you so much! Yes, we are very excited about her potential, but devastated at the same time that we can't afford the therapy she deserves!

  • Great work, first using the Object word and want.. then later filling in the hose little tricky words like "more"....

    super job!

  • I've never seen this level of Autism before. Did she always show signs of being Autistic? When did you know something was different?

  • She has regressive autism, she developed very normally and some time around 2 yrs old started regressing. It was very gradual, she did say a few words and waved bye and did a few more things we haven't seen or heard since! The last verbal things she did, what she lost last were animal noises, she did several of them when we would point to animals, she hasn't done that in about 3 years.

  • Do you feel there is a link between this autistic regression and immunizing? do you advise against immunization at all? If you are open to it, I'd like to know more about how she reacts to you as parents, does she show love consistantly and what are some characteristics that make you feel positive that Abby will be fine ultimately?

  • Are you sure she doesn't have epilepsy?

  • She is VERY cute - and what a great machine!

  • Your little girl is darling, and what a great machine.

  • Thank you so much, she is awesome! AND, what a blessing she is. Yes, the machine is great, she is doing really, really well with it, it is very exciting! I will keep posting her progress when I can, stay posted.:) Thanks again!

  • I thought this was great, your daughter picked it up so well. My 13year old son is autistic with no speach and we have never been offered something like this. We are trying to get him to use pecs.

  • My daughter did use PECS first and that is one reason she was familiar with the pictures on the machine, but we have been able to get her to do much more with this and she is much more enthusiastic to push buttons than she ever was using her PECS! Good Luck to you and God Bless!

  • Some do and some do not, we don't know if Abbey will ever talk, we sure hope she does!:)

  • wow I enjoyed this video. When I was 15ys old I had this little autistic boy and his mom who went to my church. I was the only one taht he liked and so he would always find me and sit next to me. sure he would act up but I would just say Josh shhh.. I figured out that he liked to draw and was good at he. so he started being quiet cuz I would bring a sketch pad and colored penciles and he would just sit their and draw. His mom said taht i had a very goodway with special needs children.

  • she barely has to do anything and just slaps those puzzle pieces in the right spot immediately.

    have you tested for photo-memory? or is that just a really old puzzle?

  • She is very quick with easy puzzles, it is a reinforcer for her, she enjoys them. She isn't quite as quick usually with a puzzle she has never seen, but once she has done it once or twice, she's lightning quick! No, we have never had her tested for photo memory, but she is certainly very visual! Thanks!

  • she is very adorable.

    i will pray for her.

    btw how are u related to her?

    best wishes

  • She is my daughter...thank you!

  • she is way too cute!!!! what a adorable thing..

    she is really smart too

  • My son did great with his Dynavox for years. Now he is speaking better than ever. Troy's Amazing Universe

  • she beautiful autistics are beautiful a d unique we are a culture a race of people.. i use a prenke romich device called a vantage :-) peace and have fun with your new machine

    take pride in your nuerodiversity always go girl !

    :-)

  • Thank you guys so much, all the latest posts, yes, she is beautiful and amazing! I am about to post some new videos of her, so look for them, she is doing great!

  • Precious little girl. SOOO CUTE! God Bless you and best of luck.

  • wow, she looks a lot like my daughter, but my daughter isn't autistic. However, I work with autistic kids, and my name is the same as your daughter's.  If you're ever around Michigan, let me know

  • When you say obstacles to jump through, can you expand on that. Who is creating these obstacles? I ask this from an advocacy perspective.

  • Sure, just submitting forms to insurance or DSHS gets you no where, just deny to pay letters, we went through much back and forth paperwork with both, 2 videos to DSHS (this one you are watching wasn't good enough!) and multiple letters to both from her doctor and speech therapist, all taking months and months. I honestly didn't think we would get the funding, constant letters saying they needed more!

  • Thank you, yes, we had a loaner for one month, but had to send it back before she received her own, it was terrible..but she has her own now!

  • my youngest is 7 and has a dynavox. Unfortunately, there hasn't been the expertise involved to maximize his potential with it as of yet. He is going to a new school this year, where the teachers have much more expertise and experience with such devices. Luckily, Drew is verbal enough to get most of his basic needs met. Let me know if you are still having trouble with the funding. We got his paid for "rather" quickly.

  • Yay! That's exciting. Hope you got your funding!! We should be "jumping through hoops" for our son to get a Dynavox this year.

  • I think you should make some more videos with her

  • WTG girl!

  • My daughter is also 5.

  • voice technology has given many people a predictable voice to progressively mirror, then sometimes slot in their own. Through such augmented communication devices and techniques, many people who may otherwise never had communication have developed a voice of their own. The book, Autism and The Myth of the Person Alone is a wonderful book featuring several authors accounts by autistic authors using such technology. ... Donna Williams (autistic author and artist)

  • Wow this is amazing. This is the first time I've heard of a Dynavox. Was that her first time using that machine? This seems to be related to behavior analysis. How old was she when this video was taken?

  • This was her 3rd time, just when the rep from the company was here with it, she is 5.

  • How do you first diagnose Autism? At what age?

  • At 18 months or so. I would only go to a large children's hospital or university to get a diagnosis, be careful with small private practices, unreliable and that diagnosis will not go as far with your school district for what services they need. Look for the "first signs" web site it is good. Also, I am in WA and the university has a great autism center and web site. I hope that was helpful.

  • AW! She is beautiful! Thanks for sharing that!

    I hope you get the dynavox soon!

    Peace to you and yours!

  • brilliant!

    have you seen Silentmiaow's videos, many of which use assistive communication devices?  Like this is now, they are in the Posautive youtube group.

  • She is doing so great!!!! I am proud of her!

    She is such a pretty little girl too!

    I will say a prayer for her!

    Michelle

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