Hello i have TCS but lots of people stare at you, but i lived through a life were most people liked me for who i am, and ya it is embaressing but idk people are just so nice to me they probably just feel bad and im getting surgery to get everything fixed so im pretty happy :) but when girls look at me and say eww and shit i just wana die... But some girls are really nice.
Hi I'm 18 yrs old and I have Treacher Collins Syndrome. I inherited it from my birth mother. I just want to let you know that you can die from this disease. I'm actually lucky to be alive. I don't know the medical terms but I was born 3 weeks early, because the doctors didn't think I would make it. they had to do emergency surgry on me. I had a feeding tube, a trach, and some other stuff. Every one is pretty shocked that im still around.
@Megannerein I also can't have a child unless i take the testing. but if the test proves that the child will have TCS then the doctors will abort the child. I believe that an embro is still a human child that has feelings. And I just don't have the heart to do abortion. I believe abortion is a murder but thats my point of view. Sorry if I offended anyone.
i am pregnant and the father has treacher collins syndrome, the 12 week ultrasound looked ok, we are getting further testing done and we are hoping for the best
Yes thankfully, she was born on October 24th, 2010, and had no visable symptoms of Treacher Collins Syndrome, we had genetic testing done for her and she is free of the affected gene! We are all very happy, and she couldn't be a sweeter little girl :) Thank you for asking
"From an INFECTED parent"???? I hope you meant to say "from an AFFECTED parent". TCS is not a contagious disease... it's a congenital, genetic syndrome.
The lady without the chin at around 3:20 reminds me of a woman without a chin I saw at the mall who was walking with a woman who had the same thing a while back.
I was wondering what made them that way. I guess it was this.
i have that TCS and I have a BAHA hearing aid and its way useful and I dont give a thing about what people think. Its their problem is they sees of who I am
My husband has TCS and he is able to live a normal life in fact he is in the Marines we also have 2 daughters together our older daughter doesnt have it but our younger one does. they can live happy and fulfilling lives. I feel sorry for those of you who cant see past whats on the outside of people and understand that they are human beings too.
It might not be my place to judge , but by ethical means if you know the high probability of passing on the disorder and have witnessed the proof of it after the birth of two of your children .. I just can't understand the reasoning behind creating another disadvantaged individual , personally I wouldn't want to take the risk of having children that start off with an unfair handicap in life or a physical shortcomming in a society wich is hard on even those whom are privileged.
Last year there were two kids on the bus I took that had something off with their features at first I didn't give it seccond thought but now that I learned about treacher collins I'm absolutely positive thats what they had , there were 3 of them , each of a different age , accompanied by their mother , and since on occasion I see them around near the bus stop I saw them with their father who obviously had the same genetic disorder..
That's right it's not a disease, it is a genetic mutation, which then becomes an autosominal dominant trait! Inheritence of this disorder once this mutation has occured is higher 50/50. The only thing more horrible in this world besides this affliction and many others, is the shocking ignorance, and torment afforded to the sufferers. Mankind needs to wake up to himself, and count every blessing he has. PPl with this condition are still human, and still deserve love, Try walking a mile in t shoes
By the way not a disease this is gene mutation and is not contagious just wondering if this is a severe case of TCS? because to my understanding it was only certain part of the face not all of it.
Hey this is not a disease, I should no I have it and I didnt catch it from anyone. There may not be a cure for TCS but there are plenty operations you can have to build up the facial features as well as others operations.
Hi-i, I have TCS. I just ran across the video, and I think it's great that you all are putting this out there and letting people know that there is a name to this thing.
My TCS is a very mild case, but you can still detect it's presence. =]
Hello i have TCS but lots of people stare at you, but i lived through a life were most people liked me for who i am, and ya it is embaressing but idk people are just so nice to me they probably just feel bad and im getting surgery to get everything fixed so im pretty happy :) but when girls look at me and say eww and shit i just wana die... But some girls are really nice.
skatebord2oo 5 months ago
im glad somebody put an explanatory video on tcs. thank you. people are super ignorant and i wish that i could show the whole word this
alishachapman1 1 year ago
i hope i dont have nitemares.
nasaffakedit 1 year ago
Hi I'm 18 yrs old and I have Treacher Collins Syndrome. I inherited it from my birth mother. I just want to let you know that you can die from this disease. I'm actually lucky to be alive. I don't know the medical terms but I was born 3 weeks early, because the doctors didn't think I would make it. they had to do emergency surgry on me. I had a feeding tube, a trach, and some other stuff. Every one is pretty shocked that im still around.
Megannerein 1 year ago
@Megannerein I also can't have a child unless i take the testing. but if the test proves that the child will have TCS then the doctors will abort the child. I believe that an embro is still a human child that has feelings. And I just don't have the heart to do abortion. I believe abortion is a murder but thats my point of view. Sorry if I offended anyone.
Megannerein 1 year ago
i am pregnant and the father has treacher collins syndrome, the 12 week ultrasound looked ok, we are getting further testing done and we are hoping for the best
alsnbrt 1 year ago
@alsnbrt is everything alright with this baby?
awashedupsterotype 11 months ago
@awashedupsterotype
Yes thankfully, she was born on October 24th, 2010, and had no visable symptoms of Treacher Collins Syndrome, we had genetic testing done for her and she is free of the affected gene! We are all very happy, and she couldn't be a sweeter little girl :) Thank you for asking
alsnbrt 11 months ago
@alsnbrt Omg Im glad. and so happy for you. <33 I wish her peace throughout her whole life <33
awashedupsterotype 11 months ago
This has been flagged as spam show
Juliana Wetmore died of a massive brain heammorhage at 2.13am 16th March 2010. RIP Juliana.
mjniggporchmonkey 1 year ago
"From an INFECTED parent"???? I hope you meant to say "from an AFFECTED parent". TCS is not a contagious disease... it's a congenital, genetic syndrome.
steppedonalego 2 years ago 2
The lady without the chin at around 3:20 reminds me of a woman without a chin I saw at the mall who was walking with a woman who had the same thing a while back.
I was wondering what made them that way. I guess it was this.
Tekkyh 2 years ago
i have that TCS and I have a BAHA hearing aid and its way useful and I dont give a thing about what people think. Its their problem is they sees of who I am
Alek08alien1 2 years ago 6
ur right people need to like ppl 4 who they r :)
kathleenjoaniscal 2 years ago 2
@Alek08alien1 Im glad im protected from you by a computer. :)
temptstress666 2 years ago
people judge me for how i look too... but i imagine it umust be worse for you (no offense lol)
cartercool90 2 years ago
These people who suffer from TCS get special hearing aids which look like free airliner headphones, fucking sweet
NornIronLegends 2 years ago
My husband has TCS and he is able to live a normal life in fact he is in the Marines we also have 2 daughters together our older daughter doesnt have it but our younger one does. they can live happy and fulfilling lives. I feel sorry for those of you who cant see past whats on the outside of people and understand that they are human beings too.
TikkiNippets 2 years ago 5
I ain't "those", but I bow you.
TheMayheem 2 years ago
my best friend have tcs too and she is deaf alway have beautiful inside than outside look
xsilentguy23x 2 years ago
This comment has received too many negative votes show
KILL IT WITH FIRE
nicknackolous 2 years ago
I don't think I could endure it to live if I had that
Thazot 2 years ago
Stop worrying about TCS, people and start getting freaked over gingervitis! The gingers are gonna kill us all! Aaaaaaaah!!!
Ukatanana 2 years ago
What a horrible horrible life that would be....unless they could be around NOONE but their family. Everyone else would be cruel.
XxLinkFookedZeldaxX 2 years ago
the 1:40 was really cute!!!
LOLgrlizkewl 2 years ago 3
how is that cute ?
MsHappyemo 2 years ago
Great job i just finished a project like this
GuMdRoPbUbBlEpOp01 2 years ago
i have tcs, a mild form of it. its a horrible thing id never wish on anybody. i coudnt imagine having a more severe case like some of these people
catchinbassburningas 2 years ago
This comment has received too many negative votes show
walking a mile in their shoes easy .walking a mile with those faces ?.hope u got vodka or no sex 4 u tonite
smej92 2 years ago
my 6 month old son was born with this.
AmnehS 3 years ago 4
Sad news.
MrReskyyy 2 years ago
It might not be my place to judge , but by ethical means if you know the high probability of passing on the disorder and have witnessed the proof of it after the birth of two of your children .. I just can't understand the reasoning behind creating another disadvantaged individual , personally I wouldn't want to take the risk of having children that start off with an unfair handicap in life or a physical shortcomming in a society wich is hard on even those whom are privileged.
wolfman19892 3 years ago
Last year there were two kids on the bus I took that had something off with their features at first I didn't give it seccond thought but now that I learned about treacher collins I'm absolutely positive thats what they had , there were 3 of them , each of a different age , accompanied by their mother , and since on occasion I see them around near the bus stop I saw them with their father who obviously had the same genetic disorder..
wolfman19892 3 years ago
That's right it's not a disease, it is a genetic mutation, which then becomes an autosominal dominant trait! Inheritence of this disorder once this mutation has occured is higher 50/50. The only thing more horrible in this world besides this affliction and many others, is the shocking ignorance, and torment afforded to the sufferers. Mankind needs to wake up to himself, and count every blessing he has. PPl with this condition are still human, and still deserve love, Try walking a mile in t shoes
Tigrisz4 3 years ago
By the way not a disease this is gene mutation and is not contagious just wondering if this is a severe case of TCS? because to my understanding it was only certain part of the face not all of it.
jo53z 3 years ago
Hey this is not a disease, I should no I have it and I didnt catch it from anyone. There may not be a cure for TCS but there are plenty operations you can have to build up the facial features as well as others operations.
ep1405 3 years ago 5
wonderful way to raise awareness-I have never heard of this disease it's quite sad-very informative video
Niar73 3 years ago 9
1:41 is cute!
burexasiromm 3 years ago 5
very informative, thanks for posting
ninnariaein 3 years ago 3
Hi,I deal with my TCS for 52 years. Everyday is new. Do not hold back these people let them grow to what they want to do!
Itnor what other people think about you[mean things] that is there problem, Live your own life and enjoy it!
Sorry for my spelling its the best I can do.
LOve you all, :)
tbertolacini 3 years ago 11
interesante
kevinlink3 3 years ago
i havee this .. but not badd
GabLovesHim 3 years ago
wow, thanks:D i have a bio project on this. you guys have everything i needed on the report.
wnelek 3 years ago
I love that little girl!!! she even has a website where you can post and read about her!!
i hope they can find a complete cure one day!
jkristina 3 years ago
This isn't a disease, there is no cure for birth defects that deal with dna
sinical10 3 years ago
I didnt say it was a disease. Cures exsist for other reasons. You are negative.
jkristina 3 years ago
Comment removed
TripsJJJ 3 years ago 3
wow very good video very interesting thanks!
jimmybrimmz 4 years ago
wow very good video very interesting thanks!
jimmybrimmz 4 years ago
Hi-i, I have TCS. I just ran across the video, and I think it's great that you all are putting this out there and letting people know that there is a name to this thing.
My TCS is a very mild case, but you can still detect it's presence. =]
raddHilary29 4 years ago 7
be brave!
honeyyyvicky 4 years ago
WOAH
zachsocool16 4 years ago