My friend has POTS and I just found out because she didn't want anyone to know. She is finally telling more ppl and she now has a great support system of friends and family.
Great Job you help me everyday to keep going:) but slow down the speed of the powerpoint so it is readable to others .Thanks for spreading the word to others and it has helped me because I am a college student with this condition. What is your contact info?
You have such a strong spirit. Thank you for sharing your story and your love for your community. I have POTS and I'm just now getting so super amazed and rocked by how much info and stories are out there full of support. What helps me the most is focusing all my intentions on what I have to be grateful for in life. Even though there is so much I cannot do sometimes, there is still so much I can do, so much I have to share and soo much to live for.
Thanks for sharing your story. I don't have POTS, but I have chronic fatigue, which restricts me a lot in what I can & can't do. It shares quite a number of the symptoms of POTS, although there's obviously a different cause. I understand what it's like to be so restricted. But I'm also a Christian & I'm glad you have God, friends & family supporting & encouraging you. I find it so helpful when I feel really rubbish physically & mentally (ie. trying to concentrate) to know I'm never alone.
hey i have POTS im starting to make video diaries on it... please take a look :) ive suffered for 6years but only just been diagnosed this year good vid hun xxx
@JodiePixie1991 I have POTS as awell I've had it for a year and 4 months and It took them a year and 4 Months to diagnosis me! I have a blog Ciarashealingjourney.webs.com, Please check it out if you want to talk about your POTS symptoms. I'm struggling to find a support group so im trying to make my own.
I have E.D.S type 3 and I have been having symptoms of POTS for years, such as the fatigue, bowel issues and bouts of breathlessness and tachycardia..but only recently have I been passing out and getting really dizzy when I stand, I hate it when I wake up so fatigues when I haven't even done anything, and then when I get up out of bed, my heart races and I get out of breath and my vision goes weird, sometimes I pass out, i want some help. I'm starting UNI soon, I don't want to give it up !
omg im so glad my husband ran acroos ur video! i've been so sick & not myself 4 way over a month now. hospitalized twice withn a months period. my ekg's & blood pressure & pulse has been dangerously high/low! so tired & cant explain it. my cardiologist just keeps sayin i know there is something wrong with you i just cant pinpoint it. i'm so depressed & not myself. i went from been so active with my two daughters to not even being able to move.i'm still working but not sure 4 how long.
here I was thinking im the only one.. haha I just wrote an extremely long comment about how beautiful you are for helping everyone and that im here for you too if you need me but it was too long to let me post but id just like to thank you from the bottom of my heart, youve really helped me so much. id love to contact you through fb if thats possible? I hope youre having more good days than bad, even though thats unrealistic <3 <3
I was just diagnosed 2 days ago and so far I do not have contact with anyone with POTS. Would love to add you on FB, facebook.com/kristy.y.smith I would love to ask you some questions, . I keep going through moments of relief to know whats been going on, to moments of sadness where I just cry reading about all the struggles that go with it. Im 30 but have probably had this 10 years... Thanks so much for your video. =) Kristy
@avaandally heyy i have POTS i cried when i got my diagnosis too ive just been diagnosed this year but had it for 6years.. its great to know we are not alone in this xx
I was just dx, having a hard time. can you add me on your facebook kristina baker bakken 37 married, lives in ca. just got dx a couple days ago but have had the symptoms for over a year and actually dx myself.. lol I knew it was pastural. heartrate has been in the 170s for the last week, just finaly got into an electrophisilologist and got some meds to help me out.. Not much support when it comes to coworkers, even oldest daughter who is almost 20. Just feeling kind of down.:(
wow! you have hit the nail on the head with this video! its just so amazing to see some one else whose young with it, some times i feel completely alone and like i will never find anyone to relate to about it! thankyou for posting this video so much. is there any way we can email or anything liek that?? i could really do with some one to email with or any thing like that to just exchange experiences, tips on whats helped etc, i literally have no one else to talk to who understands it in any way
I was diagnosed with POTS in October of last year..My doctor thinks more is going on though so I'm still trying to figure that part out. I know how frustrating POTS can be at times..and I'm glad to see people spreading awareness about it. This was a great video! I hope you're doing well. :)
thanks for your video, now i know i am not alone with this and i understood why i was feeling so sad when my friends didnt believe me ...
i am 24 years old i am from mexico-cancun actually but i had to move to spain because of the weather and it was difficult for me to find glunten free food over there
so i got pots, celiac desease and i just moved here hehe so i feel pretty wierd!
My friend has POTS and I just found out because she didn't want anyone to know. She is finally telling more ppl and she now has a great support system of friends and family.
BGeyerGolf 6 days ago
Great Job you help me everyday to keep going:) but slow down the speed of the powerpoint so it is readable to others .Thanks for spreading the word to others and it has helped me because I am a college student with this condition. What is your contact info?
acvrana 1 week ago
You have such a strong spirit. Thank you for sharing your story and your love for your community. I have POTS and I'm just now getting so super amazed and rocked by how much info and stories are out there full of support. What helps me the most is focusing all my intentions on what I have to be grateful for in life. Even though there is so much I cannot do sometimes, there is still so much I can do, so much I have to share and soo much to live for.
lovinglivity 1 month ago
Thanks for sharing your story. I don't have POTS, but I have chronic fatigue, which restricts me a lot in what I can & can't do. It shares quite a number of the symptoms of POTS, although there's obviously a different cause. I understand what it's like to be so restricted. But I'm also a Christian & I'm glad you have God, friends & family supporting & encouraging you. I find it so helpful when I feel really rubbish physically & mentally (ie. trying to concentrate) to know I'm never alone.
SuperMissblueeyes 2 months ago
hey i have POTS im starting to make video diaries on it... please take a look :) ive suffered for 6years but only just been diagnosed this year good vid hun xxx
JodiePixie1991 4 months ago
@JodiePixie1991 I have POTS as awell I've had it for a year and 4 months and It took them a year and 4 Months to diagnosis me! I have a blog Ciarashealingjourney.webs.com, Please check it out if you want to talk about your POTS symptoms. I'm struggling to find a support group so im trying to make my own.
dahaha1415 6 days ago
turn the music down!
camwhorder 4 months ago
I love you.
rapreborn 5 months ago
I have E.D.S type 3 and I have been having symptoms of POTS for years, such as the fatigue, bowel issues and bouts of breathlessness and tachycardia..but only recently have I been passing out and getting really dizzy when I stand, I hate it when I wake up so fatigues when I haven't even done anything, and then when I get up out of bed, my heart races and I get out of breath and my vision goes weird, sometimes I pass out, i want some help. I'm starting UNI soon, I don't want to give it up !
KaiSiJoAmos24 5 months ago
omg im so glad my husband ran acroos ur video! i've been so sick & not myself 4 way over a month now. hospitalized twice withn a months period. my ekg's & blood pressure & pulse has been dangerously high/low! so tired & cant explain it. my cardiologist just keeps sayin i know there is something wrong with you i just cant pinpoint it. i'm so depressed & not myself. i went from been so active with my two daughters to not even being able to move.i'm still working but not sure 4 how long.
TheRockinmama 6 months ago
here I was thinking im the only one.. haha I just wrote an extremely long comment about how beautiful you are for helping everyone and that im here for you too if you need me but it was too long to let me post but id just like to thank you from the bottom of my heart, youve really helped me so much. id love to contact you through fb if thats possible? I hope youre having more good days than bad, even though thats unrealistic <3 <3
meglan28 7 months ago
I was just diagnosed 2 days ago and so far I do not have contact with anyone with POTS. Would love to add you on FB, facebook.com/kristy.y.smith I would love to ask you some questions, . I keep going through moments of relief to know whats been going on, to moments of sadness where I just cry reading about all the struggles that go with it. Im 30 but have probably had this 10 years... Thanks so much for your video. =) Kristy
avaandally 7 months ago
@avaandally heyy i have POTS i cried when i got my diagnosis too ive just been diagnosed this year but had it for 6years.. its great to know we are not alone in this xx
JodiePixie1991 4 months ago
How kind of you for sharing!! Pots is so hard..Day bye day..sometimes minute 2 minute~~ God bless you~~ ♥
livingwithpots1676 9 months ago
This has been flagged as spam show
potsbecomeaware.blogspot.com
kristennx3 11 months ago
I was just dx, having a hard time. can you add me on your facebook kristina baker bakken 37 married, lives in ca. just got dx a couple days ago but have had the symptoms for over a year and actually dx myself.. lol I knew it was pastural. heartrate has been in the 170s for the last week, just finaly got into an electrophisilologist and got some meds to help me out.. Not much support when it comes to coworkers, even oldest daughter who is almost 20. Just feeling kind of down.:(
krissygirl161 1 year ago
Great video :)
photographer456 1 year ago
wow! you have hit the nail on the head with this video! its just so amazing to see some one else whose young with it, some times i feel completely alone and like i will never find anyone to relate to about it! thankyou for posting this video so much. is there any way we can email or anything liek that?? i could really do with some one to email with or any thing like that to just exchange experiences, tips on whats helped etc, i literally have no one else to talk to who understands it in any way
1960pixie 1 year ago
POTS sucks haha I have it too and do struggle a lot but I keep my head up :) I have videos too :) hope you make more we need the awareness
vivisonga1111 1 year ago
I was diagnosed with POTS in October of last year..My doctor thinks more is going on though so I'm still trying to figure that part out. I know how frustrating POTS can be at times..and I'm glad to see people spreading awareness about it. This was a great video! I hope you're doing well. :)
xNikki713x 1 year ago
great video girl! you're a natural! haha. welcome to youtube :) hope to see more from ya! xxo
radlikemad 1 year ago
Great video! thanks for sharing. I wish good days for you....
crazylegz610 1 year ago
Thanks for the video. I also have POTS.I hope you get better!! Take care :) --Cindy
poetrygal1 1 year ago
hello
thanks for your video, now i know i am not alone with this and i understood why i was feeling so sad when my friends didnt believe me ...
i am 24 years old i am from mexico-cancun actually but i had to move to spain because of the weather and it was difficult for me to find glunten free food over there
so i got pots, celiac desease and i just moved here hehe so i feel pretty wierd!
thanks for sharing!
glutenfreeful 1 year ago