My heart is totally broken. I am speechless,,,What a beautiful and loving tribute to your mom. Your courage is to be admired and I know your mom is soo proud of you.
I am currently learning more about HD. I thank you for your personal video, and sharing such lovely pictures. I have learned firstly that the key is to have Love, compassion, and caring. On the Eve of Mother's Day, I pray for you and your family.
your video is amazing, i cried through the whole time...it was so touching and inspiring. i am so sorry for your loss, and through this video i could sincerely feel your pain and longing to your mother. thank you for this video and for showing the rest of the world a tiny bit of what this disease causes to a person. it served me i as a true lesson to start appreciating every moment i have and live life fully.
I'm 20yrs old and I'm doing a report on this disease and I saw this video and I cried. Thank you for being brave and sharing your mother's story with us, even though you informed us of this devastating disorder the song you played touched my spirit. Thank You
I'm current at university and are doing study on huntington's. A horrid disease. I feel pain tremendous pain seeing sotries like this, and it sadness me that there is currently nothing that can be done. I am hoping to get into medical research once I finish my degree. I would like to help find a cure for huntington's, but actually, I'd be even happier if by the time I get into research, they have already discovered a cure.
If you know you have this horrible disease in your family, WHY oh WHY do you keep having children when you know you have a 50% chance of passing this on to yet another generation?
If I knew I could be a carrier of this, I would not chance having a child!
I'm sorry you had to watch the suffering of your much loved mother.
this is such an awful disease!
The only way to stop this disease is for carriers to not have children.
Very touching. Thank you for sharing and educating us, even through your pain. I learned so much from your video. And my heart goes out to you. I will pray for a cure. And I will pray that you experience some peace in knowing you have in some way touched so many. Perhaps there are changes to come in our lifetime. Wouldn't that be a gift?! We need to continue to advocate for and fund scientific/genetic research. God bless!
my mother passed away with this same thing when i was in 7th grade :( it has ruined my childhood im now a sophomore and its very hard seems like everyone is against someone then just today we learned in biology i have 50% chance getting it and of right now there is no cure i almost broke down right there in class... life is cruel.....
i feel your pain. my family suffers from huntingtons. my grandma died in 03 from it my aunt has had it for about 12 years now andmy mother was just informed that she has it about 4 months ago.
I didn't know your mother, but I am sure she would be very proud of you. Your video is honest, powerful and respectful. You were able to share the tragedy of HD and at the same time preserve your mother's dignity. My friend is struggling with HD, at this time...He also has a video on YouTube. I am sorry that your mother had to struggle with HD. Huntingtons is such and insidious disease...
Dude, I feel your pain. I've never heard of the disease until todaa when a friend of mine told me so. Be strong man. We all lose people we love one day. i lost my mom when I was 17 going on 18. She was only 38. I saw her dying. Worst thing ever. I feel you pain. God loves you and your mom is there watching over you too. Have a blessed day my friend and brother.
I was homeless in one point. Im a prof drummer and do good in life but drugs and partying got to me. When i was in homelessshelter i met a guy with Huntington and is now my best friend in life. Im not homeless anymore and he isnt either. He´s a nice guy and lost his mom and grandma on HD!! I dont want to lose him and see him like this but i will stick with him forever. He wants me to make music at his funeral to. ronnie youre the best....see you next saturnday my friend
My Grandmother and one of my uncles died of huntington's My Grandma was 36 (when I was 2) when she died and my uncle was only 22 (when I was 10). Both my Grandma and uncle obtained the disease when they were in their teens. I'm happy my mom hasn't got the disease (she's 36), so I hope me (I'm 18)and my other sisters don't get the disease.
this made me cry like a baby, I am so sorry for your pain and loss can only imagine what it must have been like for you to go through with this. If it makes you feel any better she cant feel any more pain and humiliation now. Thank you for uploading this so that people including me can understand a little better the reality of this horrible illness :)
im so sorry! im sitting her watching this cry my eye balls out! im so sorry for you mother!:) now you know she's in a better place up there with god and she dosnt have anything wrong with her! she's in no more pain! im praying for you family god bless!:)
This so sad for you folks at risk for Huntington's. You must have incredible courage to live with that fear. I see how it ravages a person. Terrible......
In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
In addition to funding research for a cure, the government and insurance co's should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
What a beautiful celebration to your mother's life I am sure wherever she is now she is very proud of you. Thank you for posting, it really touched me
this is so heartbreaking :'( I always thank God for not having to deal with this... but it always makes me think of this and how is that we're on the 21st century and there's no cure for this... also makes me think of Harrison Ford's movie "Extraordinary Measures" ... I hope the story of that movie repeats but now with this disease and with all the rest...
This broke my heart I lost my son 5 years ago I know the pain and heart ache I send you hugs and love I am so very sorry for your pain, what a beautiful Tribute to your Mom... xxxx
Don't be mad a Mr. Blackweewee. This insensitive person will get his. God knows what he is doing and he better repent. This lady was beautiful, and it is unfortuanate that this rare disease came over her like this.
Your mother was a beautiful women, not only on the outside.. but i'm sure she always has been beautiful on the inside. I'm very sorry for your loss. She must have been a great mother. Such a shame she had to suffer such terrible disease. But i have no doubt that she has loved you all untill the day she passed away. God Bless her and may she live a happy life after!
Thankyou, you are beautiful for sharing this. I can't believe how much your mum looks like my family esp. The first photo is identical to my sister. Or family also suffers with HD, but it had defently brought us closer. May God, ease the pain of those who suffer God bless x
@MrBlackweewee you're one sad excuse for a human being and one of the main faults with the web. Hide behind your keyboard and make yourself poor pitiful self feel better by making fun of others...I feel sorry for you!
@steviefreak69 I completly disagree!!! This video was about his mother and the horrific toll it took upon him and his mother, it was nothing to do about making fun of anyone! Apparently you are not familiar with the disease or the devestating emontional strain this disease has. My mother is currently dying from the same disease and looks just like the woman in video once she reached her final stages. Maybe you should think before you start pointing fingers at the man!
@MrBlackweewee You deserve a life time of pain and misery you sick bastard. May your life be filled with nothing but sadness and hatred. Its the least you deserve.
@MrBlackweewee You're so disrespectful. I have two cousins whom have this disease, and they can't walk, talk, or even go to the bathroom by themselves. It breaks my heart to know that you can sit here and make fun of these people who have this horrible disease. You will have to answer to someone for this one day.
I am sure she is in a better place, I am sry for you loss. I dont know what I would do w/o my mother and she is 67. Although I dont have HD, I am in need of a life saving surgery so I put up a video too hoping for help. Take care.
thnx for sharin this i am realii sorry for your mum my grandad had goh this disease and his bruva passed away from it i noe how difficult it is to see your true loved ones go thru all this pain :'(
Thank you so very much for sharing this with us. My Mam is reaching the end of her HD journey and hope that we have done all that we can to ease her way. Stay beautiful and strong and we all hope one day there will be a cure.
Thank you so very much for sharing this with us. My Mam is reaching the end of her HD journey and hope that we have done all that we can to ease her way. Stay beautiful and strong and we all hope one day there will be a cure.
this is amazing. My mother suffers from huntingston & im also 22 being her legal guardian. & your right in a wierd way it brought us closer. scares me. But i love seeeing her happy. your in my prayers.
Thanks so very much for sharing this link. My Mom is nearing the end of her HD journey and is a husk of her former self. This movie is heartbreaking but the truth of what HD does to a person and their families. Stay strong and beautiful always.
Forgive me but if you folks that have children,doesn't that perpetuate Huntington's? I mean if one were to stop the genetic progression of this horrible disease by not having biological children would this stop one's from passing on to future generations?
@BCAD01 Everyone should have the option of having biological children if they choose. My mother had HD, so I am at a 50/50 risk of inheriting it. I'm glad she chose to have kids, at least I've had 30 productive years. What this generation needs to know is that through (IVF) In Vitro Fertilization, they can now test the fertilized eggs and only implant those that do not carry the gene for HD. The person at-risk for HD doesn't even have to find out if they have it. It's called PGD, look it up.
It is incredible what you have done here with this video. I'm an RN. I see patients with Huntingdon's and I know what a terrible disease it is. But you've taken the Patient out of Huntingdon's disease and reminded me of the fact that this is a person with a life, not a person with a disease. Very brave, very moving. Bravo. Beautiful tribute to your mom.
This video made me so upset. It shows how strong people are and I think your mother was very brave, and so are you. I am so sorry and I really hope some genius invents a cure for this horrible disease. Thank you for posting this-don't ever be afraid of showing your true colours!
thanks for sharing your mothers experience with us, your video has reduced me to tears, i am a carer for adults with disabilities and i have got 4 clients with h.d each with a different story, but each of them fight such a corageous fight and live their live to the very max...they are soo strong... thanks again for sharing and lets hope they find a cure for HD x
Thank you - this is a wonderful tribute to your beautiful mother ... my sister has this disease, as does my brother and we're yet to know if my four gorgeous nieces are facing the same fate. Those that have never been touched in some way by this disease cannot know it's devastating effects. May a cure be found. Bless you and your family.
My neice has Juvenile Huntingtons she's 17 now.....she's my star....I have a video of her doing what she does best....being brave and showing her beautiful smile..its on my page....my sister made it to raise awareness of the condition :)
@TwittyWhit07 I watched your nieces video. What a beautiful smile! Laughter can get your through even the hardest times. Looks like she is one smart girl :)
@TwittyWhit07 Best of luck to you and your Neice!! Lots of love!!! My sister unfortunatly passed away by Juvenile Huntington's at the age of 23 she got it at 13 but she died a year ago and we have her with us always and forever!!
I just learned that one of my friends may have HD,I haven't seen him in years and the last time that I did see him we weren't really on speaking terms due to some quarrel he and I got in to...As I sit here with tears in my eyes,I now only wish that I could see him,and hug him and tell him that I'll stand by his side...last but certainly not least,I would like to tell him that I love him as a brother and that I am sorry for staying away for so long.....
Hello I Am 13 And My Mother Has Huntington's It Is Really Hard To See Her And Talk To Her ..... To Be Honist It Is A Slow Death That Is What I Hate About It ...... I Just Wont It To Get Better And Have A Cure For It ...... I wont That Dream To Come True ...
Hello I Am 13 And My Mother Has Huntington's It Is Really Hard To See Her And Talk To Her ..... To Be Honist It Is A Slow Death That Is What I Hate About It ...... I Just Wont It To Get Better And Have A Cure For It ...... I wont That Dream To Come True ...
Hello I Am 13 And My Mother Has Huntington's It Is Really Hard To See Her And Talk To Her ..... To Be Honist It Is A Slow Death That Is What I Hate About It ...... I Just Wont It To Get Better And Have A Cure For It ...... I wont That Dream To Come True ...
this made me so emotional, i have a foster sister living with us because her mam has huntingtons, seeing her is so upsetting. What scares me most is the 50% chance...
i'm so sorry this has happened, you're a really brave person for sharig this.
I feel contempt for those that have compassion for all who are weak and sick,
I love the people of the past, I take care of the people of today responsible for the prolongation of the disease on the earth, you are responsible for pollution to humanity.
HD shows something called "anticipation", which means the future generations would have it worse and early on in their lives. In my opinion anyone who has HD in their family history should always get tested for the trinucleotide repeat mutation (the cause of HD) before the child is born. This will save teh family and that child from suffering. This is purely my opinion and a strong one at that, because i can't see people suffer like this, it breaks my heart! ur mum is an angel now, RIP!
My mother died on Mother's DAy in 1982 from HD. I am glad you could do this is her memory. I know how hard it is to watch your mother suffer from HD. Kudos to you my friend. I hope you don't have the mutated gene.
I am 20, my mother is 52 and was diagnosed at 20. I am so scared that i have inherited it, i fid it very hard to be around her and i feel that i'm losing the time i have got with her, but because i am so scared of what the desease does to you, i just can't spend the time with her. I am very selfish to say that and i hate myself for it... i just can't bare to see my mother die infront of me, i have a 50% chance of be diagnosed with huntingtons and i am frightened, i will be getting myself checked
What a beautiful video. I am fortunate enough to never have been personally affected by HD, but I really do feel for everyone who has. Seeing this video once again reminded me of why I opted for a career in healthcare- all these arduous years of school will all be worth it if I can somehow make a difference.
All the best to you, and thank you once again for creating this. I'm sure your mother couldn't be more proud. :)
What a beautiful video. I am fortunate enough to never have been personally affected by HD, but I really do feel for everyone who has. Seeing this video once again reminded me of why I opted for a career in healthcare- all these arduous years of school will all be worth it if I can somehow make a difference.
All the best to you, and thank you once again for creating this. I'm sure your mother couldn't be more proud. :)
What a beautiful video. I am fortunate enough to never have been personally affected by HD, but I really do feel for everyone who has. Seeing this video once again reminded me of why I opted for a career in healthcare- all these arduous years of school will all be worth it if I can somehow make a difference.
All the best to you, and thank you once again for creating this. I'm sure your mother couldn't be more proud. :)
Thank you so much for this. I am struggling to write what im feeling at the moment. Im 18 years old and my mother has huntingtons disease. I love my mother so much and it just kills me inside to see what shes going through. Iv'e
All THE HEALTHY ONES SHOULD BE THANKFUL! ALL YOU GUYS THAT SUFFER FROM THIS DISEASE BE STRONG! THE ONES THAT DIDN'T MAKE IT REST IN PEACE FINALLY :'( !!!
If I knew there was a 50/50 chance of me having Huntington's.. I wouldn't be able to take it. Sorry for your loss.. glad to hear you've tested negative :D
im so sorry for your loss. your video is really beautifull and i got tears in my eyes watching it. my stepdad has HD and he is what they call it in the last fase. not being able to eat by himself anymore. i know what you have been through and it is really heartbreaking! that urge to make a video/pictures, iv been having that lately to, and i guess i should listen to it and enjoy the time we still have. thank you so much for posting this! may there be a cure soon.
i just wrote a paper on huntington's and believe me, ur video was very inspiring... i have no words to express the sadness of the disease.. i just pray for a cure to be found soon as more people are being diagnosed with this nasty disease.. you were very brave to put up this video, ur mother will always be proud of you!!! thanks for sharing it and god bless you...
soi colombiano en mi pais sta enfermedad dicen que es como una dinastia de el apellida echeveri propiamente la gente que tiene sta enfermedad son de un pueblo de la costa y todos son familia de generaciones de tantos anos
@gumbyh20 beautiful video of your husband. I wish and pray for the best for the 2 of you on this journey. It's a daunting road to travel down. Keep positive.
I'm sorry for your loss. No words will ever be able to sooth you, but just know that after death their is another life. Death is not the end of the road, it's just the beginning of another one.
Your video brought more tears to my eyes as my family and I are making the descion to put our 34 year old foster daughter in a nursming home. She has been a bright star in our lives, but we can no longer handle the emotional & physcial demands. We are keeping her 11 year old daughter as there is no other family involvement. They said it was too hard too watch. Someday there will be a cure. We are all praying for it. Thank your for sharing. Dawn
Wow, such a sad video. I'm so sorry! I'm studying a bit about HD at university and I just wanted to see what it looks like and I had no idea! Such a beautiful video
More people need to undersand what HD is, I am raising money for the Huntingtons disease assosiation at the moment and nearly every person who gave money has asked me "what is it?" I will ask them to watch this video, I have lost both my mum and my Brother to HD.
@ejc0616 so sorry for your loss. HD is a horrible disease to watch our loved ones suffer through. Your bringing more awareness to it can only help the cause. I personally know how little people know of this disease...I myself had no clue to what it was or the devastation it could bring when learning of my mothers diagnosis. People would say to me "what's the big deal? We could all die tomorrow." not knowing a thing about horrible it truly is. I wish the best for you and your family.
@ejc0616 i'm sad to hear that :( i hope to raise awareness too. It's true that not many people know what it is and it's about time that changed, yet people give money? strange isn't it.
Sometimes I forget that my grandma died this passed November and then it dawn on me that I'll never again feel her embrace. I'm so sorry about your mother and I hope someday there will be a cure for HD.
none of my family has this disease (thank god). but i am so sorry that the people who have this disease have to live through this. i am so sorry for the sons and daughters even grand kids that have to go through losing a loved one.
As i sat here watching your video and crying my heart out i can relate to you. My mother is in her 15 years of battling this disease. The medication she is on however has slowed her movements down but the disease is still eating her away. This awful disease has run in my mothers family as far back as we have been able to trace.i have battled cancer myself and im 35,I pray the good lord has skipped me with this disease. My thoughts and prayer are with you and remember your not alone
@keeleyfleming88 I pray the good lord has skipped you as well and gives you the strength to make it through no matter what. My mother was the first that we know of that had it, although many people on her side of the family died young. It's tough watching our loved ones go through this, but, being there for them helps so much. My thoughts and prayers are with you as well...best of luck!
@peaceisloveforus My thoughts and prayers go out to you and your family. Yes, I have been tested. I'm one of the lucky ones that has escaped this killer. Maybe one day in our lifetime there will either be a cure or at least medicine that cand truly help the symptoms.
Thats great that you dont have it. I am 13 and may have it. They think i am showing symptoms od HD! My father is on a medican but it does not help. Its sad. going in piblic with him is a battle. He is laughed at. People take this disease the wrong way. I love this video. I play it all the time. Makes me cry. I hope they find a cure.
I'm hoping that you find the strength to get through this no matter the out come. I hope you don't have HD and wish the best for you. I understand how you feel about going in public with your dad. People would always stare and snicker at my mother too. One lady even asked if she was retarded...I said "No. But you are for asking such a question!" I learned to ignore the stares and the comments. People are always curious about what they don't know. God bless and Good luck.
thanks you. You made my day. I turn away when i get hose rude comments. This morning we took my dad Ice fishing (his favorite thing to do) everyone laughed at him. they were saying he was stupid, a retard. I was like yah thats my dad, I love him NO MATTER WHAT! My dad caught a fish he calls the Hannah Fish, the 1st fish i ever caught while ice fishing! Hes my dad eaither way I love him, for ever and ever! When hes gone im going ot fight! fight till we find a cure! HD is always on my mind!
man... when i was 8 years old, i was watching Red Dawn with my dad, and he started coughing up blood and crying, and seconds later he died... The Doctors didn't know what was wrong with him, but they think he had limphoma
Thank you for you nice film and i feel bad for you and your mom IM SORRY! Im just happy that she said ILY to you even though it took her long tim e to say it! i hope you get respect and for 2010 be safe and god bless you!
I was tested for Huntington's- thankfully it was negative. On some levels, I cannot relate. On some of your mother's I can. And I happen to be a mother, struggling with a movement disorder that is progressive. I find what you did for your mother here, beautiful. So, thank you.
i am currently at risk for this terrible disease, it just really hurts me to know that if i get it ill never be able to live a full and have a family, but i have come to terms with it and even though its its extremly hard i just try to keep living the best i can, and know what you went though, i went though the same thing with my mom, god bless you and stay strong
"only when you have nothing to live for is when youll live for everything"
im so glad for you that you got to hear your mum speak those 3 magical little words to you even if it took her a life time to say them. sometimes its just to painful to show your true colours. stay strong and god bless you and your family and may 2010 bring you some peace and joy.
I'm currently watching my mum go through this, and have to start the testing procedure when I'm old enough in March. You're right that you have to look at it positiviely, or else it'll just become too much.
The video footage brought me to tears instantly, but I feel better having watched it.
I share the sadness with all those who lost their beloved because of HD. We must remember that our life is in the hand of God ,he knows when, where and how we will die and nobody can change this, so we must make good relationship with God ,and have peace with him.
THANX for posting your video, although some people can't appreciate the fact that you want to celebrate your Mom's short but love filled life, I can and do! Ignore the ignorance is all I can say!! I too lost a parent to Huntingtons Chorea, my Father at age 58. And I too, found myself being guardian & trustee for him at about 24yrs old. Facing the 50% chance of becoming ill with this disease myself. So to those who make RUDE remarks...you have no idea....so just SHUT THE *$#@-UP!!
Thank you for posting this. My mother died at the age of 42 from huntingdons, and we also lost her one brother, two sisters and father from the disease.
There are times when you feel so hopeless that you wonder what's the point, but I will always remember the time I did have with my mother, and enjoy my life as much as possible before the disease progresses.
It is a sad, sad illness, and this video brings me to tears reminding me of my mother, but we all need hope.
Thank you for sharing this. I'm really sorry for you and all the people who have to see someone they love going thru something like this. My thoughts go out to you and your family,
thank you for spreading knowledge about this terrible disease to me and so many others. my heart goes out to you and your family, and i pray that mine never has to go through what yours has.
I am so sorry for your loss, my mum is slowly loosing her battle with hd, I just hope that one day soon, they will find a cure for this awful illness.
what a beautifull video. I think is great that you honor your mother in this way.. I never quit understood what HD was.. But now I do.. thank you for the lesson
What can we say to each other to make this suffering bearable? WE ONLY can understand the depth of strength, power, heart, patience and courage needed to see our loved ones suffer. Or ourselves. The only thing is too be strong for another day and the day next. And hope for a cure someday. So don't give up guys. I know I won't. I love you all with a love that binds us all and I pray for its and everyone of you every night.
My dear I 'm really sorry for your loss. My mother is in the last stage and I know exactly how you feel. But try to think that for both of you the worst part is behind you. She is happy now somewhere else. I have to admitt that I cried seeing your mummy. She reminds me so much of my mom. The way their eyes look at you is devistating. Take care now and ove her with all your heart.
I just cried so much because I can relate to this video, i'm 20 years old and my mom just got diagnosed a year ago, my aunt is suffering with it and all of my uncles on her side have died from it , I'm terrified for her, my aunt as well as me and my brother. Just feel so helpless.
There is a course and reason for everything. Seeing and understanding that course isn't always easy. I completely understand how facing this disease within yourself and loved ones can make you feel helpless, believe me I've been there, but, PLEASE, try and keep yourself positive and make the most out of every situation. My thoughts and prayers go out to you and your family.
What reason? There is NO reason for this........NONE.....Stop mwith all your fucking bullshit...Trying to puit a nice spin on a HORRIBLE DEATH........FUCK YOU
You tell me to F-Off because I try and stay positive in the light of horrible circumstances? I've never tried to make light of or put a positive spin on HD. There is none! Anyone going through it knows that! Do I wish HD/cancer/disease didnt exist? YES!!! But, it does and I've crawled through it's fire and learned more about myself and the people around me than I would have otherwise! I hate HD, but, I must stay positive for my own mental and physical health. Don't hate on me for that.
Stay Positive? Are you crazy?.My 17-yr old Daughter may have this shit.......How or WHY should I stay Positive?.What fucking for? Be real man.......I really wonder if I should just take her out....Then Myself......That would be more humanew
Are you going to troll every Huntington's disease video, saying how you want your daughter to die rather than have her live with Huntington's? Not only is it highly illegal to even speak of this, but this is also a choice she should make for herself. You could be charged with first-degree murder if you take matters into your own hands. And even if she does carry the gene for Huntington's, she may be asymptomatic, but you'll never find that out if you kill her. Think about it.
I am sorry about your mother. My father has HD and my whole family on his side has HD . I have to say though Huntington's is very depressing yes. However you can still live a full life . vaule life and the people you love every day HD can not take that away.
You are so correct...that is one of the biggest things that I've learned from this disease. Now, I never go a day without saying I love you to my family.
This made me cry and i have not cryed like this in years. I try to put this whole thing in the back of my head and not worry about it but i cant. But when I saw your mum with your child. That reminded me of when I use to take my oldest daughter to see my mum in the nursing home. My daughter was only 1yr at the time. But anyhow I just wanted to say what a great job you did.
I've just found out at 17 years old that my real father had a high chance of having this and that it's likely he passed it onto me. I want th test, i want ot know what my future will be like. I need to know. yet my parents believe i'm not ready and legally i have to wait till i'm 18. this really touched me and strengthened my choice to find out how my future will pan out. thank you for posting this x
There are medican out there. They arent that expecive. They come from New Zealand. They do work! They help soo much! My grandfather dies from huntingtons, so did my great grand father. The doctors told us to get his grave stone and set all of the arangements because he could just drop. Its a sad sad thing. Im sorry for your loss.
I love this video so much! My dad has hintingtons. Its a terriblw thing! I am 12 years old. They think I have it. I dont want to because that would mean no football. My dad went on a hunting trip last night and shot his truck. He cant drive because he got his license taken away! He doesnt want it back either! He cant do his favortie activety anymore, Hunting. We own a hunting Club and Its sad because he cant hunt! He cant trap. Or go Ice fishing! Now if I have it No football! There are meds!
My dad was just told he has this and my grandma die from this i was told that i most likely will end up having this and i watched my grandmother die from it and sadly i might have to watch my dad suffer through it as well...
This truly touched my heart. My heart goes out to you and your family. I currently work at a nursing home facility with residents who have HD and it has truly made me see things in a different light. Some of my residents are not even able to tell the staff what they want or the pain they are feeling. I've never worked with HD patients before and this has completely changed me.
wow this is such a gd video about hunintons diease i work in a home with poeple wid this horrible wicked diease and this video brought me 2 tears and has opened my eyes a little more im sorry for ur loss but this is a gd video that highlights a normal life then u see the huntingtons kicin in and then the video very nicely put 2gether which must of been hard for u 2 do xxxx
Wow . . My mum has huntingtons too and this just brought tears to my eyes because I'm going through it with my mum. She's steadily deteriorating and that probably has to be the worst feeling I've ever felt because there is nothing I can do.
my aunt died of it and i begged god to help her. i feel like shit because i was so fucking helpless. my mother and grandmother fucking did so much and for what? i have lost all hope in people, and i feel so hopeless i just want to fucking scream. the last thing my aunt amber wanted to do was just ride a fucking bike and she couldn't even get on it. i want this fucking monster dead. it robs them of everything. i watched it my whole life. its like watching someone you love being raped over andover
omg steve...do you have it too?
nalaskingdom 1 week ago
My heart is totally broken. I am speechless,,,What a beautiful and loving tribute to your mom. Your courage is to be admired and I know your mom is soo proud of you.
TheTopaz27 3 months ago 2
God bless her..i have a Daughter aged 24..she has had Juvenile HD since she was about 7 yr old..my heart's broken
rufusthedred 8 months ago
I am currently learning more about HD. I thank you for your personal video, and sharing such lovely pictures. I have learned firstly that the key is to have Love, compassion, and caring. On the Eve of Mother's Day, I pray for you and your family.
pinworm11 9 months ago 3
@mr BLACKWEEWEE even god cannot help you,, never say anything like this, its a sin
sach2711 9 months ago
i respect people like u and ur family for being so strong,thanks a lot for sharing it , god bless you
sach2711 9 months ago
Dude,
I'm tearing up. I'm sorry to hear what happen to your mother. That video was very touching. God Bless you.
Japanese278 9 months ago
sorry :'(
manuelbarrera1991 9 months ago
Thank you so much for sharing!! :)
jujubrandy 9 months ago
your video is amazing, i cried through the whole time...it was so touching and inspiring. i am so sorry for your loss, and through this video i could sincerely feel your pain and longing to your mother. thank you for this video and for showing the rest of the world a tiny bit of what this disease causes to a person. it served me i as a true lesson to start appreciating every moment i have and live life fully.
koko1333 9 months ago 3
I'm 20yrs old and I'm doing a report on this disease and I saw this video and I cried. Thank you for being brave and sharing your mother's story with us, even though you informed us of this devastating disorder the song you played touched my spirit. Thank You
nikebabe55 9 months ago
i lost my Mom ... *sry i couldnt finish*
rogy1969 9 months ago
I'm current at university and are doing study on huntington's. A horrid disease. I feel pain tremendous pain seeing sotries like this, and it sadness me that there is currently nothing that can be done. I am hoping to get into medical research once I finish my degree. I would like to help find a cure for huntington's, but actually, I'd be even happier if by the time I get into research, they have already discovered a cure.
L0rdRemington 10 months ago
well at least she dies full of love and realy she was very beautiful! :)
marianosupply 10 months ago
If you know you have this horrible disease in your family, WHY oh WHY do you keep having children when you know you have a 50% chance of passing this on to yet another generation?
If I knew I could be a carrier of this, I would not chance having a child!
I'm sorry you had to watch the suffering of your much loved mother.
this is such an awful disease!
The only way to stop this disease is for carriers to not have children.
sheilach1 10 months ago
Very touching. Thank you for sharing and educating us, even through your pain. I learned so much from your video. And my heart goes out to you. I will pray for a cure. And I will pray that you experience some peace in knowing you have in some way touched so many. Perhaps there are changes to come in our lifetime. Wouldn't that be a gift?! We need to continue to advocate for and fund scientific/genetic research. God bless!
MGCStrings 10 months ago
Thank you for sharing. I am watching my wife go slowly, and it is so hard.
thechitownhustler 10 months ago
Seriously, who "dislikes" this kinda stuff? wow
toomuchyonke 11 months ago
:( this made me cry. it gave me chills it was so touching. i am so sorry. you did a great job at putting this together :)
jessicaksears 11 months ago
my mother passed away with this same thing when i was in 7th grade :( it has ruined my childhood im now a sophomore and its very hard seems like everyone is against someone then just today we learned in biology i have 50% chance getting it and of right now there is no cure i almost broke down right there in class... life is cruel.....
chansonwilliam 11 months ago
I am sorry for your loss ..This disease is so bad..My Father has HD ...I have not been tested yet...I just hope they find a cure soon...
racerchic41 1 year ago
i feel your pain. my family suffers from huntingtons. my grandma died in 03 from it my aunt has had it for about 12 years now andmy mother was just informed that she has it about 4 months ago.
themagius 1 year ago
before this happens to you convert in to muslim if you want proof learn how to touch the quran
killergif 1 year ago
I didn't know your mother, but I am sure she would be very proud of you. Your video is honest, powerful and respectful. You were able to share the tragedy of HD and at the same time preserve your mother's dignity. My friend is struggling with HD, at this time...He also has a video on YouTube. I am sorry that your mother had to struggle with HD. Huntingtons is such and insidious disease...
MySweetgirlSophie 1 year ago
Dude, I feel your pain. I've never heard of the disease until todaa when a friend of mine told me so. Be strong man. We all lose people we love one day. i lost my mom when I was 17 going on 18. She was only 38. I saw her dying. Worst thing ever. I feel you pain. God loves you and your mom is there watching over you too. Have a blessed day my friend and brother.
RASHTG 1 year ago
I was homeless in one point. Im a prof drummer and do good in life but drugs and partying got to me. When i was in homelessshelter i met a guy with Huntington and is now my best friend in life. Im not homeless anymore and he isnt either. He´s a nice guy and lost his mom and grandma on HD!! I dont want to lose him and see him like this but i will stick with him forever. He wants me to make music at his funeral to. ronnie youre the best....see you next saturnday my friend
aponcapone 1 year ago 2
I watch this everyday before school, because it gives me courage to go on with my day, thank you so much.
peaceisloveforus 1 year ago
Comment removed
SStanleyC 1 year ago
My Grandmother and one of my uncles died of huntington's My Grandma was 36 (when I was 2) when she died and my uncle was only 22 (when I was 10). Both my Grandma and uncle obtained the disease when they were in their teens. I'm happy my mom hasn't got the disease (she's 36), so I hope me (I'm 18)and my other sisters don't get the disease.
I feel your pain. All will get better.
spongygirl92 1 year ago
A very nice tribute to your Mother.
ilovebobthecat 1 year ago 2
this made me cry like a baby, I am so sorry for your pain and loss can only imagine what it must have been like for you to go through with this. If it makes you feel any better she cant feel any more pain and humiliation now. Thank you for uploading this so that people including me can understand a little better the reality of this horrible illness :)
THEWICKERMAN196 1 year ago 26
im so sorry! im sitting her watching this cry my eye balls out! im so sorry for you mother!:) now you know she's in a better place up there with god and she dosnt have anything wrong with her! she's in no more pain! im praying for you family god bless!:)
brittgail963 1 year ago
This so sad for you folks at risk for Huntington's. You must have incredible courage to live with that fear. I see how it ravages a person. Terrible......
BCAD01 1 year ago
In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
swhitt21 1 year ago
In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
swhitt21 1 year ago
In addition to funding research for a cure, the government and insurance co's should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
swhitt21 1 year ago
What a beautiful celebration to your mother's life I am sure wherever she is now she is very proud of you. Thank you for posting, it really touched me
sonnic36 1 year ago
This is soo sad it just made me cry so much :( :"( Im sorry she's so beautiful
xoxoDOLLY 1 year ago
this is so heartbreaking :'( I always thank God for not having to deal with this... but it always makes me think of this and how is that we're on the 21st century and there's no cure for this... also makes me think of Harrison Ford's movie "Extraordinary Measures" ... I hope the story of that movie repeats but now with this disease and with all the rest...
CuateGolden 1 year ago
Touching video .
Thank you for sharing.
Bint3bdullah 1 year ago
This broke my heart I lost my son 5 years ago I know the pain and heart ache I send you hugs and love I am so very sorry for your pain, what a beautiful Tribute to your Mom... xxxx
Nonya63 1 year ago
Don't be mad a Mr. Blackweewee. This insensitive person will get his. God knows what he is doing and he better repent. This lady was beautiful, and it is unfortuanate that this rare disease came over her like this.
cirionrc 1 year ago
Nice choice of song.
novatrek 1 year ago
This is really evocative. I'm sorry is all I can say. But those words really mean nothing.
Good job on the video. I liked the song.
CoIorful 1 year ago
I think that the OPTION of euthanasia should be on the table for people suffering with this illness.
actionist2009 1 year ago
Does anyone know what causes Huntingtons Disease. Is there any medicine to help? Someone should be able to cure this.
Idolmakercat 1 year ago
Your mother was a beautiful women, not only on the outside.. but i'm sure she always has been beautiful on the inside. I'm very sorry for your loss. She must have been a great mother. Such a shame she had to suffer such terrible disease. But i have no doubt that she has loved you all untill the day she passed away. God Bless her and may she live a happy life after!
Jotjeh 1 year ago
Thankyou, you are beautiful for sharing this. I can't believe how much your mum looks like my family esp. The first photo is identical to my sister. Or family also suffers with HD, but it had defently brought us closer. May God, ease the pain of those who suffer God bless x
OmVan 1 year ago
Comment removed
MrBlackweewee 1 year ago
@MrBlackweewee you're one sad excuse for a human being and one of the main faults with the web. Hide behind your keyboard and make yourself poor pitiful self feel better by making fun of others...I feel sorry for you!
steviefreak69 1 year ago 39
@steviefreak69 and you too big god´s mouth
elyurita 1 year ago
@steviefreak69 I completly disagree!!! This video was about his mother and the horrific toll it took upon him and his mother, it was nothing to do about making fun of anyone! Apparently you are not familiar with the disease or the devestating emontional strain this disease has. My mother is currently dying from the same disease and looks just like the woman in video once she reached her final stages. Maybe you should think before you start pointing fingers at the man!
mandyringo 11 months ago
@MrBlackweewee You deserve a life time of pain and misery you sick bastard. May your life be filled with nothing but sadness and hatred. Its the least you deserve.
L0rdRemington 10 months ago
@MrBlackweewee You're so disrespectful. I have two cousins whom have this disease, and they can't walk, talk, or even go to the bathroom by themselves. It breaks my heart to know that you can sit here and make fun of these people who have this horrible disease. You will have to answer to someone for this one day.
daddysgirl157 9 months ago
cddragich ] the song helps people try to understand what all the people involved in the video are trying to reach out with the words.
cddragich 1 year ago
awesome is just perfect for this terrible hd.
cddragich 1 year ago
Sweet video. God Bless
geroshie 1 year ago
lmfao was hilarious thxs
MrBlackweewee 1 year ago
@MrBlackweewee What was hilarious?! How sick are you???
pop41us 1 year ago
@pop41us You don't see how this is hilarious?
MrBlackweewee 1 year ago
@MrBlackweewee you evil fucking bastard i would kill you if i got hold of you
insTinKzeR 1 year ago
@MrBlackweewee -You are one sick jerk!!!
racerchic41 1 year ago
@MrBlackweewee You are a freak...People like you make me sick..
racerchic41 1 year ago
@MrBlackweewee you are kidding right?? not funny.... i hope people laugh at you when you are in hell
WDWExpert 10 months ago
I am sure she is in a better place, I am sry for you loss. I dont know what I would do w/o my mother and she is 67. Although I dont have HD, I am in need of a life saving surgery so I put up a video too hoping for help. Take care.
HELPJACKI 1 year ago
thnx for sharin this i am realii sorry for your mum my grandad had goh this disease and his bruva passed away from it i noe how difficult it is to see your true loved ones go thru all this pain :'(
sweetgirlxx786 1 year ago
Thank you so very much for sharing this with us. My Mam is reaching the end of her HD journey and hope that we have done all that we can to ease her way. Stay beautiful and strong and we all hope one day there will be a cure.
nead74 1 year ago
Thank you so very much for sharing this with us. My Mam is reaching the end of her HD journey and hope that we have done all that we can to ease her way. Stay beautiful and strong and we all hope one day there will be a cure.
nead74 1 year ago
this is amazing. My mother suffers from huntingston & im also 22 being her legal guardian. & your right in a wierd way it brought us closer. scares me. But i love seeeing her happy. your in my prayers.
mariah1130 1 year ago
Thanks so very much for sharing this link. My Mom is nearing the end of her HD journey and is a husk of her former self. This movie is heartbreaking but the truth of what HD does to a person and their families. Stay strong and beautiful always.
Le gra o
Sinead
nead74 1 year ago
Forgive me but if you folks that have children,doesn't that perpetuate Huntington's? I mean if one were to stop the genetic progression of this horrible disease by not having biological children would this stop one's from passing on to future generations?
Again,forgive for being blunt.....
BCAD01 1 year ago
@BCAD01 Everyone should have the option of having biological children if they choose. My mother had HD, so I am at a 50/50 risk of inheriting it. I'm glad she chose to have kids, at least I've had 30 productive years. What this generation needs to know is that through (IVF) In Vitro Fertilization, they can now test the fertilized eggs and only implant those that do not carry the gene for HD. The person at-risk for HD doesn't even have to find out if they have it. It's called PGD, look it up.
swhitt21 1 year ago
It is incredible what you have done here with this video. I'm an RN. I see patients with Huntingdon's and I know what a terrible disease it is. But you've taken the Patient out of Huntingdon's disease and reminded me of the fact that this is a person with a life, not a person with a disease. Very brave, very moving. Bravo. Beautiful tribute to your mom.
scaremoe 1 year ago
wow my mom and my uncle and grandfather all passed away from this its runs in our family this is so hard to live with this disease i hate it!!!!
rivasjl13 1 year ago
This video made me so upset. It shows how strong people are and I think your mother was very brave, and so are you. I am so sorry and I really hope some genius invents a cure for this horrible disease. Thank you for posting this-don't ever be afraid of showing your true colours!
FeeJay981 1 year ago
Shit sux :[
DaintyDollyz 1 year ago
thanks for sharing your mothers experience with us, your video has reduced me to tears, i am a carer for adults with disabilities and i have got 4 clients with h.d each with a different story, but each of them fight such a corageous fight and live their live to the very max...they are soo strong... thanks again for sharing and lets hope they find a cure for HD x
loopyJenZ 1 year ago
That was totally awesome..what love you showed in this video!..
tonisurman 1 year ago
Thank you - this is a wonderful tribute to your beautiful mother ... my sister has this disease, as does my brother and we're yet to know if my four gorgeous nieces are facing the same fate. Those that have never been touched in some way by this disease cannot know it's devastating effects. May a cure be found. Bless you and your family.
Edendale138 1 year ago
wow, because such people I like youtube.
jeanwean 1 year ago
My neice has Juvenile Huntingtons she's 17 now.....she's my star....I have a video of her doing what she does best....being brave and showing her beautiful smile..its on my page....my sister made it to raise awareness of the condition :)
Love and Hugs xxx
TwittyWhit07 1 year ago 10
@TwittyWhit07 I watched your nieces video. What a beautiful smile! Laughter can get your through even the hardest times. Looks like she is one smart girl :)
steviefreak69 1 year ago
@TwittyWhit07 Best of luck to you and your Neice!! Lots of love!!! My sister unfortunatly passed away by Juvenile Huntington's at the age of 23 she got it at 13 but she died a year ago and we have her with us always and forever!!
5trftw 1 year ago
you should get checked out for it
conordougy 1 year ago
I just learned that one of my friends may have HD,I haven't seen him in years and the last time that I did see him we weren't really on speaking terms due to some quarrel he and I got in to...As I sit here with tears in my eyes,I now only wish that I could see him,and hug him and tell him that I'll stand by his side...last but certainly not least,I would like to tell him that I love him as a brother and that I am sorry for staying away for so long.....
WhitePony93 1 year ago
Hello I Am 13 And My Mother Has Huntington's It Is Really Hard To See Her And Talk To Her ..... To Be Honist It Is A Slow Death That Is What I Hate About It ...... I Just Wont It To Get Better And Have A Cure For It ...... I wont That Dream To Come True ...
superbunny12100 1 year ago
Hello I Am 13 And My Mother Has Huntington's It Is Really Hard To See Her And Talk To Her ..... To Be Honist It Is A Slow Death That Is What I Hate About It ...... I Just Wont It To Get Better And Have A Cure For It ...... I wont That Dream To Come True ...
superbunny12100 1 year ago
Hello I Am 13 And My Mother Has Huntington's It Is Really Hard To See Her And Talk To Her ..... To Be Honist It Is A Slow Death That Is What I Hate About It ...... I Just Wont It To Get Better And Have A Cure For It ...... I wont That Dream To Come True ...
superbunny12100 1 year ago
this made me so emotional, i have a foster sister living with us because her mam has huntingtons, seeing her is so upsetting. What scares me most is the 50% chance...
i'm so sorry this has happened, you're a really brave person for sharig this.
stay strong and cherish your memories together xx
Downtownpatrol 1 year ago
may Gods blessings be unto you, your mind and soul.
Hankandthetanktops 1 year ago
Thank you for sharing this -- I feel such grief for you, for her, for humanity!
rdare2 1 year ago
Your mother was a truly beautiful person.
truthoutmedia 1 year ago
my dad has hd and he's 53 he was tested 10 yrs ago his dad died in 96 i got tested a few weeks ago and i've got the gene
BOBBERBOI07 1 year ago
I feel contempt for those that have compassion for all who are weak and sick,
I love the people of the past, I take care of the people of today responsible for the prolongation of the disease on the earth, you are responsible for pollution to humanity.
welwitcha2000 1 year ago
HD shows something called "anticipation", which means the future generations would have it worse and early on in their lives. In my opinion anyone who has HD in their family history should always get tested for the trinucleotide repeat mutation (the cause of HD) before the child is born. This will save teh family and that child from suffering. This is purely my opinion and a strong one at that, because i can't see people suffer like this, it breaks my heart! ur mum is an angel now, RIP!
nkhan4 1 year ago
My mother died on Mother's DAy in 1982 from HD. I am glad you could do this is her memory. I know how hard it is to watch your mother suffer from HD. Kudos to you my friend. I hope you don't have the mutated gene.
esbliss 1 year ago
I am 20, my mother is 52 and was diagnosed at 20. I am so scared that i have inherited it, i fid it very hard to be around her and i feel that i'm losing the time i have got with her, but because i am so scared of what the desease does to you, i just can't spend the time with her. I am very selfish to say that and i hate myself for it... i just can't bare to see my mother die infront of me, i have a 50% chance of be diagnosed with huntingtons and i am frightened, i will be getting myself checked
ashdino100 1 year ago
I just wiped tears away from my cheeks.
What a beautiful video. I am fortunate enough to never have been personally affected by HD, but I really do feel for everyone who has. Seeing this video once again reminded me of why I opted for a career in healthcare- all these arduous years of school will all be worth it if I can somehow make a difference.
All the best to you, and thank you once again for creating this. I'm sure your mother couldn't be more proud. :)
joogles87 1 year ago
I just wiped tears away from my cheeks.
What a beautiful video. I am fortunate enough to never have been personally affected by HD, but I really do feel for everyone who has. Seeing this video once again reminded me of why I opted for a career in healthcare- all these arduous years of school will all be worth it if I can somehow make a difference.
All the best to you, and thank you once again for creating this. I'm sure your mother couldn't be more proud. :)
joogles87 1 year ago
I just wiped tears away from my cheeks.
What a beautiful video. I am fortunate enough to never have been personally affected by HD, but I really do feel for everyone who has. Seeing this video once again reminded me of why I opted for a career in healthcare- all these arduous years of school will all be worth it if I can somehow make a difference.
All the best to you, and thank you once again for creating this. I'm sure your mother couldn't be more proud. :)
joogles87 1 year ago
This is a beautiful tribute to your mother and an education to us all. Thank you for sharing this. I hope you find peace in your heart.
TahliaMacFarlane 1 year ago
Thank you so much for this. I am struggling to write what im feeling at the moment. Im 18 years old and my mother has huntingtons disease. I love my mother so much and it just kills me inside to see what shes going through. Iv'e
kiwi1582 1 year ago
All THE HEALTHY ONES SHOULD BE THANKFUL! ALL YOU GUYS THAT SUFFER FROM THIS DISEASE BE STRONG! THE ONES THAT DIDN'T MAKE IT REST IN PEACE FINALLY :'( !!!
FieldOfGothness 1 year ago
good
FieldOfGothness 1 year ago
If I knew there was a 50/50 chance of me having Huntington's.. I wouldn't be able to take it. Sorry for your loss.. glad to hear you've tested negative :D
klsjafksjdfklsdfjkls 1 year ago
im so sorry for your loss. your video is really beautifull and i got tears in my eyes watching it. my stepdad has HD and he is what they call it in the last fase. not being able to eat by himself anymore. i know what you have been through and it is really heartbreaking! that urge to make a video/pictures, iv been having that lately to, and i guess i should listen to it and enjoy the time we still have. thank you so much for posting this! may there be a cure soon.
Lisetjeeh 1 year ago
i just wrote a paper on huntington's and believe me, ur video was very inspiring... i have no words to express the sadness of the disease.. i just pray for a cure to be found soon as more people are being diagnosed with this nasty disease.. you were very brave to put up this video, ur mother will always be proud of you!!! thanks for sharing it and god bless you...
lolila1625 1 year ago
I'm so so sorry for your loss. Your mother looks like she was a truly beautiful person...
mirandajulia24 1 year ago
soi colombiano en mi pais sta enfermedad dicen que es como una dinastia de el apellida echeveri propiamente la gente que tiene sta enfermedad son de un pueblo de la costa y todos son familia de generaciones de tantos anos
MrTheColombiano 1 year ago
@clickofdeath I was tested several years ago. Luckily I do not have the disease, but still it was a hard personal choice to be tested.
steviefreak69 1 year ago
I am so sorry. My husband, who is now 30, was diagnosed with huntington's 3 years ago.His mother passed from HD in 1996.
gumbyh20 1 year ago
@gumbyh20 beautiful video of your husband. I wish and pray for the best for the 2 of you on this journey. It's a daunting road to travel down. Keep positive.
steviefreak69 1 year ago
I'm sorry for your loss. No words will ever be able to sooth you, but just know that after death their is another life. Death is not the end of the road, it's just the beginning of another one.
Peace and love.
madeyes4u 1 year ago
Your video brought more tears to my eyes as my family and I are making the descion to put our 34 year old foster daughter in a nursming home. She has been a bright star in our lives, but we can no longer handle the emotional & physcial demands. We are keeping her 11 year old daughter as there is no other family involvement. They said it was too hard too watch. Someday there will be a cure. We are all praying for it. Thank your for sharing. Dawn
MsBug53 1 year ago
You have made a very lovely and lovin video about your mother who was a beautiful women struck by a bad genetic illness.
I wish you a lot of strength, thank you for making this video.
tusharip 1 year ago
Wow, such a sad video. I'm so sorry! I'm studying a bit about HD at university and I just wanted to see what it looks like and I had no idea! Such a beautiful video
MentalMindFork 1 year ago
More people need to undersand what HD is, I am raising money for the Huntingtons disease assosiation at the moment and nearly every person who gave money has asked me "what is it?" I will ask them to watch this video, I have lost both my mum and my Brother to HD.
ejc0616 1 year ago
@ejc0616 so sorry for your loss. HD is a horrible disease to watch our loved ones suffer through. Your bringing more awareness to it can only help the cause. I personally know how little people know of this disease...I myself had no clue to what it was or the devastation it could bring when learning of my mothers diagnosis. People would say to me "what's the big deal? We could all die tomorrow." not knowing a thing about horrible it truly is. I wish the best for you and your family.
steviefreak69 1 year ago
@ejc0616 i'm sad to hear that :( i hope to raise awareness too. It's true that not many people know what it is and it's about time that changed, yet people give money? strange isn't it.
Downtownpatrol 1 year ago
very sad
werfisha 1 year ago
Sometimes I forget that my grandma died this passed November and then it dawn on me that I'll never again feel her embrace. I'm so sorry about your mother and I hope someday there will be a cure for HD.
unicrazyperson 1 year ago 8
none of my family has this disease (thank god). but i am so sorry that the people who have this disease have to live through this. i am so sorry for the sons and daughters even grand kids that have to go through losing a loved one.
millicent1990 1 year ago
As i sat here watching your video and crying my heart out i can relate to you. My mother is in her 15 years of battling this disease. The medication she is on however has slowed her movements down but the disease is still eating her away. This awful disease has run in my mothers family as far back as we have been able to trace.i have battled cancer myself and im 35,I pray the good lord has skipped me with this disease. My thoughts and prayer are with you and remember your not alone
keeleyfleming88 1 year ago
@keeleyfleming88 I pray the good lord has skipped you as well and gives you the strength to make it through no matter what. My mother was the first that we know of that had it, although many people on her side of the family died young. It's tough watching our loved ones go through this, but, being there for them helps so much. My thoughts and prayers are with you as well...best of luck!
steviefreak69 1 year ago
Oh Dear, Im sorry, about your mother. My father has it right now. My family is getting tested. Have you been tested?
peaceisloveforus 1 year ago
@peaceisloveforus My thoughts and prayers go out to you and your family. Yes, I have been tested. I'm one of the lucky ones that has escaped this killer. Maybe one day in our lifetime there will either be a cure or at least medicine that cand truly help the symptoms.
steviefreak69 1 year ago
Thats great that you dont have it. I am 13 and may have it. They think i am showing symptoms od HD! My father is on a medican but it does not help. Its sad. going in piblic with him is a battle. He is laughed at. People take this disease the wrong way. I love this video. I play it all the time. Makes me cry. I hope they find a cure.
peaceisloveforus 1 year ago
I'm hoping that you find the strength to get through this no matter the out come. I hope you don't have HD and wish the best for you. I understand how you feel about going in public with your dad. People would always stare and snicker at my mother too. One lady even asked if she was retarded...I said "No. But you are for asking such a question!" I learned to ignore the stares and the comments. People are always curious about what they don't know. God bless and Good luck.
steviefreak69 1 year ago
thanks you. You made my day. I turn away when i get hose rude comments. This morning we took my dad Ice fishing (his favorite thing to do) everyone laughed at him. they were saying he was stupid, a retard. I was like yah thats my dad, I love him NO MATTER WHAT! My dad caught a fish he calls the Hannah Fish, the 1st fish i ever caught while ice fishing! Hes my dad eaither way I love him, for ever and ever! When hes gone im going ot fight! fight till we find a cure! HD is always on my mind!
peaceisloveforus 1 year ago
i am so srry
Margaret5313 1 year ago
TY for sharing. She was a beautiful person
julyprncssleo 1 year ago
man... when i was 8 years old, i was watching Red Dawn with my dad, and he started coughing up blood and crying, and seconds later he died... The Doctors didn't know what was wrong with him, but they think he had limphoma
sickoguy813 1 year ago
What a beautiful homage to your mother. Thank you for posting this.
nynaeveceleste 2 years ago 10
thank u for sharing! i wish all the best for u and ur family! with love from Budapest, Hungary!
bogus2004 2 years ago
My father inherited the hungtinton's disease as well. I know how u feel.
ultragarrison 2 years ago
Thank you for you nice film and i feel bad for you and your mom IM SORRY! Im just happy that she said ILY to you even though it took her long tim e to say it! i hope you get respect and for 2010 be safe and god bless you!
BeatboxingBoldo 2 years ago
I was tested for Huntington's- thankfully it was negative. On some levels, I cannot relate. On some of your mother's I can. And I happen to be a mother, struggling with a movement disorder that is progressive. I find what you did for your mother here, beautiful. So, thank you.
bennasdwarf 2 years ago
i am currently at risk for this terrible disease, it just really hurts me to know that if i get it ill never be able to live a full and have a family, but i have come to terms with it and even though its its extremly hard i just try to keep living the best i can, and know what you went though, i went though the same thing with my mom, god bless you and stay strong
"only when you have nothing to live for is when youll live for everything"
i started showing sypmtoms 1 month ago
gbh2157 2 years ago
im so glad for you that you got to hear your mum speak those 3 magical little words to you even if it took her a life time to say them. sometimes its just to painful to show your true colours. stay strong and god bless you and your family and may 2010 bring you some peace and joy.
braveharty 2 years ago
Thank you for posting this.
I'm currently watching my mum go through this, and have to start the testing procedure when I'm old enough in March. You're right that you have to look at it positiviely, or else it'll just become too much.
The video footage brought me to tears instantly, but I feel better having watched it.
"Never be afraid to let your true colours show."
MrLordoftheringlets 2 years ago
thankyou for sharing your touching film, i sadly lost my dad to HD, and some of my other close family,
take care
xx
stargazermedia 2 years ago
I share the sadness with all those who lost their beloved because of HD. We must remember that our life is in the hand of God ,he knows when, where and how we will die and nobody can change this, so we must make good relationship with God ,and have peace with him.
nonocat76 2 years ago
THANX for posting your video, although some people can't appreciate the fact that you want to celebrate your Mom's short but love filled life, I can and do! Ignore the ignorance is all I can say!! I too lost a parent to Huntingtons Chorea, my Father at age 58. And I too, found myself being guardian & trustee for him at about 24yrs old. Facing the 50% chance of becoming ill with this disease myself. So to those who make RUDE remarks...you have no idea....so just SHUT THE *$#@-UP!!
monabear1 2 years ago 2
Huntington's Disease ruins lives
Huntington's Disease stole my childhood.
At 22 years old i was my mothers legal guardian.
Huntington's Disease is a killer there currently is no cure.
I watched my mother slowly die, a painfull
sometimes humiliating, death, For years.
KhabulKhan 2 years ago
Huntington's Disease in some strange ways brought us closer
i can't recall hearing my mother say i love you, until near the end of her life.
she was never able to show her true colors until ravaged by this disease
This is a video made shortly after her death.
The video and photos show how this disease slowly tears down its victims
never be afraid to let your true colors show
KhabulKhan 2 years ago
Thank you for posting this. My mother died at the age of 42 from huntingdons, and we also lost her one brother, two sisters and father from the disease.
There are times when you feel so hopeless that you wonder what's the point, but I will always remember the time I did have with my mother, and enjoy my life as much as possible before the disease progresses.
It is a sad, sad illness, and this video brings me to tears reminding me of my mother, but we all need hope.
eeyore24uk 2 years ago
Thank you for sharing this. I'm really sorry for you and all the people who have to see someone they love going thru something like this. My thoughts go out to you and your family,
taggg84 2 years ago
thank you for spreading knowledge about this terrible disease to me and so many others. my heart goes out to you and your family, and i pray that mine never has to go through what yours has.
bjcworth 2 years ago
I am so sorry for your loss, my mum is slowly loosing her battle with hd, I just hope that one day soon, they will find a cure for this awful illness.
his299 2 years ago
what a beautifull video. I think is great that you honor your mother in this way.. I never quit understood what HD was.. But now I do.. thank you for the lesson
razorbladekiss100 2 years ago
Beautiful
Thank You!
happynurse63 2 years ago
What can we say to each other to make this suffering bearable? WE ONLY can understand the depth of strength, power, heart, patience and courage needed to see our loved ones suffer. Or ourselves. The only thing is too be strong for another day and the day next. And hope for a cure someday. So don't give up guys. I know I won't. I love you all with a love that binds us all and I pray for its and everyone of you every night.
Zoi from Greece
zfot66 2 years ago
My dear I 'm really sorry for your loss. My mother is in the last stage and I know exactly how you feel. But try to think that for both of you the worst part is behind you. She is happy now somewhere else. I have to admitt that I cried seeing your mummy. She reminds me so much of my mom. The way their eyes look at you is devistating. Take care now and ove her with all your heart.
zfot66 2 years ago
I just cried so much because I can relate to this video, i'm 20 years old and my mom just got diagnosed a year ago, my aunt is suffering with it and all of my uncles on her side have died from it , I'm terrified for her, my aunt as well as me and my brother. Just feel so helpless.
serenaxo 2 years ago
There is a course and reason for everything. Seeing and understanding that course isn't always easy. I completely understand how facing this disease within yourself and loved ones can make you feel helpless, believe me I've been there, but, PLEASE, try and keep yourself positive and make the most out of every situation. My thoughts and prayers go out to you and your family.
steviefreak69 2 years ago
What reason? There is NO reason for this........NONE.....Stop mwith all your fucking bullshit...Trying to puit a nice spin on a HORRIBLE DEATH........FUCK YOU
WannaTalk2GOD2 2 years ago
You tell me to F-Off because I try and stay positive in the light of horrible circumstances? I've never tried to make light of or put a positive spin on HD. There is none! Anyone going through it knows that! Do I wish HD/cancer/disease didnt exist? YES!!! But, it does and I've crawled through it's fire and learned more about myself and the people around me than I would have otherwise! I hate HD, but, I must stay positive for my own mental and physical health. Don't hate on me for that.
steviefreak69 2 years ago
i am sorry for the loss of your mother...
well i was learning this for biology and i was curious about it, and this is such a horrible disease...
i hope you will not suffer the same fate as your mom.
x.
OmiBeckett 2 years ago
Stay Positive? Are you crazy?.My 17-yr old Daughter may have this shit.......How or WHY should I stay Positive?.What fucking for? Be real man.......I really wonder if I should just take her out....Then Myself......That would be more humanew
WannaTalk2GOD2 2 years ago
Are you going to troll every Huntington's disease video, saying how you want your daughter to die rather than have her live with Huntington's? Not only is it highly illegal to even speak of this, but this is also a choice she should make for herself. You could be charged with first-degree murder if you take matters into your own hands. And even if she does carry the gene for Huntington's, she may be asymptomatic, but you'll never find that out if you kill her. Think about it.
29573428937 2 years ago
that was beautiful.
what a perfect song...
sarahrmt 2 years ago
I am sorry about your mother. My father has HD and my whole family on his side has HD . I have to say though Huntington's is very depressing yes. However you can still live a full life . vaule life and the people you love every day HD can not take that away.
misswishstorm 2 years ago
You are so correct...that is one of the biggest things that I've learned from this disease. Now, I never go a day without saying I love you to my family.
steviefreak69 2 years ago
This made me cry and i have not cryed like this in years. I try to put this whole thing in the back of my head and not worry about it but i cant. But when I saw your mum with your child. That reminded me of when I use to take my oldest daughter to see my mum in the nursing home. My daughter was only 1yr at the time. But anyhow I just wanted to say what a great job you did.
widthing1125 2 years ago
I've just found out at 17 years old that my real father had a high chance of having this and that it's likely he passed it onto me. I want th test, i want ot know what my future will be like. I need to know. yet my parents believe i'm not ready and legally i have to wait till i'm 18. this really touched me and strengthened my choice to find out how my future will pan out. thank you for posting this x
kymmathy 2 years ago
There are medican out there. They arent that expecive. They come from New Zealand. They do work! They help soo much! My grandfather dies from huntingtons, so did my great grand father. The doctors told us to get his grave stone and set all of the arangements because he could just drop. Its a sad sad thing. Im sorry for your loss.
peaceisloveforus 2 years ago
I love this video so much! My dad has hintingtons. Its a terriblw thing! I am 12 years old. They think I have it. I dont want to because that would mean no football. My dad went on a hunting trip last night and shot his truck. He cant drive because he got his license taken away! He doesnt want it back either! He cant do his favortie activety anymore, Hunting. We own a hunting Club and Its sad because he cant hunt! He cant trap. Or go Ice fishing! Now if I have it No football! There are meds!
peaceisloveforus 2 years ago
My dad was just told he has this and my grandma die from this i was told that i most likely will end up having this and i watched my grandmother die from it and sadly i might have to watch my dad suffer through it as well...
karsoccerbug1 2 years ago
This truly touched my heart. My heart goes out to you and your family. I currently work at a nursing home facility with residents who have HD and it has truly made me see things in a different light. Some of my residents are not even able to tell the staff what they want or the pain they are feeling. I've never worked with HD patients before and this has completely changed me.
AirmanChim 2 years ago
we need more health care providers like you who are moved by the plight of their patients. Thank you for all of your hard work!
steviefreak69 2 years ago
wow this is such a gd video about hunintons diease i work in a home with poeple wid this horrible wicked diease and this video brought me 2 tears and has opened my eyes a little more im sorry for ur loss but this is a gd video that highlights a normal life then u see the huntingtons kicin in and then the video very nicely put 2gether which must of been hard for u 2 do xxxx
thesimonerussell 2 years ago
Thank you and thank you for the work you do with those afflicted by this horrible disease!
steviefreak69 2 years ago
Wow . . My mum has huntingtons too and this just brought tears to my eyes because I'm going through it with my mum. She's steadily deteriorating and that probably has to be the worst feeling I've ever felt because there is nothing I can do.
SumthinMstBAvailable 2 years ago
my aunt died of it and i begged god to help her. i feel like shit because i was so fucking helpless. my mother and grandmother fucking did so much and for what? i have lost all hope in people, and i feel so hopeless i just want to fucking scream. the last thing my aunt amber wanted to do was just ride a fucking bike and she couldn't even get on it. i want this fucking monster dead. it robs them of everything. i watched it my whole life. its like watching someone you love being raped over andover
chadinterrupted 2 years ago