The doctor/professor, who taught us about diseases in Paramedic School, said most people don't want to see people at their worst.
We saw a patient with late-stage ovarian cancer, and half the class disappeared. I didn't only b/c I'd already seen stuff like that and worse as an EMT in Los Angeles.
It showed us who can be a paramedic and who couldn't, anyway.
This is one of the best most impacting videos I've seen in a long time! You really drive your points home. People don't understand how difficult and frustrating it is to lose the ability to talk and walk. I feel your pain. You're not alone. I started to make videos for this very reason.
very interesting thoughts. I have a rather mild or medium case and I fear that people at work would not judge righteously. if they study the wrong material, they could come to wrong conclusions. so I try to talk to my best friends first, and rather the important people, but not with everybody. if I had no job anymore it would be different, I think :) Mike God bless!!!!!!!
hi paul, the polio thing has had me wondering for some time, i read somewere that after the vaccine, was given in 60's they didnt call it polio, they then called it ME, dates could be wronge as fog is bad today, and the symptoms for post polio syndrome are very simlar to ME, think we should all be aware of the hisory, good video, : )
This is my biggest complaint. Even the news articles will only show someone who has it very mild and can still work part time. And I keep saying, show the worst cases. Show the ones who are bedridden and housebound.
@Carrigon They also need to show them at their worse, not when they are reasonably ok. Search for PreoccupiedPorcupine on Youtube, this a carers diary of a young woman who has had severe M.E. for 15 years, she is only 20 years old. Her story and others like hers need to be told,as well as those moderately affected, who also need to be portrayed at their worse.
@kaazoom I didn't know about Tara, thanks for giving me the name. I've watched her videos. It's just so awful that people in the medical industry can see her like that and still deny her proper medical care.
Nor do I my friend............I know exactly what you r saying and I see your vision. Hey one question, do you notice your symtoms to be worse with weather changes, such as temps and rain/snow? Cause I have a friends who do and I do too........we r on our third cool rainy day here, so I thought I'd ask ya. U r looking well btw.
i am not sure about how the weather affects me. This is where keeping a diary would help. I have never been good at keeping diaries! We have had some lovely sunny days here. Fortunately I am not light sensitve, so I have spent quiite a bit of time outside in the garden. Being outside and enjoying the sun and fresh air has lifted my spirit, even if my body and brain aren't working too good!
It's good you and others are doing this. It's a shame none of the major ME/CFS are doing this. People need to see the range of symptoms this illness causes.
I would try and get as many good clips of people with ME from YouTube ( with their permission) and edit them into one video about ME. I just don't have the technical skills, or the concentration needed to do it.
The doctor/professor, who taught us about diseases in Paramedic School, said most people don't want to see people at their worst.
We saw a patient with late-stage ovarian cancer, and half the class disappeared. I didn't only b/c I'd already seen stuff like that and worse as an EMT in Los Angeles.
It showed us who can be a paramedic and who couldn't, anyway.
vickiormindyb 1 year ago
This is one of the best most impacting videos I've seen in a long time! You really drive your points home. People don't understand how difficult and frustrating it is to lose the ability to talk and walk. I feel your pain. You're not alone. I started to make videos for this very reason.
rebco77 1 year ago
FallaciesDetective 1 year ago
Great video and so true.
thx1138mindlock 1 year ago
hi paul, the polio thing has had me wondering for some time, i read somewere that after the vaccine, was given in 60's they didnt call it polio, they then called it ME, dates could be wronge as fog is bad today, and the symptoms for post polio syndrome are very simlar to ME, think we should all be aware of the hisory, good video, : )
theonlyfluffyone 1 year ago
This is my biggest complaint. Even the news articles will only show someone who has it very mild and can still work part time. And I keep saying, show the worst cases. Show the ones who are bedridden and housebound.
Carrigon 1 year ago
@Carrigon They also need to show them at their worse, not when they are reasonably ok. Search for PreoccupiedPorcupine on Youtube, this a carers diary of a young woman who has had severe M.E. for 15 years, she is only 20 years old. Her story and others like hers need to be told,as well as those moderately affected, who also need to be portrayed at their worse.
kaazoom 1 year ago
@kaazoom I didn't know about Tara, thanks for giving me the name. I've watched her videos. It's just so awful that people in the medical industry can see her like that and still deny her proper medical care.
Carrigon 1 year ago
That helps me alot too!
ironbith 1 year ago
Nor do I my friend............I know exactly what you r saying and I see your vision. Hey one question, do you notice your symtoms to be worse with weather changes, such as temps and rain/snow? Cause I have a friends who do and I do too........we r on our third cool rainy day here, so I thought I'd ask ya. U r looking well btw.
ironbith 1 year ago
i am not sure about how the weather affects me. This is where keeping a diary would help. I have never been good at keeping diaries! We have had some lovely sunny days here. Fortunately I am not light sensitve, so I have spent quiite a bit of time outside in the garden. Being outside and enjoying the sun and fresh air has lifted my spirit, even if my body and brain aren't working too good!
kaazoom 1 year ago
@ironbith The weather definately affects me!
BritishSnail 1 year ago
I used to hide alot more than i do now, I try to make videos when I am both doing good and made.
ironbith 1 year ago
It's good you and others are doing this. It's a shame none of the major ME/CFS are doing this. People need to see the range of symptoms this illness causes.
I would try and get as many good clips of people with ME from YouTube ( with their permission) and edit them into one video about ME. I just don't have the technical skills, or the concentration needed to do it.
kaazoom 1 year ago
Don't seem to be able to comment in normal way, so am trying as a reply.
sly1958 1 year ago