Myasthenia Gravis- Your not alone

[xoxMusic97xox]

Maria , im 13 years old , and i was diagnose when i was 11. It is horrible having it when your just becoming a teenager , i actually came across your video because i was getting teased for my weight gain from steriods and lack of muscle movement. I wanted to put together a short presentation to show my classmates just what exactly i go through every day. I just had a thymectomy last year , it helped a bit but not competley. I wish you luck in your journey with MG and hope for the best. !

[ftuley]

There is hope for MG, my son was 6 years old when he got really sick with Myasthenia Gravis, and he had the Thymectomy in 2006 since than he has been ok. Read his story on squidoo.com it's called "Bradley's Myasthenia Gravis", it will give you hope!

[exswimmer318]

Maria, I've been dealing with MG for 6 years secondary to Lupus (diagnosed 16 years) Yes, MG is tough, but you'll learn to be smater than MG. I've learned how to mangage it better. Taking my meds, timely, managing activies properly, to prevent or minimize onset of symptoms. You'll adjust as I have. I focus on what you CAN DO! We have physical limitations that are often beyond our control. However our emotional & mental status we control. You're gonna be okay. Hope this helps. All the best.

[myasthenicontwitter]

Dr. Stephane Huberty, a scientist in Belgium is developing a vaccine for MG. It is ready for phase 1 clinical trials. The BBC and the Wall Street Journal have both recently interviewed Dr. Huberty. If you are interested in it, follow @myasthenic on Twitter or Google Curavac. You can find the links to the articles and interviews on the website.

[Takara2006]

--->THANK YOU FOR THIS VIDEO . I'M 23 YEARS OLD . AND HAVE BEEN LIVING WITH M.G. FOR 13 YRS. AND THIS WAS VERY INSPIRING<---

[NICKEYBLACK35]

I'm there with you.....it is a lonely feeling and I need guidance at times also. I'm trying everyday to stay positive. We need a bigger support group.

[angelic999]

Your video has brought tears to my eyes.I was diagnosed with MG five years ago , i developed symptomes 7 yrs ago , and i can completly can relate to everything youve mentioned .A couple years back i had tried to look up MG on Youtube aswell and i was disapointed with the lack of support and info .You are absolutly wonderful for sharing your story for being one of the first people on youtube to step out of the dark and shine some light and this very dibilitating condition .

[bobby1316]

I have mg for the past 4 years ,I know what you are going through, If you are seeing a nurologist ask him or her to prescribe you pyridostigmine and cellcept. it works great for me, I'm able to live a normal life now.AS LONG THAT I TAKE MY MEDICATION. ROB.

[HurtingInPain]

Can one have myastenia without double vision and droopy eyelids?

[Johannewzealand]

Hi there, I sympathise with you as I also have MG. I was diganosed in 1990, had the Thymectomy operation in 1992. Went onto steroids thereafter and took myself off after a year. For 13-14 years I was free of MG. It has flared up again. Emotionally, socially and physically it really gets one down. Take care

[pajejoci]

Thanks, I actually just started posting yesterday and came along your post. We do need an online video community. I hope you are seeing stronger days.

[heroe621]

Does he take his treatment on time, bcz that's very important.

[khatriproductions]

hey my dad also has the same MG ....but he has problems with speech ...any 1 have any thing to say about this ?

[Roroalaml]

i have it since 7 years it starts when i was 13 years old i have adiffcult myashtenia

[out2gtme]

I've had it for about 3 years, I'm 52.

[rambohs]

I have this condition. I say condition because I hate the word DISEASE . it is so outdated .

[klmitch26]

i had double vision and would run into walls when i was 2 and that's what made my mom take me to the dr...and that's when it was discovered...

[terranceb20]

I totally understand. Had it since I was 6. 25 now.

[brenda1426]

I have MG since 12 years old and im 25 years old now.

[TheDwill604]

hey Kido your not alone this is heatherboo74 hope all is well Ill put up a new video soon for ya they added to my montage of pills Im taken already, oh joy and I say that with the upmost glee and you tell

[irena2108]

Oh honey don't be down. I have MG too and I'm 23 years old... was diagnosed when I had 20. Take care and be strong

[LiiVEiiTUp526]

I know what your going through right now!! I was just diagnosed with MG last week=\ your not alone we're here too. And just like you we're looking for other like us that truely understad what we go through on a day to day bases!!