Been suffering with Lupus and Fibromyalgia for 18 yrs.. Lost my Mom, sister& nephew to this dreadful disease lupus! But...Keep the faith; Hebrews 11:1 for God will not leave nor forsake us; Hebrews 13:5 With HIS help I manage day to day. Praise Jesus! It isn't easy living this way but when you have faith, you can move mountains...Stay strong.. This was such a wonderful gesture that u did for your friend, I commend you grandly...
i feel for all that have lupus, my twin sister died 6 weeks ago because of lupus at the young age of 29. she leaves behind a 2 year old and 6 year old. she was a fighter till the end, she never let lupus overcome her, sometimes its just not up to us. its a terrible disease, we saw her struggle with it for 16 years. RIP Michelle love you forever and will never forget you......
Well I had dermatitis(i know its not like lupus) but now I'm fine I was using hemp oil everyday it really helped and if you guys ask me what's the best cure its hemp oil. It doesnt cure just skin diseases it cures whole body(reinforces your immune system) that's why I would recommend that oil. and never give up guys. wish you all good luck!
I'm 17 years old. & I was just diagnosed with Lupus this week. After being in pain for years.. Now I'll start treatments.. :| I don't really know what to expect. I'm pretty scared of what's to come..
To those with lupus, like my girlfriend Elise, I love you all and I pray for you all the time. Please know that there are some people in this world who understand what your going through and we want to be there for you all time. My girlfriend was diagnosed when she was 16 and is 20 now. She gets worse every day. I have stuck with her though from the begining and I hope the ret of you have that one special person who will hug you, love you and listen to your every complaint and sorrow.
Thanks, that is so beautiful. I'm 48 and fighting. You younger ones hang in there. Don't take your remissions for granted. Enjoy and taste every good moment you can with a big smile!
I was diagnosed when I was 13 and now I'm 16. I try to educate people around me about lupus. But it is tough at times. I will be going to college to become a person in search for the cure of lupus.
It's amazing how strong all of you can be. Please subscribe to "care4autoimmunity" channel and add us as a friend. Help us help you and others like you with Lupus and other autoimmune diseases. We WILL be there for YOU!
Join us at Fashion for Lupus and other autoimmune diseases on October 3rd at UCIrvine's Pacific Ballroom.
Lupus is like being in a boxing ring with yourself. Your immune system is your enemy. I know for myself I had to come to terms with the fact that I had this nasty monster before I could begin to fight back. And I will not go down without a fight!!!!! I hope for all of you that have this Monster called LUPUS Please dont give up!!!!!!
i thought the video was beautiful. it made me a little teary eyed. the song fits perfect for lupus. i love that song and often think of it as my secret theme song. i was 15 when i was diagnosed and im now 17. lifes been tuff, more than tuff at times, but i've learned that no matter how much i suffer there are others out there and i'm not alone, and that helps me get thru. though ive never met anyone else with lupus, id like to talk with someone about there times with it.
Thank you for this... I have SLE and my life has dramatically changed over this past year - in many negative ways, of course. This is beautiful - it made me teary-eyed & a bit sad, but also encouraged to keep going.
I love this video and the song! I have been a Lupus Warrior for over 15 years! Everyday is a battle but what helps it to remain positive and pray for a cure. There hasn't been a new drug for Lupus in 50 years! That's entirely too long. Great Video! LovelyJessie.
It's an autoimmune disease,that attacks the immune system. Complications include arthritis(inflammation of the joints),organ involvement,hair loss,and a characteristic skin rash called a mallar or butterfly rash(which,covers the bridge of the nose,and cheeks)
I was diagnosed with Lupus and sjogren's syndrome 2 yrs ago.
I started getting sick back in 2000/2001.
It was a hard thing to go through,going to countless doctors,and having doctors looking at me like a hypochondriac. I finally found a doctor who listened to me,and found out what was wrong. Lupus sucks,but I am a strong woman
Hola a todos Mariposas, yo lo tengo desde abril del 2007 a los 24 años de edad, sufri mucho y es que demasiado pero he sabidoencontrar fortaleza y aunque a veces me siento que voy a morir trato de vivir con el dia a dia y no pensar en esto que me hace sufrir sigo con todos mis tratamientos y por ellos me siento mejor. apoyemonos es la unica forma de volar mariposas!!!!
I understand what your trying to do with the video. But honestly the title offended me. Greatly. I've been dealing with Lupus and JRA for 8 years. And I've found nothing 'beautiful' about it.
I know there's nothing "beautiful" about it. I've my bad days, as we all, too. The beautiful thing about is this is the fact that dawnkytty made this video for her friend Mica and for us all. I don't feel offended. I'm only thankful that someone can feel the love for her friend and shows empathy and made the effort to spread awareness for Lupus this way.
hey my names amanda and last month i was diagnosed with lupus but i havnt gotten the butterfly rash yet... my mom has lupus too so i guess its genetic but im really scared is there something i can do. im alwas tired and my jonts in my hands hurt alot. please tell me whats going on cause my mom doesnt like to talk about it but i need answers.
Hi I have had Lupus for about 10 years now and it is not neccessarily true that you will get the butterfly rash becuause I never did but I did get large lesions on my arms and cheeks when I was in the sun. Very photosensitive to light. Just get a R/A dr and you will be very tired. Get your vitamin D levels checked also that helps with the fatigue but just take it easy and if you ever want to chat I am here. ~ Angela
I was recently diagnosed with Juvenile Rheumatoid Arthritis (I'm 14) and even though this is about lupus, it really has a lot of similarities with JRA, atleast with emotions. I really enjoyed watching this video, and it made me smile. I appreciate it a lot. Keep fighting; stay strong.
Bandie, I was 15 when I was almost diagnosed with JRA and when they did blood work and more testing, they saw that it was Lupus. I know it's very similar. It all sucks, but we can make it not suck :oP
my mom was diagnosed with lupus at age 11. it was very rare back then and they couldn't treat her as good a they could now. she left behind two daughters, a son and a husband. she died 10 minutes after i was born.
I cried. I was diagnosed with Systemic Lupus 9monhts ago. I was sick for a year before and had heart sugery before I was diagnosed. I went through depression cause of it. No I am accepting it however there are days I am so much pain I dont want to get of bed and even if I wanted to, its impossible. Everyday is fight.
"STAND WHEN ALL YOU WANT TO DO IS LAY DOWN AND GIVE UP. FIGHT" Is great advice canadianmuslimnproud.
I got dx at age 22...almost died and now I am 32 and was able to get pregnante before getting dx thank GOD! My kitchen looks like a pharmacy, I dont have an option then to take my meds! Until someone finds a cure!
I was diagnosed with discoid lupus and systemic lupus when I was 18 there have been times when I couldn't even get out of bed as the pain was so bad - 10 years ago the Dr's said I would be on medication for life but here I am now taking no medication at all and feel great -think positive thoughts and do not give in to it...lovely video
fresh air exercise positive thinking and try to have a laugh-I look around me and think things could be worse. I am back on plaquenil but that is all, chin up Brittany
i am 14 years old. I was diagnosed febuary 27th 2006. I was 12 at the time. I went through 7 months of chemo. after spending 6 months on pred 60mg! and i.v steroids also.I found it soo hard.No1 knows what we go through.Everyone who has it leave a message on my page i am going to make a video.We could all make a page about lupus and each of us write about our experiences! i h8 it. It realy has runind my life. But i am a fighter and i have come this far. everyone u r not alone. XxX
I understand Peteysofine. I have sle with antiphospholipid syndrome. I had dvt and pe in 2001 with it and am now in a flare also. I was on long-term prednisone. Evil stuff. Keep your head up, you're not alone and if you ever need someone, I'm here :-)
I have Systemic Lupus. I rode through the chemo treatments for a few years and the solu medrol in 1,000 mgs i.v. once per month for years. I'm back in a flare and needing to reach out to others with lupus. The music inspires me. I get so angry that people aren't informed enough about what we go through. I dream of a day when it's common knowledge. That way, people don't attack me when I park with my handicapp placard in a handicapp space anymore..
I've had 4 pulmonary emboli and an aracna hemorage in my brain, and am on my second round with the kidney battle, they told me recently my heart is enlarged now ,as is my liver.That's o.k. because I AM STRONGER THAN LUPUS!!!I was diagnosed 7 years ago,and I'm still here.My husband was diagnosed 16 years ago and he's also still here.Listen to your body and get a Dr. that believes you when you hurt, even with no reason, do the DAMN BAD treatments and you'll survive too.Scream to be heard!!!I DID!!
AND THE MOST IMPORTANT THING I CAN SAY IS LAUGH WHEN ALL YOU WANT TO DO IS SCREAM. STAND WHEN ALL YOU WANT TO DO IS LAY DOWN AND GIVE UP. FIGHT , BECAUSE THE OTHER OPTION IS NOT ACEPTALBE!!! I have 3 beautiful children and they have 2 parents with Lupus , I can NEVER give up . What kind of example would we be to them, because they'll probly have Lupus,too. WE FIGHT DAILY FOR THEM.
Thanks for this video. =)I know what it's like to have Lupus as well. I just finished my last Chemo treatment yesterday. I have SLE lupus and it did get to my kidneys because i had a doctor that did not listen to me. But I went to a new place and I couldn't ask for better treatment.
Been suffering with Lupus and Fibromyalgia for 18 yrs.. Lost my Mom, sister& nephew to this dreadful disease lupus! But...Keep the faith; Hebrews 11:1 for God will not leave nor forsake us; Hebrews 13:5 With HIS help I manage day to day. Praise Jesus! It isn't easy living this way but when you have faith, you can move mountains...Stay strong.. This was such a wonderful gesture that u did for your friend, I commend you grandly...
LaLadyDJ 9 months ago
i feel for all that have lupus, my twin sister died 6 weeks ago because of lupus at the young age of 29. she leaves behind a 2 year old and 6 year old. she was a fighter till the end, she never let lupus overcome her, sometimes its just not up to us. its a terrible disease, we saw her struggle with it for 16 years. RIP Michelle love you forever and will never forget you......
meagan2797 11 months ago
i also have lupus.. i was working then and after i was diagnose i left my work..
self pitting for a month and last dec. i decided to go back to work =)
mhariesz0291 1 year ago
Well I had dermatitis(i know its not like lupus) but now I'm fine I was using hemp oil everyday it really helped and if you guys ask me what's the best cure its hemp oil. It doesnt cure just skin diseases it cures whole body(reinforces your immune system) that's why I would recommend that oil. and never give up guys. wish you all good luck!
MrGreen134 1 year ago
I'm 17 years old. & I was just diagnosed with Lupus this week. After being in pain for years.. Now I'll start treatments.. :| I don't really know what to expect. I'm pretty scared of what's to come..
xEmoHardcoreGirlx 1 year ago
andrewwhfifg
FlashayGirlz 1 year ago
I am 18 and have been battled being in and out of the hospital since I was 14. I just got diagnosed with Lupus today.
apriljjohnston 1 year ago
To those with lupus, like my girlfriend Elise, I love you all and I pray for you all the time. Please know that there are some people in this world who understand what your going through and we want to be there for you all time. My girlfriend was diagnosed when she was 16 and is 20 now. She gets worse every day. I have stuck with her though from the begining and I hope the ret of you have that one special person who will hug you, love you and listen to your every complaint and sorrow.
Promthanius 1 year ago
Thanks, that is so beautiful. I'm 48 and fighting. You younger ones hang in there. Don't take your remissions for granted. Enjoy and taste every good moment you can with a big smile!
MegaJosephine88 1 year ago
it's not lupus! 83
XhellokittysceneX 1 year ago
I have lupus too. I', posting a video response but the music is the wrong one. see it and you'll understand...
israeleet 2 years ago
I was diagnosed when I was 13 and now I'm 16. I try to educate people around me about lupus. But it is tough at times. I will be going to college to become a person in search for the cure of lupus.
mathwiz2000 2 years ago 8
@mathwiz2000 in the mean time do as much research as you can online and good luck
always look and read left and right
dont eat night shade fruits or veggies-. watch your diet and learn dos and donts
poosaypirate 2 years ago
@mathwiz2000 i also have lupus i was diagnose last year ...
so sad..
mhariesz0291 1 year ago
R.I.P., Sarah Marie Tiger.
She was 17 and she died October 30th, 2009.
She had Lupus, and died from an illness.
DigitalWish 2 years ago
Hi all,
It's amazing how strong all of you can be. Please subscribe to "care4autoimmunity" channel and add us as a friend. Help us help you and others like you with Lupus and other autoimmune diseases. We WILL be there for YOU!
Join us at Fashion for Lupus and other autoimmune diseases on October 3rd at UCIrvine's Pacific Ballroom.
care4autoimmunity 2 years ago
Lupus is like being in a boxing ring with yourself. Your immune system is your enemy. I know for myself I had to come to terms with the fact that I had this nasty monster before I could begin to fight back. And I will not go down without a fight!!!!! I hope for all of you that have this Monster called LUPUS Please dont give up!!!!!!
classicitaly 2 years ago 7
@classicitaly WOW THIS IS SO COOL TO KNOW I HAVE LUPUS AND THERE SO MANY LIKE ME
mylifemyartmylove 1 year ago
what song is this?
magiknight41 2 years ago
Thank you.
From all of us that live in the shadow of the "wolf".
elcie0 2 years ago
i was diagnosed in 2006 aged 25... we just need to be strong and make people more aware and FIND A CURE!!!!
fionna81 2 years ago
this video was awesome i am only 13 and i have uncontrolled lupus and i ahte the rashes i get thank you fro caring about all of us fighting lupus
ising4me 2 years ago
i thought the video was beautiful. it made me a little teary eyed. the song fits perfect for lupus. i love that song and often think of it as my secret theme song. i was 15 when i was diagnosed and im now 17. lifes been tuff, more than tuff at times, but i've learned that no matter how much i suffer there are others out there and i'm not alone, and that helps me get thru. though ive never met anyone else with lupus, id like to talk with someone about there times with it.
theviolethour1 2 years ago 2
Thank you for this... I have SLE and my life has dramatically changed over this past year - in many negative ways, of course. This is beautiful - it made me teary-eyed & a bit sad, but also encouraged to keep going.
RavenBettyBlue 3 years ago
I second this....I have had Lupus for almost 9 years now....we all need a little encouragement sometimes!
janellegua 2 years ago
lovelyjessie79 3 years ago
It's an autoimmune disease,that attacks the immune system. Complications include arthritis(inflammation of the joints),organ involvement,hair loss,and a characteristic skin rash called a mallar or butterfly rash(which,covers the bridge of the nose,and cheeks)
There's no cure for this yet
mrssmithjr 3 years ago
I was diagnosed with Lupus and sjogren's syndrome 2 yrs ago.
I started getting sick back in 2000/2001.
It was a hard thing to go through,going to countless doctors,and having doctors looking at me like a hypochondriac. I finally found a doctor who listened to me,and found out what was wrong. Lupus sucks,but I am a strong woman
mrssmithjr 3 years ago
can i ask what it is
like what happnes to the body
SIhope87 3 years ago
Hola a todos Mariposas, yo lo tengo desde abril del 2007 a los 24 años de edad, sufri mucho y es que demasiado pero he sabidoencontrar fortaleza y aunque a veces me siento que voy a morir trato de vivir con el dia a dia y no pensar en esto que me hace sufrir sigo con todos mis tratamientos y por ellos me siento mejor. apoyemonos es la unica forma de volar mariposas!!!!
evely23 3 years ago
I've been diagnosed in 2003 and now with 19 it is still difficult to cope with it...
thammychan 3 years ago
i was 15 when i got diagnosed with lupus,
i'm from another country so i can speak english a litle,,i have stretchmark everywher
,i hate it..coz lupus i entered homeschooling,
i'm hopeless now
aquwn 3 years ago 5
Never lose hope. Always stay strong.
dawnkytty 3 years ago 4
i have lupus too, this video is keeping us strong and inspire us to live in a positive way....hope each day
bluemartian1485 3 years ago
haha, thanks brianna! I appreciate that a lot! any advice on whether or not I should tell my friends about it?
bandie2themax 3 years ago
I understand what your trying to do with the video. But honestly the title offended me. Greatly. I've been dealing with Lupus and JRA for 8 years. And I've found nothing 'beautiful' about it.
DigitalWish 3 years ago
I know there's nothing "beautiful" about it. I've my bad days, as we all, too. The beautiful thing about is this is the fact that dawnkytty made this video for her friend Mica and for us all. I don't feel offended. I'm only thankful that someone can feel the love for her friend and shows empathy and made the effort to spread awareness for Lupus this way.
AdrianaJosina 3 years ago
hey my names amanda and last month i was diagnosed with lupus but i havnt gotten the butterfly rash yet... my mom has lupus too so i guess its genetic but im really scared is there something i can do. im alwas tired and my jonts in my hands hurt alot. please tell me whats going on cause my mom doesnt like to talk about it but i need answers.
xxamandalynnsayssX 3 years ago
Hi I have had Lupus for about 10 years now and it is not neccessarily true that you will get the butterfly rash becuause I never did but I did get large lesions on my arms and cheeks when I was in the sun. Very photosensitive to light. Just get a R/A dr and you will be very tired. Get your vitamin D levels checked also that helps with the fatigue but just take it easy and if you ever want to chat I am here. ~ Angela
novembrain 3 years ago
no one in my family does, i guess im the first.
thiebvan 2 years ago
That is soo beautiful i recently got diagnosed with lupus ( i being sounternman's partner) best luck and wish's to everybody with lupus xoxo
Southernman26 3 years ago
This video helps keep us strong.taking one day at a time.thinking and living positive helps to.
bakingisfun 3 years ago
I was recently diagnosed with Juvenile Rheumatoid Arthritis (I'm 14) and even though this is about lupus, it really has a lot of similarities with JRA, atleast with emotions. I really enjoyed watching this video, and it made me smile. I appreciate it a lot. Keep fighting; stay strong.
bandie2themax 3 years ago
Bandie, I was 15 when I was almost diagnosed with JRA and when they did blood work and more testing, they saw that it was Lupus. I know it's very similar. It all sucks, but we can make it not suck :oP
briannaluv2 3 years ago
wow. The doctors did more testing and realized that I have BOTH jra and lupus. wow. I'm kind of still in shock.
bandie2themax 3 years ago
Oh man, I'm so sorry. Just remember that stress plays a BIG role. So try to be as optimistic as you can so that you can kick their butt! :oP
briannaluv2 3 years ago
thanks for posting this up!
heroesfann 3 years ago
my mom was diagnosed with lupus at age 11. it was very rare back then and they couldn't treat her as good a they could now. she left behind two daughters, a son and a husband. she died 10 minutes after i was born.
heroesfann 3 years ago
I cried. I was diagnosed with Systemic Lupus 9monhts ago. I was sick for a year before and had heart sugery before I was diagnosed. I went through depression cause of it. No I am accepting it however there are days I am so much pain I dont want to get of bed and even if I wanted to, its impossible. Everyday is fight.
"STAND WHEN ALL YOU WANT TO DO IS LAY DOWN AND GIVE UP. FIGHT" Is great advice canadianmuslimnproud.
lucylovingmusic 3 years ago
do you have stretch mark cause prednisone ?
aquwn 3 years ago
aquwn, I have them because of prednisone. I also got a dead bone bonus, haha.
briannaluv2 3 years ago
I got dx at age 22...almost died and now I am 32 and was able to get pregnante before getting dx thank GOD! My kitchen looks like a pharmacy, I dont have an option then to take my meds! Until someone finds a cure!
Liladeloslasitos 3 years ago
Thanks!!! We're not alone!!
mariarenepy 3 years ago
I was diagnosed with discoid lupus and systemic lupus when I was 18 there have been times when I couldn't even get out of bed as the pain was so bad - 10 years ago the Dr's said I would be on medication for life but here I am now taking no medication at all and feel great -think positive thoughts and do not give in to it...lovely video
wendyhilton 3 years ago
what did you do to not be on any medication?
brittany51791 2 years ago
fresh air exercise positive thinking and try to have a laugh-I look around me and think things could be worse. I am back on plaquenil but that is all, chin up Brittany
wendyhilton3 2 years ago
Thank you.....this video makes me feel amazing and invincible even on the worst days! Take care
Ninawho7987 3 years ago
IL CONFIDANTE NE TAE ILLEGITIMATE
scopeophile 3 years ago
Amazing! I was diagnosed with Lupus in May of 07 and this video is beautiful! Thank you!
dickschick 3 years ago
Its never lupus.
distepheno 3 years ago
i am 14 years old. I was diagnosed febuary 27th 2006. I was 12 at the time. I went through 7 months of chemo. after spending 6 months on pred 60mg! and i.v steroids also.I found it soo hard.No1 knows what we go through.Everyone who has it leave a message on my page i am going to make a video.We could all make a page about lupus and each of us write about our experiences! i h8 it. It realy has runind my life. But i am a fighter and i have come this far. everyone u r not alone. XxX
xshexyxox 3 years ago
I understand Peteysofine. I have sle with antiphospholipid syndrome. I had dvt and pe in 2001 with it and am now in a flare also. I was on long-term prednisone. Evil stuff. Keep your head up, you're not alone and if you ever need someone, I'm here :-)
SunshineBox 3 years ago
I have Systemic Lupus. I rode through the chemo treatments for a few years and the solu medrol in 1,000 mgs i.v. once per month for years. I'm back in a flare and needing to reach out to others with lupus. The music inspires me. I get so angry that people aren't informed enough about what we go through. I dream of a day when it's common knowledge. That way, people don't attack me when I park with my handicapp placard in a handicapp space anymore..
PETEYSOFINE 3 years ago
i have lupus as well .. i have it my lungs, brain, and intestines. i also got bloodclots from it.
muddystingy 4 years ago
I've had 4 pulmonary emboli and an aracna hemorage in my brain, and am on my second round with the kidney battle, they told me recently my heart is enlarged now ,as is my liver.That's o.k. because I AM STRONGER THAN LUPUS!!!I was diagnosed 7 years ago,and I'm still here.My husband was diagnosed 16 years ago and he's also still here.Listen to your body and get a Dr. that believes you when you hurt, even with no reason, do the DAMN BAD treatments and you'll survive too.Scream to be heard!!!I DID!!
canadianmuslimnproud 3 years ago
AND THE MOST IMPORTANT THING I CAN SAY IS LAUGH WHEN ALL YOU WANT TO DO IS SCREAM. STAND WHEN ALL YOU WANT TO DO IS LAY DOWN AND GIVE UP. FIGHT , BECAUSE THE OTHER OPTION IS NOT ACEPTALBE!!! I have 3 beautiful children and they have 2 parents with Lupus , I can NEVER give up . What kind of example would we be to them, because they'll probly have Lupus,too. WE FIGHT DAILY FOR THEM.
canadianmuslimnproud 3 years ago
Thanks for this video. =)I know what it's like to have Lupus as well. I just finished my last Chemo treatment yesterday. I have SLE lupus and it did get to my kidneys because i had a doctor that did not listen to me. But I went to a new place and I couldn't ask for better treatment.
TheAwesomeAussie 4 years ago