Craniosynostosis before and after surgery!!

[sephiroth161988]

I had my surgery in 1988 I am now 23 yrs old and I have a daughter who I thought had it but it was a false alarm I have the straight scar from ear to ear and I keep a hat on because people ask about it and I don't want to explain I am always dizzy light headed and have lots of head aches I don't know if it's from the surgery....... TLP

[Annmariejm]

@sephiroth161988

Hi I think you may need to speek with your surgeon about your head probs hun. These are all signs of possible intra cranial preasure. Please get checked out x

[BasicsProductions]

i feel so bad for these people :_(

[landroverdisco100]

i also had the sugery done when i was 1 and i am now 15 and people ask me why i have a scar from ear to ear and im not afraid to tell them.

[dbahardstyle]

My daughter has right coronal surgery on 10-22...how do you mentally prep

[lauraleighbyrd]

bless my brave nephew, it was hard to see him like that but now, he is a very bright lad and you would never have realised he had such a major operation

xx

[angela10angel]

Thanks for posting this. My daughter is having her cranio surgery with Dr Kawamoto next Thursday. (gulp) We are so nervous, but it's so good to know that Dr Kawamoto is one of the best!

[Gregscottjr29]

I had my surgery dec 6th 1980 and i wish you and you little one the best. Im now 29 and have no side effects. thanks for sharing this video and God bless you and your family

[Peachis911]

wheres the sounsd?

[mjennings061]

I was born with Craniosynostosis and i had an operation with a Zig-Zag scar on the side of my head from ear to ear. The surgeons had to lift parts of my skull off and pu them back together in a more fitting shape. I suffered from Mental Retardation before the op. where i could only say 3 words . . ma, da and no. Now im 14 and in a Grammer School with straight A's

[sirdcac]

Hi,

I was born with craniosynostosis 41 years ago. Where it came from no one knows. I have two kids my son is 19 and daughter is 18. Both of them were born with it.

I was 13 when I had my operation. Dr, Henry Kawamoto was my doctor. My son had his operation at 3 months and my dauther had her first operation at 5 month and 3 years of age. My son has development delays. My daughter is normal and now pregnant with her first kid.

[Annmariejm]

Headache is basicly a sore head inside. Mainly worse lying down. Yes the two contries have very different ways of looking after there patients. In England they would only ever do more surgery if it was really needed. In England they stick to the traditional surgery as appose to the strip or endoscopic.

[Rosiercentral]

I doing a project about craniosynostosis for my anatomy class.

[Annmariejm]

Is there anything I can help you with?

[Rosiercentral]

Just finished. But maybe a few words about how you felt about the experience might help me in the class. Thanks!

[Annmariejm]

I hope you get the results you are looking for.

As for experience of how I felt? It was upsetting to be told that your baby has craniosynostosis, he had the two coronal sutures fused.

Then the waiting for the appointments for CT scan and the surgery was just awful.

But we got through it, his surgery lasted 6 hours, he did well and was sat up eating the next day. Not that he kept it down mind but still he was trying.

He is doing very well now and he has an IQ of 120 which is above average.

[Rosiercentral]

An IQ of 120?! That's amazing, good for him!

It's always tough to see family members go through such conditions. My grandmother has Alziemers...

I hear that after the surgery, the doctors keep an eye on the patient to make sure no complications arises. Do they do follow-up CT scans or sugeries?

Thank you for your generous words. I hope your son becomes a genius in whatever field his heart's content is.

[Annmariejm]

They do follow up's. I am from England and here they try not to do too many Ct scans. They only do it where necessary. Ie the child is having unexplained headaches or night waking or any other unusual behaviour. I hope your grandmother is not suffering too much with alziemers.

[Rosiercentral]

Thanks.

It's interesting to hear the difference between the medicial practices between the United States and the United Kingdom.

*has a heachache from trying to translate Japanese into English*

[Annmariejm]

Jack Is nearly 4 and doing well. Suufers a little with his ears but you would never know.

Goodluck tc x