Just watching the video, I was having problems with the flourescent light, but not the incandescent or the black light. When you put the towel over the flourescent light, my face muscles stopped twiching as badly.
have you noticed anything to stops these things from affecting you? If it is caused by a particular nerve could you wear something to block these things from effecting you?
@deadline27 - my facial nerve was damaged by an attack of the herpes virus and healed incorrectly. We know this because when I eat something now, my right eye tears up...the salivary gland is now connected to the tear duct, which are both controlled by that nerve. I am not claiming that all dystonia patient's spasms are a reaction to electrical energy...I have a friend with cervical dystonia and his condition is the same everywhere, but mine changes dramatically from place to place.
@drotheill - the simple answer to that is "yes". As I mover farther away from something that is affecting me, the reaction lessens and eventually stops at some distance. It is pretty amazing the distance at which something like a vacuum cleaner affects me, several hundred feet in some cases. But if the fluorescent lights in a store bother me, simply going outside the store usually solves that problem.
Tom what about talking on the phone or being close to and electronic device, my mom was recently diagnosed with Meige's Syndrome, talking on the cell phone causes her major facial spasms, she is been being treated with botox just to control it a little bit, but things are getting worse... I'm looking forward to hear from you, thanks. Leo
Tom, thanks for these insightful experiments. They are very instructive as to the causes of dystonia activation -- I'm not sure I'm using the right terminology, but you are providing insight that traditional medicine would almost certainly ignore. It is apparent that energy fields and frequencies are inducing your symptoms, which leads me to believe that a correction of the dis-ease must be somehow possible. You've shown light, sound, and etherial sources; I encourage you to explore colors.
This is absolutely bullshit. It can't be the bloody light because you've just proven that even though you block the radition from the light. So HOW the FUCk does this work. It makes no sense, anyone with a highschool physics education will understand this.
Well at least you got the point I was trying to make, which is that it isn't the visible light that is causing the problem. These lights affect my face when they are on the other side of a wall from me! We've tested, believe me!
It is well known in industry that fluorescent lighting systems can and do interfere with nearby electronic equipment. These particular lights aren't even grounded (they have 2-prong plugs). Since I have a damaged 7th cranial nerve, the energy affects me.
@tomspasm SO WHAT THE FUCK IS? Nothing in the visible spectrum affects you? Good it shouldn't, if it did, you'd be getting spasms from any source of presumably white light since all white light is is a combined spectrum of all the other wavelengths. This is a hoax and stop pretending that the light is the cause of it. This is scientifically flawed.
What I was trying to demonstrate is that the fluorescent and ultraviolet light fixtures cause involuntary facial spasms, but that it isn't the visible light that causes the reaction, it is other non-visible frequencies emanating from the ballasts of the ungrounded fluorescent light and ungrounded ultraviolet light that cause the spasms.
So I'm not "pretending" that white light or any visible frequency causes the spasms. No incandescent light bulb has ever caused me to have a spasm.
@tomspasm What non-visibly frequencies? State exactly what frequencies. It makes absolutely no sense that thin plastics can shield you from UV rays and higher frequencies but a huge towel does not. It makes no sense, If you're talking about radio waves you'd be getting spasms all over the place since we're always exposed to it. If you're talking about microwaves it means that every mobile or wireless router waves you are exposed to will cause these spasms.
@tomspasm Your entire premise is wrong. Your entire understanding of radiation is wrong. No light waves can affect your nervous system it makes no sense, because if it did it will mess everyones else. If this isn't fake which i strongly suggest it is, than it is a form of psychological illness that you have.
The treatment of choice is Botox injected into the muscles that spasm. Various medications are tried in an effort to reduce the spasms, but often the side effects are worse than the help they give. Deep Brain Stimulation (DBS) is considered if other treatments are not effective and the quality of life is sufficiently poor. Sometimes DBS is almost miraculous in effectiveness, other times it creates more problems than it solves, so it is a last resort treatment at this point.
Even better...I worked in a 6 story office building where a fluorescent light in an office on the 1st floor would shut my eyes down while I was in my office on the 3rd floor. Management refused my request to call an electrician until I had the building office manager stay in the 1st floor office and turn the light on and off intermittently while she was on the phone with me. I told her when my eyes were open or closed and she was stunned that I reacted every time to whatever she did.
My Mom has lived with distonia for 3.5 years. She has cervical distonia. She has spasams throughout her whole body. She has adapted to it but it is still hard for her. We still lover her the same! I just learned something I did not know! Thank you and I hope you get better!! Have you thought about deep brain stimulation?? That may be an option for u like my mom.
I continue to drive because I've never run into a situation where I couldn't open my eyes. Many Blepharospasm patients give up driving because their eyes will suddenly shut w/no ability to open them short of pushing the lid up with a finger.
My condition changes dramatically from place to place and some locations are always much worse than others. Things change from day to day also, same route 1 day might be fine, then major problems the next day.
Tom, best of luck to you, and your videos are very educational. I find it very interesting that you have researched your own cause and decided to use it to exemplify the effects of energy frecuency on the disorder. Thanks for posting!
Good questions. I rarely get tongue spasms, and I don't have any throat/larynx problems, but other patients do.
A "sound", in and of itself, does not cause any spasms, i.e. I've never reacted to any sound coming off my stereo, tv, i-pod, etc. But things with electric motors that make sound, i.e. vacuums, blenders, power saws, etc. all cause spasms.
Hydraulic equipment is the only non-electrical thing I can think of, and I don't understand enough about that equipment to guess why.
Is it always your right eye that contracts tighter, or if the light was on your left, would those muscles contract tighter? In other words, does the location of the light change the muscles that contract? Best of luck to you. Thanks for teaching us about your condition.
Good question. In general, the right eye is much more problematic than the left, so moving the light to my left side wouldn't cause the left to close and the right to open.
I do have plenty of experiences with power lines where my mouth pulls in the direction of the line, i.e. if the line is on my right the right side of my mouth/jaw pulls that way, but if I turn 180 degrees so it is on my left, then the left side pulls towards it.
It is very rare for my left eye to close w/my right open.
I think this stems back to the problem with varying frequencies. A fluorescent light usually generates a 120Hz hum. Which would explain why the light generated by the bulb has no effect.
i was just wondering does spasm usually contracts the muscle continuously?? because when you put the towel to show us that it was not induced by the light your right eye was open back to normal at 1:09 and then it shot down again...
You picked up on an interesting phenomenon, which is if I really need to see something momentarily, the eye will open back up briefly. The best example I could give would be that my eye could be closed constantly for 10 minutes, but if I take my keys and try to put one in a keyhole, the eye opens up and allows me to get the key in before immediately shutting back down. That's a pretty typical experience for people with eye spasms, somehow the brain overrides the msucle problem momentarily.
Initially, when 1 of your muscles spasms consistently, there is soreness involved. They eventually get stronger, and it becomes less of an issue. There isn't much pain typically associated with the facial spasms unless they are severe.
That is in contrast to the neck and shoulder spasms I get, those are painful regardless of how often I get them.
I get a lot of leg/feet spasms as well, but again those aren't too painful unless severe. My calves look like I run marathons!
Very perceptive of you. My 7th cranial nerve was damaged by an attack of the herpes virus and healed improperly, wires got crossed (when I eat something, my right eye tears up - both salivary gland and tear duct are controlled by that nerve and are now connected) and there are probably some loose wires.
I was working in an office building when it started where we identified fluorescent lights 2 floors below me that would shut my eyes down.
No c-phone or radio probs that I know of, thankfully.
Quite interesting. I wonder what the physical explanation of this is....So what is the range in which the fluorescent lights affect you? If you stand 5 m from the light does it still affect you? What if you are in another room?
Could it be that certain electro-magnetic frequencies (e.g UV light) somehow affect your cranial nerves?
Have you ever had this problem with X-ray machines, or Infrared , microwaves, radio station antennas?
Just watching the video, I was having problems with the flourescent light, but not the incandescent or the black light. When you put the towel over the flourescent light, my face muscles stopped twiching as badly.
beck7422 3 weeks ago
have you noticed anything to stops these things from affecting you? If it is caused by a particular nerve could you wear something to block these things from effecting you?
drotheill 1 year ago
@deadline27 I'm sad to hear that you have it. My goal in life is to be a doctor.(I'm only 12).
harrygeme10 1 year ago
fake ass. i have dystonia and it's nto caused by frequencies. it has to do with the facial nerve.
deadline27 1 year ago
@deadline27 - my facial nerve was damaged by an attack of the herpes virus and healed incorrectly. We know this because when I eat something now, my right eye tears up...the salivary gland is now connected to the tear duct, which are both controlled by that nerve. I am not claiming that all dystonia patient's spasms are a reaction to electrical energy...I have a friend with cervical dystonia and his condition is the same everywhere, but mine changes dramatically from place to place.
tomspasm 1 year ago
@tomspasm HAHA HERPES???
JTF2Apocalypse 8 months ago
If you get closer to the light does it effect you more?
drotheill 1 year ago
@drotheill - the simple answer to that is "yes". As I mover farther away from something that is affecting me, the reaction lessens and eventually stops at some distance. It is pretty amazing the distance at which something like a vacuum cleaner affects me, several hundred feet in some cases. But if the fluorescent lights in a store bother me, simply going outside the store usually solves that problem.
tomspasm 1 year ago
Tom what about talking on the phone or being close to and electronic device, my mom was recently diagnosed with Meige's Syndrome, talking on the cell phone causes her major facial spasms, she is been being treated with botox just to control it a little bit, but things are getting worse... I'm looking forward to hear from you, thanks. Leo
leocubillos 1 year ago
Tom, thanks for these insightful experiments. They are very instructive as to the causes of dystonia activation -- I'm not sure I'm using the right terminology, but you are providing insight that traditional medicine would almost certainly ignore. It is apparent that energy fields and frequencies are inducing your symptoms, which leads me to believe that a correction of the dis-ease must be somehow possible. You've shown light, sound, and etherial sources; I encourage you to explore colors.
MetaSethical 1 year ago
This is absolutely bullshit. It can't be the bloody light because you've just proven that even though you block the radition from the light. So HOW the FUCk does this work. It makes no sense, anyone with a highschool physics education will understand this.
SmogFX 2 years ago
Well at least you got the point I was trying to make, which is that it isn't the visible light that is causing the problem. These lights affect my face when they are on the other side of a wall from me! We've tested, believe me!
It is well known in industry that fluorescent lighting systems can and do interfere with nearby electronic equipment. These particular lights aren't even grounded (they have 2-prong plugs). Since I have a damaged 7th cranial nerve, the energy affects me.
tomspasm 2 years ago
@tomspasm SO WHAT THE FUCK IS? Nothing in the visible spectrum affects you? Good it shouldn't, if it did, you'd be getting spasms from any source of presumably white light since all white light is is a combined spectrum of all the other wavelengths. This is a hoax and stop pretending that the light is the cause of it. This is scientifically flawed.
SmogFX 2 years ago
What I was trying to demonstrate is that the fluorescent and ultraviolet light fixtures cause involuntary facial spasms, but that it isn't the visible light that causes the reaction, it is other non-visible frequencies emanating from the ballasts of the ungrounded fluorescent light and ungrounded ultraviolet light that cause the spasms.
So I'm not "pretending" that white light or any visible frequency causes the spasms. No incandescent light bulb has ever caused me to have a spasm.
tomspasm 2 years ago
@tomspasm What non-visibly frequencies? State exactly what frequencies. It makes absolutely no sense that thin plastics can shield you from UV rays and higher frequencies but a huge towel does not. It makes no sense, If you're talking about radio waves you'd be getting spasms all over the place since we're always exposed to it. If you're talking about microwaves it means that every mobile or wireless router waves you are exposed to will cause these spasms.
SmogFX 2 years ago
@tomspasm Your entire premise is wrong. Your entire understanding of radiation is wrong. No light waves can affect your nervous system it makes no sense, because if it did it will mess everyones else. If this isn't fake which i strongly suggest it is, than it is a form of psychological illness that you have.
SmogFX 2 years ago
@SmogFX Calm the fuck down. Leave him alone!!!! *whines*
heatherr55655 1 year ago
@heatherr55655 You're late by 9 months. I don't like frauds. Also you're on the internet, it is fueled by flames.
SmogFX 1 year ago
@SmogFX I know :( but wow i like that. "fueled by flames", wonderfully said
heatherr55655 1 year ago
@SmogFX How do you know for sure that it is fake. You should approach your disagreements in a better manner.
JTF2Apocalypse 8 months ago
Is there any know cure for Dystonia? Or at least a treatment?
hisanta32 2 years ago
The treatment of choice is Botox injected into the muscles that spasm. Various medications are tried in an effort to reduce the spasms, but often the side effects are worse than the help they give. Deep Brain Stimulation (DBS) is considered if other treatments are not effective and the quality of life is sufficiently poor. Sometimes DBS is almost miraculous in effectiveness, other times it creates more problems than it solves, so it is a last resort treatment at this point.
tomspasm 2 years ago
You make learning fun
MrTomsmith89 2 years ago
Have you tried making a blindtest. like let some turn the lamps on and off behind a cardboard ??
NCN1970 2 years ago
Even better...I worked in a 6 story office building where a fluorescent light in an office on the 1st floor would shut my eyes down while I was in my office on the 3rd floor. Management refused my request to call an electrician until I had the building office manager stay in the 1st floor office and turn the light on and off intermittently while she was on the phone with me. I told her when my eyes were open or closed and she was stunned that I reacted every time to whatever she did.
tomspasm 2 years ago
good knowledge.. u are funny :)
krazychung 2 years ago
My Mom has lived with distonia for 3.5 years. She has cervical distonia. She has spasams throughout her whole body. She has adapted to it but it is still hard for her. We still lover her the same! I just learned something I did not know! Thank you and I hope you get better!! Have you thought about deep brain stimulation?? That may be an option for u like my mom.
Pupspillow 2 years ago
Comment removed
InconsiderateDouche 2 years ago
Hey Tom, Great Videos! Very informational. I was just wondering if you are able to drive a car, since I saw you said power lines can affect you.
Best wishes to you!
CUnit787 2 years ago
I continue to drive because I've never run into a situation where I couldn't open my eyes. Many Blepharospasm patients give up driving because their eyes will suddenly shut w/no ability to open them short of pushing the lid up with a finger.
My condition changes dramatically from place to place and some locations are always much worse than others. Things change from day to day also, same route 1 day might be fine, then major problems the next day.
I'm never the designated driver though!
tomspasm 2 years ago
Tom, best of luck to you, and your videos are very educational. I find it very interesting that you have researched your own cause and decided to use it to exemplify the effects of energy frecuency on the disorder. Thanks for posting!
Magicman53911 2 years ago
Good questions. I rarely get tongue spasms, and I don't have any throat/larynx problems, but other patients do.
A "sound", in and of itself, does not cause any spasms, i.e. I've never reacted to any sound coming off my stereo, tv, i-pod, etc. But things with electric motors that make sound, i.e. vacuums, blenders, power saws, etc. all cause spasms.
Hydraulic equipment is the only non-electrical thing I can think of, and I don't understand enough about that equipment to guess why.
tomspasm 2 years ago
Hey your a pretty kool dude Best luck to you.
WoWMedivh 2 years ago
Hi Tom,
Is it always your right eye that contracts tighter, or if the light was on your left, would those muscles contract tighter? In other words, does the location of the light change the muscles that contract? Best of luck to you. Thanks for teaching us about your condition.
macroorchidism 2 years ago
Good question. In general, the right eye is much more problematic than the left, so moving the light to my left side wouldn't cause the left to close and the right to open.
I do have plenty of experiences with power lines where my mouth pulls in the direction of the line, i.e. if the line is on my right the right side of my mouth/jaw pulls that way, but if I turn 180 degrees so it is on my left, then the left side pulls towards it.
It is very rare for my left eye to close w/my right open.
tomspasm 2 years ago
I think this stems back to the problem with varying frequencies. A fluorescent light usually generates a 120Hz hum. Which would explain why the light generated by the bulb has no effect.
phlegmstudent 2 years ago
i was just wondering does spasm usually contracts the muscle continuously?? because when you put the towel to show us that it was not induced by the light your right eye was open back to normal at 1:09 and then it shot down again...
karian22 2 years ago
You picked up on an interesting phenomenon, which is if I really need to see something momentarily, the eye will open back up briefly. The best example I could give would be that my eye could be closed constantly for 10 minutes, but if I take my keys and try to put one in a keyhole, the eye opens up and allows me to get the key in before immediately shutting back down. That's a pretty typical experience for people with eye spasms, somehow the brain overrides the msucle problem momentarily.
tomspasm 2 years ago
Poor guy
mccarronjr 2 years ago
Don't those spasms hurt your muscles after a while?
MuppetDesign 2 years ago
Initially, when 1 of your muscles spasms consistently, there is soreness involved. They eventually get stronger, and it becomes less of an issue. There isn't much pain typically associated with the facial spasms unless they are severe.
That is in contrast to the neck and shoulder spasms I get, those are painful regardless of how often I get them.
I get a lot of leg/feet spasms as well, but again those aren't too painful unless severe. My calves look like I run marathons!
tomspasm 2 years ago
Very perceptive of you. My 7th cranial nerve was damaged by an attack of the herpes virus and healed improperly, wires got crossed (when I eat something, my right eye tears up - both salivary gland and tear duct are controlled by that nerve and are now connected) and there are probably some loose wires.
I was working in an office building when it started where we identified fluorescent lights 2 floors below me that would shut my eyes down.
No c-phone or radio probs that I know of, thankfully.
tomspasm 2 years ago
Quite interesting. I wonder what the physical explanation of this is....So what is the range in which the fluorescent lights affect you? If you stand 5 m from the light does it still affect you? What if you are in another room?
Could it be that certain electro-magnetic frequencies (e.g UV light) somehow affect your cranial nerves?
Have you ever had this problem with X-ray machines, or Infrared , microwaves, radio station antennas?
TheUndiagnosed 2 years ago