@donaldduck230 Jacob is on med management now, Occupational Therapy, Behavioral Therapy and Speech Therapy. He still has his days, this isn't anything he will outgrow unfortuantely. I have educated myself more in the years that I started these videos. Caleb is showing early signs of mood disorder but being closely watched by our pediatrican, neurologist and neuropsychologist.
My son (11) has PDD-NOS. Long road of ups & downs same as in your video. we also went nowhere for years! Only real problems we last few years is @ school & 'their' ability to adapt. 4 schools later & finally got right one that keeps him busy @ breaktime & away from problems. Adopted discipline techniques @ home - Tony Attwood & ODD website by Chris somebody?. Wheat/Gluten free diet, kiniesiology, Live Blood Analysis thru Naturopath & then on vitamins, did social, friendship skills classes.
@Jenny46ify the issue now is getting the school to implement the program his neuropsychologist has. It is definately a battle with the schools and it shouldn't be, they get funding so why fight the parents? I'm discouraged a bit because I have a 15 year old son in the ASD spectrum too and the schooling issues get worse not better.
Thanks so much for posting.. I dont seem to have lot of people I connect to about our son diagnosis of PDD NOS and by watching these videos some how it lets me k now I am not alone:)
Honey don't blame yourself! They are beautiful children, you love them and they love you and all that matters is that! My son is being evaluated we think he may have aspergers he is different and has trouble with other children. I wish I knew you I would set up a play day for the kids. Do you have them in any program so they can interact with kids that have the same disabilities? I know it is hard but be strong that is all you can do. I will pray for you and your family.
I have autism and was nonverbal until I was 6, but I remember things from then (I have a photographic memory) and I understood what people were saying. Nobody ever did ABA/IBI, diets or any other curing method on me and I now teach children with "low-functioning" autism. This is inspiring: "Don't try to fix me, I'm not broken," People with autism have more going on inside than we know.
1-Your beautiful children look so normal and happy "they are happy". PDD nos is Not Autisme. Don't let anyone convince you that it is.
My son was diagnosed with PDD at 2 1/2 as he was not talking at all (He even lost the few words that he had lerned between 12 &18 mths). He too had exhibited the same thing as Aidan: lack of eye contact, repetitive behavior, ...We did speach therapy, occupational therapy and some ABA for about a year. He is now ahead of his pears, His vocabulary has expanded..
My boyfriend name is Andrew & My name is Kayla. We both have disabilities. I have Hemiplegia Cerebral Palsy & Andrew has Down Syndrome/Autism. Andrew always tell me he loves me each day of the school week. We are only 14 or 16 years old.
Love from Kayla Schwartz & I love you Andrew Hoffman
Hi: Im from Puerto Rico and our Island is 35 x 100 miles,in USA is 1 in 150, here is more closer (1 in 56) Our girl (7y tipic) was diag..on 2006,I also blame myself but now I see is the pharmaceutics that have a monopoly with the gover... Is a hard journey but if we not do it who will? We are the only ones who can doit with true love,I also not inmune my baby (2 y) and have an older might have Asperger and is diabetic type 1, hang in there, your video give me so much strengh, Gracias y cuidense
i think your wonderful parents with two wonderful boys and you shouln't care about what other people say, these clips are very educating and i think more people should watch them i personaly don't have any relatives with this disorder but read o lot about it and i think that you all should stop judging these kids and theyr parents cuz you don't even know what its like to have an autistic child ,god bless you and your family
Thanks for the beautiful videos. My 2 yr old son was just diagnosed with PDD NOS. He talks jargon and likes to line up things and then look at them out of the corner of his eyes. He started EI last month and is making some progress. Check out the video by storkbroker - my baby broth and I have autism. It gave me a lot of hope. Never give up!!
I loved this video! God bless these kids! Still I would like to know what kind of therapy or treatment they are getting.
I believe in God, whoever the religion is, and I do believe in praying and that's what I do everynight praying for my little one with autism. Don't lose faith, keep going!! My blessings and my love...
Great choice on waiting to immunize Caleb. When you talked about the Mercury, it is no wonder it is found autistic children. Immunizations have mercury in them.. Childrens bodies are not meant to have all that crap in them at one time. Lastly, you two cannot blame yourselves. You two are doing a fantastic job. Keep it up, Jacob, and Aiden will come around. They know you love them. God bless
My son has autism. He was diagnosed when he was 3. He was completely non-verbal, still in diapers and lacked any emotional attachment. Now 7 and being in "intensive, in-home therapy" for the better part of the past 4 years, he's almost on track for his age. He's in school full time, but his peer's still see "oddness" about him. I'm a determined father in the fact that he will "overcome" his autism.
I have a daughter who's 4. We chose to immunize at 2. She displays no signs of autism.
Your boys are beautiful. And you did a wonderful job on the video. I have watched many, now.. and yours struck very similar to the thoughts and feelings our family struggles with.
One thing to consider... Please don't feel as though you must blame yourself. Where blame relies on intent; you did not intend for this. You could not have known, (and really we still don't know) what has caused this 'epidemic'.
It just is, for you, and your boys just are! You go on from there...
Still very much on the fence with the immunization issue. I didn't have either of my kids immunized until this past sept. They are 2 and 4. Going thru diagnosis for my 4yo daughter and already seeing some signs in my son in the last 3 months. She has had many of her symptoms since around 18m..things coming to a head since the needles...so confused...
MommaJ my wife would tell you the same thing, educate yourself and if you are not comfortable vaccinating DONT. Our youngest son Caleb is 17 months old and still not vaccinated, he hasn't been sick once not even an ear infection. He is developmentally ahead of every single milestone and our son Aidan who is 3 1/2 now is developmentally the same as Caleb. If we could turn back time we would be a non vaccing family from the start.
We had already gotten my two eldest immunized on a "catch-up" schedule when I posted this last year. This past November 22 she received a Dx of PDD-NOS. Both kids met all dev. milestones on time or early. IT wasn't until she regressed with potty training at around 3 1/2 that I began to worry. Then the fall we got them the shots she started Kindergarten and they noted problems...all little oddities I had noticed before bu not given much thought to...
i have told the school that i believe that he may have a LD, or possibley be on the spectrum, but they just look at me crazy because he talks and looks at you and laughs, i know that there are children that can do all these things and still be on the spectrum, i am still on the journey of trying to find out what is wrong with him, and how to help him, or understand his ways better
i have tried to get doctors for 6 years to help me and notice that there has to be more to his problems then just being a little behind, he is still behind now, and is only at about kinder level and is in first grade
he recieved surgery in july to have tubes placed in his ears, and had his adenoids and tonsills removed., so i havnt given him any of the allergy meds since, and he has stopped wetting the bed, and it has calmed some of his behaviioral problems
i totally know what you mean, since my son was little and i expressed to the doctors that he wasnt meeting his milestones, they kept saying hes just a little slower he will catch up, and they kept giving him allergy meds, 3 different ones
Thank you! Yes they are, we just had another appointment with a 3rd neurologist and FINALLY got an official diagnosis for Jacob of Autism but with Aidan they are sticking to the PDD NOS but they are both getting bloodwork Monday and that may help.
wonderful video and a wonderful Boys! our son silas is 3 and a half and is in the process of being diagnosed..we are collecting videos to take with us to our next visit.
Based on labs for your boys, yes re vitamins, minerals, b-12, probiotics--gut/immune system, (candida/bacteria/STREP..can cause the rigid, ocd, tics, sameness) Are you seeing a DAN! doctor?
Okay I still have to see if a DAN doctor is in our area, not sure. I don't even know about expenses and all yet. This is the second neurologist and he was much bette than the first that blew me off as a bad parent. I'm not a medicine type person so I am scared about what they are going to give the boys. I have a friend that has children that are in the Autistic Spectrum and one that is bi-polar and honestly it doesn't seem like the meds work at all. Aidan is already Anemic, that is bad enough.
Your boys are beautiful! Thanks for sharing your video. Do not blame your autoimmune conditions. The hammer was the vaccines,,not either of you. Keep up the fight.
Thank you, but it does stick in the back of our mind somedays, especially on bad days. I personally think our children are being poisonded but that is just my 2cents.
You have beautiful children. I'm proud of you for making a decision not to immunize your youngest. Dr. Sears just recently published a new book called The Vaccine Book. In it he explains which vaccines are essential to a young infant and which can be postponed. If you haven't already done so, check out the following website:
w w w . generationrescue. org
Remove ALL spaces from the link shown above. It's not too late!
Thank you for the link and the respect for our decision. 10 years ago the thought never would of crossed my mind but now, I just couldn't live with myself if I put Caleb through it and he turned out the same. I love my babies but I'm not putting them through anything unneccesary ever again (if I can help it)
Thanks girl, I wish we lived right next to each other. Boy Troy and Eric would be in sooooo much trouble! You are the best Auntie in the world, and they know it :)
this is very touchy
siberianlv 1 year ago
@donaldduck230 Jacob is on med management now, Occupational Therapy, Behavioral Therapy and Speech Therapy. He still has his days, this isn't anything he will outgrow unfortuantely. I have educated myself more in the years that I started these videos. Caleb is showing early signs of mood disorder but being closely watched by our pediatrican, neurologist and neuropsychologist.
mom2fivemonkeys 1 year ago
My son (11) has PDD-NOS. Long road of ups & downs same as in your video. we also went nowhere for years! Only real problems we last few years is @ school & 'their' ability to adapt. 4 schools later & finally got right one that keeps him busy @ breaktime & away from problems. Adopted discipline techniques @ home - Tony Attwood & ODD website by Chris somebody?. Wheat/Gluten free diet, kiniesiology, Live Blood Analysis thru Naturopath & then on vitamins, did social, friendship skills classes.
Jenny46ify 1 year ago
@Jenny46ify the issue now is getting the school to implement the program his neuropsychologist has. It is definately a battle with the schools and it shouldn't be, they get funding so why fight the parents? I'm discouraged a bit because I have a 15 year old son in the ASD spectrum too and the schooling issues get worse not better.
mom2fivemonkeys 1 year ago
Thanks so much for posting.. I dont seem to have lot of people I connect to about our son diagnosis of PDD NOS and by watching these videos some how it lets me k now I am not alone:)
kevpatriot1000 1 year ago
Honey don't blame yourself! They are beautiful children, you love them and they love you and all that matters is that! My son is being evaluated we think he may have aspergers he is different and has trouble with other children. I wish I knew you I would set up a play day for the kids. Do you have them in any program so they can interact with kids that have the same disabilities? I know it is hard but be strong that is all you can do. I will pray for you and your family.
agfillion 1 year ago
I have autism and was nonverbal until I was 6, but I remember things from then (I have a photographic memory) and I understood what people were saying. Nobody ever did ABA/IBI, diets or any other curing method on me and I now teach children with "low-functioning" autism. This is inspiring: "Don't try to fix me, I'm not broken," People with autism have more going on inside than we know.
fredbobdotcom 2 years ago
1-Your beautiful children look so normal and happy "they are happy". PDD nos is Not Autisme. Don't let anyone convince you that it is.
My son was diagnosed with PDD at 2 1/2 as he was not talking at all (He even lost the few words that he had lerned between 12 &18 mths). He too had exhibited the same thing as Aidan: lack of eye contact, repetitive behavior, ...We did speach therapy, occupational therapy and some ABA for about a year. He is now ahead of his pears, His vocabulary has expanded..
archkikelyas 2 years ago
My boyfriend name is Andrew & My name is Kayla. We both have disabilities. I have Hemiplegia Cerebral Palsy & Andrew has Down Syndrome/Autism. Andrew always tell me he loves me each day of the school week. We are only 14 or 16 years old.
Love from Kayla Schwartz & I love you Andrew Hoffman
birds16ful 2 years ago
Hi: Im from Puerto Rico and our Island is 35 x 100 miles,in USA is 1 in 150, here is more closer (1 in 56) Our girl (7y tipic) was diag..on 2006,I also blame myself but now I see is the pharmaceutics that have a monopoly with the gover... Is a hard journey but if we not do it who will? We are the only ones who can doit with true love,I also not inmune my baby (2 y) and have an older might have Asperger and is diabetic type 1, hang in there, your video give me so much strengh, Gracias y cuidense
yanyayagigi 2 years ago
i think your wonderful parents with two wonderful boys and you shouln't care about what other people say, these clips are very educating and i think more people should watch them i personaly don't have any relatives with this disorder but read o lot about it and i think that you all should stop judging these kids and theyr parents cuz you don't even know what its like to have an autistic child ,god bless you and your family
crazymaryuk 2 years ago
Thanks for the beautiful videos. My 2 yr old son was just diagnosed with PDD NOS. He talks jargon and likes to line up things and then look at them out of the corner of his eyes. He started EI last month and is making some progress. Check out the video by storkbroker - my baby broth and I have autism. It gave me a lot of hope. Never give up!!
krissyqgirl 2 years ago
I loved this video! God bless these kids! Still I would like to know what kind of therapy or treatment they are getting.
I believe in God, whoever the religion is, and I do believe in praying and that's what I do everynight praying for my little one with autism. Don't lose faith, keep going!! My blessings and my love...
MsMarcethebest 2 years ago
Great choice on waiting to immunize Caleb. When you talked about the Mercury, it is no wonder it is found autistic children. Immunizations have mercury in them.. Childrens bodies are not meant to have all that crap in them at one time. Lastly, you two cannot blame yourselves. You two are doing a fantastic job. Keep it up, Jacob, and Aiden will come around. They know you love them. God bless
playinghockey28 2 years ago 2
My son has autism. He was diagnosed when he was 3. He was completely non-verbal, still in diapers and lacked any emotional attachment. Now 7 and being in "intensive, in-home therapy" for the better part of the past 4 years, he's almost on track for his age. He's in school full time, but his peer's still see "oddness" about him. I'm a determined father in the fact that he will "overcome" his autism.
I have a daughter who's 4. We chose to immunize at 2. She displays no signs of autism.
ileetoburrito 2 years ago
This is one of the most informative videos I've seen so far, great work. You can tell you love your boys keep it up.
gara1212 3 years ago 2
simply wonderful!..i did not know about the allergies and autoimmune thing..i have Severe allergies.
Danacrumb 3 years ago 3
Keep it up baby, two years ago we were misinformed now it is our duty to help educate. Good job on this video.
GIJOEUSAF 3 years ago 3
Your boys are beautiful. And you did a wonderful job on the video. I have watched many, now.. and yours struck very similar to the thoughts and feelings our family struggles with.
One thing to consider... Please don't feel as though you must blame yourself. Where blame relies on intent; you did not intend for this. You could not have known, (and really we still don't know) what has caused this 'epidemic'.
It just is, for you, and your boys just are! You go on from there...
schoolmom2007 3 years ago 8
So sad about the kids ignoring his attempt to play and introduce himself "Me jacob"
My son does this, too. We are never fully comfortable as a family around people who don't know much about autism.
drmaier 3 years ago 3
Still very much on the fence with the immunization issue. I didn't have either of my kids immunized until this past sept. They are 2 and 4. Going thru diagnosis for my 4yo daughter and already seeing some signs in my son in the last 3 months. She has had many of her symptoms since around 18m..things coming to a head since the needles...so confused...
MommmaJ 3 years ago 3
MommaJ my wife would tell you the same thing, educate yourself and if you are not comfortable vaccinating DONT. Our youngest son Caleb is 17 months old and still not vaccinated, he hasn't been sick once not even an ear infection. He is developmentally ahead of every single milestone and our son Aidan who is 3 1/2 now is developmentally the same as Caleb. If we could turn back time we would be a non vaccing family from the start.
GIJOEUSAF 3 years ago
We had already gotten my two eldest immunized on a "catch-up" schedule when I posted this last year. This past November 22 she received a Dx of PDD-NOS. Both kids met all dev. milestones on time or early. IT wasn't until she regressed with potty training at around 3 1/2 that I began to worry. Then the fall we got them the shots she started Kindergarten and they noted problems...all little oddities I had noticed before bu not given much thought to...
MommmaJ 2 years ago
i have told the school that i believe that he may have a LD, or possibley be on the spectrum, but they just look at me crazy because he talks and looks at you and laughs, i know that there are children that can do all these things and still be on the spectrum, i am still on the journey of trying to find out what is wrong with him, and how to help him, or understand his ways better
wendme 3 years ago 4
i have tried to get doctors for 6 years to help me and notice that there has to be more to his problems then just being a little behind, he is still behind now, and is only at about kinder level and is in first grade
wendme 3 years ago 3
he recieved surgery in july to have tubes placed in his ears, and had his adenoids and tonsills removed., so i havnt given him any of the allergy meds since, and he has stopped wetting the bed, and it has calmed some of his behaviioral problems
wendme 3 years ago 2
i totally know what you mean, since my son was little and i expressed to the doctors that he wasnt meeting his milestones, they kept saying hes just a little slower he will catch up, and they kept giving him allergy meds, 3 different ones
wendme 3 years ago
im 19 and im ganna be a counsler for a kid like this, this summer watching this vid has made me even more excited 2 meet him!
poogyz 3 years ago 4
I am glad you are excited, we need more people like you in this world. They are remarkable children, up and downs.
mom2fivemonkeys 3 years ago
wow ur boys are adorable....
poogyz 3 years ago
Thank you! Yes they are, we just had another appointment with a 3rd neurologist and FINALLY got an official diagnosis for Jacob of Autism but with Aidan they are sticking to the PDD NOS but they are both getting bloodwork Monday and that may help.
mom2fivemonkeys 3 years ago
wonderful video and a wonderful Boys! our son silas is 3 and a half and is in the process of being diagnosed..we are collecting videos to take with us to our next visit.
Danacrumb 3 years ago
Thank you, one thing I'm learning is the journey is long and hard but worth it.
mom2fivemonkeys 3 years ago
Are your boys receiving biomedical treatments? (ie diet, supplements, detoxification )
Teresa
redhead60707 3 years ago
Not yet, we are trying to buy Glueten free foods I want to talk to the doctor about the Chelation therapy. Are their supplements available?
mom2fivemonkeys 3 years ago
Based on labs for your boys, yes re vitamins, minerals, b-12, probiotics--gut/immune system, (candida/bacteria/STREP..can cause the rigid, ocd, tics, sameness) Are you seeing a DAN! doctor?
redhead60707 3 years ago
Okay I still have to see if a DAN doctor is in our area, not sure. I don't even know about expenses and all yet. This is the second neurologist and he was much bette than the first that blew me off as a bad parent. I'm not a medicine type person so I am scared about what they are going to give the boys. I have a friend that has children that are in the Autistic Spectrum and one that is bi-polar and honestly it doesn't seem like the meds work at all. Aidan is already Anemic, that is bad enough.
mom2fivemonkeys 3 years ago
best of luck-join some yahoo groups if you need some help/support
chelatingkids2, autismbiomedicaldiscussion
redhead60707 3 years ago
Your boys are beautiful! Thanks for sharing your video. Do not blame your autoimmune conditions. The hammer was the vaccines,,not either of you. Keep up the fight.
Teresa /redhead
redhead60707 3 years ago
Thank you, but it does stick in the back of our mind somedays, especially on bad days. I personally think our children are being poisonded but that is just my 2cents.
mom2fivemonkeys 3 years ago
You have beautiful children. I'm proud of you for making a decision not to immunize your youngest. Dr. Sears just recently published a new book called The Vaccine Book. In it he explains which vaccines are essential to a young infant and which can be postponed. If you haven't already done so, check out the following website:
w w w . generationrescue. org
Remove ALL spaces from the link shown above. It's not too late!
MrsDoGood 3 years ago 2
Thank you for the link and the respect for our decision. 10 years ago the thought never would of crossed my mind but now, I just couldn't live with myself if I put Caleb through it and he turned out the same. I love my babies but I'm not putting them through anything unneccesary ever again (if I can help it)
mom2fivemonkeys 3 years ago
Thanks girl, I wish we lived right next to each other. Boy Troy and Eric would be in sooooo much trouble! You are the best Auntie in the world, and they know it :)
mom2fivemonkeys 3 years ago
beautiful video! im proud to have those two little boys in my family, i just wish i could be closer to you all. i love you.
gaulsgurl1980 3 years ago 2