Arm / chin/ neck tremors

[KParkerFlores]

Propanolol and Inderal are the same medication. One is the brand name and the other is the generic form. I have the head tremors pretty bad and the meds practically stop it. It started with hand tremors when I was 21 and progressively got worse. I work a job where it's not so noticeable and doesn't cause the tremors. Wine or alcohol really help when one has a 'social' setting that is causing more tremors, but the next day has a brief rebound effect. See a doctor if you can... take care :)

[KParkerFlores]

You may have Essential Tremor, the most common movement disorder. Some people have this from 6 years old, so don't feel 'old'. Medications that are extremely helpful are Inderal and Clonezepam. Together these will control most of the tremors and frequency of tremors. If you have Essential Tremor, it tends to worsen as time goes on... If it's really bad and interferes with daily life, there is a surgery called Deep Brain Stimulation (DBS), which will basically completely stop the tremors.

[captc5757]

Hello, first off, hang in there, you're not alone. I take Propranolol once a day and it works for me.

[debwebrox]

You are a beautiful young woman and you are not alone. I have essential tremor in my neck, tongue, chin, hand, and diapram on the right side of my body. Our condition might not be quite the same, but the effects on our quality of life can be devastating. You keep your chin up, even if it tremors. Mine does, too.

[missesnadine86]

I have exactly the same thing with my moulth and my arm whe i get nervous or something or just tiered..i have epilespie but i am always tiered and the tens arm your are talking about it hurts everyday ..i can't even sleep go's of my arm i need to lay on my arm to controle the shaking even my breathing is weird...

good luck to you hope they will figure out what you got ..the doctor's aren't doinbg much for me either.

[kelly19832010]

Hi hunny, I have all the symptoms you have I know exactly how you feel...horrible disease :( Just stay positive thats what im doing xx

[zubery]

thank you for sharing these...I'm a student and seeing this means so much more than reading it in a book...and I think you're very brave and intelligent to put yourself out there to investigate what's going on..

[kodifurr]

I have a head and neck tremor that affects me a lot when I play trumpet, so I'm quitting soon. I wish there was help out there.:/

[00whateverlike00]

Do the tremors have anything to do with social situations? Because i have head and neck tremors when i get nervous around people.

[bill9808]

Hi,

Have looked into taking/investigating LDN? Just food for thought

Bill

[gphx]

I've had periods where my shoulder jerked. An mser on Youtube showed me these are called myoclonic jerks. Lately my left eye blinks on its own too. Actually the lid kind of flutters. I'm lucky it doesn't yet shut and interfere with vision. I hope you're doing better now.

[eclipsedeyes]

hi diamonde00 - I was diagnosed with MS before these symptoms developed, (I had diplopia [double vision] and optic neuritis as well as some sensory symptoms) - I hope you find an answer too! I was under the impression these are atypical for MS but I've met a few other people with similar symptoms. Also some physiotherapy for a stiff spine has alleviated them to some extent - it's worth a try!

[diamonde00]

Hi did you find an answer? I have exactly the same symtpoms and am awaiting an apt with a neuro.... have a normal MRI.... thought my symptoms were more like MS.... but don't know if its that, parkinsons or something else.... Thanks!

[yngwierhoads1989]

parkisons?

[gphx]

Thanks so much for sharing. I hope you're doing well.

[Oozingmachismo24]

that really looks like a resting tremor

[hrreidable]

I too have similar symptoms. I have tremors in my hands and neck and chin on occasion. They seem to happen more often when I'm tired or depending on the temp. I was recently diagnosed with Essential Tremors and occasionally have symptoms of Parkinson's as well. The Neurologist I went to see didn't really taken my symptoms seriously so I am going for a second opinion so hopefully I will know something soon.

[Vivvi1975]

God! Your tremors look just like the ones I'm having! After seeing doctor's (3 GP's and 1 Neurologist) not willing to take my symtoms seriously, blaming my ADD, I finally found one of the best Neurologists in my country, who were interested in finding out what's wrong with me. Suspicions of MS, Parinsonism, epilepsy have been ruled out. Now, it comes down to some form of Ataxia or Essential Tremor (possibly Generalised Dystonia). I'll find out more @ the next appointment, in 3 wks.

[eclipsedeyes]

Really?

Now my neuro thinks that maybe this is all related to my stiff spine and residual damage from a lesion, because all my MS lesions are now gone but the tremors remain. I have to see a physiotherapist or osteopath to see if it can be fixed that way. apparently the stiff spine may be irritating the nerves as they exit my spine?

[eclipsedeyes]

Yes I do have involuntary blinking of my left eye and also my shoulder jerks and my left hand cramps up. I am not sure if these are seizures but they are quite painful.

I hope we both get some answers!

[loshassoles]

I know the symtoms but how did it started?

[eclipsedeyes]

I do drink coffee, but my neurological problems are not as a result of caffeine, I have MS. What medicine do the doctors give you? You should ask them why it's happening.

[picturingtheworld]

I have experienced problems similair but more muscle twitches spasms everywhere on a smaller scale. The doctors don't tell me why just give me medicine. I am quitting coffee and all stimulants like coke and green tea. I think it's helping. Do you drink coffee?

[loshassoles]

what were you doing before this? had you had an accident? did you have a medical history before? go to a fellow neurologist.

[eclipsedeyes]

I have multiple sclerosis.

[missalgernon]

Hi. Thanks for your videos, Im trying to pluck up the corage to amek one myself... I have a similar story I suppose. i do have twitches in my chin and eyelid every now and then, and my hand when im really stressed. Nothing too lasting though. Its all very scary I know. But it seems like an amazing support community here on youtube. Good luck, i hope you have some good days again soon.! Amanda.

[eclipsedeyes]

You should do a video! It's not scary. I'm the shyest person on earth :) Really, you have twitches in your chin? I've never heard about that in anyone else! Do they look the same?

[missalgernon]

The chin twitches havent happened for a while, its not nearly as strong as yours. just a tiny muscle on one side that I can feel going silly occasionally. My main symptom when I was diagnosed was half my face was paralysed (thank goodness the roids worked for that one!) so I think its probably a leftover from that. Anyhoo. Im going to seriously consider making that vido today. I will at the least upload a silly practice one I made... I think...!

[irishbear76]

I have not had repeated jerking like that.

I have had transient clonus and jerking when I am exacerbating and my neuro can invoke it with a tuning fork.

Kerri was having repeated myoclonal jerks in one of her videos so it is probably not too uncommon.

This seems to be really involving your facial nerves and upper extremities so I would petter pounds to pickles that is the area in your brain getting inflammation.

I hope this resolves soon.

Talk to Kerri about it. I bet she can help.

Peace.

[eclipsedeyes]

Thanks Irish Bear for your reply. It's weird because all my brain MRIs show up with very little lesion activity (all the visible lesions are on my spinal cord). I guess that must be changing a bit now, this definitely seems to be associated with midbrain/brainstem stuff. Oh well. I am improving quite a bit now, if I redid this video you'd barely notice the hand tremor and the chin tremor is not there at all. I have been taking it easy, it just seems to come back when I'm tired. Anyway, good news

[kezzcass]

Hi - yes - I understand exactly what you are saying. I haven't put too much visual example on my videos so you can't really tell. I will write to you in more detail. I have tried 4 different medications now (it's been 5 months) and I am just now starting to have some relief. I know it is scary and the sense of being 'old before your time.' Not fair. Anyway will send message soon. Kerri xo

[eclipsedeyes]

Sorry for the delay in replying, I've been ridiculously busy at work. Taking a "mental health day" today. Thanks for the long reply as well, it seems like you have a lot of similar symptoms to me, even if they do manifest slightly differently. Sorry again to hear about your new relapse.

[eclipsedeyes]

Since I've been on steroids my tremors have started to improve, today I really haven't felt very strange at all - hurrah! It's good to know there are other drug options if they come back (although the side effects sound nasty)

[kezzcass]

That is great news. I hope you continue to improve completely. :-)