Part 2 - Susac's Syndrome, different from VS but with similarities.

[Mj1daisy]

I was just diagnosed with SS and it is a very frustrating thing because you are not sure what is going to happen. It's a day by day process. I have been taking vitamin D and aspirin for the last 2 years. I wish it would have helped more.

[VisualSnowSyndrome]

@Mj1daisy

I'm sorry to hear that. Hopefully it will go into remission eventually like it often does.

I encourage you to upload your story of Susac's syndrome and your path to diagnosis to youtube. There are not many videos about it here, this one from Mystery Diagnosis is the only one.

[tolenio]

Vitmain D is an immune system moderator. In vitamin D deficiency the immune system can run amuck. Vitamin D also modulates blood vessel stiffness.

[cmvmemo]

Ringing of the ears has absolutely nothing to do with anything outside of ourselves. In the particle universe everything is vibration. We are made up of particles that are vibrating. Our organs and glands vibrate at specific frequencies. The interaction between the Pituitary and Pineal glands is what causes tinnitus. It's like tuning your guitar. One string vibrates at a certain pitch. In order to tune the next string, you have to tighten the wave length to match the wave of the string before.

[cmvmemo]

Ask yourself this question: Why would an institution teach college students studying to become doctors that these symptoms are simply increased potential to become a Visionary? Of course she is freaked out! Her belief system doesn't allow her outside of the box way of thinking. When girls get pregnant they immediately become healthy. This means no substances, changes in diet and normal circadian rhythms! The docs will always tell you that it is a problem. It's how the secret is kept! Make sense?